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Forum: Leukemia Forum

Moderator: po18guy

  1. Adult (40 yr old) lymphoblastic lymphoma

    Hi, I was recently dx and my dr. Is hoping to treat me with chemo only and bmt only if I relapse. My question is to you all is do most people who are...

    Started by Andyt, Yesterday 02:03 AM
    • Replies: 0
    • Views: 64
    Yesterday 02:03 AM Go to last post
  2. looking for help /ONLY if my son is dying already will I be able to visit?

    IM THE MOTHER OF AN INMATE AT A KANSAS CORRECTIONAL FACILITIES, IN JUNE 26 MY SON WHEN INTO THE ER, OR ON JUNE 27TH (NOT SURE ABOUT THE DATES) I...

    Started by Angelita37, 07-20-2014 08:16 PM
    • Replies: 3
    • Views: 210
    07-26-2014 05:46 PM Go to last post
  3. cmml turned to aml

    Hello all, My mother, 70, has had CMML for approx 5 yrs. She has just been told it has progressed to AML. Chemo didnt work, steroids didnt work, a...

    Started by suemp77, 07-23-2014 06:46 AM
    • Replies: 6
    • Views: 196
    07-25-2014 09:14 AM Go to last post
  4. Wife has AML

    Received some devastating news on Tuesday that my 35yo wife has AML. A little history. She had some tooth pain about a month ago so she went to the...

    Started by mstrlucky74, 06-22-2014 09:38 PM
    • Replies: 4
    • Views: 712
    07-15-2014 02:53 AM Go to last post
  5. New Member

    Hello everyone. Just introducing myself. I'm 29yrs old in the Airforce now for 10yrs. And so far this is my story. I was just diagnosed with...

    Started by Kaash, 06-29-2014 08:36 AM
    • Replies: 10
    • Views: 658
    07-08-2014 03:10 AM Go to last post
  6. CLL: Fatigue and pain

    Hi my name is jamie and i was diagnosed with CLL in 2010. i have had my spleen due to it being twice the normal size and i had a white count of...

    Started by jamie37, 06-29-2014 02:47 AM
    • Replies: 1
    • Views: 272
    06-29-2014 06:40 AM Go to last post
  7. cll: fatigue and pain

    Hi my name is Jamie and I tried to post a little bit ago but it looks like it didn't work to well anyway I was diagnosed with cll in 2010 I have had...

    Started by jamie37, 06-29-2014 03:45 AM
    • Replies: 1
    • Views: 156
    06-29-2014 04:10 AM Go to last post
  8. Smile Newbie here

    Hi everyone. My name is Anne and I am new to this forum. PLZ forgive if I have posted in the wrong place. I was Dx with CLL in August of 2009 and...

    Started by louise53, 06-28-2014 11:35 PM
    • Replies: 3
    • Views: 228
    06-29-2014 02:59 AM Go to last post
  9. looking for some advice on starting my son in preschool

    Hello to everyone :) So I'm new here. Just found out Feb 22 that my then 3 yr old son (he turned four this past sat) has pre-b cell ALL. Been a...

    Started by momma val, 06-11-2014 05:24 AM
    • Replies: 1
    • Views: 348
    06-18-2014 02:22 AM Go to last post
  10. Transplant or not???!!!! Help

    My Dad is 69yrs old and has AML with no genetic abnormalities. He went through the initial chemo treatments and has been cancer free for 14 months....

    Started by Stevegill, 05-07-2014 10:16 PM
    • Replies: 3
    • Views: 712
    06-09-2014 06:48 AM Go to last post
  11. Need information - Urgent (AML M2 FLT3 ITD)

    Dear Friends, My friend Tarak, is suffering from AML M2 FLT3 ITD. He has undergone Natural Killer Cell Therapy subsequently followed by a Bone...

    Started by tarak, 06-07-2014 07:56 PM
    • Replies: 3
    • Views: 453
    06-08-2014 09:32 PM Go to last post
  12. T-all t-lymphoblastic lymphoma

    Hi all, I was just recently diagnosed and my dr. Gave me a 50 percent chance. I actually think it's lower after doing some research since I would...

    Started by Andyt, 06-06-2014 02:03 AM
    • Replies: 1
    • Views: 266
    06-06-2014 06:36 AM Go to last post
  13. My 6yr old niece was diagnosed with Acute Leukemia

    Hello, everyone. Andrea my eldest niece who is 6 yrs old was diagnosed with Acute Leukemia last December and has been battling it since then. She had...

    Started by Oakley2105, 06-05-2014 01:50 PM
    • Replies: 1
    • Views: 358
    06-05-2014 03:21 PM Go to last post
  14. Post Just Chemo no transplant (aml)

    Hi My friend recently was diagnosed with AML (Leukaemia) and just wanted to know if anyone has just gone into remission through chemo only? and...

    Started by mortal90, 03-31-2014 03:08 AM
    • Replies: 2
    • Views: 701
    05-31-2014 02:53 AM Go to last post
  15. you need help and i need help...so please visit my site

    are a type of 40 years who was diagnosed with chronic myeloid leukemia and would be very happy to know patients who had the same problem with mine...

    Started by leucemiasieu.ro, 05-06-2014 02:24 PM
    • Replies: 1
    • Views: 358
    05-06-2014 08:19 PM Go to last post
  16. Just diagnosed

    I figured I have plenty of time so I had better find a forum to talk to other people if I have any questions during my time in the hospital. Here's a...

    Started by catfish_calvin, 03-23-2014 05:31 AM
    • Replies: 13
    • Views: 1,804
    05-05-2014 12:16 AM Go to last post
  17. help needed...rituximan plus bendamustine not responding in CLL

    My father had a first cycle of chemo with bendamustine plus rituximab...his wbcs lowered to one thousand but now they are again on the rise....and...

    Started by raheelssiddiqui, 05-02-2014 05:19 PM
    • Replies: 3
    • Views: 364
    05-03-2014 08:11 AM Go to last post
  18. still weak 4 years after my bone marrow transplant

    Hi everyone I am 30 years of age and I had AML Leukaemia 5 years ago and was treated with chemo and then relapsed a year later so I needed a bone...

    Started by itzmatty, 04-22-2014 10:04 AM
    • Replies: 3
    • Views: 525
    04-30-2014 08:10 AM Go to last post
  19. Feeling very frustrated

    Just seen my consultant and I feel like she is making light of my condition. I was diagnosed with T LGL stage 4b a few weeks ago. I was previously...

    Started by anneileen, 04-29-2014 03:15 PM
    • Replies: 0
    • Views: 377
    04-29-2014 03:15 PM Go to last post
  20. T lgl leukaemia

    Hi again, I have seen my haematologist today and she gave me a bit more information about the T cell lymphoma that I have.. She said it is a very...

    Started by anneileen, 04-23-2014 08:40 AM
    • Replies: 6
    • Views: 556
    04-24-2014 04:41 AM Go to last post
  21. neutropenia after chemo

    my father is having a chemo with rituximab plus bendamustine. he got rituximab on wednesday and bendamustine on thursday and friday. Doctors decide...

    Started by raheelssiddiqui, 04-20-2014 07:50 PM
    • Replies: 1
    • Views: 423
    04-21-2014 09:03 AM Go to last post
  22. ANYONE who may know someone who has ever dealt with PDGFRB-EBF1

    My nieces bone marrow transplant was cancelled for now. The doctors are going to blast her tiny body (now down 25 pounds) with heavy duty chemo that...

    Started by Ships380, 04-14-2014 04:31 PM
    • Replies: 1
    • Views: 418
    04-14-2014 10:47 PM Go to last post
  23. plz share your experience with bendamustine plus rituximab

    I am from Pakistan. My father is diagnosed with CLL stage IV. Dr advised him treatment with bendamustine and rituximab. we are very much worried as...

    Started by raheelssiddiqui, 04-04-2014 05:47 PM
    • Replies: 5
    • Views: 658
    04-14-2014 10:01 AM Go to last post
  24. T-Cell ALL options for treatment for AYA.

    My 23 y.o. son was diagnosed with T-Cell ALL and underwent CALGB 10403 protocol. Has had very hard time with fungal pneumonia, and now relapse of CNS...

    Started by jgfitzs, 04-08-2014 02:40 AM
    • Replies: 4
    • Views: 498
    04-10-2014 10:43 PM Go to last post
  25. Found Blast In Leukemic Child after 3 years

    Hello my son was DX on 6/26/11 we are at the end of treatment .. one last LP to go .. we got the call that they found 2 Blast in his last LP we are...

    Started by vgrande77, 04-07-2014 06:51 PM
    • Replies: 4
    • Views: 594
    04-10-2014 03:52 AM Go to last post
  26. Bone Marrow transplant question?

    So in December my dad was diagnosed with Bone cancer. An odd form normally children get? I forget what it was. (I can ask what it is if needed) ...

    Started by MoonLight, 02-11-2014 07:47 AM
    • Replies: 3
    • Views: 715
    04-08-2014 03:30 AM Go to last post
  27. Got Some Bad News and need advice

    I was diagnosed in Sep 2013 with ALL. I later found out that is has been going on since Oct 2014. Anyways, I was going threw chemo and was told last...

    Started by chaley1214, 03-15-2014 01:05 AM
    • Replies: 3
    • Views: 1,117
    04-08-2014 03:22 AM Go to last post
  28. Prayers for my 4 year old baby girl and some questions- Pre B Cell ALL

    Hello Everyone, On March 12th my daughter Eva was diagnosed with Pre-B Cell ALL. What started out as a regular pediatrician visit to check out a...

    Started by cecileew, 04-06-2014 08:37 PM
    • Replies: 1
    • Views: 496
    04-07-2014 08:40 AM Go to last post
  29. My wife's 4 yr old niece was just diagnosed with leukemia...

    My wife's niece, Cora Lynn, and her family live in North Carolina where they run a farm. It's been a rough week around our house. Cora Lynn has...

    Started by BrendanMMcG, 02-11-2014 09:25 PM
    • Replies: 2
    • Views: 822
    04-06-2014 08:42 PM Go to last post
  30. News from ASH regarding CAR T-Cell therapy against relapsed/refractory ALL

    As always, there are some caveats, and some potentially serious side effects, but this provides hope for those with ALL that has relapsed or has...

    Started by po18guy, 03-26-2014 06:45 PM
    • Replies: 0
    • Views: 260
    03-26-2014 06:45 PM Go to last post
  31. Diagnosed with Hairy Cell Leukemia - looking for information

    Can someone give me "real" information on Hairy Cell Leukaemia as i was diagnosed this week. I am 46 year old female.

    Started by DonnaS, 03-14-2014 05:28 AM
    • Replies: 4
    • Views: 798
    03-21-2014 01:26 AM Go to last post
  32. More Pain Management woes

    My wife a 6 year survivor of CML is headig to the ER right now. Stubborn, she had to drive herself because she would not let me skip my appointment....

    Started by iriegnome, 03-11-2014 02:59 PM
    • Replies: 6
    • Views: 551
    03-13-2014 12:01 AM Go to last post
  33. 10 years in remission of AML - just turned 33-there's hope

    I was 22 when I was diagnosed with AML. I am now 33 (just turned this week) and am fine. Just want to tell everyone there is light at the end of the...

    Started by Kellya, 10-11-2013 11:00 PM
    • Replies: 5
    • Views: 1,753
    03-12-2014 04:57 PM Go to last post
  34. Mom has cml need to talk

    Mom mom is 79 just diagnosed with cml and started taking gleevex and has been on it for a month and started not feeling well, her WBC went back to...

    Started by Michele222, 01-06-2014 12:56 AM
    • Replies: 3
    • Views: 965
    03-10-2014 06:21 PM Go to last post
  35. Pain Management

    I am new to this forum however I am not new to Leukemia. I have had CML for 6 years and have done fairly well with the treatment. This is my...

    Started by mswerlein, 03-26-2013 09:39 PM
    • Replies: 2
    • Views: 1,416
    03-10-2014 06:17 PM Go to last post
  36. Question CLL Confirmed but Prognosis "Mixed"

    I am a 66 yr old male just diagnosed with CLL. This was confirmed through blood tests and bone marrow biopsy. The results came back "mixed" in my...

    Started by Phil75070, 02-24-2014 01:07 PM
    • Replies: 2
    • Views: 809
    02-25-2014 03:01 PM Go to last post
  37. Test Shown to Reduce Early Cancer Deaths is Now Available to Patients

    Huntington Beach, CA - SignatureCLL announced that the first laboratory test ever shown in a clinical trial to improve one year survival rates in...

    Started by gdpawel, 11-16-2013 02:02 AM
    • Replies: 4
    • Views: 868
    02-20-2014 07:00 PM Go to last post
  38. Maintenance options for average risk B-ALL leukemia for kids

    Hi I am new to the forum. My son was diagnosed as Average risk B-ALL leukemia. He is soon going to be in maintenance. He was in the research...

    Started by reshmi, 01-15-2014 09:28 PM
    • Replies: 1
    • Views: 612
    01-21-2014 05:17 AM Go to last post
  39. Dad, AML relapse due to start FLAG-IDA this week followed with Bone Marrow Transplant

    Hi everyone. My Dad was diagnosed with AML normal risk about 6 weeks ago. He underwent his induction Chemo and Blast have been found. He has now been...

    Started by Angndad, 11-18-2013 08:43 PM
    • Replies: 3
    • Views: 943
    01-17-2014 10:10 PM Go to last post
  40. BMT for a 70 yr old Male

    Dear All, My father is diagnosed with AML type 5. He has been on Vidaza for the last three months and he is doing excellent. He has no other...

    Started by Ba2, 12-31-2013 02:31 PM
    • Replies: 2
    • Views: 705
    01-01-2014 10:31 AM Go to last post
  41. Second bone marrow transplant?

    Has anyone here ever had a second bone marrow transplant?Don't want to hear about anyone who died after it,just want to hear from someone who has had...

    Started by againstallodds, 12-22-2013 02:00 PM
    • Replies: 5
    • Views: 1,092
    12-31-2013 05:13 PM Go to last post
  42. Sister has Relapsed AML

    My sister was diagnosed with Acute Myeloid Leukemia (AML) in September 2012, at age 53. Her prognosis wasn't particularly good since AML is an...

    Started by amc422, 11-08-2013 01:21 PM
    • Replies: 4
    • Views: 1,386
    12-23-2013 06:55 PM Go to last post
  43. Father with Leukemia for 8 years

    My father was diagnosed with AML about 8 years ago. It was chemical induced due to multiple medications (trial and errors) given by his doctor. My...

    Started by Mickylady1, 12-07-2013 02:27 PM
    • Replies: 2
    • Views: 928
    12-08-2013 04:18 AM Go to last post
  44. Hairy Cell Leukemia and Hair Loss - New to Forum

    Hi, I am a 47 yo female diagnosed with HCL in March. I had one 5 day administration (IV) of Cladribene and am doing really well. Except my hair has...

    Started by StaciKS, 11-26-2013 02:44 PM
    • Replies: 1
    • Views: 981
    11-27-2013 10:13 PM Go to last post
  45. Hi, I'm New Here

    Found this forum after yet another sleepless night of dark thoughts and desperation, and the need for hope and support. My sister was diagnosed...

    Started by amc422, 11-08-2013 01:16 PM
    • Replies: 3
    • Views: 1,179
    11-11-2013 12:08 AM Go to last post
  46. Help aml relapse

    My daughter is 24 years old, in September 2012 she was diagnosed with AML, she also had an fl3 mutation, they gave her a course of chemo at worcester...

    Started by Gemzmarsh, 09-05-2013 04:01 PM
    • Replies: 2
    • Views: 1,243
    11-08-2013 01:37 PM Go to last post
  47. Aml sub type 5, 70 yr old patient using Vidaza. What is the best route?

    My father (good health with no other problems until aml diagnosis) has been diagnosed with aml sub type 5. He is 70 and doctors doesn't recommend...

    Started by Ba2, 11-02-2013 02:07 PM
    • Replies: 1
    • Views: 837
    11-02-2013 06:30 PM Go to last post
  48. First drug to target common target on all cancers goes to trial: AML up first!

    The first drug to target a mutation common to all cancers goes to trial soon in the US and UK. Solid cancers in one trial will go on simultaneously...

    Started by hazellypoo, 11-02-2013 05:31 PM
    • Replies: 0
    • Views: 470
    11-02-2013 05:31 PM Go to last post
  49. FDA approves Gazyva ( obinutuzumab ) drug for CLL

    Fri Nov 1, 2013 9:35pm IST Nov 1 (Reuters) - U.S. regulators on Friday approved Roche Holding AG's new drug for patients with chronic lymphocytic...

    Started by lancepeace, 11-01-2013 07:42 PM
    • Replies: 0
    • Views: 547
    11-01-2013 07:42 PM Go to last post
  50. Father in Law Recently Diagnosed With AML

    Hi everyone. I'm new here. About a month and a half ago, my FiL was diagnosed with AML, (I don't know what subtype of the disease he has, though...

    Started by DngrMse, 10-26-2013 02:57 PM
    • Replies: 2
    • Views: 815
    10-26-2013 07:41 PM Go to last post

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