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leehatton
New User
Joined: 23 Sep 2008
Posts: 2
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 Posted: Wed Sep 24, 2008 3:35 pm Post subject: APL diagnosis |
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Hi All,
My girlfriend has just been diagnosed with APL (AML M3) and is about to start chemo (the AML-15 spanish method of treatment, if this means anything to you)
If anyone has been through this or has any info at all, please let me know.
Thanks
Lee |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 5985
Location: Tennessee
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leehatton
New User
Joined: 23 Sep 2008
Posts: 2
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| Posted: Thu Sep 25, 2008 3:32 pm Post subject: Re: APL diagnosis |
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Hi Jim, thanks for the relply.
From what I have read, APL is a sub-type of AML, so is also known at AML -M3. Other than that, im not to sure about the details of it. The low immune system would explain why she has been put in an isolation room etc.
If anyone else has any info, I would be most grateful to hear it.
Lee
(PS big thanks to kiwi24 for all the help and advise on the PM) |
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ashman
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Joined: 24 Nov 2008
Posts: 2
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| Posted: Mon Dec 01, 2008 12:33 pm Post subject: Re: APL diagnosis |
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i'm currently recovering from my second consolidation round for APL. i was diagnosed on July 28th and went through induction, which included a ~30 day stay in the hospital, followed by a few weeks of rest and then consolidation round #1. I was in the hospital about 8 days during this round and it took about 35-40 days for recovery. rest a few weeks and started consolidation round #2. spent about 6 days in the hospital for this round. it's been about 40 days and my wbc still hasn't recovered but is showing signs of life.
my induction chemo was 7 days of cyterabine and 3 treatments of idarubicin. consolidation 1 and 2 were 4 treatments of idarubicin.
i would suggest taking good notes of side effects and try to track her counts. tracking counts doesn't make much sense at first, but during subsequent treatments it will help you see patterns during recovery.
taking notes about side effects will also be valuable during subsequent treatments. i found myself repeating bad habits that i had forgot about during previous treatments.
any specific questions, please ask |
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brainman
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Location: Tennessee
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ashman
New User
Joined: 24 Nov 2008
Posts: 2
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| Posted: Tue Dec 02, 2008 9:23 am Post subject: Re: APL diagnosis |
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the hospital i was treated in had a special section for patients like me (neutrapenic). the room had special air filtration. i was allowed visitors but had to wear only a mask when visitors were there. i also had a infectious disease doctor that pumped me full of antibiotics to try and prevent any viral/fungal infections.
when released from the hospital, i was told to try and avoid large crowds, children, people with colds, and wear a mask when out and about. |
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) if a patient has that, that isolate that patient and make visitor gown up so that the visitors do not get the virus. My father had it when he died.