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HulaMom
Senior User
Joined: 06 Jan 2009
Posts: 206
Location: Makaha, Hi
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 Posted: Thu Jun 04, 2009 12:06 am Post subject: Re: HulaMom update |
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Started Gemzar today even though hemoglobin is back down to 8.4. Getting blood transfusion first thing in morning, then neupogin, 4 days of that. yuk! This Gemzar is hitting me earlier than the other chemos, either that or I am just more tired/nauseated than normal. We shall give it a few months, see if it shrinks this huge liver tumor. Don't think there are any other tricks up the oncs sleeves so this may be it. Gonna take it and run with it as far as I can!!!
_________________
47 YOA female. NSCLC IV Squamous cell. dx 7/07. Radiation, chemo (carboplatin/Taxotere). Cancer free 3/08! Cancer mets to liver 12/08. Started Tarceva 1/26/09-4/10/09, liver tumor tripled in size. Started Alimta. Down to 84 pounds! Stopped Alimta and started Gemzar on 5/2. Stopped chemo went into HospiceJuly 24 2009, with prognosis of 3, maybe 4 months left. |
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pbj11
Site Admin
Joined: 12 May 2007
Posts: 2403
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| Posted: Thu Jun 04, 2009 7:46 am Post subject: Re: HulaMom update |
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(((Hulamom)))
I'll be praying that Gemzar does something for this beastie.
I'm so sorry you have to do another line. Darn liver!!!! You are so brave and an inspiration to everyone. I recall that Gemzar hit my husband earlier than the other treatments on his second go-round with it, but you may be right that it is because of how many lines of treatment. Are you having fevers with it? This one caused a lot of fevers and huge night sweats for my husband.
As fast as the side-effects hit, they were also gone faster too. I'm sorry your counts are down -- that will add to the blah feeling.  Infusions are such a long affair. <sigh>
Have they tried Navelbine as a single agent? It is very easy on the system and worked to buy my husband more time too.
Prayers and hugs being sent your way.
PBJ
_________________
Husband diagnosed with NSCLC Stage IV. (Non-Small Cell Lung Cancer) Fought & lived 2 1/2 years with multiple lines of treatment.
Post describing our battle: http://cancerforums.net/viewtopic.php?t=7026&postdays=0&postorder=asc&start=0 |
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maryaz
Senior User
Joined: 11 Feb 2008
Posts: 282
Location: Arizona
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| Posted: Thu Jun 04, 2009 10:18 pm Post subject: Re: HulaMom update |
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HulaMom; I cannot add anything other than to tell you that I think of you and have you in my prayers daily. You are strong but this beast of a disease is a tough fight.
You have a great frame of mind. May God watch over you and bring some comfort to you at this time.
_________________
Mary
Husband is 67 year old Male
NSCLC - Squamous Cell Carcinoma
Chemo and Radiation Treatments together
Allergic reactions to Taxol and Taxotere.
The Story: http://www.cancerforums.net/about9079.html |
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UneasyRider
Regular
Joined: 21 Aug 2008
Posts: 40
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| Posted: Sat Jun 06, 2009 8:20 pm Post subject: Re: HulaMom update |
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Tracy, gemcitabine always hit me quickly, too, giving me a headache even before the IV was finished. But it's overall side effects weren't too bad. Good luck, I hope it works well for you!
Bud
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57 year old male in Texas diagnosed with Stage II NSCLC
Upper left lobectomy on December 20, 2007, then 3 rounds of adjuvant chemotherapy
July 2008 CT scan - NED
December 2008 CT scan - NED
June 2009 CT scan - NED
My story is in this thread: http://cancerforums.net/viewtopic.php?p=39609#39609 |
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HulaMom
Senior User
Joined: 06 Jan 2009
Posts: 206
Location: Makaha, Hi
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| Posted: Sun Jun 07, 2009 7:05 pm Post subject: Re: HulaMom update |
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Uneasy, I'm glad it wasn't too rough on you and this isn't as bad as the carboplatin/taxotere route at the beginning. But I am really exhausted, even after getting 2 units of blood. Nausea is under control (barely). Could be worse and if it were better, I'd worry that it wasn't working. LOL
_________________
47 YOA female. NSCLC IV Squamous cell. dx 7/07. Radiation, chemo (carboplatin/Taxotere). Cancer free 3/08! Cancer mets to liver 12/08. Started Tarceva 1/26/09-4/10/09, liver tumor tripled in size. Started Alimta. Down to 84 pounds! Stopped Alimta and started Gemzar on 5/2. Stopped chemo went into HospiceJuly 24 2009, with prognosis of 3, maybe 4 months left. |
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simplyklb
Senior User
Joined: 04 May 2008
Posts: 334
Location: Near Kansas City MO
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| Posted: Wed Jun 10, 2009 2:54 am Post subject: Re: HulaMom update |
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Tracy,
You are in my thoughts and prayers!
Kristi
_________________
Dad - Andy, 70, diagnosed with SCLC in May 2008
2/20/38 - 10/15/08 Fly high, Dad!
Mom - Jackie, 67, diagnosed with NSCLC in May 2008 |
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HulaMom
Senior User
Joined: 06 Jan 2009
Posts: 206
Location: Makaha, Hi
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| Posted: Wed Jun 10, 2009 5:00 am Post subject: Re: HulaMom update |
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Thanks, wondered if you were still on here with all the Mafia War stuff going on at FB. The nerve! NOW I'm glad I don't play those games!!! LOL
_________________
47 YOA female. NSCLC IV Squamous cell. dx 7/07. Radiation, chemo (carboplatin/Taxotere). Cancer free 3/08! Cancer mets to liver 12/08. Started Tarceva 1/26/09-4/10/09, liver tumor tripled in size. Started Alimta. Down to 84 pounds! Stopped Alimta and started Gemzar on 5/2. Stopped chemo went into HospiceJuly 24 2009, with prognosis of 3, maybe 4 months left. |
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mcw
Experienced user
Joined: 25 Jan 2009
Posts: 51
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| Posted: Wed Jun 10, 2009 8:28 pm Post subject: Re: HulaMom update |
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hulamom,
You've had me holding my breath several times this month, please keep fighting!
Are your pain meds strong enough to keep you comfortable? Do you worry about overdoing things?
Hugs,
Mika |
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simplyklb
Senior User
Joined: 04 May 2008
Posts: 334
Location: Near Kansas City MO
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| Posted: Thu Jun 11, 2009 4:25 pm Post subject: Re: HulaMom update |
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[quote="HulaMom"]Thanks, wondered if you were still on here with all the Mafia War stuff going on at FB. The nerve! NOW I'm glad I don't play those games!!! LOL[/quote]
Hi Tracy,
I sitll check in from time to time. Mom has scans coming up on Monday. We get the results on the 19th.
Yes, I play way too much Mafia Wars on Facebook! 
Kristi
_________________
Dad - Andy, 70, diagnosed with SCLC in May 2008
2/20/38 - 10/15/08 Fly high, Dad!
Mom - Jackie, 67, diagnosed with NSCLC in May 2008 |
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HulaMom
Senior User
Joined: 06 Jan 2009
Posts: 206
Location: Makaha, Hi
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| Posted: Fri Jun 12, 2009 6:47 am Post subject: Re: HulaMom update |
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This chemo stuff gets crazy - now I am noticing slight pedal edema. My feet are a bit swollen so I will pop in on the doc today. Good grief! And yes those facebook games get to be time consuming! It's why I had to set a limit, hehehehe
_________________
47 YOA female. NSCLC IV Squamous cell. dx 7/07. Radiation, chemo (carboplatin/Taxotere). Cancer free 3/08! Cancer mets to liver 12/08. Started Tarceva 1/26/09-4/10/09, liver tumor tripled in size. Started Alimta. Down to 84 pounds! Stopped Alimta and started Gemzar on 5/2. Stopped chemo went into HospiceJuly 24 2009, with prognosis of 3, maybe 4 months left. |
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HulaMom
Senior User
Joined: 06 Jan 2009
Posts: 206
Location: Makaha, Hi
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| Posted: Fri Jun 12, 2009 6:49 am Post subject: Re: HulaMom update |
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mcw please don't worry. I am in this fight to the end! and yes, they have me WELL medicated 
Tracy
_________________
47 YOA female. NSCLC IV Squamous cell. dx 7/07. Radiation, chemo (carboplatin/Taxotere). Cancer free 3/08! Cancer mets to liver 12/08. Started Tarceva 1/26/09-4/10/09, liver tumor tripled in size. Started Alimta. Down to 84 pounds! Stopped Alimta and started Gemzar on 5/2. Stopped chemo went into HospiceJuly 24 2009, with prognosis of 3, maybe 4 months left. |
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mcw
Experienced user
Joined: 25 Jan 2009
Posts: 51
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| Posted: Sun Jul 19, 2009 9:20 am Post subject: Mika (mcw) |
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It is with deepest sorrow that I must let you know that my wonderful mother, Mika (mcw) has left us on July 17, 2009 at 6.15 a.m. as a majestic Hawaiian sun shone on her beautiful face one last time above the horizon. Your kind words and support have done more for her over the past seven months than I would dare try to explain. You were her extended family and a true life force as she struggled with her illness and she truly felt your personal battles and took them to heart. I sincerely wish for all the strength and courage to all of you in your fights. Never give up.
Her son, David. |
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HulaMom
Senior User
Joined: 06 Jan 2009
Posts: 206
Location: Makaha, Hi
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| Posted: Sun Jul 19, 2009 11:00 am Post subject: So sorry for your loss |
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David,
Your mother was a very brave and courageous woman and I took interest in her own story. I know you are suffering now but at least your mom no longer is in pain or suffering anxiety (don't let anyone tell you that the patient doesn't feel some intense anxiety at times). I hope she went peacefully and quick. We will miss her here but I know we all will meet again. Thanks David for the notification, I've not been too active on here due to my own exhaustion and a grueling schedule of chemo/shots, etc. but I will tell you I looked out for her posts. She had spunk, or what I call pluck. You are in my thoughts and prayers during this hard time. And thanks again for the letter, it means a lot to me that you sent it.
Tracy
_________________
47 YOA female. NSCLC IV Squamous cell. dx 7/07. Radiation, chemo (carboplatin/Taxotere). Cancer free 3/08! Cancer mets to liver 12/08. Started Tarceva 1/26/09-4/10/09, liver tumor tripled in size. Started Alimta. Down to 84 pounds! Stopped Alimta and started Gemzar on 5/2. Stopped chemo went into HospiceJuly 24 2009, with prognosis of 3, maybe 4 months left. |
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dano
Moderator
Joined: 19 Jul 2008
Posts: 506
Location: Oahu, Hawaii
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| Posted: Sun Jul 19, 2009 3:12 pm Post subject: Re: HulaMom update |
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Hi Hula; Just checking in to see how things are going, things are good here.
Dan
_________________
55 year old male, Diagnosed Nov. 9,2007 with NSCLC IV with Mets to the lymphs and brain
Had full brain radiation treatment in Jan 08 treatments now every 4 weeks with Alimta, taking Lovenox for blood clots, Now working full time
http://cancerforums.net/viewtopic.php?t=9993 |
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pbj11
Site Admin
Joined: 12 May 2007
Posts: 2403
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| Posted: Tue Jul 21, 2009 9:19 am Post subject: Re: HulaMom update |
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David --- I posted under the thread where Hulamom told us about your Mother. http://cancerforums.net/viewtopic.php?t=13234 Please know that you can come here at any time if you need help on this leg of the journey and we'll greet you with open arms.
God bless,
PBJ
HULA MOM,
How are you doing you little fighter you? Hang tough and my very best to you. I hope you are having some good days on this regimen.
Hugs,
PBJ
_________________
Husband diagnosed with NSCLC Stage IV. (Non-Small Cell Lung Cancer) Fought & lived 2 1/2 years with multiple lines of treatment.
Post describing our battle: http://cancerforums.net/viewtopic.php?t=7026&postdays=0&postorder=asc&start=0 |
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