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plugh
Regular
Joined: 18 Oct 2007
Posts: 48
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 Posted: Wed Apr 08, 2009 9:42 am Post subject: Latest update |
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Just had my 4 monthly MRI. Described as stable compared to last MRI BUT in going back over MRI results since Jan 08 there is now showing a very small incremental change compared to Jan 08. I was told millimetres. The results are going to a board review on Monday and it was suggested I should still be on a watch and wait at this point, another MRI in 4 months. This since I am not experiencing any symptoms. Freaking out a bit at this point so any insite would be really welcome. Is this significant enough to be considered regrowth? The NeuroOncologist seemed to think this was not al all unusual immediately post surgery and that they often stabilize later.
Background,
Grade II Oli 90% removed in August 07. No defects from surgery or cancer. Gene deletions present. |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 5617
Location: Tennessee
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| Posted: Fri Apr 10, 2009 4:51 am Post subject: Re: Latest update |
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Oh dear plugh, I can only imagine who worried you must be. In 2005 when my grade II returned, I had to wait for months before the cancer board gave their opinion. The waiting was indeed hard but during that time, the tumor did not noticeably change even though from 1992 to 2005 it had changed from a grade II to a grade III.
Plugh, you know that you are in my thoughts and prayers. My your wait not be long.
_________________
Jim
Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
http://cancerforums.net/viewtopic.php?t=2405
My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029
Twitter: @JimHawkins54 |
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plugh
Regular
Joined: 18 Oct 2007
Posts: 48
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| Posted: Fri Apr 10, 2009 7:12 am Post subject: Re: Latest update |
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Thanks for the reply Jim and really good to hear from you. Given your recent reports everyone on the board was concerned but glad to see from your post on another thread that it was valuable family time.
Based on what I was told it seems like my Grade II never went away after surgery - just kept impercepibly growing with nothing detectable on the MRIs until now when they have enough history to go back far enough they can see the change. Dr was not going to send this to the review board until he heard how worried I was. It's only 18 months since surgery so for this to be regrowth seems to be very bad news. |
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artaran
Regular
Joined: 22 Feb 2007
Posts: 43
Location: Monterey CA
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| Posted: Fri Apr 10, 2009 9:47 am Post subject: Re: Latest update |
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I'm so sorry for your concerns. Waiting is often the hardest part.
On the bright side. You at least have the gene deletions, so if they decide to begin with a chemo-radiation treatment, it has a good chance of being effective.
I know it's scary to think of undergoing additional treatment, but it's pretty well tolerated my most people, especially younger people.
I wish you the best. Keep us in informed. |
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plugh
Regular
Joined: 18 Oct 2007
Posts: 48
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| Posted: Wed Apr 15, 2009 12:36 pm Post subject: Re: Latest update |
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| So just spoke to my NeuroOncologist. Board review wants to proceed with watch and wait till my next MRI in 4 months. surgery was 21 months ago. Growth over the last 18 months is 2mm and no discernible growth in the last 4 months. Dr believes there will be treatment in the future but not sure when and not sure if chemo or repeat surgery. If I get symptoms or the tumor absorbrs the contrast on an MRI (this is apparnetly indicative of a change in grade) that will trigger an immediate response. So 2mm in 18 months not a lot and it is even possible it has stabilized again. |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 5617
Location: Tennessee
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plugh
Regular
Joined: 18 Oct 2007
Posts: 48
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| Posted: Fri Aug 07, 2009 10:44 am Post subject: Re: Latest update |
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Thanks for the thoughts which are greatly appreciated. Just had the new MRI results and no change at all so very good news. No change from the prior MRI or the MRI done after surgery so what's left is remaining stable. So after freaking a bit last time the next one is in December and back on the treadmill  |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 5617
Location: Tennessee
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plugh
Regular
Joined: 18 Oct 2007
Posts: 48
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| Posted: Fri Aug 07, 2009 4:53 pm Post subject: Re: Latest update |
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Thanks Brainman! 2 years 3 weeks since diagnosis, 2 years and 5 days since surgery. This time 2 years ago I was Mr Zippy Head  |
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Tammy
Senior User
Joined: 27 Nov 2007
Posts: 115
Location: New Brunswick, Canada
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| Posted: Mon Aug 10, 2009 12:55 pm Post subject: Re: Latest update |
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Plugh, I am happy to hear you are doing good, keep beleive and I think it will take you a long way...I wish you all the lucks and *cheers* tomore stable infotmation mri's!!  < happy for you
A friend Tam xx
_________________
~Tam-xx~
Life shouldn't be about you waiting for that nasty storm to pass, it should be all about you learning how your going to dance in the rain.. 
Diagnosed with an Oligodendroglioma Gr 2, in 2007. |
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