Diagnosed two weeks ago.

Replicant · Moderator Joined: 01 Nov 2006 Posts: 744

But you cut off Dr. Uchida before he had a chance to finish his paragraph!

Forty-four (19%) patients developed a urethral stricture, 6 (3%) patients underwent transurethral resection of the prostate for prolonged urinary retention or urethral stricture, 15 (6%) and 2 (0.8%) patients developed epididymitis and a rectourethral fistula. Twenty-four percent
(15/462 patients complained of postoperative erectile dysfunction. Retrograde ejaculation was observed in 12% (14/120) of the potent patients. Transient grade I incontinence was observed in one (0.4%) patient.

Here's the direct link to the article you cite:
http://www.internationalhifu.com/images/files/istu2005uchida.pdf
_________________
Replicant

Dx Feb 2006, PSA 9 @age 43
RRP Apr 2006 - Gleason 3+4, T2c, NXMX, pos margins
PSA 5/06 <0.1, 8/06 0.2, 12/06 0.6, 1/07 0.7.
Salvage radiation (IMRT) total dose 70.2 Gy, Jan-Mar 2007@ age 44
PSA 6/07 0.1, 9/07 (and thereafter) <0.1
http://pcabefore50.blogspot.com

notme · Guest

I didn't cut it off, that is exactly what I found. I'm glad you found the remainder.

so,
one guy out of 237 had incontinence
15 out of 462 had ED

And these are results from back in 2005.....I wonder how the stats are now?

Lets compare these results to surgery, AARP has a lengthy article on surgery and radiation for PCa this month.

Oh, here's the conclusion from that study:
Conclusions
HIFU therapy appears to be a safe and efficacious minimally invasive therapy for patients with localized prostate cancer, especially those with a pretreatment PSA level than 20ng/ml.

JustJB · Posted: Wed Sep 02, 2009 2:25 pm Post subject: Re: Diagnosed two weeks ago.

Great results for HIFU! Only two problems as I see it. It's efficacy is NOT proven beyond 5 years and it's not approved for the US, therefore leaving me many dollars short and a couple years early. Now if someone wants to give me $25,000 then the information might be useful. As for information I can use, this isn't it, regardless of results. It still belongs in it's own thread.
_________________
Age 52
Gleason 3+3 = 6
Stage T1C
1 out of 12 cores involved
Left side, median lobe

lauriejo · Posted: Wed Sep 02, 2009 2:38 pm Post subject: Re: Diagnosed two weeks ago.

We don't have the money either. We are borrowing the money. It is that important to us not to lose our quality of life. International HIFU will work with you to get financing if you are interested.
Also, HIFU has been used for the past 16 years in other countries with success. It is only in America that the trials have been for the past 5 years.
_________________
55 years old, PSA 6, Gleason 6, T1c, 6 of 10 cores positive HIFU 9/25/09

JustJB · Posted: Wed Sep 02, 2009 2:52 pm Post subject: Re: Diagnosed two weeks ago.

[quote="lauriejo"]We don't have the money either. We are borrowing the money. It is that important to us not to lose our quality of life. International HIFU will work with you to get financing if you are interested.
Also, HIFU has been used for the past 16 years in other countries with success. It is only in America that the trials have been for the past 5 years.[/quote]
I'm not interested in borrowing any money and I haven't seen any results that go beyond 5 years. Somehow you think it is NOT important to me to lose my quality of life? I simply DISAGREE with you that surgery will cause that. I am utterly convinced that surgery is my best solution.
Now, Please take ALL THE HIFU comments to the existing, HIFU only thread.
Thank you.
_________________
Age 52
Gleason 3+3 = 6
Stage T1C
1 out of 12 cores involved
Left side, median lobe

lauriejo · Posted: Wed Sep 02, 2009 7:26 pm Post subject: Re: Diagnosed two weeks ago.

Sorry. Just trying to help. My husband's surgeon Davinci robot told a very bleak story. Maybe he didn't know what he was talking about. Scared the crap out of us.
_________________
55 years old, PSA 6, Gleason 6, T1c, 6 of 10 cores positive HIFU 9/25/09

JustJB · Posted: Wed Sep 02, 2009 9:46 pm Post subject: Scared?

I'm scared of dying. Sexual side effects which are likely to be temporary and partial I can live with. Death because a focused therapy missed a malignancy which then metastasizes outside the prostate, that I can't live with. At my stage, having it out and most likely being done with it seems like a smart and proven approach.
_________________
Age 52
Gleason 3+3 = 6
Stage T1C
1 out of 12 cores involved
Left side, median lobe

Jean222 · Senior User Joined: 14 Dec 2008 Posts: 249

JustJB,

I wish you all the best with your surgical 'cure'.
With good surgical technique, you have a great chance.

My Hubby wanted 'it out' and hoped for a total cure also.

(Unfortunately, his had already spread and now we're hoping that he'll go into remission after his recent SRT).

I agree with you, the surgery is the best possible 'cure' in this day and age.

If your doctor spares the nerve bundles, you'll have the normal side-effects ie incontinence, some ED etc but it isn't forever.
Many on this forum seem to return to normal or close within months.

Even with non-nerve sparing surgery, my Hubby (had surgery Jan/09) is now dry except if he laughs or coughs hard. (stress incontience but it's a dew drop)
Obviously, erections are a thing of the past.....but I'm just very glad that he's still here. I can hug and kiss him, we can still be 'in love' and affectionate.

The main thing, my darling Hubby is alive!

Best of wishes to you, live long and prosper!

Jean

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