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liver cancer forum cancer links - brainman? What is this ?

 
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idobelieveinfairies
Experienced user


Joined: 27 Feb 2008
Posts: 71
Location: Charlotte, North Carolina

PostPosted: Sun Aug 17, 2008 7:04 pm    Post subject: liver cancer forum cancer links - brainman? Reply with quote

It is a shame to delete the poster in the liver cance forum who posted information about a new trail for liver cancer. It may be another lifeline for my brother. Important information. Wish the forum could be monitored differently somehow. It is sad to delete a poster who may have useful information that may help or prolong my brothers life. I come to the computer every day in hopes that I will find something to cure him. Every day he wakes, he thanks God and then thinks is this going to be the day that he dies. Sad Surprised Mad Shocked Confused Crying or Very sad
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brainman
Site Admin


Joined: 13 Oct 2005
Posts: 5617
Location: Tennessee

PostPosted: Sun Aug 17, 2008 11:59 pm    Post subject: Re: liver cancer forum cancer links - brainman? Reply with quote

I understand what you are saying. However, I only deleted the link. Jessica is still a member. I did delete another member but only after emailing him/her asking that he/she not post links. He/she did anyhow. Is one month really that long to wait?
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Jim
Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
http://cancerforums.net/viewtopic.php?t=2405
My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029
Twitter: @JimHawkins54
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idobelieveinfairies
Experienced user


Joined: 27 Feb 2008
Posts: 71
Location: Charlotte, North Carolina

PostPosted: Mon Aug 18, 2008 7:25 am    Post subject: Re: liver cancer forum cancer links - brainman? Reply with quote

I understand the need to protect the forum. I am thankful to have a forum to refer to. However for people in desperate need of information 30 days seems like a lifetime. Not that it may change the outcome.
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brainman
Site Admin


Joined: 13 Oct 2005
Posts: 5617
Location: Tennessee

PostPosted: Mon Aug 18, 2008 7:46 am    Post subject: Re: liver cancer forum cancer links - brainman? Reply with quote

My heart DOES go out to you and I really DO care. This job is the hardest non paying job I can think of. I just try to make decisions "by the book." The "book" can always be edited. Thank you for your feedback.
_________________
Jim
Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
http://cancerforums.net/viewtopic.php?t=2405
My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029
Twitter: @JimHawkins54
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moxie
Regular


Joined: 28 Aug 2009
Posts: 21

PostPosted: Sun Aug 30, 2009 12:09 am    Post subject: Re: liver cancer forum cancer links - brainman? Reply with quote

Some of your decision are just ridicolous. Removing REAL useful links it's not only a shame, it's stupid. You removed 2 links to 2 instructional videos with ANY other purpose BUT showing how u can self diagnose a possible type of cancer i had myself....

Rolling Eyes Does that decision make any sense?

No need to answer, the answer is no.

---EDIT---

Re-reading the so called "no links policy" [url]http://cancerforums.net/viewtopic.php?t=12696[/url]

, i found out that my only fault is to not have an activated membership of no less than one month, which is all but a valid reason to remove 2 very very very good videos about the prevention of the same cancer i had.

Shame.
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ChemoMan
Moderator


Joined: 04 Jun 2008
Posts: 1067
Location: South Australia

PostPosted: Sun Aug 30, 2009 5:02 pm    Post subject: Re: liver cancer forum cancer links - brainman? Reply with quote

Hi Moxie

I found the videos simply by searching for Self exam testicular cancer. I would post the videos for you but I will leave that honor for you.

If you think about this logically it will become apparent that more people will see the videos by searching Google than finding your links on this website, so there is no reason for you to get upset. Come September the 28th you will be able to post them.

Good luck and stay calm. Wink
_________________
Age 52
Diffuse Large B cell Lymphoma
Stage 2a
Finished six cycles of R chop 21 26th May 2008
Officially in remission 9th July 2008
Remission confirmed 1st October 2008
Remission confirmed 17 June 2009
http://cancerforums.net/viewtopic.php?t=9620
RULE NUMBER 1.....Don't Panic
RULE NUMBER 2..... Don't forget Rule number 1
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brainman
Site Admin


Joined: 13 Oct 2005
Posts: 5617
Location: Tennessee

PostPosted: Mon Aug 31, 2009 1:17 am    Post subject: Re: liver cancer forum cancer links - brainman? Reply with quote

moxie, that policy HAS help minimize the occurrence of someone joining JUST in order to post links and spam. Sorry that we are not trusting... we have just had a lot of problems in this area. Bottom line, the policies have protected us but with a reasonable price. You can post those links after demonstrating that you are a serious member. One month and ten significant post is not too much to ask of anyone.

Sorry for any inconvenience.
_________________
Jim
Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
http://cancerforums.net/viewtopic.php?t=2405
My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029
Twitter: @JimHawkins54
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