Hello my name is Evrin

evrin · New User Joined: 27 Aug 2008 Posts: 3

Actually that is what my friends have named me until I beat my brain tumour, I have a oligodendrogiloma Grade 3.

Excuse the spelling if it is incorrect.

brainman · Posted: Thu Aug 28, 2008 8:57 am Post subject: Re: Hello my name is Evrin

Hi evrin. We will call you that also because here you are among friends Smile

.

I am very sorry about your cancer. If you read my story (links in my signature box), you will see that I was first diagnosed with a glioma grade II in 1992 but it recurred in 2005 as a grade III.

Your spelling is correct. Please, if you would like, share with us more of your story, questions, struggles...

You are in my thoughts and prayers.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/

evrin · New User Joined: 27 Aug 2008 Posts: 3

I am 35 yrs old, have not suffered with headaches, do not smoke and work in an office. I am of good health and have a wonderful partner and 2 yr old child. I have bought and renovated a farmhouse in central France, it is in a small hamlet which is totally self sufficient, including red wine........ and I have every intention to move there once my son has finished Uni and left the nest in Toulouse.

BUT, A SLIGHT MALFUNCTION HAS LED TO CHANGE OF PLANS.
I collapsed due to a brain haemorrhage at home on the 27 June 2008, whilst awaiting the arrival of the paramedics I suffered from a grande mal seizure.
Subsequently, I was transferred to a neurology hospital and placed in intensive care after MRIScans had been taken to establish my health status.

After 4 days in I.C. I was transferred to a lower grade I.C. ward and prepped for surgery.

At this point the Professor came to see me to explain he believed I had a brain tumour, which he believed would be an OLIGOASTROCYTOMA grade 4. It was of considerable size and situated in my right frontal lobe.

He explained this was a serious operation (that would take place within 24hrs) and that there was a significant risk to my life.

The operation took place the next day where the surgeon, after 5 and a half hours successfully removed 90% of the tumour, which was sent away for biopsy.

The results returned within 4 days stating that new prognosis was OLIGODENDROGILOMA Grade 3.

I was released from hospital within 10 days as my recovery had gone to plan.

I am now into my 1st period of treatment
I take KEPPRA 1,000mgs per day
I have 125mgs of TEMODAL X 7 days per week
I have radiotherapy 5 X per week.
This will last for 6 weeks in total.

Then I have 4 weeks 'recuperation'

Then I commence on 400mgs of TEMODAL X 5 days + 23 days recovery on a 6 month basis.

Has anyone else experienced this treatment, I have been informed (unofficially) that my median survival will be 3.5 - 5 years dependant on how the tumour responds to the chemotherapy.

I think this is a short time and I am not willing to leave this planet before meeting my grand childen which I expect means I need approximately another 25 years. Plus I have plans to retire to my farm in France after that so realistically I need another 35 years minimum to complete my journey.

I didn't invite this brain tumour to share my world, and I will damned make sure over the next 35yrs that it gets to understand that.

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