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Forum: Brain Tumors Forum

This forum is for primary brain tumors, not metastatic disease. Moderators: GBMsibling, Lboy

  1. Sticky Thread Sticky: Introduction to Brain Cancers

    Introduction to primary brain cancers and their treatment This introduction concerns primary brain tumors, which originate in the brain. It does...

    Started by Lboy, 02-20-2014 10:10 PM
    • Replies: 11
    • Views: 2,106
    02-20-2014 10:44 PM Go to last post
    • Replies: -
    • Views: -
    Today 12:22 AM Go to last post
  1. More lessons learned about how to take all these drugs

    I hope that my "tips" are useful and don't waste space here. Please let me know if they do. This one is real-life about not taking shortcuts on...

    Started by RoseDaniel, Yesterday 01:48 PM
    • Replies: 4
    • Views: 120
    Today 12:22 AM Go to last post
  2. Pilocytic astrocytoma grade 1 in cerebellum

    Hi all, My 7 year old son hadnt been well for a while, sickness every half hour, the most disabling headaches. I always thought he wasn't a hungry...

    Started by Nicolam, 01-12-2014 06:13 AM
    • Replies: 8
    • Views: 730
    Yesterday 11:08 PM Go to last post
  3. GBM IV brain swelling/edema side effects

    First of all, i am very sorry if my description isnt good enough, english is not my first language. On May 2014, My father experienced some sort...

    Started by kawkab, Yesterday 12:39 PM
    • Replies: 1
    • Views: 51
    Yesterday 09:54 PM Go to last post
  4. Daughter with asymptomtic tumor

    My 11 year old daughter was diagnosed with a tumor in her right cerebellum in January after an MRI to follow up on absence seizures (unrelated to the...

    Started by Cori, 03-18-2014 02:53 AM
    • Replies: 7
    • Views: 517
    Yesterday 08:32 PM Go to last post
  5. New here - Low Grade Glioma - Front Temporal lobe

    Hi everyone. I am a newbie. I am 40 and have 2 teenage boys and a wonderful hubby of almost 20 years. I have had migraines since my teens and...

    Started by madamechaya, 09-15-2013 11:03 PM
    • Replies: 17
    • Views: 2,133
    Yesterday 07:59 PM Go to last post
  6. Brain tumour treatment related fatigue.

    My neurosurgeon suggested that I join a relevant forum to seek advice on copping with fatigue associated with the treatment of a benign astrocytoma....

    Started by eric78, 07-18-2014 05:55 PM
    • Replies: 6
    • Views: 296
    07-22-2014 02:55 PM Go to last post
  7. Dex--diabetes, thirst, urination?

    Hi all. My dad has suddenly become very thirsty all night, and urinates a lot also. The onc suspects these are symptoms of steroid-induced diabetes...

    Started by luvmyfather, 07-16-2014 06:29 PM
    • Replies: 11
    • Views: 333
    07-22-2014 12:55 PM Go to last post
  8. MRI in the next week

    My mom's having her next MRI in about a week. Not sure what to expect as they have steadily gotten worse following chemo/radiation. Holding out...

    Started by catwoman, 07-21-2014 11:27 PM
    • Replies: 4
    • Views: 139
    07-22-2014 11:05 AM Go to last post
  9. Better MRI :)

    The "angry thundercloud" (as the NO described it today) seen last time has reduced in size, is much mistier, and the swelling is much less. So he...

    Started by RoseDaniel, 07-16-2014 06:58 PM
    • Replies: 14
    • Views: 382
    07-20-2014 02:48 AM Go to last post
  10. Making Most of Time Left With Brain Cancer Patient

    While this is a specific question regarding my mother having brain cancer and how to make the most of her time left, it can be a larger discussion...

    Started by DixieDoodle78, 07-18-2014 02:41 PM
    • Replies: 3
    • Views: 237
    07-19-2014 11:45 PM Go to last post
  11. Diffuse Intrinsic Pontine Glioma

    Hello everyone, I am a 16 year old girl.Newly diagnosed with DIPG.Starting radiotherapy tomorrow 5 days a week for 6 weeks.Just wondering if...

    Started by Melissa1998, 04-27-2014 09:54 PM
    • Replies: 12
    • Views: 800
    07-19-2014 07:04 PM Go to last post
  12. Anaplastic Oligoastrocytoma [Grade 3]

    Hello, this is my first post in this forum. My dad[50 years] had a 3-5 minute Seizure on 4th July 2014 with no prior symptoms of a tumor, he was...

    Started by RaghavAvasthi, 07-18-2014 11:11 AM
    • Replies: 5
    • Views: 223
    07-18-2014 10:18 PM Go to last post
  13. Dad with GBM4

    Hi My dad was diagnosed on the 1st November with Glioblastoma grade 4 of the frontal lobe. He was admitted to hospital on 9th October with a...

    Started by BATsgirl, 11-10-2013 07:52 PM
    2 Pages
    1 2
    • Replies: 28
    • Views: 2,308
    07-18-2014 01:58 PM Go to last post
  14. Spliting facilities for radiation therapy

    Hello all, New horrific diagnosis of GBM IV for my sister. Surgery has been completed about a month ago. I am trying to spare my brother in law...

    Started by lucy07, 06-08-2014 10:36 PM
    • Replies: 6
    • Views: 377
    07-17-2014 12:04 PM Go to last post
  15. Steroid Questions

    My husband has been off steroids (Dex) for one week, today he says he is so tired and wants to sleep. He hasn't done this for months. Could it be...

    Started by peggy823, 07-16-2014 07:14 PM
    • Replies: 3
    • Views: 135
    07-16-2014 08:30 PM Go to last post
  16. Question Who did radiotherapy?

    Hi, I'm Trad. Anyone who has had radiation therapy due to a brain tumor, as has been the quality of life? - Memory - Hearing - Speaks -...

    Started by trad, 07-13-2014 01:50 PM
    • Replies: 9
    • Views: 328
    07-15-2014 03:53 PM Go to last post
  17. Post-treatment questions for Astrocytoma grade III

    It's been a while since I've posted here. I'm 27, and had my temporal/occipital lobe tumor removed in November 2012. I did a full course of...

    Started by quartknee, 07-07-2014 04:03 PM
    • Replies: 16
    • Views: 567
    07-15-2014 11:21 AM Go to last post
  18. Seizures that look like a stroke.

    My Husband woke up from a nap last night with what appeared to be stroke symptoms. Weakness on right side of body, drooping mouth on right side,...

    Started by Josephine66, 07-10-2014 02:29 AM
    • Replies: 10
    • Views: 398
    07-14-2014 11:34 AM Go to last post
  19. Headache - Sinus?

    Lori has been complaining of a headache for a week now....plus she had a sore throat and little runny nose, but no congestion or cough. It got so...

    Started by DebinFL, 07-11-2014 11:22 AM
    • Replies: 9
    • Views: 363
    07-14-2014 11:31 AM Go to last post
  20. Looking for help abroad - clinic, hospital

    Dear All My colleague was diagnosed with a brain tumour - the third ventricular colloid cyst. Right now he is awaiting a surgery to be done in...

    Started by kamila, 07-10-2014 01:30 PM
    • Replies: 6
    • Views: 256
    07-11-2014 12:03 PM Go to last post
  21. Mother Diagnosed with Glioblastoma Multiforme

    Hello. My 65 year old mother was diagnosed with GM (is that the proper abbreviation?) two weeks ago. I am her only child, 35 year old daughter. Our...

    Started by DixieDoodle78, 05-16-2014 06:43 PM
    • Replies: 15
    • Views: 996
    07-11-2014 11:42 AM Go to last post
  22. Second Avastin Treatment Today

    We spent the day at Duke having labs, seeing doctors and having our second Avastin treatment. All of his labs and vitals were good and after...

    Started by peggy823, 07-08-2014 12:00 AM
    • Replies: 9
    • Views: 407
    07-10-2014 03:24 PM Go to last post
  23. Real-LIfe Dex and other drugs

    good morning...I hope that the value I can bring here, while I can, is the lived experience of one person (yes, one--I know we are all different)...

    Started by RoseDaniel, 07-05-2014 02:17 PM
    • Replies: 9
    • Views: 387
    07-07-2014 10:06 PM Go to last post
  24. Avastin started today.

    Saw oncologist with my mother today. Temodar has officially been discontinued, and Avastin was started today. Checking into clinical trials now...

    Started by catwoman, 06-10-2014 12:31 AM
    2 Pages
    1 2
    • Replies: 25
    • Views: 1,312
    07-07-2014 11:52 AM Go to last post
  25. Husband-Astrocytoma Grade III-More Treatment

    Hi All, I have posted in a few different threads, but have some questions. We are scared and confused and things are not making sense. My...

    Started by SuperWife, 03-18-2014 08:30 PM
    • Replies: 3
    • Views: 487
    07-06-2014 08:40 PM Go to last post
  26. Husband's pathology

    My husband is 31 and was diagnosed with a stage 2 astrocytoma after having a grand mal seizure, then had an MRI and had a brain surgery in 2010, but...

    Started by FireWife, 01-31-2014 08:16 PM
    • Replies: 17
    • Views: 1,576
    07-06-2014 08:24 PM Go to last post
  27. what is white matter ?

    Although Ive googled, I dont really understand especially in context to a brain tumour. My brother was told at his appointment last week he has alot...

    Started by soulsong4ever, 07-05-2014 09:09 AM
    • Replies: 4
    • Views: 324
    07-06-2014 08:18 PM Go to last post
  28. Ahevn't bren on for a while so latest update

    Well my chemo ended in December 2012. I have had MRIS every 4 months and still no progression. So we keep buggerin on :-). Good luck and best wisher...

    Started by plugh, 06-24-2014 12:26 AM
    • Replies: 2
    • Views: 360
    07-06-2014 05:46 PM Go to last post
  29. Brother w/GBM nearing final stage

    After reading so many posts on this forum, I have decided to jump in and encourage anyone who needs it. My 49 y/o brother was diagnosed with stage IV...

    Started by OctoberValentine, 06-25-2014 12:20 PM
    • Replies: 9
    • Views: 733
    07-04-2014 11:11 AM Go to last post
  30. Question Astrocytoma Pilocytic Grade I: radio-surgery and radiotherapy.

    Hi, I'm Trad from Brazil. I was diagnose with AP grade 1 but it is inoperable. I will do the radio-treatment but I'm concerned with the...

    Started by trad, 07-02-2014 12:00 AM
    • Replies: 11
    • Views: 373
    07-02-2014 05:12 PM Go to last post
  31. GBM---dreams/tv turning into her reality!

    The last couple of weeks, Lori has been saying things that she believes to have happened to her, but they have not. For instance.....her doctor's...

    Started by DebinFL, 06-26-2014 11:49 AM
    • Replies: 18
    • Views: 783
    07-02-2014 03:06 AM Go to last post
  32. Any insight into my my dads GBM?

    Hi all. First off thanks for being here. I've poked in and out over the last few when I could handle it to get some insight, realism, hope and...

    Started by bagelista, 07-01-2014 08:01 AM
    • Replies: 4
    • Views: 322
    07-01-2014 11:45 PM Go to last post
  33. Multiple Sclerosis and GBM

    Has anyone had both of these diseases? If so please let me know so I can ask you some questions.

    Started by Rebric12, 06-30-2014 07:36 PM
    • Replies: 0
    • Views: 170
    06-30-2014 07:36 PM Go to last post
  34. Happy Anniversary

    Today my husband and I have been married for 45 years, I try to only think of the good times since he doesn't remember at all. He is always telling...

    Started by peggy823, 06-28-2014 11:16 AM
    • Replies: 8
    • Views: 392
    06-30-2014 02:54 AM Go to last post
  35. "Upgraded" to GBM

    My husband is 31 years old. He had surgery in November for what the doctors were almost certain was a grade II. It was a grade III AND he suffered an...

    Started by Wishing, 06-25-2014 04:01 PM
    • Replies: 14
    • Views: 612
    06-26-2014 11:48 PM Go to last post
  36. Moved: My Beautiful Mom, The Fighter (And Hopeful Victor)

    Started by Chewie212, 06-26-2014 06:16 AM
    • Replies: -
    • Views: -
    06-26-2014 06:16 AM Go to last post
  37. Brother in law diagnosed with 5 Brain tumors

    Hello, My brother in law has been diagnosed with having 5 brain tumors in his head...in the last two week period is when it all began....weakness on...

    Started by Ellen Louise, 03-12-2014 07:39 PM
    3 Pages
    1 2 3
    • Replies: 52
    • Views: 3,476
    06-25-2014 10:33 PM Go to last post
  38. 8 months post surgery to remove a glioma and the right frontal lobe of the brain

    My son had his 8 month follow up mri and doctors appointment. The mri looked good,no reoccurrance was seen. The doctor was impressed with his...

    Started by lefty9284, 06-17-2014 05:29 PM
    • Replies: 10
    • Views: 780
    06-25-2014 12:00 PM Go to last post
  39. Dexamethasone/long term/other options

    Even though there are other threads about Dexamethasone, I didn't want to monopolize anyone else's questions about it. Here is a brief synopsis of...

    Started by DixieDoodle78, 06-13-2014 05:35 PM
    3 Pages
    1 2 3
    • Replies: 44
    • Views: 1,564
    06-25-2014 11:32 AM Go to last post
  40. Avastin & Temodar question [moved]

    We are doing the 5 days a month Temodar and starting Avastin on Monday. I would love to hear from people that have done both together.....side...

    Started by peggy823, 06-21-2014 12:16 PM
    2 Pages
    1 2
    • Replies: 26
    • Views: 1,040
    06-25-2014 10:37 AM Go to last post
  41. Help with Temolozomide (Temodar) and Irinotecan (Campto) and compatible supplements

    Hello, We ask for your experience and advice. Our beautiful 4 year old daughter continues her attack on an uninvited pineoblastoma. After...

    Started by Caityclare, 06-23-2014 12:00 PM
    • Replies: 5
    • Views: 308
    06-25-2014 02:42 AM Go to last post
  42. just a movie i want to share

    that really broke my heart. About a couple whose life changed for ever after the loss of their child (of cancer). Its Belgian, nominated for oscar...

    Started by stardome, 06-23-2014 06:54 PM
    • Replies: 3
    • Views: 281
    06-24-2014 04:48 PM Go to last post
  43. Unhappy low-grade glioma -- really scared

    Hi everyone, First, I want to say that reading some of the posts has made me feel better (especially from brainman -- I hope he's still around). ...

    Started by lnimon, 04-18-2014 09:27 AM
    • Replies: 19
    • Views: 1,472
    06-23-2014 01:08 PM Go to last post
  44. Brain Tumor and antidepressants

    Heloo again. My brother is in a terrible way. Alot of it from serious anxiety and depression, I simply do not get why they cant give him an...

    Started by soulsong4ever, 05-28-2014 10:20 PM
    • Replies: 16
    • Views: 819
    06-22-2014 02:02 AM Go to last post
  45. Practical Question: Best Password App

    Hi Everyone... Here's a QoL question! Does anyone have a recommendation for the best, safest password keeper app or something out there? A great...

    Started by RoseDaniel, 06-19-2014 12:44 PM
    • Replies: 7
    • Views: 321
    06-20-2014 11:42 AM Go to last post
  46. Glioblastoma Multiforme Grade IV - 80% removed

    I have two best friends and they are married to each other. The husband was diagnosed with GBM IV on May 5. Did surgery on May 9 removing only 80%. ...

    Started by marie814, 06-16-2014 07:15 PM
    • Replies: 9
    • Views: 606
    06-19-2014 06:04 PM Go to last post
  47. FMLA - any tips?

    Today I went to HR of my employer asked about FMLA. Has anyone here used FMLA? HR told me that it is for unpaid time and that you are not required...

    Started by DixieDoodle78, 06-09-2014 07:50 PM
    • Replies: 12
    • Views: 607
    06-18-2014 04:45 PM Go to last post
  48. Overwhelmed and confused!

    So, where to start................lovely mum whose 78 had a massive brain hemorrhage 3 months ago. Was told she had a stroke which affected her left...

    Started by terriholl, 06-12-2014 12:49 AM
    • Replies: 12
    • Views: 764
    06-16-2014 12:01 PM Go to last post
  49. Recurrence

    I've been reading here silently since last October, when my beloved unmarried partner of nearly 30 years was diagnosed with GBM IV, right frontal...

    Started by margey, 05-24-2014 07:23 PM
    • Replies: 7
    • Views: 745
    06-16-2014 11:47 AM Go to last post

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