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Forum: Leukemia Forum

  1. Sticky Thread Sticky: National Bone Marrow Transplant Link dedicated 2 helping individuals & their families

    nbmtlink.org 800-546-5268 (800-LINK-BMT) Peer support for patients, families and caregivers, plus information, resources, video, booklets. ...

    Started by heartofsoul1, 02-10-2013 07:47 PM
    • Replies: 0
    • Views: 901
    02-10-2013 07:47 PM Go to last post
  2. Sticky Thread Sticky: Types of Leukaemia

    The description in the site/link below has an excellent write up on the types of leukemia and the symptoms. For the 3 major types listed below, there...

    Started by heartofsoul1, 01-04-2013 07:15 AM
    • Replies: 0
    • Views: 1,454
    01-04-2013 07:15 AM Go to last post
  3. Sticky Thread Sticky: Bone marrow, stem cell transplant children's guide.

    I hope that this will help in preparing your child for this. http://www.cclg.org.uk/products_files/CCLG-BensBMT.pdf

    Started by Didee, 11-21-2012 12:51 PM
    • Replies: 0
    • Views: 1,470
    11-21-2012 12:51 PM Go to last post
  1. What were your symptoms?

    What were the symptoms that prompted you to seek medical attention? Did your doctor brush you off or take you seriously? How long did it take to get...

    Started by mommabear, 08-08-2012 01:34 AM
    • Replies: 5
    • Views: 3,572
    05-14-2013 12:48 PM Go to last post
  2. Prognosis for acute myeloid leukemia?

    Just a question about survival rates for AML. I don't really have any details, I'm just curious since a friend was just diagnosed. From what I've...

    Started by Mondo, 03-23-2011 06:53 AM
    • Replies: 9
    • Views: 9,285
    05-14-2013 05:27 AM Go to last post
  3. My dad has CLL and doctors think something else? Help.

    My dad was diagnosed with CLL back in September of last year. They decided to keep a watch on him instead of starting chemo but they wanted him to...

    Started by Bella87, 04-17-2013 03:07 AM
    • Replies: 3
    • Views: 2,523
    04-17-2013 06:27 AM Go to last post
  4. Were there signs your child was sick long before luekemia diagnosis?

    I have a 2 1/2 year old son who is sick. He weighs 24 lbs. He is anemic and pale. He is vitamin D deficient and broke his leg twice when he was 20...

    Started by Lieriel, 04-02-2013 04:08 PM
    • Replies: 3
    • Views: 712
    04-13-2013 02:43 PM Go to last post
  5. Question I NEED ADVICE!! my boy has ALL and can't decide on trials

    Recently my 4 year old son was diagnosed with ALL :cry: after months of the GP failing to notice his symptoms. However our little boy is...

    Started by ashleyg, 04-12-2013 03:22 PM
    • Replies: 3
    • Views: 305
    04-12-2013 10:08 PM Go to last post
  6. Dad diagnosed abroad. Please help.

    Hi, I am new to this site and in need of a lot of help. I am in Gran Canaria with my parents. My father was feeling ill for a week and typically...

    Started by samfv, 03-16-2013 09:53 PM
    • Replies: 4
    • Views: 509
    04-01-2013 04:27 PM Go to last post
  7. Help Please =(

    Ok so 6 Months ago I got a Blood Test because i had a swollen Swollen Lymph node on my left Collarbone and took a cbc and it came back Good so i...

    Started by HeavyMetalHead7, 03-21-2013 09:25 PM
    • Replies: 3
    • Views: 638
    03-27-2013 08:52 PM Go to last post
  8. Pain Management

    I am new to this forum however I am not new to Leukemia. I have had CML for 6 years and have done fairly well with the treatment. This is my...

    Started by mswerlein, 03-26-2013 09:39 PM
    • Replies: 0
    • Views: 263
    03-26-2013 09:39 PM Go to last post
  9. Just diagnosed with CML and am terrified

    Hello, My name is Katelyn and I am 22. I was just diagnosed with CML and I am absolutly terrified. My counts are starting to stabalize (I recently...

    Started by psychnursesaide, 07-09-2012 11:15 PM
    • Replies: 4
    • Views: 2,188
    03-26-2013 09:31 PM Go to last post
  10. 15 Year Old with T-Cell ALL

    Hey all, New here...Have a wonderful son that is 2-1/2 months deep into treatment for T-Cell ALL ..Everything seems to be going well. We've finally...

    Started by Teer2, 09-29-2012 01:29 AM
    • Replies: 10
    • Views: 2,404
    03-20-2013 03:13 AM Go to last post
  11. Bone Marrow showing up abnormal in MRI

    My 15 yr old son (16 in 2 weeks!) recently had an MRI & MRV done on both legs and pelvic area. There were 7 tests done and it took a total of 4 hours...

    Started by Lei1411, 03-19-2013 08:18 PM
    • Replies: 2
    • Views: 419
    03-20-2013 03:03 AM Go to last post
  12. what is definite diag. test of Leuk*? Is + CD19 enough although CBC normal?

    All: I am a 30 yrs old male. I wonder what is the definite test to rule out Leuk*. I am having rib and back pain, and headache for last 5 months,...

    Started by Ravi2012, 03-13-2013 01:17 AM
    • Replies: 1
    • Views: 431
    03-13-2013 02:30 AM Go to last post
  13. Unhappy I believe my fiance is lying about having leukemia, please help :(

    My fiance has a drug problem. I've been with him 7 months [he proposed several days ago] and for the past 2 years he has told friends and family he...

    Started by vvvoid, 03-07-2013 08:27 PM
    • Replies: 14
    • Views: 1,230
    03-11-2013 01:24 AM Go to last post
  14. Doing well even with FLT3

    :grin: They told me after I was diagnosed with AML last March that I had the FLT3 chromosome and that was not good. I never did get into remission...

    Started by Parkbo, 02-11-2013 02:24 AM
    • Replies: 2
    • Views: 453
    02-25-2013 03:17 AM Go to last post
  15. Question CMML info wanted

    Hi I am 73 and have been diagnosed and have started chemo ( azacitidine or Vidaza® ) treatments for CMML. Please note it is not CML. I have...

    Started by putld, 02-21-2013 01:00 AM
    • Replies: 0
    • Views: 426
    02-21-2013 01:00 AM Go to last post
  16. AML Treatment

    Hello, I'm new to this site, and this will be my first post. I'm 17 years old, and I was diagnosed with AML in December of 2011. I finished my...

    Started by Aaron728, 02-14-2013 04:29 AM
    • Replies: 1
    • Views: 574
    02-14-2013 07:12 AM Go to last post
  17. National Marrow Donor Program - Be the Match

    National Marrow Donor Program - Be the Match For people with life-threatening blood cancers like leukemia and lymphoma or other diseases, a cure...

    Started by heartofsoul1, 02-10-2013 08:00 PM
    • Replies: 1
    • Views: 366
    02-11-2013 02:31 AM Go to last post
  18. early relapsed all after transplant

    A friend of mine just relapsed a few months after his transplant ( unrelated donor ) .... i know it"s not good whats the treatment options now ?

    Started by meangene, 02-02-2013 10:31 PM
    • Replies: 1
    • Views: 832
    02-03-2013 10:56 PM Go to last post
  19. Is My Doctor Missing Something??

    For the last couple of years I've went through a lot of health issues. I am constantly sick. Before having my tonsils removed about 5 months ago, my...

    Started by emmart, 01-30-2013 01:59 AM
    • Replies: 4
    • Views: 698
    02-01-2013 07:50 PM Go to last post
  20. Do I have something to be concerned about?

    Hello, I'm an 18-year-old female college student and I've been having some issues with hypochondria lately. Maybe something actually is wrong; maybe...

    Started by Kelsi16, 01-28-2013 05:39 AM
    • Replies: 2
    • Views: 886
    01-29-2013 01:58 AM Go to last post
  21. Searching for answer for High Blast Counts

    My step dad has AML and has been in remission and after only about 2 months after his 100 days for his bone marrow transplant his blast counts are...

    Started by Danny Ray, 01-21-2013 05:15 PM
    • Replies: 0
    • Views: 551
    01-21-2013 05:15 PM Go to last post
  22. Helping a 14 year old girl cope with leukemia for the second time

    Any suggestions would be greatly appreciated! My friend's daughter has been diagnosed with leukemia for the second time; She's 14, and in 8th grade....

    Started by Confidinme, 01-20-2013 01:53 AM
    • Replies: 4
    • Views: 683
    01-21-2013 04:50 AM Go to last post
  23. Need some advice for advance stage of Chronic Leukemia

    Greetings folks, I am posting here because I am at a lost of options to get some advice to help my grandfather who is in his advance stage of...

    Started by jwijaya, 01-19-2013 06:01 AM
    • Replies: 2
    • Views: 667
    01-20-2013 05:53 AM Go to last post
  24. 2 1/2 year old daughter diagnosed with PH + ALL Dec

    My 2 1/2 year old daughter was diagnosed on December 10th 2012 with Acute Lymphoblastic Leukemia, 1 week after that we were told that she has the...

    Started by AngelinasMommy, 01-02-2013 03:43 AM
    • Replies: 5
    • Views: 897
    01-04-2013 05:30 AM Go to last post
  25. Ponatinib (Iclusig) FDA approved 12/14 for CML & Philadelphia chromosome ALL

    FDA press release (http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm332252.htm) The most notable thing about the mechanism of...

    Started by timeshifter, 12-15-2012 08:30 AM
    • Replies: 3
    • Views: 767
    01-04-2013 05:27 AM Go to last post
  26. APL Diagnosis

    Hello, I am 29 and was just diagnosed with APL after a routine trip to the doctor for a physical, and my CBC count came back very low. This led to...

    Started by Nola_girl, 06-06-2012 02:38 PM
    • Replies: 6
    • Views: 1,966
    12-30-2012 04:05 PM Go to last post
  27. My neice got dignosed with AML

    My niece Kayla was sick for about 3 weeks with what everyone thought was just a cold or allergies. Kayla was hoping to feel better for her 11th...

    Started by acandaksmom, 11-19-2012 08:20 PM
    • Replies: 3
    • Views: 1,527
    12-28-2012 04:43 AM Go to last post
  28. anything other then atra?....

    Hi everyone, I was diagnosed with apl in September, lost my job, therefore im losing my medical insurance. My doctor insists that the solution is...

    Started by bea_p, 12-03-2012 06:00 AM
    • Replies: 2
    • Views: 815
    12-27-2012 03:44 AM Go to last post
  29. high bone marrow blast after induction chemo for AML

    Hello, my wife went through the induction chemo for her AML, but the results turn out not to be favorable. Doctor said there are still high...

    Started by read0wang, 12-18-2012 12:31 PM
    • Replies: 1
    • Views: 881
    12-24-2012 04:13 PM Go to last post
  30. New to This Section

    I've been a member here for a while, but have only been to the Prostate Cancer section till now. I dont have PC, but had to undergo a biopsy due to...

    Started by Pratoman, 12-14-2012 11:11 PM
    • Replies: 14
    • Views: 1,021
    12-17-2012 12:10 PM Go to last post
  31. Thumbs down Is my doctor stupid, or am I misinformed?

    :down:;) Apparently my doctor has been trying to get a hold of me for some time, so I found out today when I remembered to check up on a blood test...

    Started by lynny, 11-25-2012 04:15 AM
    • Replies: 3
    • Views: 1,618
    12-15-2012 07:52 AM Go to last post
  32. Help

    Hi ANYONE!! I am writing on behalf of my severely mentally impaired son Brent. Brent is 41 and recently diagnosed with hairy cell leukemia. As his...

    Started by brent2468, 12-28-2011 05:55 PM
    • Replies: 10
    • Views: 3,443
    12-10-2012 01:03 AM Go to last post
  33. High dose vs Low dose transplant

    Im sched. to have a stem cell transplant on Dec. 31st and have been asked to get involved in a clinical trial where there studying low vs high chemo....

    Started by dpmeeks, 12-08-2012 03:28 PM
    • Replies: 0
    • Views: 422
    12-08-2012 03:28 PM Go to last post
  34. ATRA Costs

    Looks like my APL is relapsing. Possibly because I refused ATRA treatment because of the $1500/mo copay. So now I'll go through the pleasure of 30...

    Started by fenwick865, 11-28-2012 08:51 PM
    • Replies: 1
    • Views: 617
    12-01-2012 03:39 AM Go to last post
  35. fluid retention after marrow transplant

    My dad had a bone marrow transplant for leukemia in january 2011. There have been many ups and downs with his recovery but within the last 6 or 8...

    Started by renee6162002, 11-28-2012 06:33 PM
    • Replies: 0
    • Views: 555
    11-28-2012 06:33 PM Go to last post
  36. 4 Year Old Son with T-ALL

    Hi Guys, This is my first post here and I'm not really sure what i'm after. I just kinda need somewhere to try and relieve some of the cr@p which...

    Started by frankie, 11-21-2012 10:51 AM
    • Replies: 2
    • Views: 1,175
    11-22-2012 02:31 PM Go to last post
  37. Thumbs down My Dad

    Hi everyone Ive never done anything like this before but since receiving some bad news im trying to think of different ways to seek support. My...

    Started by KateH, 11-11-2012 01:36 PM
    • Replies: 4
    • Views: 1,545
    11-21-2012 12:46 AM Go to last post
  38. Untreated AML

    To be honest I don't even know why I'm posting here, just feel a bit alone right now, not really sure what I should be doing/thinking. My mum was...

    Started by Jerri, 11-03-2012 09:41 PM
    • Replies: 5
    • Views: 1,903
    11-08-2012 08:09 PM Go to last post
  39. Just diagnosed with CLL.

    I'm 47 years old. I went to the ER this past Sunday just to be rehydrated from severe diarrhea, and my WB count came in at a whopping 107. They...

    Started by InHouston, 09-20-2012 08:57 PM
    • Replies: 4
    • Views: 2,007
    11-01-2012 11:03 AM Go to last post
  40. Omacetaxine mepesuccinate (Synribo/Omapro) FDA approved today for CML

    The FDA's press release (http://www.fda.gov/Drugs/InformationOnDrugs/ApprovedDrugs/ucm325990.htm) says that it's approved for treatment of adult...

    Started by timeshifter, 10-26-2012 11:21 PM
    • Replies: 0
    • Views: 1,302
    10-26-2012 11:21 PM Go to last post
  41. APML (a.k.a APL) info

    Hi there, I am a New Zealander diagnosed with APML (a.k.a APL) leukemia in Jan this year. I have been through 4 rounds of chemo and am in full...

    Started by kiwi24, 07-28-2008 09:29 PM
    • Replies: 12
    • Views: 9,721
    10-18-2012 04:51 PM Go to last post
  42. 2 yr old dx with AML

    We just started a new protocol from japan. Seems all is well so far. We want to connect with other parents on the same journey. Please connect with...

    Started by Bidhounds, 10-12-2012 06:06 PM
    • Replies: 0
    • Views: 1,098
    10-12-2012 06:06 PM Go to last post
  43. Post APML, ATRA and fertility...

    Hi there, My Husband is currently (and only two days off finishing, Hooray!) his first round of inpatient chemotherapy for APML. He is doing...

    Started by Mif, 10-10-2012 04:08 AM
    • Replies: 1
    • Views: 1,127
    10-10-2012 04:36 AM Go to last post
  44. Thumbs up Help out this little boy kick cancers Butt!!!!

    This little boy was diagnosed with A.L.L leukemia. please help out him and his family Link removed as per Forum policy. Please review and...

    Started by Jhonen, 10-05-2012 01:53 AM
    • Replies: 1
    • Views: 1,160
    10-05-2012 01:57 AM Go to last post
  45. Seizures, blackouts, white spots on brain....on top of ALL

    hey fams... we have jst got threw my 2 nearly 3yr old son 1st year of ALL and jst recently he has been hvn seizures, blacking out, temp spikes etc...

    Started by teash, 11-20-2011 09:20 AM
    • Replies: 5
    • Views: 3,494
    09-21-2012 10:25 AM Go to last post
  46. HCL Survivor

    Diagnosed with HCL January 4th, 1994 while in the Air Force. My family and I were stationed at Keflavik Naval Air Station in Iceland. My family was...

    Started by JeffC, 08-27-2012 01:19 AM
    • Replies: 0
    • Views: 1,813
    08-27-2012 01:19 AM Go to last post
  47. CML (leukocyte higher and HB lower)

    Good morning iam new member thanks for this forum i have new information for CML) i want your suggestion for my sister's lab result. last month...

    Started by noorfitriasari, 08-15-2012 03:59 AM
    • Replies: 0
    • Views: 1,292
    08-15-2012 03:59 AM Go to last post
  48. AML Survivor Story - no stem cell transplant

    I thought that I should write about my father's AML survival story as he was not given much chance of still being with us today. I will try to give...

    Started by moongirl, 03-30-2011 02:26 PM
    • Replies: 5
    • Views: 7,406
    08-10-2012 08:19 AM Go to last post
  49. AML round 2

    In March 2005 I was diagnosed for the first time with AML, I was 86% cancer in my bone marrow and positive CSF. After 2 rounds of chemo, I was...

    Started by Michellewallace1984, 06-05-2012 02:53 AM
    • Replies: 1
    • Views: 1,650
    08-10-2012 05:51 AM Go to last post
  50. What count is normal and what is bad?

    What count is normal and what is bad? Hi all From UK My mum's never had a blood test before and in May 2012 she had a blood test aged 68, she...

    Started by posh101, 08-01-2012 04:45 PM
    • Replies: 0
    • Views: 1,610
    08-01-2012 04:45 PM Go to last post

 

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