new member - Marg

marg · New User Joined: 05 Apr 2009 Posts: 1

Hi there,
My name is Marg and I have recently been diagnosed with Multiple Myeloma. I have had 1 round of chemo (Melphalan and Cortisone) and will start 2nd round in 10 days. I would like to hear from anyone who is on tablet form chemo.

brainman · Posted: Sat Apr 11, 2009 11:47 pm Post subject: Re: new member - Marg

Hi Marg and welcome to the CF.

My ex father in law died due to complications with MM but he lived 6 years after his diagnosis. I did not live near him so do not remember much about his treatment. I do know that he took targeted radiation to kill of areas with tumors. I also know that he took chemo but do not have any idea about the type.

Recently, we have had several new members with MM. Hopefully, one of them will reply. I will copy this threat to the Multiple Myeloma Forum so that they can see your post.

You might also want to initiate a conversation with other members who are going through this too. I do not often suggest this because of the danger of "hijacking" another member's topic. However, since we have so few members with MM, that is of secondary concern. The highest concern is to get you in contact with others who are going on a similar journey.

You are in my thoughts and prayers.
_________________
Jim
Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
http://cancerforums.net/viewtopic.php?t=2405
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My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
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Twitter: @JimHawkins54

Jashlin · New User Joined: 21 Feb 2007 Posts: 3 Location: Florida

My name is Jan and I was diagnosed with MM in 1/07 and have been on oral chemo for 14 months to prepare for the bone marrow transplant I had 1 year ago. With the transplant they give you high dose Melphalan, which is rough with sickness and losing hair etc. I was on 25 mg of Revlamid along with coumadin to help prevent blood clots and also dexamethesone, which is a steriod type drug that also has anti-cancer properties. My meds were not tablet but in capsule form. I was thankful that the chemo was oral and took it on the 3 weeks on and 1 week off schedule. I am currently on 15 mg of Revlamid and the above, since I relapsed 2 months ago. You can read my story at www.janscancerjourney.blogspot.com and I continue to post in hopes it may help someone at some time. If you have any questions, feel free to email, my info is on the blog.

Pat Killingsworth · Posted: Mon Jun 29, 2009 10:32 pm Post subject: Re: new member - Marg

Dearest Marg-
That sounds like a very basic and unusual treatment to me! How old are you? Normally Melphalan isn't used unless a patient is not expected to ever want or need a stem cell transplant. Still, sounds like you might want to double chk or get second opinion. E-mail me for more info if you like or contact the IMF (International Myeloma Foundation) and talk with one of their counselors. Good luck- Pat
_________________
Pat Killingsworth

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