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Forum: Leukemia Forum

Moderator: po18guy

  1. Sticky Thread Sticky: National Bone Marrow Transplant Link dedicated 2 helping individuals & their families

    nbmtlink.org 800-546-5268 (800-LINK-BMT) Peer support for patients, families and caregivers, plus information, resources, video, booklets. ...

    Started by heartofsoul1, 02-10-2013 07:47 PM
    • Replies: 1
    • Views: 2,571
    01-21-2014 08:51 AM Go to last post
  2. Sticky Thread Sticky: Types of Leukaemia

    The description in the site/link below has an excellent write up on the types of leukemia and the symptoms. For the 3 major types listed below, there...

    Started by heartofsoul1, 01-04-2013 07:15 AM
    • Replies: 0
    • Views: 3,930
    01-04-2013 07:15 AM Go to last post
  3. Sticky Thread Sticky: Bone marrow, stem cell transplant children's guide.

    I hope that this will help in preparing your child for this. http://www.cclg.org.uk/products_files/CCLG-BensBMT.pdf

    Started by Didee, 11-21-2012 12:51 PM
    • Replies: 0
    • Views: 2,971
    11-21-2012 12:51 PM Go to last post
  1. ANYONE who may know someone who has ever dealt with PDGFRB-EBF1

    My nieces bone marrow transplant was cancelled for now. The doctors are going to blast her tiny body (now down 25 pounds) with heavy duty chemo that...

    Started by Ships380, 04-14-2014 04:31 PM
    • Replies: 1
    • Views: 65
    04-14-2014 10:47 PM Go to last post
  2. plz share your experience with bendamustine plus rituximab

    I am from Pakistan. My father is diagnosed with CLL stage IV. Dr advised him treatment with bendamustine and rituximab. we are very much worried as...

    Started by raheelssiddiqui, 04-04-2014 05:47 PM
    • Replies: 5
    • Views: 231
    04-14-2014 10:01 AM Go to last post
  3. T-Cell ALL options for treatment for AYA.

    My 23 y.o. son was diagnosed with T-Cell ALL and underwent CALGB 10403 protocol. Has had very hard time with fungal pneumonia, and now relapse of CNS...

    Started by jgfitzs, 04-08-2014 02:40 AM
    • Replies: 5
    • Views: 194
    04-10-2014 10:43 PM Go to last post
  4. Found Blast In Leukemic Child after 3 years

    Hello my son was DX on 6/26/11 we are at the end of treatment .. one last LP to go .. we got the call that they found 2 Blast in his last LP we are...

    Started by vgrande77, 04-07-2014 06:51 PM
    • Replies: 4
    • Views: 167
    04-10-2014 03:52 AM Go to last post
  5. Bone Marrow transplant question?

    So in December my dad was diagnosed with Bone cancer. An odd form normally children get? I forget what it was. (I can ask what it is if needed) ...

    Started by MoonLight, 02-11-2014 07:47 AM
    • Replies: 3
    • Views: 362
    04-08-2014 03:30 AM Go to last post
  6. Got Some Bad News and need advice

    I was diagnosed in Sep 2013 with ALL. I later found out that is has been going on since Oct 2014. Anyways, I was going threw chemo and was told last...

    Started by chaley1214, 03-15-2014 01:05 AM
    • Replies: 3
    • Views: 507
    04-08-2014 03:22 AM Go to last post
  7. Just diagnosed

    I figured I have plenty of time so I had better find a forum to talk to other people if I have any questions during my time in the hospital. Here's a...

    Started by catfish_calvin, 03-23-2014 05:31 AM
    • Replies: 9
    • Views: 541
    04-08-2014 03:06 AM Go to last post
  8. Prayers for my 4 year old baby girl and some questions- Pre B Cell ALL

    Hello Everyone, On March 12th my daughter Eva was diagnosed with Pre-B Cell ALL. What started out as a regular pediatrician visit to check out a...

    Started by cecileew, 04-06-2014 08:37 PM
    • Replies: 1
    • Views: 136
    04-07-2014 08:40 AM Go to last post
  9. My wife's 4 yr old niece was just diagnosed with leukemia...

    My wife's niece, Cora Lynn, and her family live in North Carolina where they run a farm. It's been a rough week around our house. Cora Lynn has...

    Started by BrendanMMcG, 02-11-2014 09:25 PM
    • Replies: 2
    • Views: 503
    04-06-2014 08:42 PM Go to last post
  10. Post Just Chemo no transplant (aml)

    Hi My friend recently was diagnosed with AML (Leukaemia) and just wanted to know if anyone has just gone into remission through chemo only? and...

    Started by mortal90, 03-31-2014 03:08 AM
    • Replies: 1
    • Views: 222
    04-01-2014 07:21 PM Go to last post
  11. News from ASH regarding CAR T-Cell therapy against relapsed/refractory ALL

    As always, there are some caveats, and some potentially serious side effects, but this provides hope for those with ALL that has relapsed or has...

    Started by po18guy, 03-26-2014 06:45 PM
    • Replies: 0
    • Views: 89
    03-26-2014 06:45 PM Go to last post
  12. Diagnosed with Hairy Cell Leukemia - looking for information

    Can someone give me "real" information on Hairy Cell Leukaemia as i was diagnosed this week. I am 46 year old female.

    Started by DonnaS, 03-14-2014 05:28 AM
    • Replies: 5
    • Views: 386
    03-21-2014 02:32 AM Go to last post
  13. More Pain Management woes

    My wife a 6 year survivor of CML is headig to the ER right now. Stubborn, she had to drive herself because she would not let me skip my appointment....

    Started by iriegnome, 03-11-2014 02:59 PM
    • Replies: 6
    • Views: 281
    03-13-2014 12:01 AM Go to last post
  14. 10 years in remission of AML - just turned 33-there's hope

    I was 22 when I was diagnosed with AML. I am now 33 (just turned this week) and am fine. Just want to tell everyone there is light at the end of the...

    Started by Kellya, 10-11-2013 11:00 PM
    • Replies: 5
    • Views: 1,297
    03-12-2014 04:57 PM Go to last post
  15. Just curious. appears there are no posts on Leukemia board for 5+ yrs

    Between dates 3-7-2007 to 11-21-2012. only 7 pages in all dating back to 2004

    Started by heartofsoul1, 01-21-2014 01:18 AM
    • Replies: 7
    • Views: 636
    03-10-2014 06:36 PM Go to last post
  16. Mom has cml need to talk

    Mom mom is 79 just diagnosed with cml and started taking gleevex and has been on it for a month and started not feeling well, her WBC went back to...

    Started by Michele222, 01-06-2014 12:56 AM
    • Replies: 4
    • Views: 646
    03-10-2014 06:21 PM Go to last post
  17. Pain Management

    I am new to this forum however I am not new to Leukemia. I have had CML for 6 years and have done fairly well with the treatment. This is my...

    Started by mswerlein, 03-26-2013 09:39 PM
    • Replies: 2
    • Views: 1,127
    03-10-2014 06:17 PM Go to last post
  18. Question CLL Confirmed but Prognosis "Mixed"

    I am a 66 yr old male just diagnosed with CLL. This was confirmed through blood tests and bone marrow biopsy. The results came back "mixed" in my...

    Started by Phil75070, 02-24-2014 01:07 PM
    • Replies: 2
    • Views: 464
    02-25-2014 03:01 PM Go to last post
  19. Test Shown to Reduce Early Cancer Deaths is Now Available to Patients

    Huntington Beach, CA - SignatureCLL announced that the first laboratory test ever shown in a clinical trial to improve one year survival rates in...

    Started by gdpawel, 11-16-2013 02:02 AM
    • Replies: 6
    • Views: 617
    02-20-2014 07:00 PM Go to last post
  20. Maintenance options for average risk B-ALL leukemia for kids

    Hi I am new to the forum. My son was diagnosed as Average risk B-ALL leukemia. He is soon going to be in maintenance. He was in the research...

    Started by reshmi, 01-15-2014 09:28 PM
    • Replies: 2
    • Views: 357
    01-21-2014 05:17 AM Go to last post
  21. Dad, AML relapse due to start FLAG-IDA this week followed with Bone Marrow Transplant

    Hi everyone. My Dad was diagnosed with AML normal risk about 6 weeks ago. He underwent his induction Chemo and Blast have been found. He has now been...

    Started by Angndad, 11-18-2013 08:43 PM
    • Replies: 3
    • Views: 642
    01-17-2014 10:10 PM Go to last post
  22. BMT for a 70 yr old Male

    Dear All, My father is diagnosed with AML type 5. He has been on Vidaza for the last three months and he is doing excellent. He has no other...

    Started by Ba2, 12-31-2013 02:31 PM
    • Replies: 2
    • Views: 452
    01-01-2014 10:31 AM Go to last post
  23. Second bone marrow transplant?

    Has anyone here ever had a second bone marrow transplant?Don't want to hear about anyone who died after it,just want to hear from someone who has had...

    Started by againstallodds, 12-22-2013 02:00 PM
    • Replies: 5
    • Views: 705
    12-31-2013 05:13 PM Go to last post
  24. Sister has Relapsed AML

    My sister was diagnosed with Acute Myeloid Leukemia (AML) in September 2012, at age 53. Her prognosis wasn't particularly good since AML is an...

    Started by amc422, 11-08-2013 01:21 PM
    • Replies: 4
    • Views: 912
    12-23-2013 06:55 PM Go to last post
  25. Father with Leukemia for 8 years

    My father was diagnosed with AML about 8 years ago. It was chemical induced due to multiple medications (trial and errors) given by his doctor. My...

    Started by Mickylady1, 12-07-2013 02:27 PM
    • Replies: 2
    • Views: 596
    12-08-2013 04:18 AM Go to last post
  26. Hairy Cell Leukemia and Hair Loss - New to Forum

    Hi, I am a 47 yo female diagnosed with HCL in March. I had one 5 day administration (IV) of Cladribene and am doing really well. Except my hair has...

    Started by StaciKS, 11-26-2013 02:44 PM
    • Replies: 1
    • Views: 666
    11-27-2013 10:13 PM Go to last post
  27. Hi, I'm New Here

    Found this forum after yet another sleepless night of dark thoughts and desperation, and the need for hope and support. My sister was diagnosed...

    Started by amc422, 11-08-2013 01:16 PM
    • Replies: 3
    • Views: 912
    11-11-2013 12:08 AM Go to last post
  28. Help aml relapse

    My daughter is 24 years old, in September 2012 she was diagnosed with AML, she also had an fl3 mutation, they gave her a course of chemo at worcester...

    Started by Gemzmarsh, 09-05-2013 04:01 PM
    • Replies: 2
    • Views: 963
    11-08-2013 01:37 PM Go to last post
  29. Aml sub type 5, 70 yr old patient using Vidaza. What is the best route?

    My father (good health with no other problems until aml diagnosis) has been diagnosed with aml sub type 5. He is 70 and doctors doesn't recommend...

    Started by Ba2, 11-02-2013 02:07 PM
    • Replies: 1
    • Views: 551
    11-02-2013 06:30 PM Go to last post
  30. First drug to target common target on all cancers goes to trial: AML up first!

    The first drug to target a mutation common to all cancers goes to trial soon in the US and UK. Solid cancers in one trial will go on simultaneously...

    Started by hazellypoo, 11-02-2013 05:31 PM
    • Replies: 0
    • Views: 306
    11-02-2013 05:31 PM Go to last post
  31. FDA approves Gazyva ( obinutuzumab ) drug for CLL

    Fri Nov 1, 2013 9:35pm IST Nov 1 (Reuters) - U.S. regulators on Friday approved Roche Holding AG's new drug for patients with chronic lymphocytic...

    Started by lancepeace, 11-01-2013 07:42 PM
    • Replies: 0
    • Views: 386
    11-01-2013 07:42 PM Go to last post
  32. Father in Law Recently Diagnosed With AML

    Hi everyone. I'm new here. About a month and a half ago, my FiL was diagnosed with AML, (I don't know what subtype of the disease he has, though...

    Started by DngrMse, 10-26-2013 02:57 PM
    • Replies: 2
    • Views: 556
    10-26-2013 07:41 PM Go to last post
  33. Mother turned down for this month's chemo

    Hi all My mum was meant to start her second bout of chemo yesterday for CLL. She has been feeling really good and coped really well with last...

    Started by worried1983, 10-18-2013 09:25 AM
    • Replies: 1
    • Views: 620
    10-18-2013 09:40 AM Go to last post
  34. B-cell clonality screening in ALL

    I have 7 years old son who was diagnosed with ALL about one year ago. Recently they have done a clonality screening test on his bone marrow and the...

    Started by morab, 10-06-2013 01:25 PM
    • Replies: 0
    • Views: 392
    10-06-2013 01:25 PM Go to last post
  35. Need your help, friend has leukemia

    Hi There, I'm new to this group and decided to join as I'd love your help and advise on how best I can support and help my friend through...

    Started by Lazy Daisy, 09-11-2013 03:10 PM
    • Replies: 13
    • Views: 1,773
    10-03-2013 12:29 AM Go to last post
  36. Exclamation ALL - Chemo - Necrotizing Pancreatitis

    My 5 y/o nephew (one of a twin) just passed after having suffered with ALL since February. We believe that it was the intensive chemotherapy that may...

    Started by nayr, 09-23-2013 11:37 PM
    • Replies: 0
    • Views: 623
    09-23-2013 11:37 PM Go to last post
  37. Prognosis for acute myeloid leukemia?

    Just a question about survival rates for AML. I don't really have any details, I'm just curious since a friend was just diagnosed. From what I've...

    Started by Mondo, 03-23-2011 06:53 AM
    • Replies: 10
    • Views: 16,409
    09-23-2013 03:36 AM Go to last post
  38. Diagnosed B-ALL

    Hi, I'm a 30 y/o F diagnosed with B-ALL just last week. Chemo should start in a few days, reading your posts and stories here help me prepare for...

    Started by MonicaPhils, 09-02-2013 03:36 AM
    • Replies: 4
    • Views: 883
    09-20-2013 12:48 AM Go to last post
  39. HCL patient: relapse not reacting to treatment

    Hello all, I am a concerned daughter of a HCL patient, trying to research as much as I can. I'm finding that it's not easy as HCL info re...

    Started by mrsmcg, 08-27-2013 12:32 PM
    • Replies: 6
    • Views: 878
    08-28-2013 10:14 AM Go to last post
  40. Exclamation My daughter may have leukemia?

    Hello all, I suspect my daughter may have leukemia. She is very, very, tired and weak and takes naps during the day. She has been complaining of...

    Started by cancerconfused, 08-22-2013 11:51 AM
    • Replies: 5
    • Views: 1,807
    08-22-2013 08:26 PM Go to last post
  41. Cuts In Nose - Could This Still Be Leukaemia or not?

    I had some sporadic Petechiae Spots on my Body at the end of June, and a few Bruises as well. I had a Blood Test and got the results on 4th July....

    Started by lb76696, 08-22-2013 04:42 PM
    • Replies: 2
    • Views: 721
    08-22-2013 07:53 PM Go to last post
  42. new member

    Hi, My 81 year old mom has been diagnosed with AML. She will be undergoing Dacogen chemo. Any advice/help with this disease and treatment would be...

    Started by bella's grandma, 08-10-2013 08:21 PM
    • Replies: 1
    • Views: 657
    08-10-2013 08:56 PM Go to last post
  43. Exclamation I suspect Leukemia......please help!

    Hello everyone. I am a 20 year old female in overall good health besides high blood pressure. For the past 5 weeks I have been experiencing the...

    Started by Becbo, 05-27-2013 09:11 PM
    • Replies: 5
    • Views: 2,960
    08-08-2013 01:09 AM Go to last post
  44. Is My Doctor Missing Something??

    For the last couple of years I've went through a lot of health issues. I am constantly sick. Before having my tonsils removed about 5 months ago, my...

    Started by emmart, 01-30-2013 01:59 AM
    • Replies: 5
    • Views: 1,973
    08-08-2013 01:05 AM Go to last post
  45. could this mean leukemia?

    The last 2 weeks my speech has become very slow and monotone, heavy hair loss, dizzy/lightheaded upon standing, weak, joint/muscle pain, memory loss,...

    Started by smg145, 07-20-2013 03:38 PM
    • Replies: 4
    • Views: 1,464
    08-08-2013 12:50 AM Go to last post
  46. AML Survivor Story - no stem cell transplant

    I thought that I should write about my father's AML survival story as he was not given much chance of still being with us today. I will try to give...

    Started by moongirl, 03-30-2011 02:26 PM
    • Replies: 6
    • Views: 11,546
    08-03-2013 10:25 AM Go to last post
  47. ALL Chemo Question

    My son has been doing extremely well enduring his treatments. ( He's in maintenance now- and for next 1-1/2) Has anyone else gone through the...

    Started by Teer2, 07-26-2013 04:04 AM
    • Replies: 2
    • Views: 922
    07-26-2013 03:22 PM Go to last post
  48. New, need general advice (and recipes!)

    Hi, I stumbled onto this group looking for recipes. My husband was diagnosed with ALL (T-cell) in May. He is in his early 30s and this came as...

    Started by HappyDaysAhead, 07-21-2013 07:20 PM
    • Replies: 2
    • Views: 636
    07-22-2013 06:38 PM Go to last post
  49. Come back in six months? Help!

    Hey everyone!! Hope all is well! So I have a lump on the back of my neck. I have had it there for over 6 months now (maybe more), and has...

    Started by Luckybuck123, 07-17-2013 09:44 AM
    • Replies: 1
    • Views: 910
    07-17-2013 01:28 PM Go to last post
  50. Nervous About Symptoms

    Hello, new member here, 27y/o M. I could really use some feedback. I have been having health problems for the past week, please let me explain. 6...

    Started by Motaro, 06-30-2013 06:41 AM
    • Replies: 6
    • Views: 2,278
    07-02-2013 02:13 AM Go to last post

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