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Monoclonal Antibody  What is this ? |
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| HEATHER Regular Joined: 17 Nov 2004 Posts: 24 |
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| leo Contributor  Joined: 23 Sep 2004 Posts: 1575 |
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| HEATHER Regular Joined: 17 Nov 2004 Posts: 24 |
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| leo Contributor Joined: 23 Sep 2004 Posts: 1575 |
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| HEATHER Regular Joined: 17 Nov 2004 Posts: 24 |
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| leo Contributor Joined: 23 Sep 2004 Posts: 1575 |
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| gigi New User Joined: 03 Jul 2005 Posts: 1 Location: Ohio |
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I did well and was bone marrow clear after this therapy. The doctor wanted to stop there, but I told her that I had come to the large hospital to try to recieve a cure, and I wanted to persue that. I started on coral calcium at that time on the advice of several unrelated friends and family telling me about it in a three day period. I thought it was a nudge from above, and seeing I had had a platelet count below 75,000 for years and years, I was surprised to see it shoot above 135,00 in three weeks, and this was good because I needed a count above 100,000 to get into the trial. I took campath then and had to take benedryl, steroids by pill daily and IV before every treatment. I had allergic reactions to the campath and they would give me more benedryl pushes to stop them. Really, I felt tired more as the treatment progressed and had a terrible time with a poorly placed chest catheter, but I didn"t loose my sence of humor throughout the treatment.[And I can loose my jolly's when things get painful!] I couldn't have the transplant because of not harvesting enough stem cells[through bad medical decisions and treatment] but even though my doctor gave me about eight months to be healthy, I am going on mythird year of no sign of the CLL in September. I had trouble with pneumonia after the treatment, but remember, I had heavy duty cytoxan to try to harvest, so I don't know if I would have been as bad with only the campath. I would not hesitate a moment to have campath again, and it would be, in fact my treatment of choice with the now available choices. I am 52 and have had this since I was 38 and I cannot remember feeling this good or having this much energy. The worst downside for me was the massive weight gain with the steroid. Every time I would start to loose, I would have to have my streoids upped becouse of the lung problems.[I had some previous to the CLL] Small price to pay to feel so good. As for the tests, I think your doctor should order all available staging tests for CLL to be performed on your husband. Cll Topics is a good place to go to find out all of the information you may want to arm yourself with before you talk to your doctor again. If you are seeing a local onco/hemo and they don't want to do the tests, GO TO A CANCER TREATMENT CENTER! The bad part about being treated at a large hospital is being worked on by untrained people who are practicing on you. This caused me some bad experiences, but the high quality of knowledge is worth the trip. You can go there and get their best recommendation and if your local will cooperate, get the treatment at home. I hope I helped you. And I wanted to add a word of advise I recieved. Follow the old transplant guidelines for being careful about infections. The new therapy available gives patients more freedom, but why eat in restraunts, and not wash all fruits and vegies in soap before cooking if it could help? Good luck and GOD BLESS YOU! 