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simplyklb
Senior User
Joined: 04 May 2008
Posts: 177
Location: Near Kansas City MO
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 Posted: Wed Jun 25, 2008 10:33 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Koik,
Be sure to take care of yourself!
Thinking of you!
Kristi
_________________
Dad - Andy, 70, diagnosed with SCLC in May 2008
Mom - Jackie, 67, diagnosed with NSCLC in May 2008 |
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helensgirl
Senior User
Joined: 21 Dec 2007
Posts: 125
Location: north carolina
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| Posted: Fri Jun 27, 2008 7:42 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Koik,
I truly wish the best for you and your dear husband. Your story is one of courage, strength, love, committment and much tribulation...as are all of the stories of those who have found themselves in this forum. If I could be so forward as to add my 2 cents worth, from my own experience, just love him; laugh with him when you get the chance, and hold him as tightly as you can. Worry about the technicalities when the time comes, OK?! Take care, Kim in NC
_________________
...keeping the faith in n.c.
Helen, my wonderful mom, diagnosed May, 07
fought-stage 4 NSCLC, (adenocarcinoma)
earned her place in Heaven, Dec. 14th, 07 |
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pbj11
Site Admin
Joined: 12 May 2007
Posts: 1031
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| Posted: Mon Jun 30, 2008 8:09 am Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Koik,
Thinking of you and hoping the days are going gently for you and your husband.
Hugs,
PBJ
_________________
Husband diagnosed with NSCLC Stage IV. (Non-Small Cell Lung Cancer) Fought & lived 2 1/2 years with multiple lines of treatment.
Post describing our battle: http://cancerforums.net/viewtopic.php?t=7026&postdays=0&postorder=asc&start=0 |
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koikkeril
Moderator
Joined: 29 Jul 2007
Posts: 302
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| Posted: Mon Jun 30, 2008 4:42 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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I am back in the hospital full time. Thanks for your caring post, my head is not clear and I am well beat. Hubby has seizures so regular I am not sure when he is with me or not.. I cant even get water down him as he chokes, I am so tired now so I am off for a sleep, haha  It is so sad to see what I am experiencing. I have no idea what tomorrow brings and the changes are so dramatic from one day to the next. Yesterday although confused he was tucking food down himself and today he cant even swallow water, he isnt eating anything, its heartbreaking, Its lonley but not so lonley knowing you are all there for me. Thanks again for checking in and God Bless you, Koik |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 3787
Location: Tennessee
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Trudy
Regular
Joined: 24 May 2008
Posts: 40
Location: Hershey PA
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| Posted: Mon Jun 30, 2008 5:17 pm Post subject: Thinking of you daily |
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Dearest Koik,
You and your husband have been on my mind daily.
My prayers continue for you...you are a remarkable woman and I pray God will bring you support as you journey this walk with your dear husband.
Always praying for you,
Trudy |
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caligirl
Regular
Joined: 07 Apr 2008
Posts: 37
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| Posted: Tue Jul 01, 2008 12:31 am Post subject: So sorry!!!! |
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I am so sorry about what you are going through.....
I know the feeling all too well...
You live with the fear and anxiety daily of not knowing what every day or hour will bring....
I couldn't be more sorry for you...
And I understand....
My mom was my best friend, spouse, mom and dad, best friend, security and foundation all rolled into one.....
As hard as it is, please TRY to enjoy even this time, as you still have him with you.
Trust me, it is better than not having him.....
I hated seeing my mom in this state and I thought I was ready to let her go to heaven and be happy and have a new perfect body that was pain free and perfect...and I am happy for her.....
However, I would give almost anything for one more moment with her or to hold her warm hand....
You are in my thoughts and prayers..... |
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koikkeril
Moderator
Joined: 29 Jul 2007
Posts: 302
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| Posted: Tue Jul 01, 2008 4:20 am Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Oh Caligirl, I know. I still lay by his side and cuddle him and until his death i will continue. Today i am more broken so i am having a day of feel sorry for me. People around me are taking advantage and it hurts me so much. This forum actually keeps me going, by sharing experiences one feels attached to others on there journey, don't they? It makes you remember all those we chat too. It wasn't so long we chatted to Traffic warden, how funny he was and Julie with her courageous outlook of life with her girls, God Bless all those families that remain and have to pick up the pieces afterwards. I haven't for a moment forgotten your stories also, how courageous your mother was, I know how much we miss afterwards, after the death of my son I never got over it, but I cry less. We do survive because we have too, but by hell it hurts us, I am a softy already so it doesn't help me much, I cry when I see something sad on telly,  (Trying to smile  God Bless and thank all of you for continuing to think of me and my hubby. Koik |
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Tera
Senior User
Joined: 31 Dec 2007
Posts: 161
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| Posted: Tue Jul 01, 2008 3:14 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Koik, I've had you on my mind every day and think of you every day. You are an inspiration to us all, you know. I know it is so hard, like Caligirl said. It is a waiting game and a not very fun one at that. Cherish the moments you have, as I know you are.
Caligirl....you hit it on the head. I would give anything to have my mom back for just a little while even. It is ourselves we feel sorry for, not our loved ones, who have gone on to bigger and better things. |
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pbj11
Site Admin
Joined: 12 May 2007
Posts: 1031
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| Posted: Tue Jul 01, 2008 10:12 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Koik,
You've been through too much for one lifetime. I can't begin to imagine how you are "trying to smile" at all right now. This end journey is longer than you ever imagined, but he is still with you. I know how much you are treasuring these moments, so I'm glad he's still fighting for both of you.
Psstt... I cry over all kinds of things that I didn't before. You aren't alone! 
We will continue to hug you and hold you up in prayer for strength, even if it is long distance. You deserve the best Koik --- God love you.
Hey -- who is taking advantage of you? Tell them you have friends all around the world who will be leaning on them if they don't knock it off.
Yes, we do survive, but we do so with huge holes in our hearts. I know you have been down this path once before and in the worst way possible, so I admire your courage and care for others. There is a special place reserved for people like you up in Heaven.
Big Hugs,
PBJ
_________________
Husband diagnosed with NSCLC Stage IV. (Non-Small Cell Lung Cancer) Fought & lived 2 1/2 years with multiple lines of treatment.
Post describing our battle: http://cancerforums.net/viewtopic.php?t=7026&postdays=0&postorder=asc&start=0 |
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koikkeril
Moderator
Joined: 29 Jul 2007
Posts: 302
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| Posted: Sat Jul 05, 2008 1:14 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Hi,
This last week has been somewhat up and down.... So much to say, but how? I am speechless, i am better shutting off and thinking about other things because when it comes to myself at the moment I don t know where to start anymore. I am so tired. I have had problems with auxillary nurses, different doctors opions, different stories and now my husband has been out of it since the last 10 hours and I call that a coma? He has had nothing to drink all day and no IV on him but he is well out of it, I think he can hear me, but he just cant reply, at one stage this morning I did get a grunt.. 
I have to get back to the hospital and unfortuantly we have been moved to a hospital with no wifi, so I cannot update you until tomorrow evening! I havent had time to read other post as I am only here for twenty mins...
Thankyou Pbj, first time i have got your name the right way ropund
Thanks to Michael, I read your post the other day in the main hospital, went and replied to you and the computer crashed
Tera, calligirl, everyone thinking of me, hugs to you all shall post soon!
Koik |
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pbj11
Site Admin
Joined: 12 May 2007
Posts: 1031
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| Posted: Sat Jul 05, 2008 1:57 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Koik,
Yes, going into mental "cruise control" helps cope with all that is being thrown at you as you watch your dear husband. Many prayers for peace for you and him, as always.
You both are champions, regardless of the outcome. God bless.
Hugs,
PBJ
_________________
Husband diagnosed with NSCLC Stage IV. (Non-Small Cell Lung Cancer) Fought & lived 2 1/2 years with multiple lines of treatment.
Post describing our battle: http://cancerforums.net/viewtopic.php?t=7026&postdays=0&postorder=asc&start=0 |
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Nurse Penfold
Regular
Joined: 15 Mar 2008
Posts: 16
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| Posted: Sat Jul 05, 2008 4:16 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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| Prays and thoughts with you ... stay strong ... I know it's hard! |
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Lily
Regular
Joined: 11 Apr 2008
Posts: 12
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| Posted: Sat Jul 05, 2008 4:23 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Koik,
My thoughts and prayers are with you and your husband. |
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Vee Smith
Moderator
Joined: 12 Feb 2006
Posts: 702
Location: UK
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| Posted: Sat Jul 05, 2008 4:31 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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| As always, thinking of you. Take care. |
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