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Forum: Brain Tumors Forum

This forum is for primary brain tumors, not metastatic disease. Moderator: jpearson, GBMsibling, Knightly

  1. Sticky Thread Sticky: Introduction to brain cancers

    There are several types of primary brain cancers that occur in adults. This paper will focus on those that occur primarily in the cerebrum, the...

    Started by brainman, 03-15-2009 10:48 PM
    • Replies: 0
    • Views: 14,855
    03-15-2009 10:48 PM Go to last post
  1. Ritalin

    My friend has GBM4 in month 17 and still on chemo 5/28....she has been very tired, no energy, and her latest MRI showed some swelling and growth. ...

    Started by DebinFL, Today 11:35 AM
    • Replies: 3
    • Views: 57
    Today 07:59 PM Go to last post
  2. scared of odd and sudden symptoms, would like some help (long message)

    Hi all, I'd first like to say thank you for any advice you can give me and that I respect all of you for your bravery in your battles against cancer....

    Started by adavis, Yesterday 09:19 PM
    • Replies: 1
    • Views: 60
    Yesterday 11:43 PM Go to last post
  3. Trying to educate myself...

    A little about me...I am 34 yrs old with 3 girls and a very supporting husband.:). I have a brain tumor that is located within the left cavernous...

    Started by Jeffandkimh, 05-20-2013 06:06 AM
    • Replies: 12
    • Views: 307
    Yesterday 04:45 PM Go to last post
  4. 15 weeks

    Mom finished cheno/radiation on 4/15. The wanted her to start the next phase of chemo 4/30, but her blood work has been bad. We have also been...

    Started by Gypsea, 05-16-2013 05:32 PM
    • Replies: 4
    • Views: 240
    Yesterday 12:05 AM Go to last post
  5. Stage IV GBM at 69

    My dad was diagnosed in January of this year with stage IV GBM. He was given a 3 month prognosis, and he refused any treatment. He had had a...

    Started by KeithU, 05-12-2013 03:36 PM
    • Replies: 7
    • Views: 363
    05-20-2013 09:22 PM Go to last post
  6. where did everyone go

    where has everone gone . Im not seeing much for posts or even seeing spam josh

    Started by jpearson, 04-29-2013 04:40 AM
    3 Pages
    1 2 3
    • Replies: 40
    • Views: 1,835
    05-19-2013 05:18 PM Go to last post
  7. Tumor Markers

    My brother in law was diagnosed with testicular cancer 10 months ago, it was very aggressive and spread to his stomach, lungs and his brain, he had...

    Started by jonnybravo, 05-19-2013 01:18 PM
    • Replies: 2
    • Views: 121
    05-19-2013 02:31 PM Go to last post
  8. Reccurent GBM - I need answers to tough questons.

    Hello. I posted about year ago about my Dad who is now 67, dx with GBM in the Right Frontal Lobe. Anyway - we have recurrence, the tumor has doubled...

    Started by rach@128, 05-15-2013 10:18 PM
    • Replies: 11
    • Views: 359
    05-19-2013 12:15 PM Go to last post
  9. Anaplastic ependymoma/ radiation side effects

    On 3 March I had a tumor resected from my right temporal lobe- the surgery went well and the doctors stated they "got it all" or as close as...

    Started by kburk, 05-18-2013 08:11 PM
    • Replies: 1
    • Views: 114
    05-19-2013 04:14 AM Go to last post
  10. Oligodendroglioma & Chemotherapy

    Hi - I'm brand new to this forum and just have a question for anyone who may have had a similar experience with this.... I found I had a low-grade...

    Started by TCR2013, 03-15-2013 03:10 PM
    2 Pages
    1 2
    • Replies: 33
    • Views: 2,519
    05-18-2013 03:18 PM Go to last post
  11. Glioblastoma Multiforme - diagnosed at 66 years of age

    Hello, My beautiful dad has just been diagnosed with GBM after a seizure a couple of weeks ago, followed by complete tumour ressection on the right...

    Started by rach@128, 04-04-2012 06:30 AM
    2 Pages
    1 2
    • Replies: 26
    • Views: 4,033
    05-17-2013 12:26 PM Go to last post
  12. Red face Grade iii anaplastic tumor

    HELO EVERYONE! I'm a 59 year woman who had a left temporal tumor removed on April 8/13 which was the diameter of a golf ball up to 1/2 " in...

    Started by mickeydee60, 05-13-2013 06:57 AM
    • Replies: 3
    • Views: 231
    05-16-2013 09:57 AM Go to last post
  13. Brain tumor cocktail concocted by a consortium of 28 researchers

    Ben Williams beat his GBM 17 years ago and wrote a book about his approach using a brain tumor cocktail of off label drugs. An international...

    Started by Scottttt, 05-13-2013 08:07 PM
    • Replies: 8
    • Views: 296
    05-16-2013 09:49 AM Go to last post
  14. oligodendroglioma

    I have oligodendroglioma grade 2. My journey started in March 9, 2013. I had a seizure and was taken to ER. MRI showed 2-2.5 cm on my front right...

    Started by Most lowe, 05-15-2013 12:41 AM
    • Replies: 4
    • Views: 182
    05-16-2013 09:19 AM Go to last post
  15. Suggestions for side effects of dexamethasone

    HELLO EVERYONE! I'm a 59 year woman who had a left temporal tumor removed on April 8/13 which was the diameter of a golf ball up to 1/2 " in depth....

    Started by mickeydee60, 05-13-2013 10:18 AM
    • Replies: 5
    • Views: 225
    05-14-2013 08:32 PM Go to last post
  16. My story (help if you could give any)

    I'd say for about over 2 months or so I've been experiencing headaches, they aren't agonizing but can be a pain from time to time, some times worse...

    Started by Mario10, 05-08-2013 04:44 PM
    • Replies: 7
    • Views: 458
    05-14-2013 12:26 PM Go to last post
  17. Atypical GBM or what?

    My wife had craniotomy w/resection two weeks ago LFL. Three NS and three radiologist confirmed low grade glioma on MRI. It was the old "looks like...

    Started by Tipkid, 05-09-2013 11:26 AM
    • Replies: 3
    • Views: 253
    05-14-2013 12:09 PM Go to last post
  18. Oligo surgery last year feeling off again

    Hi I am brand new to this site. I had a surgery last February to remove a stage II oligodendroglioma on my right frontal lobe..Surgeon felt he got it...

    Started by tinric, 05-03-2013 11:29 PM
    • Replies: 8
    • Views: 583
    05-13-2013 09:26 PM Go to last post
  19. Vitamin B17

    Who can help to provide some authoritative report or information about Vitamin B17 as antineoplastic drug, thanks. Rissun@5.13,2013

    Started by rissunguo, 05-13-2013 09:27 AM
    • Replies: 0
    • Views: 99
    05-13-2013 09:27 AM Go to last post
  20. Happy Mother's Day

    We had a lovely Mother's Day. Mom was laughing and as strong and coherent as I've seen her in weeks. This following a brutal week with 2 admissions...

    Started by Gypsea, 05-13-2013 05:13 AM
    • Replies: 0
    • Views: 72
    05-13-2013 05:13 AM Go to last post
  21. silent

    Hi there, I was surfing around looking for a few topics, and this site came up. I have had my biopsy done already and I been diagnosed with gr2...

    Started by Tammy, 11-27-2007 02:17 PM
    7 Pages
    1 2 3 ... 7
    • Replies: 121
    • Views: 51,530
    05-13-2013 01:13 AM Go to last post
  22. "Faking" Cancer

    I have a problem. Last year, a good family friend of mine had a benign brain tumor removed (a grade one ganglioglioma). He had a complete...

    Started by sunnygt, 05-01-2013 04:02 PM
    • Replies: 7
    • Views: 657
    05-13-2013 12:19 AM Go to last post
  23. I am lost

    My dad was diagnosed a week ago with brain tumor in his left side of the brain. He is going to biopsy two days from now. I read many things about...

    Started by d4nny, 05-12-2013 08:07 PM
    • Replies: 1
    • Views: 176
    05-12-2013 10:04 PM Go to last post
  24. Question GBM 1V - frequent headaches

    Hi everyone, I'm a techno phobic newbie to this forum. So relieved that I've finally worked out how to post. Hoping someone can help me with...

    Started by btav53, 05-04-2013 05:23 AM
    • Replies: 11
    • Views: 476
    05-12-2013 05:32 AM Go to last post
  25. Catching up.....

    Hi all (old and new friends)! I have been off forever due to my parent's health and relocating my GBM brother back to our town where the entire...

    Started by maresimpson, 05-11-2013 05:45 PM
    • Replies: 3
    • Views: 150
    05-11-2013 10:35 PM Go to last post
  26. MRI scan after seizure

    Hi all, I'm 16 and I had a grand mal seizure out of the blue three weeks ago, landing me in hospital overnight for blood tests and monitoring. My...

    Started by catykin, 05-10-2013 07:08 AM
    • Replies: 5
    • Views: 305
    05-11-2013 12:47 PM Go to last post
  27. Just checking in

    Hi. I just thought I would check in to let you all know that even though my fathers battle is over, I still think about everyone else battling this...

    Started by LITTLE DOUGIE, 05-08-2013 01:32 AM
    • Replies: 2
    • Views: 166
    05-10-2013 10:22 PM Go to last post
  28. My tumours days are numbered!!

    Have had my first Neuro-oncology appointment at a new hospital today. Rather a shocker. Have been told my other hospital should NEVER had this...

    Started by MedicFran, 05-02-2013 08:23 PM
    • Replies: 5
    • Views: 517
    05-10-2013 12:34 PM Go to last post
  29. gbm grade 4 tumor

    hi i stumbled across this forum my son 21 at the time was diagnosed with a terminal brain tumor in nov 2010 drs told us our son life expectancy...

    Started by brandi1966, 05-07-2013 03:25 AM
    • Replies: 6
    • Views: 306
    05-10-2013 12:04 PM Go to last post
  30. Anti Depressants?

    week 14 update: Mom is still home, not much discomfort but very weak, tired, frustrated and depressed. Anyone taking anti depressants? Side...

    Started by Gypsea, 05-09-2013 04:42 PM
    • Replies: 1
    • Views: 169
    05-10-2013 12:09 AM Go to last post
  31. Husband with GBM will hardly eat

    My husband is 68 dx Feb this year with GBM. Had tumor the size of an egg in left frontal removed successfully. Did radiation and temodar for 5 weeks...

    Started by marysch, 05-08-2013 03:10 AM
    • Replies: 4
    • Views: 267
    05-09-2013 04:30 PM Go to last post
  32. good morning

    GOOD Morning everyone. Happy Friday and here is another great weekend. Feel Gods blessings each and everyday. about 45 minutes till my doc...

    Started by jpearson, 05-03-2013 03:00 PM
    2 Pages
    1 2
    • Replies: 20
    • Views: 976
    05-09-2013 04:27 PM Go to last post
  33. 3 hour long seizure

    Sitting in the er after a 3 hour long seizure, wondering if anyone has an experience with these

    Started by Gypsea, 05-06-2013 04:32 PM
    • Replies: 7
    • Views: 317
    05-09-2013 04:25 PM Go to last post
  34. My best friend has a brain tumour

    Hi not been on here in a while myself having had breast cancer My best friend has brain cancer she has had six weeks radiation and chemo tablets...

    Started by rose8, 05-06-2013 11:34 PM
    • Replies: 4
    • Views: 318
    05-08-2013 01:55 PM Go to last post
  35. Need Advice!

    Hi there, My mother is under treatment for Brain Cancer (Gliosarcoma grade-4). She underwent her first surgery on 19th Jan 2013. The latest MRI...

    Started by Pallavi Sharma, 05-08-2013 05:59 AM
    • Replies: 2
    • Views: 198
    05-08-2013 01:34 PM Go to last post
  36. Exclamation My Son is diagnosed as Glioblastoma Multform Patient

    My Son 12 year old is diagnosed by doctors in Nov, 2012 as Glioblastoma.His Surgery and Radio Static Therapy is done and now his Chemotherapy is in...

    Started by zareen, 02-10-2013 09:49 AM
    • Replies: 8
    • Views: 974
    05-07-2013 11:17 PM Go to last post
  37. gbm

    has taken my partner of 32 years...this struggle started last june 12th..and ended april 22nd...reading the posts i admire all your positiveness...i...

    Started by zan, 04-30-2013 01:47 AM
    • Replies: 7
    • Views: 467
    05-07-2013 11:36 AM Go to last post
  38. survival rate

    Hello, I have technical quetion. Whan everyone says "survival rate", does it mean after doing all treatments (temodal, rediation etc..). I am...

    Started by diklaroch, 05-06-2013 10:36 AM
    • Replies: 7
    • Views: 394
    05-07-2013 07:42 AM Go to last post
  39. 13 weeks

    The first post op MRI was not remarkably different (except for the removal of one of the tumors). Today marks 2 weeks since we finished radiation and...

    Started by Gypsea, 04-30-2013 09:25 PM
    • Replies: 4
    • Views: 394
    05-06-2013 08:34 PM Go to last post
  40. Brain cancer, or bad personality?

    This is my first time posting here, so I apologize if the post is misplaced. My step dad has very advance cancer, of every kind. But the biggest...

    Started by funkyblueeyes, 04-30-2013 04:30 AM
    • Replies: 6
    • Views: 461
    05-05-2013 05:20 PM Go to last post
  41. Please Help! DNET or gangliogliom?

    Hello Our son (17) was yesterday diagnosed with: "2x3,5x2 cm blurred defined area with 5 mm multiple cysts. Left side multi cyst expansive in...

    Started by Johang, 02-23-2013 12:24 PM
    • Replies: 6
    • Views: 540
    05-03-2013 10:49 PM Go to last post
  42. tracking gbm

    just wondered if there was a site that tracked gbm locations and occupations, hobbies etc..i detailed my parnters and my journey with this illness...

    Started by zan, 05-01-2013 02:16 AM
    • Replies: 3
    • Views: 302
    05-02-2013 07:05 AM Go to last post
  43. Wink Brain tumor

    Hello Everyone: I was operated on April 8th and had a golf ball sized tumor removed. Cancer bits still in and will be going into radiation and...

    Started by mickeydee60, 04-26-2013 02:49 PM
    • Replies: 3
    • Views: 774
    04-28-2013 07:09 AM Go to last post
  44. Brain mets - Decadron

    Anyone out there experience discontinuing Decadron (steriod). Mom has been on since January (walnut size met to brain); triturating down and tried to...

    Started by thedaisy, 04-22-2013 01:34 PM
    • Replies: 5
    • Views: 401
    04-27-2013 04:19 PM Go to last post
  45. mom just had left frontal lobe tumor removed

    Hello everyone, My mom just had a sizeable mass removed from her left frontal lobe (size of a plum) surgery was successful but she is having...

    Started by 2fixnow, 08-09-2012 10:39 PM
    • Replies: 13
    • Views: 4,016
    04-26-2013 06:25 AM Go to last post
  46. Temodar and Temodal

    Who can tell me what's the difference of TEMODAR and TEMODAL for temozolomide capsules? Thanks. Rissun

    Started by rissunguo, 03-24-2013 02:43 AM
    • Replies: 12
    • Views: 1,187
    04-25-2013 12:58 PM Go to last post
  47. Gigi's Booboo

    Hi, I am 63 years old and was diagnosed with oligodendroglioma grade II a year ago this month. I have just finished a year of Temodar 5/28 and my...

    Started by RACL, 04-23-2013 12:58 PM
    • Replies: 3
    • Views: 247
    04-25-2013 02:43 AM Go to last post
  48. 1p19q NO deletion

    I am curious if anyone else has this genetic marker. From what I've read this means that my tumor will not respond well to chemo, and tends to be...

    Started by Scottttt, 02-05-2013 11:06 AM
    • Replies: 19
    • Views: 1,360
    04-23-2013 11:11 PM Go to last post
  49. Will migraine medication relieve headaches caused by brain tumor?

    Hello all I am new to this and I am not a patient myself, but my husband's family has had many cases of various types of cancer. His...

    Started by Tessa7, 04-23-2013 07:04 AM
    • Replies: 2
    • Views: 244
    04-23-2013 10:10 PM Go to last post
  50. On infection and being dismissed, Monday pity party

    My mom has an infection on her face. She had some irritation in her nostril upon leaving the hospital after surgery on 2/6 that she said was from the...

    Started by Gypsea, 04-22-2013 04:28 PM
    • Replies: 4
    • Views: 265
    04-23-2013 04:33 PM Go to last post

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