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Diagnosis What is this ?

 
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Author
positional
New User


Joined: 04 Oct 2009
Posts: 4
PostPosted: Thu Oct 08, 2009 7:57 pm    Post subject: Diagnosis Reply with quote
Hello,

I was diagnosed with PC several weeks ago.

Here are the details:

Prostate volume - 43
Cancerous tissue lenght - 2.5 mm
Percentage of cancer at Base (left side) - 5.8
Percentage of cancer at Base (right side) - 0%

CT and bone scan didn't find anything.

I'm trying to minimize side effects when performing any procedure (radiation, surgery, HIFU and others). Or watch and wait?

At this time, I consider a robotic prostatectomy with Dr. David Lee in Philadelphia. Per some sources, he's one of the five top urologists in the world.

My regular doctor (urologist) advised me to do something before the end of the year.

I'm completely new to all this and would appreciate any advice from more
experienced and knowledgeable people.

Thanks in advance.
_________________
54 years old. PSA - 8.3. Gleason - 3+3. Stage T1c. 4 positive biopsy cores, 8 negative.
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lauriejo
Experienced user


Joined: 02 Aug 2009
Posts: 60
Location: Connecticut
PostPosted: Fri Oct 09, 2009 7:44 am    Post subject: Re: Diagnosis Reply with quote
My husband and swear by HIFU. Truly amazing, especially after reading the side effects discussed here by other treatments. International HIFU is our hero.
_________________
55 years old, PSA 6, Gleason 6, T1c, 6 of 10 cores positive HIFU 9/25/09
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johnT
Senior User


Joined: 27 Apr 2009
Posts: 176
PostPosted: Fri Oct 09, 2009 1:05 pm    Post subject: Re: Diagnosis Reply with quote
Watchful waiting would not be good in your case as you have 4 positive cores; 1 or 2 cores is ideal for WW. With a low Gleason and psa any local treatment has the similar cure rates.
Seeds are the most convenient and have the least side affects.
JohnT
_________________
psa at diagnosis 40 in nov-08
gleason 6 and 7
Treatment choice seeds and IMRT
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lauriejo
Experienced user


Joined: 02 Aug 2009
Posts: 60
Location: Connecticut
PostPosted: Fri Oct 09, 2009 1:42 pm    Post subject: Re: Diagnosis Reply with quote
Read GeneK's post.
_________________
55 years old, PSA 6, Gleason 6, T1c, 6 of 10 cores positive HIFU 9/25/09
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positional
New User


Joined: 04 Oct 2009
Posts: 4
PostPosted: Fri Oct 09, 2009 6:21 pm    Post subject: Re: Diagnosis Reply with quote
[quote="lauriejo"]My husband and swear by HIFU. Truly amazing, especially after reading the side effects discussed here by other treatments. International HIFU is our hero.[/quote]

HIFU is not permitted in US. Where did you perform the operation?
_________________
54 years old. PSA - 8.3. Gleason - 3+3. Stage T1c. 4 positive biopsy cores, 8 negative.
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lauriejo
Experienced user


Joined: 02 Aug 2009
Posts: 60
Location: Connecticut
PostPosted: Fri Oct 09, 2009 6:52 pm    Post subject: Re: Diagnosis Reply with quote
We went to The Bahamas with Dr. Scionti from International HIFU. Check out his resume http://www.nyhifucenter.com. He is director for International HIFU in North Carolina and NYU prostate cancer ablative surgery. An American nurse and engineer go with him to the Bahamas. Dr. Scionti also goes to Cancun and Puerta Vallerta.
It was the most expensive vacation we have ever had and worth every penny. We are very happy with the results.
_________________
55 years old, PSA 6, Gleason 6, T1c, 6 of 10 cores positive HIFU 9/25/09
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positional
New User


Joined: 04 Oct 2009
Posts: 4
PostPosted: Fri Oct 09, 2009 6:57 pm    Post subject: Re: Diagnosis Reply with quote
[quote="lauriejo"]My husband and swear by HIFU. Truly amazing, especially after reading the side effects discussed here by other treatments. International HIFU is our hero.[/quote]

HIFU is not permitted in US. Where did you perform the operation?
_________________
54 years old. PSA - 8.3. Gleason - 3+3. Stage T1c. 4 positive biopsy cores, 8 negative.
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positional
New User


Joined: 04 Oct 2009
Posts: 4
PostPosted: Fri Oct 09, 2009 8:58 pm    Post subject: Re: Diagnosis Reply with quote
[quote="johnT"]Watchful waiting would not be good in your case as you have 4 positive cores; 1 or 2 cores is ideal for WW. With a low Gleason and psa any local treatment has the similar cure rates.
Seeds are the most convenient and have the least side affects.
JohnT[/quote]

Thank you, John for your input. Patologist (second opinion) has analyzed the protein level of my biopsy samples and concluded that my cancerous cells are not aggressive. My urologist was telling me afterwards that even if I'd decide to do the treatment I select in February next year, he would be ok with that decision. Taht confused me even more.

Still unsure what to do and when.
_________________
54 years old. PSA - 8.3. Gleason - 3+3. Stage T1c. 4 positive biopsy cores, 8 negative.
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johnT
Senior User


Joined: 27 Apr 2009
Posts: 176
PostPosted: Sun Oct 11, 2009 1:50 pm    Post subject: Re: Diagnosis Reply with quote
Go on the YANA site and look at experiences by treatment options. As you will see all treatments have some pretty severe side affects including HIFU. Those saying HIFU has no side affects are misinformed.
Get as much information as you can and make an informed decision; there is probably very little risk in waiting 4 or 5 months for treatment as your cancer is very slow growing.
JohnT
_________________
psa at diagnosis 40 in nov-08
gleason 6 and 7
Treatment choice seeds and IMRT
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lauriejo
Experienced user


Joined: 02 Aug 2009
Posts: 60
Location: Connecticut
PostPosted: Sun Oct 11, 2009 4:53 pm    Post subject: Re: Diagnosis Reply with quote
I swear I am not lying. It is 2 weeks from HIFU and my husband is back to work, no shrinkage, no incontinence, and no impotence, although the Dr. said to wait one more week for sex. The catheter was annoying and he felt kind of crappy the first week because he was on 4 different meds (flomax, antibiotic, etc.) That's as bad as it got.
_________________
55 years old, PSA 6, Gleason 6, T1c, 6 of 10 cores positive HIFU 9/25/09
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