worried about the latest my mom(in law)

kaylany · Regular Joined: 02 Aug 2006 Posts: 31 Location: New York

My mom (in-law) was diagnosed stage IV NSCLC at the end of april. They gave her 6 months. She had one lesion in the brain, they removed. It spread to lymph nodes and now other lung and abdomen. They stopped the chemo they started a few weeks ago b/c of low white blood cells. They gave her the shot to produce them, from that point, it's just gone from bad to worse.

I wrote here last week we didn't know if it was the shot making her not be able to move. After 5 days of her being chair ridden, her daughter took her in. We couldn't even get her in the car ourselves. We had to call 2 male friends over to help.

They're thinking it may be in her stomach b/c she can't keep food down, and they already know it's in the abdomen. They're taking there time about doing tests in the hospital, i think b/c she is just getting worse and there is no rush to do a ct scan.

They did 2 blood transfusions, and they have her on oxygen. From a nurse we learned she is not being discharged until we get some things set up at home. She'll need to stay on oxygen, we have to call hospice and maybe get a nurse too. There will be no more chemo.

I am scared out of my mind about this. I know it doesn't get better from here. And I couldn't even stand being in the hospital room yesterday, I had to leave b/c I couldn't hold back crying. she doesn't even know any of this. She thinks, b/c her mom had a stroke and needed to do excercises to move around better, that that's all she needs to do to become mobile and be fine. Do we let her think that? Do people always know all the details or is it better left unsaid? If hospice comes in she'll just be on morphine right?

It's breaking my heart to see such a wonderful caring person at only 62 become so sick she can't even eat or drink or go to the bathroom. 2 weeks ago she was fine at her birthday party we had for her. They're giving her sleep aids at 2 pm in the afternoon b/c she feels so bad. She said I'll be fine at home, and i'll do the excercises, my mom wouldn't but I will. It's so hard b/c we have to wait for the dr. and see how we handle all this.

I don't even really have a question. I sort of wonder what this means in terms of her time left, but at the same time, it doesn't matter. I just can't see her getting better at this point. One thing I don't get is why she has really swollen feet and ankles and they're hurting her alot. Anyone know what that could be? I always thought people lost weight when they became worse. She almost appears more swollen in a way, in her legs and stomach area. Any ideas?

Thanks in advance to anyone who takes the time to reply. I could really use a little words of comfort or advice right now.
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kaylaNY

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