CindyT
New User
Joined: 23 Nov 2008
Posts: 1
Location: Riyadh, Saudi Arabia
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 Posted: Tue Dec 30, 2008 1:49 am Post subject: Newly Diagnosed |
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| Hi Everybody, firstly I want to tell everybody that I admire them. This is such a difficult thing to go through, and we are only just beginning. My fiance (age 51) and I live and work in Saudi Arabia, where we met 3yrs ago. He was in the process of changing jobs here, and had to go to Oz for routine medical tests 6wks ago, and that's when the floor fell out from under us. He had no symptoms and the tests seem to indicate an early diagnosis. Trying to get the proper medical care here is very difficult, and it took a month before we could even get a haemotologist. In the mean time, he has been getting what blood tests that he could get done here and emailing them back to Oz, then wait for a reply. Everything works here through who you know and what contacts they have, we were finally given a name of a Haemotologist here. The insurance company has turned down the coverage because of date of hire issues. Treatment is very expensive. My Fiance has to apply to the Govorner and/or the King in order to get into the only hospital, KFSH&RC, that can properly treat him and pay the costs. In the meantime, the Dr here has started him on a regime. He takes 40mg Dexmethosone daily for 4 days on/4days off, and has started his first round of IV Chemo which consists of Zometa 4mg, Vincristine 0.4mg, Doxorubicine 18mg. The Zometa is just the 1st day and the rest are for all 4 days. This he has to do once a month. This should go on for 6 months, when he can go to Oz for Stem Cell Donation. We have no idea what that all entails as I can't find any info about the donation, only the transfusion. If anyone can tell us, I'd be very grateful! We have to schedule our holiday time around it. |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 5617
Location: Tennessee
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| Posted: Thu Jan 01, 2009 10:52 am Post subject: Re: Newly Diagnosed |
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Cindy, I am very sorry about your fiance's MM. I know very little about MM so am not going to be able to answer your questions. My ex father-in-law did have MM. He lived 6 years after his diagnosis. He did not have stem cell transplant just some type or types of chemo. For my FIL the major problem was that his bones broke several times.
Although we do have a great site, the MM forum is not one of the most active ones. You might find help by posting your questions to an already existing topic. While we rarely encourage this due to the danger of "hijacking" someone else's topic, in this case it might be helpful.
You and your fiance are in my thoughts and prayers.
_________________
Jim
Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
http://cancerforums.net/viewtopic.php?t=2405
My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029
Twitter: @JimHawkins54 |
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