Mouth sores

lawlet · Regular Joined: 25 Feb 2009 Posts: 42 Location: Missouri

Hi,

Been awhile since I have posted My husband is now taking more pain medication and the right kidney is "gone" according to the physicians. We did a Scan on Wed, but will get the results next week. CEA is continuing to go higher 273 currently. He is still taking treatments of Capatsor and Avastin with the 5FU, The current problem is mouth sores, big ones on both cheeks far back in the mouth. We use several different medications but any thing you guys have used that helps.

I check and read the updates and pray for each of you to have strength to get through the days. Thanks
_________________
Tam

Husband is 55 years old, has metastic colon cancer, with Lung, Liver, kidney currently Colon surgery 5/07 with chemo, 9/08 Chemo started
10/08 Scan in Dec 08 (Grown) Scan Feb 09 (Grown with liver, both lungs , Kidney)
3.5 cm lung, 5 cm kidney, 4.5 renal, 2.6 iliac lymph etc. CEA 166 8/25/09 Nothing has slowed it down, we have stopped chemo, due to side effects and lack of any results, he is admitted to Hospice on 12/30/09. We will enjoy what we have

pbj11 · Site Admin Joined: 12 May 2007 Posts: 2854

Hi,

I'm sorry to hear he has nasty mouth sores. Has the doc checked them for thrush? He'd need a prescription med, usually Nystatin, for that fix.

Otherwise, if they are just the chemo mouth sores, he might want to try B50 vitamins. (Clear with doc naturally.) Our chemo nurses told my husband about that and his mouth sores cleared up very quickly.

Good luck on a solution. Another little part of the roller coaster ride.

God bless,
PBJ
_________________
Husband diagnosed with NSCLC Stage IV. (Non-Small Cell Lung Cancer) Fought & lived 2 1/2 years with multiple lines of treatment.

Post describing our battle: http://cancerforums.net/viewtopic.php?t=7026&postdays=0&postorder=asc&start=0

wytyspy · Senior User Joined: 13 Nov 2006 Posts: 116

When my husband had mouth sores with chemo, he was given Duke's Magic Mouthwash. Made him feel so much better. I think you might need a prescription but you can probably just call and not have to go in.
Good luck,
Lucinda

star · Senior User Joined: 02 Sep 2006 Posts: 308 Location: Ohio

HI LAWLET,

Just to say sorry to hear news and sore in his mouth, have you tried to see what they say on Google also?

Praying for you both,,, keep going and Hug each other as much as possible.......God Bless You BOTH ....

topazil · Posted: Thu Oct 22, 2009 6:42 pm Post subject: Re: Mouth sores

I am sorry to hear he is suffering from this, I haven't had that reaction...yet.... but hear that gargling with a salt and soda mouthwash helps and also making a very potent chamomile tea by placing 2 tea bags in a small amount of water. Steep for 10 minutes covered. Then swish and swallow. Repeat a few times daily.
_________________
Total hysterectomy July 23 2008, mass in colon.
Colonoscopy Aug 2008
Rigid Sigmoidoscopy with a laparoscopic-assisted partial colectemy with en bloc small bowel resection Sep 2008
Diagnosed: Stage IV Colon Cancer mets to lungs and liver. (T3,N2,M1,G2) KRAS Mutation
Started chemotherapy: 09/14/09 Folfox-6 with Avastin then Avastin alone.
Next treatment 03/22/10 Camptosar with Avastin every 2 weeks for 3 months then PET scan
Most recent CEA Level: 03/08/10 79.4 down from 240 on 03/01/10

sheila · Senior User Joined: 24 Jul 2008 Posts: 480

mom told me that wasnt too pleasant of an experience-she got them on xeloda tabs she couldnt do that treatment she got ALL the side effects bad. they had given her a mouth rinse for that and she ate alot of ice chips and drank most things through a straw to avoid touching the sores.
also eating foods more at room temp. was more tolorable

JodyB

Three people told me about ecciac tea before I finally tired it, and then I wished I had tried it when the first person advised me to look into it. First the U.S. Cellular guy brought it up, then a lady from my church, and finally a friend whose son had an inoperable brain tumor like the one my son had. This friend sent a fruit jar of it home with my husband in a brown paper bag. I still waited two days before I tried it. My lips were almost turned inside out from inflammation and swelling. My tongue was raw for about two inches, from the tip of my tongue to the center of it, and I had sores as far back as my throat. All I can tell you is when I ate or drank anything, I felt like I was eating or drinking broken glass.

The directions for the tea where one ounce in two ounces of lukewarm water as needed, at least once a day. When I finally broke down and tried it, I had dramatic relief from my symptoms and in twelve hours, I could eat and drink again. The mouth sores have never gotten out of hand again and this was at least a couple of months ago. I use it daily.

You will do research on line and find out that some believe ecciac tea is a cure of cancer. I am not going to say it is a cure for cancer. I am going to say it dramatically improves some of the symptoms from chemo treatment, including nausea. (I wish it also helped the watery stools. It does not.) But even the fact that it improves the sores and nausea, both are major milestones. You can order it on line, and get it at some health food stores. It takes 24 hours to cook up a batch, and you have to keep it in the refrigerator in a brown paper bag, but I believe if you try it, you will find relief from this.

It contains Burdock Root, Sheep Sorrel, Slippery Elm, and Rhubarb Root. They are all things found in nature, and have been part of the medicines practiced by early Native American Indians.

My friend, Cindy, her son had undergone treatment for a brain tumor for three years with little or not effect. Health care professionals were ready to put in a feeding tube when Cindy tried the ecciac tea. Her son showed an immediate improvement to the treatments, and in June, was finally taken off chemo for the first time in three years, because he had improved so dramatically.

I don't think it's a replacement for standard cancer treatment, but I think it helps a person's quality of life during cancer treatment.

Good luck.
_________________
Diagnosed with State 3 Colon Cancer April 26, 2009,
Had Half of Colon Removed and more than Half of Right Bowel, then Reconstruction Surgery May 8, 2009,
Cancer found in 4 adjacent lymph nodes.
Began Chemo June 24, 2009, including the clinical trial available.
I'm on Flourouricil, Oxaliplatin, Leucoverin, and Cetuximab.
I've had 7 standard treatments so far, and I think 16 Cetuxmab treatments.

topazil · Posted: Thu Nov 05, 2009 10:32 am Post subject: Re: Mouth sores

JodyB Thank you so very much for this information. I like I said don't have this side effect (yet and hopefully won't) but will keep the information just in case. Hope you are having a great day and ((((Hugs)))))
_________________
Total hysterectomy July 23 2008, mass in colon.
Colonoscopy Aug 2008
Rigid Sigmoidoscopy with a laparoscopic-assisted partial colectemy with en bloc small bowel resection Sep 2008
Diagnosed: Stage IV Colon Cancer mets to lungs and liver. (T3,N2,M1,G2) KRAS Mutation
Started chemotherapy: 09/14/09 Folfox-6 with Avastin then Avastin alone.
Next treatment 03/22/10 Camptosar with Avastin every 2 weeks for 3 months then PET scan
Most recent CEA Level: 03/08/10 79.4 down from 240 on 03/01/10

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