A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.
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Forum: Brain Tumors Forum

This forum is for primary brain tumors, not metastatic disease. Moderators: GBMsibling, Lboy, NikosF

  1. Sticky Thread Sticky: Introduction to Brain Cancers

    Introduction to primary brain cancers and their treatment This introduction concerns primary brain tumors, which originate in the brain. It does...

    Started by Lboy, 02-20-2014 11:10 PM
    2 Pages
    1 2
    • Replies: 11
    • Views: 5,882
    02-20-2014 11:44 PM Go to last post
  1. Secondry brain cancer

    Hi, About a week ago, mum was having a few issues with some numbing and weakness in one of her hands and some occasional slurred speech. The...

    Started by AC533, 02-02-2015 08:45 PM
    6 Pages
    1 2 3 ... 6
    • Replies: 53
    • Views: 3,798
    Today 02:33 AM Go to last post
  2. Boredom and Wandering

    My dad has Stage IV GBM, and also has prostate cancer but well... when life gives you two cancers you gotta focus on the most serious one. Lately...

    Started by Raziaar, 04-24-2015 05:59 AM
    • Replies: 7
    • Views: 249
    Today 12:12 AM Go to last post
  3. Question about Dex and Boswellia

    A few months ago, my wife suffered severe stroke-like symptoms (inability to think, loss of muscle function on right side and loss of balance) and...

    Started by Richard1, 04-25-2015 01:20 AM
    • Replies: 2
    • Views: 91
    Yesterday 11:55 PM Go to last post
  4. How to I pick a good brain surgeon

    I have a tumor on my right parietal lobe that Docs have been observing for 11 years. No symptoms. It was discovered during a bunch of testing and...

    Started by mattvee, 04-13-2015 03:32 AM
    2 Pages
    1 2
    • Replies: 13
    • Views: 785
    Yesterday 09:45 PM Go to last post
  5. Exclamation New and Confused

    Hi all! 40yr old female So my drama started with a seizure Mar 6th 2015. Was taken to hospital by squad and was still pretty confused as to...

    Started by Dhailstone1, 04-23-2015 02:39 AM
    2 Pages
    1 2
    • Replies: 15
    • Views: 603
    04-25-2015 02:53 PM Go to last post
  6. DNET/ resection in 2011- in pain too often...Thinking about having a baby :?

    Hi to anyone reading this! This is my first post, not sure what to expect (hubby suggested I join a forum). I'm a 33yr old female with a DNET...

    Started by DTowers, 04-20-2015 07:10 PM
    • Replies: 8
    • Views: 400
    04-25-2015 05:31 AM Go to last post
  7. My Uncle has a meningioma of 5cm my family doesnt know what to do

    Good day, I have a question,well a few, my uncle has been diagnosed with a meningioma of 5cm located in the left cavernous sinus, and the...

    Started by andresvelasquez, 04-24-2015 11:20 PM
    • Replies: 3
    • Views: 129
    04-25-2015 12:26 AM Go to last post
  8. Dad with GBM4

    Hi My dad was diagnosed on the 1st November with Glioblastoma grade 4 of the frontal lobe. He was admitted to hospital on 9th October with a...

    Started by BATsgirl, 11-10-2013 08:52 PM
    4 Pages
    1 2 3 ... 4
    • Replies: 35
    • Views: 4,716
    04-24-2015 10:23 PM Go to last post
  9. Stereotactic Laser Ablation

    Hello - My son was diagnosed with a Juvenile Piliocytic Astrocytoma last month. He underwent a partial resection, due to it's location near the brain...

    Started by LittleFive, 04-19-2015 06:48 AM
    • Replies: 6
    • Views: 393
    04-23-2015 05:51 AM Go to last post
  10. Cancer diagnosis and personality change adjustment

    As a daughter whose mother is going through brain cancer, I have been reflecting recently about how this disease has changed my mother's personality....

    Started by DixieDoodle78, 04-22-2015 04:22 PM
    • Replies: 4
    • Views: 244
    04-23-2015 02:06 AM Go to last post
  11. Our journey with oglioastrocytoma

    Hi, it's taken me 10 years to write here, as I am now very concerned about burying my first son. But searching for answers on google I know is not...

    Started by Mom Liz, 04-04-2015 12:50 AM
    3 Pages
    1 2 3
    • Replies: 21
    • Views: 1,505
    04-23-2015 01:38 AM Go to last post
  12. I wrote a book

    I have published through Amazon, so it will be available for either the Kindle e-reader or the Kindle app for smart phones or tablets. I just went...

    Started by mccindy, 04-11-2015 12:52 AM
    3 Pages
    1 2 3
    • Replies: 29
    • Views: 1,629
    04-22-2015 09:46 PM Go to last post
  13. Second recurrence in two years [oligo]

    Up until recently, my wife's experience has been better than most people's, but now we're really concerned. She had a recurrence less than two years...

    Started by jefuchs, 04-22-2015 12:55 AM
    • Replies: 3
    • Views: 176
    04-22-2015 02:14 PM Go to last post
  14. My brother is living with Grade 4 GBM

    He was diagnosed two years ago, almost to the day. Today would have been his surgery date. He went through 2 rounds of radiation and has not...

    Started by He ain't heavy, 03-22-2015 06:33 PM
    7 Pages
    1 2 3 ... 7
    • Replies: 69
    • Views: 4,199
    04-21-2015 10:31 PM Go to last post
  15. Latest Update

    A clean MRI last Friday so I stay on a 4 monthly MRI schedule . Its really hard to believe but it is now 4 years since my recurrence and second...

    Started by plugh, 04-20-2015 04:25 PM
    • Replies: 7
    • Views: 265
    04-21-2015 09:09 PM Go to last post
  16. Sense of taste/smell issues during radiation?

    Hi all, Nick's in his third week of radiation, his hair's fallen out where the beams are and he's a bit tired as expected, but he's pretty much lost...

    Started by natakazam, 04-15-2015 12:51 PM
    • Replies: 3
    • Views: 228
    04-21-2015 08:13 PM Go to last post
  17. Dexamethasone following brain surgery

    Hi everyone, This is my first time on any forum. My husband Paul (56) has had a Grade 2 Oglioastrocytoma since 2010. He had the tumour debulked in...

    Started by Gill, 04-15-2015 12:45 PM
    • Replies: 4
    • Views: 304
    04-17-2015 10:22 PM Go to last post
  18. laser surgery for Gbm

    Is there any laser surgery for gbm brain tumor if tumor is inoperable?

    Started by Manon, 04-17-2015 04:12 PM
    • Replies: 1
    • Views: 174
    04-17-2015 05:31 PM Go to last post
  19. Urgently need help with GBM

    My mom has brain tumour GBM in left temporo-parieto-occipital -lobes in cerebral..we came to know about this two and half month ago ...we didn't take...

    Started by Pri, 03-11-2015 06:23 AM
    3 Pages
    1 2 3
    • Replies: 22
    • Views: 1,603
    04-17-2015 05:19 PM Go to last post
  20. Radiation consultation moved from a grade 2 to 2.5 hmm

    We went to md Anderson. Apparently the tumor has suspicious things going on so they changed it from a 2 to 2.5 they said no watch and wait due to...

    Started by Anacaretaker, 04-15-2015 03:05 AM
    • Replies: 5
    • Views: 437
    04-15-2015 10:41 PM Go to last post
  21. Moved: Brain tumor suspected - what is the possibility?

    Started by bluetulips, 04-15-2015 05:56 PM
    • Replies: -
    • Views: -
    04-15-2015 07:01 PM Go to last post
  22. Back here, earlier than wanted

    Hello there, here the short "history". Nov '13 resection of diffuse astrocytoma grade II, insula region+frontal temporal lobe left (language...

    Started by hopeflower, 04-06-2015 05:21 PM
    • Replies: 5
    • Views: 378
    04-14-2015 07:43 PM Go to last post
  23. Boring and no changes

    Had my first follow up scan and appointment since starting my clinical trial and there are no changes to the remaining visible tumor. I also did not...

    Started by Oregongirl87, 04-11-2015 07:18 AM
    • Replies: 8
    • Views: 560
    04-14-2015 05:33 AM Go to last post
  24. Has anyone heard lately from RoseDaniel?

    Hope everything is ok. I just realized the other day it's been a while since I've seen her on here.

    Started by catwoman, 04-11-2015 12:29 AM
    • Replies: 4
    • Views: 465
    04-13-2015 11:47 AM Go to last post
  25. Boring

    I feel a bit bad about posting this, given the run of bad news we've had recently in the group, but thought I would share I had another stable MRI...

    Started by NikosF, 09-18-2014 07:45 PM
    4 Pages
    1 2 3 ... 4
    • Replies: 36
    • Views: 2,410
    04-10-2015 11:13 PM Go to last post
  26. High Altitude Lowering Seizure Threshold

    Does anyone have any experience with moving to a high altitude state? We went from living at sea level to living at 6000+. My hubby who is 7years...

    Started by redsoxfan, 04-10-2015 02:57 PM
    • Replies: 2
    • Views: 177
    04-10-2015 09:25 PM Go to last post
  27. Clear, no growth

    Saw my NO today, she confirms that there are no signs of any regrowth on my most recent MRI. Which is awesome news! The leg numbness, they are...

    Started by mccindy, 04-06-2015 07:53 PM
    2 Pages
    1 2
    • Replies: 16
    • Views: 759
    04-09-2015 10:43 PM Go to last post
  28. Normal side effects vs. Cushing's from Dex?

    Hi all. My boyfriend (21) was diagnosed with GBM last month. He's been on dex and obviously experiences a lot of side effects (although they're...

    Started by natakazam, 04-03-2015 01:34 PM
    • Replies: 5
    • Views: 469
    04-09-2015 12:58 AM Go to last post
  29. No after affects of chemo/radiation?

    Has anyone ever heard of NO after effects of 200 grays of radiation a day 5 days a week and 160 mg of temozolide 7 days a week? He has gained 3...

    Started by jimsmom, 04-08-2015 12:30 PM
    • Replies: 2
    • Views: 200
    04-08-2015 03:18 PM Go to last post
  30. Another Stable MRI

    Mccindy, I am sharing in your thunder of Clear no growth scan. I had the scan yesterday and called for results today. The relief felt when the...

    Started by RACL, 04-07-2015 02:47 PM
    • Replies: 8
    • Views: 599
    04-08-2015 11:28 AM Go to last post
  31. We Lost Her

    Lori fought a tough battle since December of 2011 with GBM and she won all the way till this morning when she just couldn't do it anymore. Her hubby...

    Started by DebinFL, 04-03-2015 08:06 PM
    2 Pages
    1 2
    • Replies: 19
    • Views: 1,565
    04-08-2015 11:26 AM Go to last post
  32. Question New question what are the deletions?

    I have read about them, and our dr. Has never said if he has them or not. Is it a special testing done, or normal pathology done after surgery? Is...

    Started by Mom Liz, 04-07-2015 12:01 AM
    • Replies: 3
    • Views: 268
    04-07-2015 03:48 PM Go to last post
  33. Local or CancerCenter for radiation treatment?!?! thank you for input!

    We got back a week ago from Md. Anderson Cancer Center my husband has a grade 2 oligoastrcytoma, Md Anderson recommended we did treatment there for...

    Started by Anacaretaker, 04-06-2015 04:17 PM
    • Replies: 8
    • Views: 327
    04-07-2015 06:04 AM Go to last post
  34. High Grade III Anaplastic Oligoastrocytoma

    Hi Everyone, My son Jim 44 had a seizure on Feb 2. He was admitted to the hosp and MRI showed a 5cm brain tumor in his frontal lobe. Surgery was...

    Started by jimsmom, 04-06-2015 03:12 AM
    • Replies: 4
    • Views: 294
    04-06-2015 11:51 PM Go to last post
  35. Recurrence of tumor

    well was a bad day yesterday. Brandon went for his 6month follow up mri and then seen the doctor right after. the doctor asked how has he been...

    Started by lefty9284, 03-10-2015 02:23 PM
    • Replies: 9
    • Views: 937
    04-06-2015 04:44 PM Go to last post
  36. Grade V GBM - First post-radiation MRI?

    Doctors found a grade four GBM in my mother's left temporal lobe on January 5th. They operated, and she went through six weeks of radiation combined...

    Started by molly87, 04-05-2015 11:45 PM
    • Replies: 2
    • Views: 232
    04-06-2015 02:32 PM Go to last post
  37. Chemo and infections

    This Friday will be 8 weeks since I have started my clinical trial. For the most part it has gone pretty well aside from a few days during the last...

    Started by Oregongirl87, 04-06-2015 03:54 AM
    • Replies: 1
    • Views: 216
    04-06-2015 02:31 PM Go to last post
  38. new stage 2 oligoastrocytoma no deletions-help please

    Hi my husband has just been diagnosed with a oligoastrocytoma with out the co deletions. He was able to remove half of the tumor located in his...

    Started by Anacaretaker, 03-31-2015 01:15 PM
    2 Pages
    1 2
    • Replies: 12
    • Views: 1,163
    04-06-2015 02:24 PM Go to last post
  39. Have you seen this video. Fighting cancer with viruses

    https://www.youtube.com/watch?v=e8SvBAjXGyQ

    Started by fighterm, 03-07-2015 07:08 PM
    • Replies: 7
    • Views: 636
    04-06-2015 04:07 AM Go to last post
  40. Question Lost confidence in my son's oncologist

    Hello I am the mother of an 8 years old boy that was diagnosed with medulloblastoma in May 2013. His oncologist belongs to the COG (Children’s...

    Started by CathyBD, 04-04-2015 10:19 PM
    • Replies: 5
    • Views: 373
    04-05-2015 09:27 PM Go to last post
  41. Our Duke Appointment

    We went on Thursday for MRI, blood work and to see the doctor. We were there what seemed forever BUT clear and stable scan and we were told the...

    Started by peggy823, 04-04-2015 05:52 PM
    • Replies: 4
    • Views: 504
    04-05-2015 02:41 PM Go to last post
  42. Peaceful passover, Good Easter, etc

    I wish all our Jewish friends a peaceful Passover, and all our (Western) Christian friends a blessed Easter.

    Started by NikosF, 04-04-2015 01:07 AM
    • Replies: 7
    • Views: 366
    04-05-2015 01:49 AM Go to last post
  43. DCVAX - Northwest Biotherapeutics - GBM Tumours

    From what I read this vaccine when combined with chemo and radiotherapy showed a median survival increase from 14.6 months to 3 years. While they are...

    Started by vickicr888, 04-03-2015 11:57 PM
    • Replies: 1
    • Views: 189
    04-04-2015 03:01 AM Go to last post
  44. Update on my story

    Hi everyone. It has been quite a while since my last post. This is just a short note to update my friends. Overall, my life has not changed much. I...

    Started by brainman, 08-21-2012 10:39 PM
    3 Pages
    1 2 3
    • Replies: 20
    • Views: 4,198
    04-04-2015 01:04 AM Go to last post
  45. New here - Low Grade Glioma - Front Temporal lobe

    Hi everyone. I am a newbie. I am 40 and have 2 teenage boys and a wonderful hubby of almost 20 years. I have had migraines since my teens and...

    Started by madamechaya, 09-15-2013 11:03 PM
    3 Pages
    1 2 3
    • Replies: 28
    • Views: 5,606
    04-02-2015 11:19 PM Go to last post
  46. My father& scarce brain disease

    Hi please guide me how to looking for site or any forum about my father scarce disease. I have several MRI from this disease. Thanks.

    Started by m_shr, 03-27-2015 07:15 PM
    2 Pages
    1 2
    • Replies: 13
    • Views: 1,163
    04-02-2015 07:34 PM Go to last post
  47. Unhappy 5cm Cyst on Brain

    Yesterday my wife and I got our first look at the 5cm spherical cyst on the left side of her brain. Yes, 5cm (it's the size of a cue ball). ...

    Started by jimmyc, 04-01-2015 01:26 AM
    • Replies: 9
    • Views: 1,017
    04-02-2015 06:14 PM Go to last post
  48. 60 Minutes

    Anyone else watching this? Going to Duke on Thursday, can't wait to ask them about this! Stay tuned, will let you know! Peggy

    Started by peggy823, 03-30-2015 12:05 AM
    • Replies: 9
    • Views: 1,085
    04-02-2015 12:15 AM Go to last post
  49. New Changes Detected...

    Hi all, Five years ago my wife was diagnosed with a anapolastic astrocytoma (Grade III) at the base of her brain (posterior fossa) infiltrating...

    Started by MCRO4N6, 04-01-2015 05:35 AM
    • Replies: 1
    • Views: 255
    04-01-2015 01:43 PM Go to last post
  50. Ken Burns Cancer Film on PBS

    Just posting a general blurb about the Ken Burns film starting tonight on PBS - anyone else watching it? http://cancerfilms.org/

    Started by DixieDoodle78, 03-30-2015 10:06 PM
    • Replies: 2
    • Views: 237
    03-30-2015 10:59 PM Go to last post

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