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Forum: Brain Tumors Forum

This forum is for primary brain tumors, not metastatic disease. Moderators: GBMsibling, Lboy, NikosF

  1. Sticky Thread Sticky: Introduction to Brain Cancers

    Introduction to primary brain cancers and their treatment This introduction concerns primary brain tumors, which originate in the brain. It does...

    Started by Lboy, 02-20-2014 11:10 PM
    • Replies: 11
    • Views: 4,958
    02-20-2014 11:44 PM Go to last post
  1. Right frontal lobe tumor removal

    I have had a grade II right frontal lobe (with extensions to what seems like everywhere) mixed oligoastrocytoma tumor for 12 years now. I have done...

    Started by LBbrain, 12-20-2014 05:53 PM
    • Replies: 7
    • Views: 905
    Today 03:28 AM Go to last post
  2. Anaplastic oligodendroglioma and considering treatment options

    Hi everyone, I'm new here but have been trolling for a while. Lots of helpful advice and information that I've benefitted from reading! We live in...

    Started by chouwife, 02-26-2015 06:11 AM
    • Replies: 6
    • Views: 262
    Yesterday 09:41 PM Go to last post
  3. 21 year old boyfriend with GBM, tumor deep in his thalamus. Please help.

    I'm 18 years old and my 21 year old boyfriend has been diagnosed with.. I guess not officially yet, but after the quick biopsy (frozen sample)...

    Started by natakazam, 02-25-2015 04:31 AM
    2 Pages
    1 2
    • Replies: 22
    • Views: 602
    Yesterday 09:38 PM Go to last post
  4. Aussiegbm

    Hi all, first time forum user. Diagnosed gbm grade 4 after surgery 30-12-13 Still here, had my last MRI 3 weeks ago and all clear. Hope to talk to...

    Started by Aussiegbm, 02-27-2015 07:21 AM
    • Replies: 4
    • Views: 161
    Yesterday 05:37 AM Go to last post
  5. Diagnosed with Glioblastoma IV - Sad all the time...

    Iím posting on here on behalf on my Mum, who was diagnosed with Glioblastoma stage 4 about 1 month ago. (She is sitting next to me and this is her...

    Started by Annie1, 08-03-2014 10:35 AM
    2 Pages
    1 2
    • Replies: 22
    • Views: 1,923
    02-26-2015 07:34 PM Go to last post
  6. Lead Dog Battles Glioblastoma Brain Cancer -- a Helpful blog of my dad's GBM Battle

    I wanted to send along a helpful blog written by my dad (the Lead Dog), who is battling stage 4 GBM brain cancer. This blog will help all those who...

    Started by Jhirni, 02-26-2015 07:27 PM
    • Replies: 0
    • Views: 53
    02-26-2015 07:27 PM Go to last post
  7. Question Dad with GBM - Asking for opinions (specificaly about dcvax)

    Hey everyone, my dad is 61 years of age, and he's suffering from brain cancer, GBM. He was diagnosed about a year and half +-, he had all the...

    Started by ofir866, 02-21-2015 05:02 PM
    • Replies: 7
    • Views: 424
    02-26-2015 06:45 PM Go to last post
  8. new movie -.focus esp on brain cancers

    Hope its ok to post. Not all may agree but the trailer looks good and it will bring awareness and hopefully money for more research etc ...

    Started by soulsong4ever, 01-30-2015 04:36 PM
    • Replies: 9
    • Views: 681
    02-26-2015 06:29 PM Go to last post
  9. Dad diagnosed with Glioblastoma Multiforme

    Hello everyone, I am new here, it is my 1 post. My dad (55 y.o.) was diagnosed 3years ago with an OligoAstrocytome III in left brain frontal lobe...

    Started by Elena Dimitrova, 02-15-2015 04:37 AM
    • Replies: 6
    • Views: 375
    02-26-2015 05:15 PM Go to last post
  10. New here - Low Grade Glioma - Front Temporal lobe

    Hi everyone. I am a newbie. I am 40 and have 2 teenage boys and a wonderful hubby of almost 20 years. I have had migraines since my teens and...

    Started by madamechaya, 09-16-2013 12:03 AM
    2 Pages
    1 2
    • Replies: 20
    • Views: 3,949
    02-20-2015 03:08 PM Go to last post
  11. medical certificate

    Yesterday we went to my husband's neurologist.Blood test were good after 2nd cycle of TMZ. HE was complaining a tolerable pain and discomfort within...

    Started by gomercloma, 02-19-2015 03:17 AM
    • Replies: 4
    • Views: 229
    02-20-2015 01:28 PM Go to last post
  12. 47 Years Old Glioblastoma grade 4

    Hi everyone! My father was diagnosed on 07.11.13 with brain tumor. He got his surgery on 19.11.13 and the results showed gbm grade 4. 3 weeks after...

    Started by smaragdin, 01-16-2014 12:48 PM
    5 Pages
    1 2 3 ... 5
    • Replies: 90
    • Views: 12,201
    02-19-2015 08:11 PM Go to last post
  13. Mom with GBM IV Becoming Verbally Abusive

    Hello all, I've posted here a few times since my mom (80 yrs old) was diagnosed in December 2014 with GBM. She has started her first round of...

    Started by scarlett71, 02-15-2015 03:28 PM
    • Replies: 13
    • Views: 710
    02-19-2015 03:41 PM Go to last post
  14. Finished radiation therapy, next step chemo

    Hi all, Hope you are as well as can be :) Just wanted to offload somewhere that hubby's 6 weeks of radiation is now complete :) only side...

    Started by Oligowife, 02-18-2015 12:42 PM
    • Replies: 2
    • Views: 177
    02-19-2015 03:36 PM Go to last post
  15. Third day of treatment

    I am on my third day of treatment. I take Everolimus every morning, and I will be taking the Temodar at night on the 5/28 cycle. Tonight will be my...

    Started by Oregongirl87, 02-16-2015 03:13 AM
    • Replies: 6
    • Views: 386
    02-19-2015 12:38 AM Go to last post
  16. Many questions?

    We spent the day at ED yesterday, my husband fell and they wanted to make sure there wasn't brain bleed or possible stroke. They did CT and it was...

    Started by peggy823, 02-10-2015 02:06 PM
    • Replies: 8
    • Views: 544
    02-18-2015 04:34 PM Go to last post
  17. Avastin treatment for GBM - Swollen and sore feet and ankles

    16-Feb-15. My mom has GBM and has been on Avastin since Oct-14. She has been doing good lately and her latest MRI showed positive results. However,...

    Started by coyote4, 02-17-2015 02:04 AM
    • Replies: 4
    • Views: 232
    02-18-2015 02:47 PM Go to last post
  18. Post Brain Tumor Patient Carer : Introduction

    I am From India and not a Brain Tumour patient. But I have a small doubt please clarify me someone. A patient of mine is relative, successfully...

    Started by srinuanji, 02-08-2015 09:46 AM
    • Replies: 9
    • Views: 531
    02-18-2015 12:16 PM Go to last post
  19. Stomach Pain

    My son has undergone 6 weeks of radiation therapy and just completed his 3rd of 9 cycles of chemotherapy. We are having a hard time getting him to...

    Started by SuperC, 02-15-2015 04:34 AM
    • Replies: 9
    • Views: 244
    02-15-2015 10:23 PM Go to last post
  20. Secondry brain cancer

    Hi, About a week ago, mum was having a few issues with some numbing and weakness in one of her hands and some occasional slurred speech. The...

    Started by AC533, 02-02-2015 08:45 PM
    2 Pages
    1 2
    • Replies: 39
    • Views: 1,789
    02-15-2015 01:47 AM Go to last post
  21. What to expect during treatment of gbm

    Hi, My first post, so just to quickly introduce myself, I'm 35 yo and I have a GBM on my frontal lobe. Following surgery, I'm in my 4th week of...

    Started by BGBM, 02-09-2015 05:50 PM
    • Replies: 7
    • Views: 509
    02-14-2015 09:48 PM Go to last post
  22. Brain surgery recovery

    My mother had a brain tumor ( metastasis from her lung cancer ) and the doctors removed it ( there were complications in the process, swelling was...

    Started by LazaB, 02-14-2015 07:16 PM
    • Replies: 2
    • Views: 156
    02-14-2015 08:44 PM Go to last post
  23. Gf has astrocytoma -- extreme pain

    This is with tears in my eyes that I'm typing. My girlfriend has a grade II astrocytoma tumour. Her headaches are absolutely unbearable and drive...

    Started by Seb, 02-13-2015 04:38 PM
    • Replies: 3
    • Views: 326
    02-14-2015 08:46 AM Go to last post
  24. Urgent: My mom has had a significant cognitive decline

    Before you ask, yes, I've already left messages for all of her doctors to call me ASAP. This discussion is more for my edification. I haven't...

    Started by Cigur11, 02-12-2015 03:23 AM
    • Replies: 1
    • Views: 328
    02-13-2015 09:12 PM Go to last post
  25. Tocagen Trial update.

    We are feeling blessed tonight! My DH had his MRI today and the residual tumor around the cavity is disappearing! He is participating in the Togen...

    Started by Josephine66, 02-12-2015 12:49 AM
    • Replies: 3
    • Views: 238
    02-13-2015 09:10 PM Go to last post
  26. About Ron

    My husband was diagnosed with a Glioblastoma of the occipital lobe April 26, 2014. We are thankful he had an episode at his employment which led us...

    Started by Ron's Wife, 02-11-2015 03:25 AM
    • Replies: 4
    • Views: 348
    02-13-2015 09:08 PM Go to last post
  27. GBM with new cyst(s) on scan

    Hi everyone, I'm new to this forum. I have had brain cancer for many years - 12 years this February the 3rd. My tumour began as a low-grade...

    Started by Mudget, 01-02-2015 04:38 AM
    • Replies: 6
    • Views: 608
    02-13-2015 06:42 AM Go to last post
  28. Everolimus Clinical Trial

    My UCSF doctor called me this evening. I have enough visible tumor for the clinical trial for everolimus. She said the remaining piece was so small...

    Started by Oregongirl87, 01-29-2015 03:24 AM
    • Replies: 9
    • Views: 773
    02-10-2015 10:11 PM Go to last post
  29. Does anyone know a good Australian neuro-oncologist?

    We have a member looking for a neuro-oncologist in Australia. If you can recommend one, please reply to this thread...

    Started by GBMsibling, 02-07-2015 05:04 PM
    • Replies: 2
    • Views: 189
    02-10-2015 10:28 AM Go to last post
  30. Boring

    I feel a bit bad about posting this, given the run of bad news we've had recently in the group, but thought I would share I had another stable MRI...

    Started by NikosF, 09-18-2014 08:45 PM
    2 Pages
    1 2
    • Replies: 29
    • Views: 1,541
    02-09-2015 11:10 PM Go to last post
  31. Heart Broken

    My wife of 25 yrs ,Christine had been diagnosed with stage 3 GBM on August 23rd, the 28th they removed as much of the tumor as they could, They...

    Started by tileman67, 02-04-2015 06:36 PM
    • Replies: 12
    • Views: 611
    02-06-2015 11:01 PM Go to last post
  32. Colorado Neuro Oncologist

    Mom just got diagnosed with GBM. She lives in West Palm Beach, FL but we are packing her up to move near us in Colorado - where she's always wanted...

    Started by jessebs, 02-05-2015 10:24 PM
    • Replies: 3
    • Views: 228
    02-06-2015 05:02 PM Go to last post
  33. Introduction

    Wow, this is possibly the most difficult introduction to start off... I've been lingering around for a couple of days and I have to say that I'm...

    Started by jessebs, 02-03-2015 06:00 PM
    • Replies: 6
    • Views: 399
    02-05-2015 11:21 PM Go to last post
  34. Anyone have any experience or insight on Lupron?

    I was wondering if anyone has been given Lupron while taking chemo? Specifically Everolimus or Temodar to preserve fertility?

    Started by Oregongirl87, 02-04-2015 10:31 PM
    • Replies: 1
    • Views: 142
    02-05-2015 12:42 AM Go to last post
  35. Pet test?

    So I have a stage 3 tumor in my head. I went to have a pet-ct scan done and got it and the report. We took this to a neurologist who told us "A...

    Started by yasuda1986, 02-02-2015 07:50 PM
    • Replies: 17
    • Views: 519
    02-03-2015 10:07 PM Go to last post
  36. Feeling guilty

    My husband is so positive that everything will be back to normal when his tumor is gone. He believes that his sight and cognitive issues will...

    Started by gomercloma, 02-03-2015 02:40 AM
    • Replies: 6
    • Views: 354
    02-03-2015 03:42 PM Go to last post
  37. venting....sorry!

    If the insurance company had to pay me the money for the hours that I have spent doing their jobs, we would all be happy! Because my husband has a...

    Started by peggy823, 02-02-2015 01:46 PM
    • Replies: 5
    • Views: 351
    02-03-2015 01:26 PM Go to last post
  38. Divide or Conquer?

    This morning I read a NYT article arguing against precision medicine : ...

    Started by NikosF, 01-29-2015 04:58 PM
    • Replies: 4
    • Views: 326
    01-31-2015 01:00 AM Go to last post
  39. Long-term use of birth control pills linked to higher risk of brain tumors

    http://www.foxnews.com/health/2015/01/22/taking-contraceptive-for-five-years-doubles-risk-developing-brain-tumor-study/ i dont know if you read it...

    Started by stardome, 01-22-2015 07:37 PM
    • Replies: 10
    • Views: 672
    01-30-2015 08:01 PM Go to last post
  40. Help and Sugesstions

    I had tumor on Jan 2011 and did the operation. But after the operation i have problems like left hand pain, whole left side body numbness, not...

    Started by kumar1234, 01-30-2015 07:15 AM
    • Replies: 3
    • Views: 251
    01-30-2015 03:29 PM Go to last post
  41. Great News

    After spending the day at Duke, we had another clear and stable scan and blood work looks great. Our 1 year will be next month! Peggy

    Started by peggy823, 01-27-2015 04:20 PM
    • Replies: 8
    • Views: 435
    01-30-2015 02:36 PM Go to last post
  42. Great News

    Another boring and stable MRI for mom. We are now 1 year post diagnosis too. :grin:

    Started by catwoman, 01-27-2015 02:03 AM
    • Replies: 9
    • Views: 526
    01-30-2015 01:43 AM Go to last post
  43. Pituitary brain tumor removal - success story

    This is written for those researching doctors for pituitary tumor removal. I feel Dr. Sandeep Kunwar not only removed my tumor, but potentially...

    Started by Jon7, 01-29-2015 12:09 AM
    • Replies: 2
    • Views: 226
    01-29-2015 03:38 PM Go to last post
  44. Post surgery MRI scan

    I have my first MRI scan scan since the day after my surgery today. I'm kind of nervous, but interested to see what it shows. It was kind of a...

    Started by Oregongirl87, 01-23-2015 06:17 PM
    • Replies: 10
    • Views: 631
    01-25-2015 05:16 PM Go to last post
  45. Radiation Without Chemo for Mother with GBM IV ?

    I posted a few weeks ago about making treatment decisions for my mother, who is 80 yrs old and diagnosed with GBM IV about a month ago....She had 3...

    Started by scarlett71, 01-24-2015 03:13 PM
    • Replies: 5
    • Views: 365
    01-24-2015 08:26 PM Go to last post
  46. Possible new variant of temozolomide to overcome drug resistance in GBM

    Great news if it pans out: http://medicalxpress.com/news/2015-01-revamped-drug-resistance-brain-tumours.html ...

    Started by NikosF, 01-22-2015 05:09 PM
    • Replies: 4
    • Views: 302
    01-23-2015 05:12 AM Go to last post
  47. New to this forum

    Hello everyone, I am starting this thread following the advise of one of the moderators . I was diagnosed with AO 3 on January 2013 after a grand...

    Started by Olisgone, 01-21-2015 10:44 PM
    • Replies: 3
    • Views: 356
    01-22-2015 02:41 PM Go to last post
  48. Going off the steroid - side effects?

    Since her diagnosis in May, my mother has been on Dex (steroid) and just stopped taking it nine days ago. It has been many months of gradually...

    Started by DixieDoodle78, 01-14-2015 08:32 PM
    • Replies: 3
    • Views: 394
    01-21-2015 03:08 PM Go to last post
  49. Yep, it's back!

    Hi. My name is Melissa and I reside in Tennessee. I am new to this site, but wanted to kinda tell my story. I was diagnosed with Grade II OLI in 2010...

    Started by lis050277, 01-09-2015 02:31 AM
    • Replies: 10
    • Views: 987
    01-21-2015 11:08 AM Go to last post
  50. Had my appt at UCSF

    I had my appointment at UCSF today for a second opinion regarding further treatment for my grade II astrocytoma. I will be getting an MRI this...

    Started by Oregongirl87, 01-17-2015 06:19 AM
    • Replies: 4
    • Views: 483
    01-20-2015 05:27 PM Go to last post

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