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Forum: Brain Tumors Forum

This forum is for primary brain tumors, not metastatic disease. Moderators: GBMsibling, Lboy

  1. Sticky Thread Sticky: Introduction to Brain Cancers

    Introduction to primary brain cancers and their treatment This introduction concerns primary brain tumors, which originate in the brain. It does...

    Started by Lboy, 02-20-2014 10:10 PM
    • Replies: 11
    • Views: 2,556
    02-20-2014 10:44 PM Go to last post
  1. My dear dad and GBM IV

    I am sorry that by mistake I posted this in general cancer so I repost here. Hello Everyone, First of thank you for creating this...

    Started by nella, 04-07-2014 02:47 AM
    • Replies: 18
    • Views: 997
    Today 02:24 AM Go to last post
  2. Has anyone had to turn to a nursing home for their BT patient? My family is debating

    I've posted before about the difficulties my family is facing taking care of my sis with GBM; basically, she needs help with almost everything and...

    Started by JBro90, Yesterday 06:49 PM
    • Replies: 9
    • Views: 128
    Today 01:56 AM Go to last post
  3. brain tumor cancer..?

    Well heres the story. My mom was diagnosed aS having a brain tumor in her head around 8 months ago. They determined it was benign, performed surgery...

    Started by anti_cancer, Yesterday 04:54 AM
    • Replies: 5
    • Views: 147
    Today 12:42 AM Go to last post
  4. Memory Concerns

    I understand that some people never have memory problems, I understand about the location, surgery issues and all that but my husband was doing so...

    Started by peggy823, Yesterday 08:49 PM
    • Replies: 10
    • Views: 94
    Today 12:05 AM Go to last post
  5. Empathy vs. Sympathy

    If I"m allowed to link to it, I think this is a great little RSA video for our board members! ...

    Started by RoseDaniel, Yesterday 07:55 PM
    • Replies: 5
    • Views: 72
    Yesterday 09:46 PM Go to last post
  6. Help me stay sane while waiting!?

    Okay, so my child (5 years old) had a rare and agressive high grade polyphenotypic brain tumor - posterior fossa. She had a gross total resection,...

    Started by ButterflyWings, 08-29-2014 04:42 AM
    • Replies: 7
    • Views: 281
    Yesterday 05:39 PM Go to last post
  7. ologodendroglioma left temporal lobe

    my husband had a surgery on july 28, 2014 for oligodendroglioma grade II.he is scheduled for radiation theraphy this september. he is still having...

    Started by gomercloma, 08-31-2014 01:10 PM
    • Replies: 5
    • Views: 124
    Yesterday 01:08 PM Go to last post
  8. After Surgery for Low Grade Glioma

    My husband (29 yrs old) had a subtotal resection with the pre-diagnosis (it will be certain tomorrow once we get the pathology results) of low grade...

    Started by mabelank, 04-13-2009 10:17 AM
    • Replies: 11
    • Views: 7,211
    Yesterday 08:41 AM Go to last post
  9. Oligodendroglioma at left frontal lobe

    Hi, everybody. I am 36 year-old brazilian, first diagnosed and operated an oligodendroglioma at left frontal lobe at may 2002. In 9 years i ve...

    Started by vavamaravilha, 05-30-2011 06:04 AM
    • Replies: 6
    • Views: 6,024
    Yesterday 06:55 AM Go to last post
  10. gbm iv, left temporal lobe

    My wife, Jan, was dx'd two years and eight months ago with this horrendous decease. She is still going strong with right brain functions working;...

    Started by hjs, 08-30-2013 11:58 PM
    • Replies: 3
    • Views: 909
    Yesterday 06:45 AM Go to last post
  11. Mom's astrocytoma is slightly smaller, but symptoms worse than ever

    Hello, I am new to this forum. My mom (age 62) blacked out inexplicably in October 2013 and hit her head on the tiles, causing a minor skull fracture...

    Started by Cigur11, 08-17-2014 06:17 AM
    2 Pages
    1 2
    • Replies: 35
    • Views: 2,233
    08-31-2014 08:01 PM Go to last post
  12. Food for thought: Any inherent bias in Karnofsky scoring?

    I began to muse this morning, wondering if there is an inherent bias in the Karnofsky scoring that works against people with disabilities and in some...

    Started by RoseDaniel, 08-28-2014 09:14 PM
    • Replies: 3
    • Views: 127
    08-28-2014 11:02 PM Go to last post
  13. Symptom Anxiety

    As I taper from the dex and endure the post-chemo week week of fatigue (while a big project is due), I am rattled by anxiety over possible symptoms....

    Started by RoseDaniel, 08-27-2014 12:26 PM
    • Replies: 8
    • Views: 236
    08-28-2014 08:58 PM Go to last post
  14. Another Stable MRI

    Woohoo, my MRI on Monday was stable......the new black (I couldn't resist). I always get a little nervous about a week before the MRI so I won't...

    Started by RACL, 08-27-2014 12:27 PM
    • Replies: 11
    • Views: 192
    08-28-2014 03:01 PM Go to last post
  15. Feeling Grateful

    Since we like to share good news here, I wanted to say that I had another clean MRI yesterday. I'm thankful that my treatment plan has worked so far,...

    Started by stageleft, 08-13-2014 03:47 PM
    • Replies: 9
    • Views: 364
    08-28-2014 01:19 PM Go to last post
  16. Where do your loved ones with BTs fall on the Karnofsky Performance Scale?

    I asked this question on another BT forum as well. I just found out about the Karnofsky Performance Scale recently: ...

    Started by JBro90, 08-19-2014 09:33 PM
    2 Pages
    1 2
    • Replies: 30
    • Views: 1,171
    08-28-2014 12:54 PM Go to last post
  17. Question regarding bone flap

    Okay, speaking of symptom anxiety or just plain strangeness..... Have any of you had (or has your GBM'er) reported that the bone flap where the...

    Started by RoseDaniel, 08-27-2014 03:24 PM
    • Replies: 3
    • Views: 131
    08-28-2014 11:14 AM Go to last post
  18. Leptomeningeal

    Can someone tell me about prognosis with leptomeningial disease

    Started by Clooch27, 01-21-2013 02:36 AM
    • Replies: 7
    • Views: 944
    08-27-2014 08:18 AM Go to last post
  19. Brain Stem/Spinal Cord tumour help

    hey everyone, haven't been in her for a while, I've been working hard on a project. Since I'm that one in a million that can't have their SCT...

    Started by WhiteAngel, 08-27-2014 01:56 AM
    • Replies: 0
    • Views: 106
    08-27-2014 01:56 AM Go to last post
  20. Black Eye?

    I am on the third day of cutting my dex from now 2 to 1 mg. My face has been quite swollen and I've had large eye bags. Last night I noticed a...

    Started by RoseDaniel, 08-24-2014 12:41 PM
    • Replies: 5
    • Views: 230
    08-26-2014 11:29 AM Go to last post
  21. Latest Update sn some Clinical Trial information

    So my feeling is that a large part of the purpose of this forum is to share information and support regarding our situation in dealing with Brain ...

    Started by plugh, 08-18-2014 09:28 PM
    • Replies: 3
    • Views: 277
    08-26-2014 06:07 AM Go to last post
  22. Some interesting new research

    http://www.sciencedaily.com/releases/2014/08/140822132932.htm As ever early days, and the chemical they used had to be used in high concentrations...

    Started by Lboy, 08-25-2014 10:10 PM
    • Replies: 2
    • Views: 157
    08-26-2014 12:44 AM Go to last post
  23. New here, seeking advice

    Well, after reading through a lot of threads, I am happy and honored to be posting here with you folks. I see so much strength in posts and...

    Started by FFSnipe, 08-24-2014 06:27 PM
    • Replies: 7
    • Views: 235
    08-25-2014 10:31 AM Go to last post
  24. Post sorry everyone

    Imvery sorry I have not been around to helo. Iwas not able to make the race. I was in the hos with major brain swelling. still not back to normal...

    Started by jpearson, 07-19-2013 05:06 AM
    3 Pages
    1 2 3
    • Replies: 54
    • Views: 5,743
    08-24-2014 08:12 PM Go to last post
  25. First MRI and update posting

    My mother received her first MRI and results since being diagnosed and treated with both chemo and radiation. They were able to take MRI pictures...

    Started by DixieDoodle78, 08-23-2014 04:46 PM
    • Replies: 4
    • Views: 217
    08-24-2014 12:59 PM Go to last post
  26. 47 Years Old Glioblastoma grade 4

    Hi everyone! My father was diagnosed on 07.11.13 with brain tumor. He got his surgery on 19.11.13 and the results showed gbm grade 4. 3 weeks after...

    Started by smaragdin, 01-16-2014 11:48 AM
    3 Pages
    1 2 3
    • Replies: 58
    • Views: 5,668
    08-24-2014 11:02 AM Go to last post
  27. Hello - Other long term spinal cord astrocytoma survivors?

    Hi - I just joined this forum. i was diagnosed with an aggressive Astrocytoma at T-10 in 1950, when I was 4. Really massive X-ray radiation after...

    Started by barbamaman, 04-20-2012 01:38 AM
    • Replies: 7
    • Views: 3,413
    08-22-2014 06:11 AM Go to last post
  28. Two questions

    Hi. My brother not doing too well. only 8 months since diagnosis . :( question : what is wetting oneself ? is it a sign of getting worse ? is...

    Started by soulsong4ever, 08-13-2014 04:16 AM
    2 Pages
    1 2
    • Replies: 26
    • Views: 900
    08-21-2014 11:42 PM Go to last post
  29. The story ends

    Hi, I have been away from the forum for a while now, and I am sorry I have to come back. My 34 years old wife past away on Feb 7 following 2...

    Started by Sleepow, 03-03-2014 12:26 PM
    • Replies: 11
    • Views: 931
    08-21-2014 02:11 AM Go to last post
  30. Brain Farts (Lag)

    Just thought I'd mention a change I see in myself that you caregivers might see in your loved ones...I'm not sure if it is permanent, chemo fog...

    Started by RoseDaniel, 08-18-2014 11:30 AM
    • Replies: 12
    • Views: 356
    08-21-2014 12:38 AM Go to last post
  31. Use of Aricept

    Has anyone here been prescribed or used Aricept for short term memory problems. My NO visit last week was good, and he prescribed it for me to try,...

    Started by stageleft, 08-18-2014 05:48 PM
    • Replies: 5
    • Views: 222
    08-20-2014 09:20 AM Go to last post
  32. What to do about falls

    My dad has been falling occasionally since his diagnosis...his balance is impaired and so is his inhibition, so he has no clue that he cannot walk...

    Started by luvmyfather, 08-14-2014 05:07 PM
    • Replies: 4
    • Views: 336
    08-18-2014 11:58 AM Go to last post
  33. Brother w/GBM nearing final stage

    After reading so many posts on this forum, I have decided to jump in and encourage anyone who needs it. My 49 y/o brother was diagnosed with stage IV...

    Started by OctoberValentine, 06-25-2014 12:20 PM
    • Replies: 14
    • Views: 1,448
    08-14-2014 11:49 PM Go to last post
  34. Health Care Proxy and Wishes - Thinking ahead if unable to speak

    When my mother was diagnosed with GBM a few months ago, she immediately had a health care proxy set up and a Power of Attorney paperwork done. As her...

    Started by DixieDoodle78, 08-14-2014 07:26 PM
    • Replies: 1
    • Views: 156
    08-14-2014 07:47 PM Go to last post
    • Replies: -
    • Views: -
    08-13-2014 09:58 PM Go to last post
  35. Diagnosed with Glioblastoma IV - Sad all the time...

    Iím posting on here on behalf on my Mum, who was diagnosed with Glioblastoma stage 4 about 1 month ago. (She is sitting next to me and this is her...

    Started by Annie1, 08-03-2014 09:35 AM
    • Replies: 17
    • Views: 797
    08-13-2014 04:19 AM Go to last post
  36. New MRI on 8/4

    We had our new MRI done last Monday and it was greatly improved. We are so grateful for these results and enjoy this moment. All blood work and...

    Started by peggy823, 08-12-2014 12:44 PM
    • Replies: 6
    • Views: 230
    08-13-2014 01:04 AM Go to last post
  37. Progression of disease

    My sister had her 2nd MRI after being diagnosed in February of this year. She is on her third month of 5/23 of temadar. The MRI report said...

    Started by DebbieS, 08-05-2014 07:45 PM
    • Replies: 8
    • Views: 737
    08-12-2014 06:13 PM Go to last post
  38. 'Well How Do You Like That?"

    Chad from the Brain Chancery has such a way of putting things into perspective! I had just told some friends that I'd like to approach my new life...

    Started by RoseDaniel, 08-06-2014 07:36 PM
    • Replies: 7
    • Views: 544
    08-12-2014 06:10 PM Go to last post
  39. Husband newly diagnosed w/ low grade astrocytoma

    Hi all! I guess it would help to tell our story. In April of this year my husband hadn't been feeling well. He has Diverticulosis and thought he was...

    Started by Sweetness, 07-25-2014 01:45 PM
    • Replies: 10
    • Views: 757
    08-05-2014 11:29 AM Go to last post
  40. MRI Results

    I got my results yesterday, and things are still stable. I go back in October for my next MRI. I also had some blood work done to see if there's...

    Started by quartknee, 08-01-2014 01:46 PM
    • Replies: 8
    • Views: 432
    08-04-2014 12:04 PM Go to last post
  41. Making Most of Time Left With Brain Cancer Patient

    While this is a specific question regarding my mother having brain cancer and how to make the most of her time left, it can be a larger discussion...

    Started by DixieDoodle78, 07-18-2014 02:41 PM
    • Replies: 6
    • Views: 672
    08-04-2014 11:52 AM Go to last post
  42. Husband vomiting one week after 5/23 temodar

    My husband finished his first round of 5/23 last Friday. In the past few days he has been nauseous and weak. He has been having a hard time getting...

    Started by Patiwalton, 07-25-2014 12:39 PM
    2 Pages
    1 2
    • Replies: 29
    • Views: 1,049
    08-03-2014 05:00 PM Go to last post
  43. Husband-Astrocytoma Grade III-More Treatment

    Hi All, I have posted in a few different threads, but have some questions. We are scared and confused and things are not making sense. My...

    Started by SuperWife, 03-18-2014 08:30 PM
    • Replies: 4
    • Views: 746
    08-02-2014 03:58 PM Go to last post
  44. Unhappy Mri scan

    Hello all. I have been having seizures since feb this year, Epilepsy has been ruled out completely. Since the seizures have started i have been...

    Started by nuttie, 07-29-2014 05:07 PM
    • Replies: 15
    • Views: 547
    08-01-2014 08:48 PM Go to last post
  45. Moved: After GBM

    Started by Meliaa997, 07-28-2014 03:13 PM
    • Replies: -
    • Views: -
    08-01-2014 11:22 AM Go to last post
  46. MRI in the next week

    My mom's having her next MRI in about a week. Not sure what to expect as they have steadily gotten worse following chemo/radiation. Holding out...

    Started by catwoman, 07-21-2014 11:27 PM
    • Replies: 11
    • Views: 636
    07-30-2014 10:43 PM Go to last post
  47. About first MRI scan after chemo/radiation

    My mother's doctor said she will have a MRI done of her head four weeks after the chemo and radiation had stopped. The doctor warned us that due to...

    Started by DixieDoodle78, 07-30-2014 05:41 PM
    • Replies: 4
    • Views: 248
    07-30-2014 07:30 PM Go to last post
  48. Sleep Question

    My husband is having trouble sleeping at night. He can take pain meds and sleep but he isn't in pain. We have tried melaton, Tylenol PM, benadryl,...

    Started by peggy823, 07-27-2014 06:32 PM
    • Replies: 8
    • Views: 354
    07-28-2014 08:06 PM Go to last post
  49. Friend diagnosed with Grade IV astrocytoma

    Hello An old college buddy (we're forty-eight) was recently diagnosed with a grade IV astrocytoma. He was in perfect health and then a couple...

    Started by P-Toe, 07-26-2014 01:18 AM
    • Replies: 6
    • Views: 462
    07-28-2014 02:08 PM Go to last post

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