I'm never this nervous!!

PeachTree · Posted: Sun Jul 12, 2009 8:41 am Post subject: I'm never this nervous!!

wow!.. like my subject line says, I've never been nervous like this. This website was something I never thought I would surf. My name is Abby. I live in WV and I'm married to Mark and we have 3 kids and 2 grandchildren. The 24th day of June my life got turned upside down when the words were spoken that I never thought I would here. so here goes my story:

I got sick memorial day weekend. I had woke up about 2am sooo swollen with fluid that my arms felt like they were on fire. When I got up out of bed, it felt like I was being stabbed in my left leg (which is the leg that is always swollen on any given day.. but never the right leg)... when I tried to walk, my feet would burn. I felt soo weak and tired and still swollen even after taking a 80mg lasix with no relief. Mark and I thought I was having a stroke and he finally talked me into going to see his doctor in Logan. We went there and he took all kinds of blood work (of course).. took blood pressure and all that.. measured my legs in the calf area and found that my left let was 1 1/2 inch bigger than the right leg. Asking me how long this had been like this, I told him for the last 12 years. (I've been that way with my left leg since I had Rock.. a botched C-section).. so he wanted to send me for a pelvic, internal ultrasound to check the incision b/c it had stayed busted opened for 2yrs.. and 2 types of dopplar of my legs as well to look for any type of restrictions/blockages.. We get called in about 4 days later to come in (thinking we were going to be told about a blockage) was told that he wasn't concerned with my legs at the moment, but that I had an enlarged lympnode on my left side groin and I had some cysts on both of my ovaries and my unterus was enlarged. At first they were thinking Lymphoma..He asked me when was the last time I had seen a gynocologist, which is was in October. I had went for annual exam and had been complaining of my periods becoming irregular and more heavy and thinking I was starting menopause b/c they had became that irregular. That pap had came back normal, but he said b/c of the cysts and enlarged uterus, he wanted me to see a gyno now and he was making an referral. I went in on the 10th of june.. he brought us both in his main office and talked with us the findings of the ultrasound and went over my history of my periods.. I had told him about going this past Oct to my regular gyno and discussing that my periods had gotten worse in the last 4 months with going 21 days to 36 days.. 24 days.. and such to 3 days of light pink bleeding to 7-8 days of horrible dark clotty blood running down my legs.. so he wanted to redo a pap and to set me up with a uterine biopsy to look inside of my utereus to check for any masses or polyps because he said ultrasounds just show the outside not the inside as to why my uterus was enlarged.went on the 18th for that.. he took 5 biopsy and scheduled me for a pelvic and abdominal CT scan on the 24th and then a appt after that to get results of biopsy. Had the CT done (had to drink 2 big bottles of barrium..wasn't too bad.. flavored orange creme.. ) at 12 and then to gyno at 2.. was expecting him to say something along the lines of endometriosis or menopause.. NOPE.. he said 2 things going on.. 1.. i have endometrial hyperplasia with stage I unterine cancer.. 2. I have some precancer cells on my cervix as well and scheduled me for a stage II pap with a cervical biopsy. I was sent to oncologist in Charleston at Thomas Memorial Cancer Center on the 29th of June for the enlarged lympnode and the unterine. I go back for another unterine biopsy in October.

I have 3 wonderful doctors and all are in agreement of our course of treatment. I'm taking 2 pills a day of hormones (this is first step of treatment with this stage) for 4 months. They are hoping that this hormone will cause the thickening of my uterus lining where the tubular cells are will shed. Now what that is:

In my uterus, where it's enlarged, it causes my unterine lining to thicken like normal when you have a period, mine over thickens.. and in that thick layer, it's covered (not normal) with these tubular shoots that contain the cancer that bleeds within this shoots. he said it's like mini volcanoes.. it's rumbling and smoking.. you know it's there.. you know it's gonna blow.. you just don't know when..

So right now, nooo surgery, my oncologist did say that with the 2 types of cells that I have (uterine and cervical) that more than likely I'll be facing surgery within in the year if not sooner so that I needed to go ahead grasp that in my mind. If I do have to do the surgery if the hormones don't work, then I'll have to take some treatments. and that's where we are now

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