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artnut
Regular
Joined: 07 Aug 2005
Posts: 19
Location: West Virginia
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 Posted: Wed Sep 14, 2005 9:09 pm Post subject: I'm really scared right now |
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Sorry I haven't posted in a while, but things are really getting chaotic for us. I'm usually able to handle things, but this is getting to me today.
A couple of days ago, my husband was better than he'd been in the last two months. He was awake and alert a lot, watched football with my son, played with our little grandson, and even walked steadier. It was like the calm before the storm because since then, it's been upside down. He's extrememly confused once more, had another seizure,(they're being treated) has started to lose some of his long term memory, and the list goes on and on! The doctors say they think it's from the radiation he's been on for the last 4 weeks, but I'm not so sure. His last mri showed the tumor was beginning to shrink, but the doc said he's not happy with the response to the treatment. There's not much of it. They're going to do another MRI this weekend to try and see if the tumor is growing or not and honestly, I'm scared to death of the results! I know that his GBM IV is inoperable and is bilateral now and that is two strikes against him. I don't understand why the tumor would be shrinking and his symptoms are becoming so much worse except for that one day. I'm not handling this well today and think I've cried until I can't cry anymore. I just needed to get this off my chest, so please forgive me for such a long post. I'm just scared I'm going to lose him sooner than expected. 
Artnut |
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debr88
New User
Joined: 18 Sep 2005
Posts: 8
Location: New Hampshire
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| Posted: Tue Sep 20, 2005 10:17 am Post subject: Re: I'm really scared right now |
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Hi,
My name is Deb.My fiance was diagnosed with GBM 4/25/05.His tumor is unoperable.He has gone through 6 weeks of radiation and temodar.Now he's on IV chemo.I know what you're going through!!I was wondering if your husband's steriods were increased after his episodes of confusion and memory loss.
my fiance had a few episodes of confusion and disorintation,caused by swelling around the tumor.The increased steriods helped him tremendously.Please let me know how the MRI turned out!!!
Take care. |
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artnut
Regular
Joined: 07 Aug 2005
Posts: 19
Location: West Virginia
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| Posted: Tue Sep 20, 2005 1:37 pm Post subject: latest mri |
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Hi Deb,
I'm sorry your fiance is dealing with this awful GBM too!! Yes, they put my husband on Decadron (steroids) and increased them, but the confusion hasn't gone away. His mri results are in, and they're not what we were hoping for. We had hoped the tumor had shrunk more, but it hasn't. It's the same size as the last mri. He still has a week of radiation and Temodar left, so we're keeping the faith that it'll start shrinking the tumor again. I'm so glad the steroids are helping your fiance and you'll both be in my prayers!  |
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debr88
New User
Joined: 18 Sep 2005
Posts: 8
Location: New Hampshire
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| Posted: Sat Sep 24, 2005 8:43 am Post subject: Re: I'm really scared right now |
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| I'll pray that this last week of radiation and temodar shrinks the tumor.But if it doesn't...please be happy that it did actually shrink it once.My fiance when through radiation and Temodar...only to find out that his tumor was the same as when he was first diagnosed.We were not happy about that.but found SOME comfort in the fact that it hasn't spread or grown!! So keep praying for a cure for this horrible disease...and if you ever need a shoulder to cry on,I'll be here for you!!! |
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artnut
Regular
Joined: 07 Aug 2005
Posts: 19
Location: West Virginia
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| Posted: Sat Sep 24, 2005 11:52 pm Post subject: same here! |
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You know I'll also be here for you! God bless!  |
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mssue
Senior User
Joined: 20 Mar 2005
Posts: 104
Location: North Carolina
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| Posted: Sun Sep 25, 2005 12:26 pm Post subject: Re: same here |
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Dear Artnut,
My heart goes out to You and Your Husband and Family. It such a horrible thing to go through- I don't think there's anything I can say to comfort You except I will be praying for You all. When You are at Duke if there is anything I can do to ease Your burdens-please let me know-I live about 30 minutes from Duke.My email address is nathansuedickens@usa.com---my phone # 336-599-0545,even though the area code in Durham is 919 it still isn't long distance from Durham to Roxboro,You don't have to dial 1 before the area code.
Keep Your Faith,
(((hugs)))
_________________
Sue
Age-44
DX-8/29/2003
Stage 1 - ER/PR-,HER2-NU+
Infilterating Ductal Carcinoma
Modified Radical Mastectomy/Left-side
4 Rounds of A/C-completed 1/2004 |
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