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Forum: Brain Tumors Forum

This forum is for primary brain tumors, not metastatic disease. Moderators: GBMsibling, Lboy, NikosF

  1. Sticky Thread Sticky: Introduction to Brain Cancers

    Introduction to primary brain cancers and their treatment This introduction concerns primary brain tumors, which originate in the brain. It does...

    Started by Lboy, 02-20-2014 11:10 PM
    • Replies: 11
    • Views: 4,048
    02-20-2014 11:44 PM Go to last post
  1. Right frontal lobe tumor removal

    I have had a grade II right frontal lobe (with extensions to what seems like everywhere) mixed oligoastrocytoma tumor for 12 years now. I have done...

    Started by LBbrain, Today 05:53 PM
    • Replies: 1
    • Views: 42
    Today 07:19 PM Go to last post
  2. Astrocytoma Grade II diffuse-looking to connect with others

    I was diagnosed this month with a grade II astrocytoma the surgeon estimates I have had for 10-15 years. I had surgery and 95+% resected. Now I am...

    Started by Oregongirl87, 12-01-2014 07:03 AM
    • Replies: 18
    • Views: 965
    Today 05:43 PM Go to last post
  3. Another stable scan

    Just wanted to check in about my mother's progress - yesterday the NO reported another stable scan! The NO also recommend going off the steroid...

    Started by DixieDoodle78, Today 11:30 AM
    • Replies: 2
    • Views: 56
    Today 01:16 PM Go to last post
  4. Interesting article on Brain Cancer and Marijuana. Thoughts?

    I know this is not the most medical article ever written, but thought it very interesting and wondered if anyone had heard anything like this before....

    Started by Kelconlain, 12-16-2014 02:21 AM
    • Replies: 11
    • Views: 359
    Today 10:42 AM Go to last post
  5. cant find a link

    I know somewhere here there was a link to hospice site for brain tumors re stages of end of life. Id like to find it to share with my sister who is...

    Started by soulsong4ever, 12-18-2014 10:25 PM
    • Replies: 4
    • Views: 170
    Today 04:24 AM Go to last post
  6. Concerned for hubby

    My husband saw his consultant on 10th Dec who confirmed tumour has caused a swelling in his brain and has confirmed operation is to go ahead in early...

    Started by love my hubby, Yesterday 11:55 AM
    • Replies: 9
    • Views: 199
    Today 12:28 AM Go to last post
  7. 47 Years Old Glioblastoma grade 4

    Hi everyone! My father was diagnosed on 07.11.13 with brain tumor. He got his surgery on 19.11.13 and the results showed gbm grade 4. 3 weeks after...

    Started by smaragdin, 01-16-2014 12:48 PM
    4 Pages
    1 2 3 ... 4
    • Replies: 70
    • Views: 9,176
    Yesterday 05:16 PM Go to last post
  8. MRI today, good and possibly bad news.

    DH had his MRI today and it showed that the area treated with Tocagen is continuing to shrink! Wonderful news! It also showed a new area of...

    Started by Josephine66, 12-17-2014 12:20 AM
    • Replies: 7
    • Views: 277
    12-18-2014 04:24 PM Go to last post
  9. Family Link/Genetics Being Studied for Brain Cancer

    Has anyone seen this article and wish to discuss? ...

    Started by DixieDoodle78, 12-09-2014 04:11 AM
    2 Pages
    1 2
    • Replies: 20
    • Views: 690
    12-18-2014 04:23 PM Go to last post
  10. Whole brain and spine radiation set to start...

    My sister is due to start whole brain and spine radiation the first of the year. She had a stage 4 sPNET removed from her frontal lobe on December...

    Started by Kelconlain, 12-16-2014 02:25 AM
    • Replies: 5
    • Views: 262
    12-18-2014 01:38 AM Go to last post
  11. Not so stress-free holidays

    I am sad to have to say that last night I lost my father. He had a major stroke Thursday, and yesterday I had to make the difficult decision to have...

    Started by mccindy, 12-15-2014 01:16 AM
    • Replies: 10
    • Views: 410
    12-17-2014 10:12 AM Go to last post
  12. Easy bruising?

    I noticed that my mother seems to bruise very easy lately. Also, scabs or bumps seem to take longer to heal. At the moment, she has a scab that...

    Started by DixieDoodle78, 12-14-2014 09:34 PM
    • Replies: 4
    • Views: 190
    12-16-2014 01:12 AM Go to last post
  13. Grateful today

    I have been having some "noise" last couple of weeks and was concerned about the return of the tumors in my brain. I had the MRI on Tues. I got a...

    Started by Mary N., 12-12-2014 10:41 PM
    • Replies: 15
    • Views: 435
    12-15-2014 04:18 PM Go to last post
  14. Gbm iv

    hi all, i am a new member in this forum. my mother, she is suffering from GBM frontal lobe. She hsx a surgery last month and remove the tumor and...

    Started by willans, 12-13-2014 01:10 AM
    • Replies: 7
    • Views: 315
    12-14-2014 06:09 PM Go to last post
  15. Pituitary Problem?

    Is my former wife,Brazilian, 40 y, 5'4" and 98 kg. Symptoms: She has sleep problems (changes night/day, nowadays a lot of sleepiness and very...

    Started by lcbasso, 12-14-2014 01:01 PM
    • Replies: 1
    • Views: 117
    12-14-2014 01:29 PM Go to last post
  16. 6 cycles of TMZ

    My husband and I flew to Manila to meet the only NO in the Philippines. She told me my husband should have started 1st round of TMZ (400mg a day for...

    Started by gomercloma, 12-12-2014 01:19 PM
    • Replies: 4
    • Views: 180
    12-13-2014 04:02 PM Go to last post
  17. Post What my next step should be

    Hi, let me first start off by telling you a little about me. I'm 31 year old female. I first came concerned of a medical issue in December 2013. I...

    Started by sophiamd83, 12-12-2014 08:58 PM
    • Replies: 4
    • Views: 262
    12-13-2014 03:36 PM Go to last post
  18. How rare is a PNET in an adult? Sister diagnosed today.

    After having breast cancer last year, my 42 year old sister had brain surgery for what they thought was mets, and it ended up being what they are...

    Started by Kelconlain, 12-12-2014 03:48 AM
    • Replies: 7
    • Views: 305
    12-13-2014 02:32 PM Go to last post
  19. My 5 yr old daughter, too-- GBM

    How is your daughter? I just found this forum after finding out my 5 yr old daughter has Glioblastoma. I would love to hear how she is doing and...

    Started by KarateLil, 12-13-2014 01:33 PM
    • Replies: 1
    • Views: 170
    12-13-2014 02:12 PM Go to last post
  20. Celebrating Stable Scan

    I had the MRI yesterday and the call today with the results....stable. That sense of relief once again overcomes me......hubby and I will celebrate...

    Started by RACL, 12-09-2014 08:28 PM
    • Replies: 11
    • Views: 427
    12-13-2014 03:44 AM Go to last post
  21. very bad day

    receive the mri result today.too bad.the tumor is still there.i can not believe it.after radiation and temozolomide?what happened.so confusing.

    Started by gomercloma, 12-09-2014 01:24 PM
    • Replies: 7
    • Views: 464
    12-13-2014 03:39 AM Go to last post
  22. Dizzy?

    My husband tried to get up this morning and said he was dizzy? I checked blood pressure and ask about other problems. He says he is just dizzy. We...

    Started by peggy823, 12-12-2014 02:31 PM
    • Replies: 7
    • Views: 263
    12-12-2014 08:56 PM Go to last post
  23. Detroit Hospital recruiting for Tocagen trial.

    Just wanted to let everyone know about this. DH is in this trial and has had few side effects. His next MRI is in a week so I will update then. ...

    Started by Josephine66, 12-11-2014 01:38 AM
    • Replies: 0
    • Views: 139
    12-11-2014 01:38 AM Go to last post
  24. GBM timeline

    My father has been battling GBM for almost 1 year. Recently, things have turned for the worse. Recurrance was confirmed in October and chemo...

    Started by SparXXXie, 12-02-2014 11:10 PM
    2 Pages
    1 2
    • Replies: 23
    • Views: 1,182
    12-08-2014 05:41 PM Go to last post
  25. oligodendroglioma II in 3 year old

    Please does anyone have any experience with an oligodendroglioma II in children? My three year old son was diagnosed in April 2008. It's such a...

    Started by andriazapp, 07-02-2008 09:52 PM
    • Replies: 7
    • Views: 3,996
    12-06-2014 04:09 PM Go to last post
  26. Hubby has had surgery

    Hi all, Hope you are well. It's 12.20am friday here & I can't sleep. Hubby had his surgery on Wednesday and it took a grueling 7hrs, they...

    Started by Oligowife, 10-16-2014 03:09 PM
    • Replies: 12
    • Views: 1,059
    12-05-2014 06:29 PM Go to last post
  27. Not sure what is going on???

    Mom had MRI on 17th which appeared stable. No significant changes. Saturday evening speech was a little off but not alarmingly so. Sunday night in ER...

    Started by catwoman, 11-25-2014 09:24 PM
    2 Pages
    1 2
    • Replies: 21
    • Views: 1,201
    12-04-2014 06:32 PM Go to last post
  28. Happy to Report More Boring News!

    We spent the entire day at Duke but it was worth every minute of it! We are still boring....scan was clear and his blood work is probably better than...

    Started by peggy823, 12-02-2014 12:35 AM
    • Replies: 7
    • Views: 419
    12-03-2014 11:33 PM Go to last post
  29. Recurrence

    Hello, My sisters surgical pathology confirmed it was recurrent gbm. She is on 6mg steroids a day. Since the surgery she is very confused. She sees...

    Started by DebbieS, 11-20-2014 10:18 PM
    • Replies: 13
    • Views: 951
    11-30-2014 03:00 PM Go to last post
  30. Being Mindful of Patient Fears and Procrastination

    Before this illness, my mother was kind of a procrastinator anyway but now I see her getting more overwhelmed and not following up with people who...

    Started by DixieDoodle78, 11-24-2014 09:24 PM
    • Replies: 3
    • Views: 494
    11-29-2014 12:51 PM Go to last post
  31. Happy Thankgiving and Gratitude

    Just wanted to wish all of you a Happy Thanksgiving and holiday. Having this forum and your support fills me with such gratitude and appreciation....

    Started by DixieDoodle78, 11-28-2014 04:18 AM
    • Replies: 6
    • Views: 417
    11-29-2014 12:42 PM Go to last post
  32. post win for your GBM day

    Mine(women should understan) was getting a pair of tights on by myself. sound small, men? try udergood circumstances yanking a pair of nylon...

    Started by RoseDaniel, 11-19-2014 10:33 PM
    • Replies: 15
    • Views: 678
    11-24-2014 11:50 AM Go to last post
  33. Fatigue

    Just wondering how much fatigue you or your loved one's faced with GBM during the 5/23 Temador. My husband had surgery 6/14, finished RT and chemo...

    Started by SandyDee, 11-20-2014 09:44 AM
    • Replies: 8
    • Views: 576
    11-23-2014 07:11 AM Go to last post
  34. Set backs

    My wife had brain cancer (primary)it was removed in March this year all MRI's have been great no signs of tumor coming back. We have been doing...

    Started by DocJohn, 10-12-2014 08:22 PM
    • Replies: 5
    • Views: 783
    11-23-2014 03:48 AM Go to last post
  35. Boring

    I feel a bit bad about posting this, given the run of bad news we've had recently in the group, but thought I would share I had another stable MRI...

    Started by NikosF, 09-18-2014 08:45 PM
    2 Pages
    1 2
    • Replies: 23
    • Views: 1,037
    11-21-2014 12:32 PM Go to last post
  36. Caregiviers

    This is my first post, my husband was DX with GBM 5/2014, surgery 6/14 finished RT/Chemo on 5/23 Temador, though has only taken 2 cycles because of...

    Started by SandyDee, 11-19-2014 12:30 PM
    • Replies: 5
    • Views: 484
    11-21-2014 10:35 AM Go to last post
  37. Caregiving/Caregivers Coping with Stress During Disease and Aftermath

    Based on another discussion on the "PTSD" thread, another poster had an idea for a separate thread about caregivers coping with stress during the...

    Started by DixieDoodle78, 10-31-2014 04:05 PM
    2 Pages
    1 2
    • Replies: 30
    • Views: 1,964
    11-21-2014 01:34 AM Go to last post
  38. Novocure data

    Not sure this has been posted here yet - but GREAT news for the newly diagnosed. Not often a GBM trial gets stopped early. ...

    Started by NikosF, 11-19-2014 01:23 AM
    • Replies: 6
    • Views: 473
    11-20-2014 03:03 PM Go to last post
  39. This is Hell

    Hi my very healthy 64yr old Dad was diagnosed with a GBM In August 3.5 months ago. He had The only person in Australia who will touch these...

    Started by alicem, 11-19-2014 07:49 AM
    • Replies: 4
    • Views: 549
    11-20-2014 06:47 AM Go to last post
  40. cannabis

    Not sure if everyone saw this on musella's email blast: http://www.ibtimes.co.uk/cannabis-extracts-drastically-reduce-brain-tumour-size-1475399 ...

    Started by NikosF, 11-20-2014 01:41 AM
    • Replies: 2
    • Views: 344
    11-20-2014 05:39 AM Go to last post
  41. NY Times article - Electrical Scalp Device

    Has anyone else seen this? It looked interesting and I liked seeing the data of slightly longer survival. ...

    Started by DixieDoodle78, 11-17-2014 06:17 PM
    • Replies: 3
    • Views: 370
    11-19-2014 06:56 PM Go to last post
  42. Parietal Lobe Astrocystoma

    Good Evening, I have been reading posts here for awhile, and would like to ask a few questions. My father had a large seizure in mid December...

    Started by PandaBear, 11-17-2014 02:00 AM
    • Replies: 4
    • Views: 415
    11-18-2014 06:27 PM Go to last post
  43. Quick updte: word I have been longing for

    My very careful oncologist used a word yesterday that I didn't think I'd ever hear: he said that he considers me "in remisssion." :) I promised him,...

    Started by RoseDaniel, 10-09-2014 07:10 AM
    • Replies: 10
    • Views: 846
    11-18-2014 02:37 AM Go to last post
  44. Dexamethasone

    My wife has started to reduce her Dex down to 2mg per day, what signs and symptoms should I be looking for so I know that this is the correct dosage...

    Started by deawn, 11-16-2014 12:35 PM
    • Replies: 6
    • Views: 614
    11-17-2014 08:37 PM Go to last post
  45. Difficulty with Temodar, help

    I am having a difficult time with taking temodar. I have to take several capsules and instead of paying 1 copay, I have to pay 3 copays. DOes...

    Started by gapayton, 11-15-2014 02:25 AM
    • Replies: 10
    • Views: 595
    11-17-2014 05:33 PM Go to last post
  46. Dad with GBM4

    Hi My dad was diagnosed on the 1st November with Glioblastoma grade 4 of the frontal lobe. He was admitted to hospital on 9th October with a...

    Started by BATsgirl, 11-10-2013 08:52 PM
    2 Pages
    1 2
    • Replies: 32
    • Views: 3,754
    11-17-2014 03:57 PM Go to last post
  47. You probably don't remember me by now!

    Hey everyone. I've had the craziest of summers and falls. First of all, my scans are still clear, which is good news. No signs of any regrowth....

    Started by mccindy, 10-24-2014 10:30 PM
    • Replies: 17
    • Views: 1,050
    11-16-2014 06:08 PM Go to last post
  48. Surgery

    My sister decided to do the surgery. She is in surgery as I write this post. The doctors expect it to take about 7 hours. Will the recovery be the...

    Started by DebbieS, 11-12-2014 06:02 PM
    • Replies: 5
    • Views: 486
    11-13-2014 06:22 PM Go to last post
  49. Post Traumatic Stress Syndrome after Diagnosis

    My mother's therapist had an interesting theory that Mom may have PTSD. While Mom is doing better in many ways, her longstanding issues of...

    Started by DixieDoodle78, 10-20-2014 07:26 PM
    2 Pages
    1 2
    • Replies: 35
    • Views: 1,932
    11-12-2014 08:19 PM Go to last post
  50. Looking for feedback on MRI report

    My husband had his MRI today and I went back this evening and got the radiology report. I've not spoken to his oncologist yet. A bit of background:...

    Started by Houstonwife123, 11-07-2014 01:35 AM
    • Replies: 7
    • Views: 676
    11-08-2014 01:26 PM Go to last post

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