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Husband diagnosed with Primary CNS Lymphoma (brain) - help What is this ?

 
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missymet31
New User


Joined: 30 Apr 2007
Posts: 6
Location: Long Island, NY
PostPosted: Thu May 03, 2007 8:41 pm    Post subject: Husband diagnosed with Primary CNS Lymphoma (brain) - help Reply with quote
Hello,

My husband has recently been diagnosed with PCNSL and is undergoing his first chemo treatment in Sloan Kettering as we speak. Is there anyone out there who knows anyone with this disease? His chemo regimin will consist of R-MVP treatments every 10 days for 5-7 cycles and then a low dose of radiation. When that's all done, they will do an MRI and we pray that it worked. He is 48 years old and we have 2 children, 15, and 13. One day my life was fine and the next.....I'm still in a state of shock. He actually had surgery to have it removed from his cerebellum since at first they thought it was an Astrocytoma, but the extended path report came back as this rare lympyhoma. I was hoping for some success stories, but I can't seem to find anyone with this disease. Thanks to all for listening.

Missy from Long Island
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rlee
Site Admin


Joined: 15 Jan 2006
Posts: 245
PostPosted: Sat May 05, 2007 12:52 pm    Post subject: Re: Husband diagnosed with Primary CNS Lymphoma (brain) - help Reply with quote
missymet31,
Here's an article giving an overview on PCNSL. I'm not sure if this is what you're looking for and it may provide too much info. I hope it helps. Best wishes.

http://www.emedicine.com/neuro/topic519.htm
_________________
RLee, MD

Any information provided is NOT intended to provide specific medical advice to users but rather to provide users with information to help them better understand their health condition and related care. All readers are strongly encouraged to consult with a qualified physician for answers to their personal medical questions.
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