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carolskianne
Regular
Joined: 01 Jan 2009
Posts: 18
Location: UK
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 Posted: Thu Jan 01, 2009 12:32 pm Post subject: Body Talk? |
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Hello
I'm new to this forum so bear with me!
My lovely 61 year old sister has recently been diagnosed with inoperable NSC lung cancer; it has been a huge shock to us all but somehow we are determined to be there for her and support her in whatever way we can. She is just about to have her 4th session of Chemo and at the same time has been trying such things as Reikki and adopting as positive an outlook as possible. We have been amazed at how incredible she is and how strong she seems to be and coping pretty well considering. However, she has been also having some 'therepy' with a woman who is part of an organisation called 'Body talk' without going into too much detail, there are things that i find very odd and unhelpful about the whole thing and am deeply sucpicious as to how they treat pretty vulnerable patients. I wondered if there was any one out there who has come accross them and if so could either aggree with me or put my mind at rest.
Thanks C |
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ChemoMan
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Joined: 04 Jun 2008
Posts: 1548
Location: South Australia
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| Posted: Thu Jan 01, 2009 4:24 pm Post subject: Re: Body Talk? |
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Hi
It seems harmless enough. They do not claim fantastic cures for cancer, it seems to be more about helping the mind heal the body. The Ideas they present are unusual to say the least, I can understand your concerns, but as long as they don't advocate refusal of conventional treatment I can see no harm here.
Good luck and I hope things remain favorable.
_________________
Age 53
Diffuse Large B cell Lymphoma
Stage 2a
Finished six cycles of R chop 21 26th May 2008
Officially in remission 9th July 2008
Remission confirmed 1st October 2008
Remission confirmed 17 June 2009
http://cancerforums.net/viewtopic.php?t=9620
RULE NUMBER 1.....Don't Panic
RULE NUMBER 2..... NEVER GIVE UP
RULE NUMBER 3..... Don't forget the first 2 rules |
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pbj11
Site Admin
Joined: 12 May 2007
Posts: 2853
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| Posted: Thu Jan 01, 2009 5:05 pm Post subject: Re: Body Talk? |
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Hi,
Welcome and I guess we'll be seeing you in the lung cancer forum too. I'm so very sorry to hear about this diagnosis for your sister.
My husband utilized Reiki on occasion and visualization techniques too. If Chemoman scoped out this body talk business and said it was okay, go for it. He's a lot like me and seriously culls through the b.s. that's out there that they try to sucker people into. If it's costing gobs of money, I'd think twice though. There are so many out there preying on cancer patients with various things that you really have to be careful.
It's a lot about attitude --- it won't change the course of the disease, but it will make the journey more palatable -- if that's possible.
Good luck and God bless.
PBJ
_________________
Husband diagnosed with NSCLC Stage IV. (Non-Small Cell Lung Cancer) Fought & lived 2 1/2 years with multiple lines of treatment.
Post describing our battle: http://cancerforums.net/viewtopic.php?t=7026&postdays=0&postorder=asc&start=0 |
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carolskianne
Regular
Joined: 01 Jan 2009
Posts: 18
Location: UK
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| Posted: Fri Jan 02, 2009 4:04 am Post subject: Re: Body Talk? |
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| Thanks for the comments...i agree that if its helping her well that can only be good but it is quite costly and they have this knack of hooking you in by suggestion and alluding to stuff that needs to be dealt with in past lives...or even when you were very young and i always find that sort of thing 'bad practice' as lets face it anyone can allude to stuff that happened when you were too young to remember it and create all sorts of questions that maybe quite distructive. Forgive me but i really think this sort of 'so called treatment' is not as harmless as they would have you believe and at best is just a waste of money. |
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pbj11
Site Admin
Joined: 12 May 2007
Posts: 2853
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| Posted: Fri Jan 02, 2009 12:54 pm Post subject: Re: Body Talk? |
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Carol,
Omigosh!! I didn't research it, but it DOES sound pretty darn wacky! What the heck good is this for a cancer patient anyway? It's all about keeping up your spirits NOW --- not some crap about past lives. Sounds like a money-pit to me with a twist. Why muddy the waters with a bunch of nonsense?
I'd gently direct your sister into different areas that are more helpful, such as a support group for cancer patients. Let's deal with reality and the here and now! Goodness! I had no idea, so sorry for my last post. 
Heck, just go to a tarot card reader for all the good this b.s. does. 
Best of luck --- again!
PBJ
_________________
Husband diagnosed with NSCLC Stage IV. (Non-Small Cell Lung Cancer) Fought & lived 2 1/2 years with multiple lines of treatment.
Post describing our battle: http://cancerforums.net/viewtopic.php?t=7026&postdays=0&postorder=asc&start=0 |
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carolskianne
Regular
Joined: 01 Jan 2009
Posts: 18
Location: UK
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| Posted: Sat Jan 03, 2009 3:54 am Post subject: Re: Body Talk? |
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Thanks for that...suddenly realised that this forum is pretty international! I then went onto read your story..wow..what inspiration. Its so hard sometimes to make sense of it all and so many questions and also how to be and what to say. I suppose I've come to the place now where i just tell her how much i love her and we laugh about times past and talk also about things to come. (she doesnt share the same faith base as me but is clearly searching). My sister has inoperable NSCLC as it is in her lymphatic system and spots in her bones but they are considering (having given her 4 lots of Chemo which she finishes this week) in the new year giving her this tarceba? any info greatly appreciated. Thanks
Carole |
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pbj11
Site Admin
Joined: 12 May 2007
Posts: 2853
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| Posted: Sat Jan 03, 2009 9:08 am Post subject: Re: Body Talk? |
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Hi Carole,
It is a difficult position to be a family member/spouse/child of someone with cancer. I've always advocated taking the lead from the patient as how they wanted to deal with the diagnosis and journey. You give love, support, and be an advocate for them. If they want to talk about eventualities, then that's their prerogative. My husband never discussed that he wouldn't make it, even though we knew from the beginning he was incurable. Sounds like your sister is stage IV also with the bone mets. Do the best you can --- that's all anyone can really ask. The strength and courage of a cancer patient has always been amazing to me while I felt like a real weenie about eventually losing someone I loved so much. We tried to live as normally as possible and, believe it or not, there were many bright spots and new depths to our relationship that I never dreamed possible. I hope you find these on your journey with your sister too.
As for the Tarceva, my husband also tried this. It is considered a targeted treatment and works well for people with the EGFR mutation. Problem is, you don't know, unless they tested a tissue sample, whether the patient has this mutation or not. Sometimes it can shrink the cancer in amazing ways and other times it holds it stable, often for very long periods of time. I've known some people to be on it for over two years before it stopped working. It didn't work at all for my husband. A good tell-tale sign that it might be working is the famous rash they get about a week to 10 days from starting to take the drug. My husband had very little rash at all, so we kind of knew it was going nowhere. The rash can be pretty nasty, but there are medicines to help counter-act those side-effects.
Do let us know how things are going with the new treatment and feel free to ask ANY questions that come to mind. It's a whole new area of learning that most of us have never encountered before. Sounds like you are just the "right" kind of sister to help keep your own sister positive and upbeat.
God bless.
PBJ
_________________
Husband diagnosed with NSCLC Stage IV. (Non-Small Cell Lung Cancer) Fought & lived 2 1/2 years with multiple lines of treatment.
Post describing our battle: http://cancerforums.net/viewtopic.php?t=7026&postdays=0&postorder=asc&start=0 |
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carolskianne
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Joined: 01 Jan 2009
Posts: 18
Location: UK
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| Posted: Sat Jan 03, 2009 11:47 am Post subject: Re: Body Talk? |
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Hi PJB
I was so touched by your response to my post. It totally hit the spot and actually for some weeks now I've been burying my emotions as well as feeling guilty that i cant do more for her.
You see I have a husband who i have been a carer for for 27 years now with MS and heart desease and so i guess you could say that I've had lots of practice. He has been a great support too. Your lovely words were so what i needed to hear and also practical. Thank you so much for just being there and i know that i can run stuff by you should i need to. You are so so right when you talk about new depths to relationships and how during such trials there are many precious moments. we have had those and i pray we will have many more.
She has had her 5th chemo yesterday but her blood levels were low ( so she has to have a transfusion next week as she is feeling quite low and breathless.
She, like your husband, does not talk of the prognosis only that she is determined to be around when her first grandchild is born in April and to be there when our daughter gets married at the end of this year..such wonderful hopes to aim for eh?
She is a real fighter and always has been and i am filled with huge admiration for her amazing spirit.
God bless you too for your support accross the miles!
Carole |
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brainman
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carolskianne
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Joined: 01 Jan 2009
Posts: 18
Location: UK
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| Posted: Sun Jan 04, 2009 4:50 am Post subject: Re: Body Talk? |
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unfortunately it does both of those things..(if you read my post on the 2nd Jan)...
C
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ChemoMan
Moderator
Joined: 04 Jun 2008
Posts: 1548
Location: South Australia
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| Posted: Sun Jan 04, 2009 5:09 am Post subject: Re: Body Talk? |
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Hi
I checked out body talks au website and I see nothing that could be harmful. They make no miraculous claims and they don't even mention cancer on the website. They claim that improvements can be made in various illness's but offer no cures. They are very careful to stress that. It seems to be nothing more than a glorified bio feedback program.
I personally would not be interested in this type of thing, but others may be. As for the cost that is for the individual to make up their mind. As I said before I see no harm being done here.
Cheers 
_________________
Age 53
Diffuse Large B cell Lymphoma
Stage 2a
Finished six cycles of R chop 21 26th May 2008
Officially in remission 9th July 2008
Remission confirmed 1st October 2008
Remission confirmed 17 June 2009
http://cancerforums.net/viewtopic.php?t=9620
RULE NUMBER 1.....Don't Panic
RULE NUMBER 2..... NEVER GIVE UP
RULE NUMBER 3..... Don't forget the first 2 rules |
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carolskianne
Regular
Joined: 01 Jan 2009
Posts: 18
Location: UK
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| Posted: Sun Jan 04, 2009 3:42 pm Post subject: Re: Body Talk? |
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| Oh i wish it were as simple as that, and may i say with the greatest respect that you are being a trifle naive believing what it says just by reading what it says on the website... i assure you from what we have seen and my sister has experienced, this is not the case. I do feel that perhaps this is not the place to expose this though and so for that reason alone..i will say no more! |
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ChemoMan
Moderator
Joined: 04 Jun 2008
Posts: 1548
Location: South Australia
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| Posted: Mon Jan 05, 2009 1:56 am Post subject: Re: Body Talk? |
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Hi
people who know me know that I am the most cynical skeptic there is.. not something I am proud of by the way, its just the way I am. I did extensive research into this and I found nothing harmful, if you have information to the contrary then you should post it here as this IS the forum to discuss it. Like I said they do not endorse skipping traditional medicine and they also make no fantastic claims for their method other than it can help with healing and keeping healthy. The organization is not known as a cult and its websites do not have the warning signs that they are Quacks. As for being a wacky philosophy I could not agree more, but I think that Chiropractors are quacks as well so my opinion is probably biased.
The originator John Veltheim is a chiropractor, traditional acupuncturist, philosopher, and teacher so In my view has no real medical background. I accessed some PDF files advertising some seminars in the states and I found out his courses are $1000 a pop which I consider ridiculous and for these reasons alone I would not endorse this program however it is not illegal to charge money for courses and it is not illegal to profit from sick people, just ask the Roche family.
I hope all goes well with your sister, be there for her, let her know you care this will do more than any far out programs designed by someone with the gift of the gab who charges $1000 for dubious information. On the other hand if she really wants to do this and you object, you could be putting your sister under a lot of stress, something I am sure you don't want to do. Take care and all the best for the future.
_________________
Age 53
Diffuse Large B cell Lymphoma
Stage 2a
Finished six cycles of R chop 21 26th May 2008
Officially in remission 9th July 2008
Remission confirmed 1st October 2008
Remission confirmed 17 June 2009
http://cancerforums.net/viewtopic.php?t=9620
RULE NUMBER 1.....Don't Panic
RULE NUMBER 2..... NEVER GIVE UP
RULE NUMBER 3..... Don't forget the first 2 rules |
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pbj11
Site Admin
Joined: 12 May 2007
Posts: 2853
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| Posted: Mon Jan 05, 2009 8:02 am Post subject: Re: Body Talk? |
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Chemoman -- I KNOW you are one of the biggest skeptics here (with me a close second) so that's why I trusted your judgment on this issue in the first place! Reading what the original poster has left information-wise, leads me to think this is a bunch of hooey though and she doesn't want to see her sister fleeced. Just my take, not that I'm Oz the magnificent or anything.  I agree that more value will be found through traditional outlets such as family, support groups, etc.
_________________
Husband diagnosed with NSCLC Stage IV. (Non-Small Cell Lung Cancer) Fought & lived 2 1/2 years with multiple lines of treatment.
Post describing our battle: http://cancerforums.net/viewtopic.php?t=7026&postdays=0&postorder=asc&start=0 |
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ChemoMan
Moderator
Joined: 04 Jun 2008
Posts: 1548
Location: South Australia
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| Posted: Mon Jan 05, 2009 3:10 pm Post subject: Re: Body Talk? |
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Hi pbj11
Thanks for that. I would not touch this bodytalk mob with a ten foot pole, but I saw no evidence that they are snakeoil salesmen, they simply pass the tests. If anyone has concrete evidence to the contrary then I would love to hear it! Delving into the past is not a criminal act in my view, its just a bit strange, but I can also see how it could be perceived to be therapuetic after all that is what psychoanalysis was all about. Now I can also see how it could affect other family members negatively and I should have been mindful of that, but you live and learn hey!
Thanks for the encouragement your an angel!
_________________
Age 53
Diffuse Large B cell Lymphoma
Stage 2a
Finished six cycles of R chop 21 26th May 2008
Officially in remission 9th July 2008
Remission confirmed 1st October 2008
Remission confirmed 17 June 2009
http://cancerforums.net/viewtopic.php?t=9620
RULE NUMBER 1.....Don't Panic
RULE NUMBER 2..... NEVER GIVE UP
RULE NUMBER 3..... Don't forget the first 2 rules |
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