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Anyone familiar with Undifferentiated Sarcoma? What is this ?

 
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ethans mom
New User


Joined: 21 Sep 2009
Posts: 2
Location: Oklahoma
PostPosted: Mon Sep 21, 2009 6:53 pm    Post subject: Anyone familiar with Undifferentiated Sarcoma? Reply with quote
My son was dx with Embryonal Undifferentiated Sarcoma Feb 09 and underwent 6 rounds of chemotherapy followed by liver transplant and 2 more rounds of chemotherapy. As of 8-14-09 his scans revealed no evidence of disease; however, I am very discouraged by the fact that we have yet to find any survivors of this disease. I have no idea what to expect regarding recurrence, post chemotherapy effects, etc. Everything has happened so fast that I haven't even really had time to wrap my mind around everything.

www.caringbridge.org/visit/ethanhenry3
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brainman
Site Admin


Joined: 13 Oct 2005
Posts: 5617
Location: Tennessee
PostPosted: Tue Sep 22, 2009 1:38 am    Post subject: Re: Anyone familiar with Undifferentiated Sarcoma? Reply with quote
Hi ethans mom. I am so sorry that your son has cancer. He must be young since Undiffentiated Embryonal Sarcomas are most often found in people under 30. Unfortunately, survival rate (living more that 5 years) is the lowest of any sarcoma but better than most primary brain cancers. The most recent statistics say that only 40% of patients live more than 5 years.

However, as I often say, a prognosis is just a statistical number. I do like to know my prognosis but only in oder to set some realistic goals for the things I still would like to do in whatever time I have left. Then I try to set my prognosis aside and do every thing I can to achieve those goals. It is harder than it sounds. Some of my goals are not that lofty: make contact with long lost friends (FaceBook has been very helpful), going to places that I love, doing things that I enjoy...

I encourage you to think of yourself as your son's personal "dream factory" and bring to him as much quality of life as possible but do not give up hope in a long term recovery. Remember, there are still 40% that do live more than 5 years. Your son will be one of those Wink

You and your son are in my thoughts and prayers.
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Jim
Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
http://cancerforums.net/viewtopic.php?t=2405
My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029
Twitter: @JimHawkins54
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