rlee what do you think

shaz · Posted: Fri May 25, 2007 9:13 pm Post subject: rlee what do you think

I have just finished 3ths of VAD and my protien levels are not moving from the 20-25 mark. The doctor has offered me two trials one being Velcade the other Lenalidamide. I f i choose lenalidamide and it doesnt work i cant go back to velcade. I have read or the literature and the side effects from both all sound very daunting. We are harvesting my stem cells at the beginnning of June and i have to make a decision by then. I know the decison is mine but it would be nice to have an other opinion.What do you think, which one will i get the most quality time out of.

brainman · Posted: Sun Jun 03, 2007 12:49 pm Post subject: Re: rlee what do you think

shaz, hopefully, Dr Lee will be on the forum soon to give you a specific answer to your questions. However, I can tell you the general answer he and I will give you about this: Talk to your own medical team expressing all of your concerns. If you still have concerns, get a second opinion. Good luck with your treatment.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/

shaz · Posted: Mon Jun 04, 2007 8:33 am Post subject: Re: rlee what do you think

Wow Brainman you have certainly been through the mill. I am not sure but i think the USA are a lot more advanced with their treatments than Australia, so i thought maybe you guys might know more about these drugs. I read on this forum that one lady had been on Velcade for 8yrs so that is better than the odds i was orginally given. Good luck with your treatment as well. Please keep me posted how you are going.

brainman · Posted: Sat Jun 16, 2007 10:41 am Post subject: Re: rlee what do you think

Hi shaz, I do hope all is well with you! So few people post to this particular forum. I do not know if the is because Multiple Myeloma is just so rare or what the reason is. I hope your medical team has been able to help you make your decision.

I personally am interested in Multiple Myeloma because my ex-father-in-law died with it over 10 years ago. I truly believe that I married my ex because I wanted to find a family for myself. My parents lived in Brazil and where not her for my college years and early adult years. So Paul was very much a father figure to me. I admired him so much.

Paul was diagnosed with multiple myeloma and what through chemo and radiation. At that time, I was not as familiar with cancers as I am now so I do not know what chemo he was on. I do remember the strong and active man that I once knew becomes a weak (physically) man who was always at risk of breaking a bone (which he did a number of times).

You are probably right in thinking that there are more advaced tretments in the USA than in any other country because most of the research is done here. I am just not very familier with that research. The National Institute Of Health's website might be of help to you:

http://www.nih.gov/

Or just do a google search for Multiple Myeloma might result in some interesting and helpful information.

I continue to keep you in my thoughts and prayers.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/

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