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vibhasagar22 New User

Joined: 29 Jul 2009 Posts: 4 Location: United States
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Posted: Wed Jul 29, 2009 11:03 am Post subject: Worried about my Mom |
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Hi all, I am new to this forum ad I have just found it. Thanks to all of you for being helpful and supportive to each other.
It all started with shortness of breath and I took Mom to Hospital on 22 May 2009 where she was diagnosed with right massive pleural effusion. After have series of test the malignant cytology came out to be positive. She underwent thoracoscopy and it revealed nodules with adhesions.Tissues for biopsy was taken out and and in the meantime she went thoracocenthesis twice to drain around 5 litres of fluid in total.Pleurodesis was not successful as her right lung had not expanded after thoracocenthesis. Biopsy results were there on 25th June,209 but it was unclear and the results provided diagnosis of malignant mesothelioma of small cell variant and desmoplastic small round cell tumour with doctors favouring the former one.
Now she is undergoing chemotherapy with Alimta and Cisplatin.She took her second round of chemo yesterday on 28th July 2009.
Blood tests came out to be normal after her first round of chemo on 3rd July 2009. But she is having lot of pain and tightness in her right chest and it's hurting her a lot. She has also started experiencing hair loss.
It has been a tougher period since then for our family.There were times when we lost all the hopes but now I stand positive and pray and hope that she will overcome through all this and certainly will survive. _________________
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brainman Site Admin

Joined: 13 Oct 2005 Posts: 5617 Location: Tennessee
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Posted: Wed Jul 29, 2009 11:23 am Post subject: Re: Worried about my Mom |
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Hi vibhasagar22, I am very sorry about your mother's cancer. Honestly, your's is one of the few post about Mesothelioma that is indeed a personal account of a person's struggle with Mesothelioma. Most people who post here are trying to sell something, encouraging people to sue, or trying to just give general information... none of which are the purpose of the Cancer Forum. So, although I know you would rather not have to be here, I am glad you found us. Feel free to use this as your "blog" and keep us informed about your mother's condition.
I hope you can find the support and information you seek on here.
You and your mother are in my thoughts and prayers. _________________ Jim
Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
http://cancerforums.net/viewtopic.php?t=2405
My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029
Twitter: @JimHawkins54 |
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pbj11 Site Admin

Joined: 12 May 2007 Posts: 2403
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Posted: Wed Jul 29, 2009 11:41 am Post subject: Re: Worried about my Mom |
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Hi,
Welcome and sorry that your mom is having such difficulty. You may want to come over to the lung cancer forum as there are many parallels between the two diseases.
God bless,
PBJ _________________ Husband diagnosed with NSCLC Stage IV. (Non-Small Cell Lung Cancer) Fought & lived 2 1/2 years with multiple lines of treatment.
Post describing our battle: http://cancerforums.net/viewtopic.php?t=7026&postdays=0&postorder=asc&start=0 |
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vibhasagar22 New User

Joined: 29 Jul 2009 Posts: 4 Location: United States
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Posted: Wed Jul 29, 2009 1:25 pm Post subject: Thanks for support |
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Hi Jim,
Thanks for all your prayers and support. I read your story and it inspires me to be strong and faithful for there is God in whom we should trust for he knows our pain and suffering.
You indeed have lot of courage and love to offer.
I don't know how but I have told myself and I truly believe that nothing will happen to my Mom. I have seen in my Mom's eyes that she truly want to live for us and she is ready to suffer all kind of pain coz she believe that everything will get alright in the end. This phase in our life have brought our family together. My relationship with my Mom has got more stronger than before. And I truly love my Mom.
Vibha _________________
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vibhasagar22 New User

Joined: 29 Jul 2009 Posts: 4 Location: United States
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Posted: Wed Jul 29, 2009 1:44 pm Post subject: Thanks for support |
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Hi PBJ,
I read your story and I cried and I am crying while I am replying the post.
You are truly a fighter and a great soul and I am impressed by your courage. You are indeed source of insipiration for others.
Thanks for all your prayers and support.
God Bless.
Vibha _________________
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afraid New User
Joined: 07 Aug 2009 Posts: 5
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Posted: Fri Aug 07, 2009 10:50 pm Post subject: Re: Worried about my Mom |
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Hi there;
I believe, God is doing his work. I'm sorry but as one of our friend said, people here are selling something, ask for suing etc. which is indirectly demotivated you.
I believe and know how the feel of having family who had cancer. Experience teach me a lot.
When my late uncle diagnosed had a colon cancer, we were struggle to find medicine, best doctor, traditional method and lot of things.
But we lack something and we learnt for it. We were not motivating him (my uncle). We forgot that, mind power has its miracle. We didn't make him laugh. We didn't make him happy.
Everybody that visited him, will ask how his condition. How much time he has, and a lot more question that make he didn't feel happy.
I tell you this story to make you avoid our mistake that indirectly cause for his death.
Pray to your mother~
Your friend
Afraid |
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vibhasagar22 New User

Joined: 29 Jul 2009 Posts: 4 Location: United States
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Posted: Tue Sep 08, 2009 1:12 pm Post subject: My mother passed away |
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I don't know where to begin with as my heart and mind is still not able to accept the death of my Mother on 9 august, 2009. Mummy, i felt you so close to my heart when i last touched your cold and wrinkled face and hands and wished if you could feel my touch. I wished if i could ease your pain. If i could just make you hear that i love you so much and i am crying all nights remembering you and wishing to sleep beside you. Lie there with you all the night and feel your touch and hear you. Mummy i know you loved me and my brother and my father. I feel terrible living without you. Tomorrow it will be whole one month since you went away and it seems just yesterday. Mummy, so many dreams remained unfulfilled. So many words remained unspoken. At one moment i try to be strong and the other moment i completely break down. Mummy, sometimes i feel if life was in your hands, you would never have left me alone and Mummy i was so miserable that i just could not save you. I am sorry if ever i made you feel hurt. Mummy, please come back and hug me and say you will never leave me again. I wish to be with you. _________________
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afraid New User
Joined: 07 Aug 2009 Posts: 5
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Posted: Tue Sep 08, 2009 6:29 pm Post subject: Re: Worried about my Mom |
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| I'm sorry to hear that. God bless her. |
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pbj11 Site Admin

Joined: 12 May 2007 Posts: 2403
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Posted: Tue Sep 08, 2009 10:24 pm Post subject: Re: Worried about my Mom |
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vibhasagar22,
Oh sweetie, my heart breaks for you to hear this news. I know the overwhelming pain you are in now. Please understand that she knew how much you loved her. The love never passes -- it goes on forever. We are left to remember them with loving memories.
It seems impossible to understand right now, but the pain will get better in time. It does take a LOT of time, a lot of prayer, and support from friends and family. You are not traveling this part of the journey alone. Many share the same emotions and what you are feeling is normal. Life will never be the same, but we learn and grow as people from some of the deepest grief in our life. I still struggle almost every day to make sense out of my own loss. We have to allow God to work his healing on our hearts. Remember he is the great healer.
Pray to God for peace and I'll do the same for you.
We will be here if you need to talk.
Many hugs,
PBJ _________________ Husband diagnosed with NSCLC Stage IV. (Non-Small Cell Lung Cancer) Fought & lived 2 1/2 years with multiple lines of treatment.
Post describing our battle: http://cancerforums.net/viewtopic.php?t=7026&postdays=0&postorder=asc&start=0 |
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brainman Site Admin

Joined: 13 Oct 2005 Posts: 5617 Location: Tennessee
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