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On the move again. What is this ?

 
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Vee Smith
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Joined: 12 Feb 2006
Posts: 749
Location: UK

PostPosted: Thu Jun 05, 2008 2:47 pm    Post subject: On the move again. Reply with quote

Alas, my skin mets are not responding to hormone treatment, so I am moving into chemo again. Capecitabine is the one chosen.

This was triggered as there has been a tumour development in the skin under one eye, and it is affecting the eye movement. Since the danger is that I will be stopped from driving - and I cannot at present afford to be in that situation, aggressive action must be taken to reduce these growths.

For those that are interested, I am [with my oncologist's agreement] also trying this special honey from Israel which is supposed to mitigate the side effects and improve the efficacy of the treatment. I will let you know what happens.
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ksplat
Super Moderator


Joined: 26 Apr 2007
Posts: 531
Location: Brisbane, Australia

PostPosted: Fri Jun 27, 2008 4:53 am    Post subject: On the move again Reply with quote

Hi Vee

Sorry to hear you are back on the chemo road again! I hope this resolves the skin mets under your eye?

I will be interested to hear about the Israeli honey treatment too!

Thinking of you,
Cheer, Angie.
_________________
Brother diagnosed with GBMIV Feb 07
Treatment: Radiotherapy, Temodal, Gliadel Wafers, Dexamethasone, Keppra, Dilantin, Clexane
Went to our Heavenly Father after a 19mth battle,, 47 years young.
23 Sep 2008
http://cancerforums.net/viewtopic.php?p=19227

"Without Faith We Have Nothing"
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Vee Smith
Moderator


Joined: 12 Feb 2006
Posts: 749
Location: UK

PostPosted: Fri Jun 27, 2008 5:38 am    Post subject: Re: On the move again. Reply with quote

Hi, Angie - first round over - and my feet and mouth are killing me! Sad However, fortunately this chemo is adjustable so it may be reduced slightly on the next one.

I am taking the honey - the jury is out at present. I think I need to give it three months to be sure if it helps or not Confused
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Vee Smith
Moderator


Joined: 12 Feb 2006
Posts: 749
Location: UK

PostPosted: Fri Aug 22, 2008 2:18 pm    Post subject: Re: On the move again. Reply with quote

Update:
My blood counts have remained almost normal, and the nurses tell me they think that is the effect of the honey, so I am continuing it.

However, I have the dreaded hands and feet syndrome, with cracking skin on the fingers and toes, on the edge of the nails. AGONY!!!

Anhyone who has had the same problem - how did you cope??
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ksplat
Super Moderator


Joined: 26 Apr 2007
Posts: 531
Location: Brisbane, Australia

PostPosted: Sat Aug 23, 2008 12:06 am    Post subject: Re: Chemo side effects Reply with quote

Hello Vee
Thanks for the update, I've been meaning to check on you for some time now. Sorry 'bout that.
The skin problems sound dreadful & soooo painful for you. I'm sorry you are having to endure this discomfort & pain. As I'm not familiar with the side effects of this chemo I cannot suggest anything? Terribly sorry.
It's a real bonus to have your bloods so good & an added bonus to have recognition for the "honey", from the nurses.
I hope someone will come to your aid soon, with some simple, staightforward advice.
Thinking of you.
Cheers, Angie.
_________________
Brother diagnosed with GBMIV Feb 07
Treatment: Radiotherapy, Temodal, Gliadel Wafers, Dexamethasone, Keppra, Dilantin, Clexane
Went to our Heavenly Father after a 19mth battle,, 47 years young.
23 Sep 2008
http://cancerforums.net/viewtopic.php?p=19227

"Without Faith We Have Nothing"
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