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Seizures, seizures and more seizures What is this ?

 
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Oak
Regular


Joined: 30 Mar 2009
Posts: 16
PostPosted: Mon Jun 22, 2009 5:49 pm    Post subject: Seizures, seizures and more seizures Reply with quote
Just an update. My dad has been in a phenobarbitol induced coma (For lack of a better word) for almost a week now, and on a ventilator in an ICU. He's maxed out on three anti-seizure meds and they have given up on the phenobarbitol. So... they are going to try a new drug called lacosamide (sp?). It is new enough they didn't have the drug in the hospital and are shipping it in.

Kepra, Depikote, and phenobarbitol all at very high levels, and still seizing. I hope they can take care of them, if not the quality of life will be very low for the rest of my dad's life. At the peak he had something like 70 seizures in 6 hours, and for one hour seized basically constantly. On all these drugs he's a bit better but still seizing.
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tawny111
Regular


Joined: 04 Jun 2009
Posts: 37
Location: usa
PostPosted: Wed Jun 24, 2009 9:04 pm    Post subject: Re: Seizures, seizures and more seizures Reply with quote
it depends on your dads age and health and add it to the mix
i'm just learning and i pray for ya
tawny

ps: ask questions and keep it up until they get tired of you buggin them.
i found out then, you will get answers
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Oak
Regular


Joined: 30 Mar 2009
Posts: 16
PostPosted: Fri Jun 26, 2009 1:22 pm    Post subject: Re: Seizures, seizures and more seizures Reply with quote
They just did a surgery to remove the part of his brain causing the seizures. They only did it because they saw no other option and his tumor has no obvious signs of regrowth yet. So... now we wait to see if this worked or not. Pretty much not much left to do if this fails. If it works he might be concsious by Sunday.
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brainman
Site Admin


Joined: 13 Oct 2005
Posts: 5575
Location: Tennessee
PostPosted: Fri Jun 26, 2009 8:10 pm    Post subject: Re: Seizures, seizures and more seizures Reply with quote
Oak, I am very sorry to hear that your father's seizures are still not under control. I cannot imagine what he and you are going through at this time. I too hope they find a quick solution. As always, I will be thinking about and praying for you and your father.
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Jim
Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
http://cancerforums.net/viewtopic.php?t=2405
My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029
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