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Forum: Brain Tumors Forum

This forum is for primary brain tumors, not metastatic disease. Moderators: GBMsibling, Lboy, NikosF

  1. Sticky Thread Sticky: Introduction to Brain Cancers

    Introduction to primary brain cancers and their treatment This introduction concerns primary brain tumors, which originate in the brain. It does...

    Started by Lboy, 02-20-2014 10:10 PM
    • Replies: 11
    • Views: 3,268
    02-20-2014 10:44 PM Go to last post
  1. Arrow Lost a relative and another friend due to brain tumors this year, and now...

    Hello all. This year I have been to two funerals, both due to brain tumors. One of them was a relative and another one a business partner. Never...

    Started by brightnight, Yesterday 12:59 PM
    • Replies: 4
    • Views: 145
    Today 10:02 AM Go to last post
  2. Post Traumatic Stress Syndrome after Diagnosis

    My mother's therapist had an interesting theory that Mom may have PTSD. While Mom is doing better in many ways, her longstanding issues of...

    Started by DixieDoodle78, 10-20-2014 06:26 PM
    • Replies: 7
    • Views: 276
    Yesterday 11:25 PM Go to last post
  3. Genetic Testing for Primary Brain Cancer?

    When I was reading on another topic in our forum, a thought crossed my mind - Is there any genetic testing for primary brain cancer? I know...

    Started by DixieDoodle78, 10-22-2014 07:01 PM
    • Replies: 5
    • Views: 149
    Yesterday 06:02 PM Go to last post
  4. Questions for neuro oncologist

    My sister had her latest MRI done. The MRI done in August said the 1 cm mass was seen. The latest one done this week says the tumor is 1.8 cmX2.6 cm....

    Started by DebbieS, Yesterday 02:30 AM
    • Replies: 4
    • Views: 142
    Yesterday 04:28 PM Go to last post
  5. Hubby has had surgery

    Hi all, Hope you are well. It's 12.20am friday here & I can't sleep. Hubby had his surgery on Wednesday and it took a grueling 7hrs, they...

    Started by Oligowife, 10-16-2014 02:09 PM
    • Replies: 10
    • Views: 562
    10-22-2014 12:31 AM Go to last post
  6. Any women out there who started a family after brain surgery?

    Hi, I'm 32, and was diagnosed with brain tumors in Nov 2011. As of Dec this year, my partial seizure occurances started to go up, so at the advice...

    Started by Taramac, 10-16-2014 01:46 AM
    • Replies: 11
    • Views: 549
    10-22-2014 12:30 AM Go to last post
  7. Brittany Maynard - 29 yrd old with GBM - dying November 1st

    I am sure many of have read this young woman's essay about her GBM diagnosis and decision to die on her own terms ...

    Started by DixieDoodle78, 10-09-2014 07:44 PM
    3 Pages
    1 2 3
    • Replies: 45
    • Views: 2,085
    10-21-2014 11:35 PM Go to last post
  8. Husband-Astrocytoma Grade III-More Treatment

    Hi All, I have posted in a few different threads, but have some questions. We are scared and confused and things are not making sense. My...

    Started by SuperWife, 03-18-2014 08:30 PM
    • Replies: 5
    • Views: 945
    10-21-2014 03:03 PM Go to last post
  9. Sex/Fertility Issues and Chemo (Temozolomide (TMZ))

    My (male) partner is currently undergoing chemotherapy (Temozolomide (TMZ)) for a brain tumour. We have been vaguely told that we must use...

    Started by SMcNa, 10-20-2014 01:23 PM
    • Replies: 3
    • Views: 131
    10-21-2014 12:02 AM Go to last post
  10. Hoped I would never be back here, but...

    thanks so much to all of you for your support a few years ago while my Father was going through his colon cancer. Had really hoped not to have to...

    Started by johannabubela, 10-14-2014 02:42 AM
    • Replies: 11
    • Views: 542
    10-20-2014 10:34 PM Go to last post
  11. Second Month of Chemo Pill - Update

    Just wanted to share a hopeful update - my mother is on the second month of the chemo pill (five days a month) and she is doing great. No major side...

    Started by DixieDoodle78, 10-06-2014 12:38 PM
    • Replies: 6
    • Views: 349
    10-20-2014 06:19 PM Go to last post
  12. Quick updte: word I have been longing for

    My very careful oncologist used a word yesterday that I didn't think I'd ever hear: he said that he considers me "in remisssion." :) I promised him,...

    Started by RoseDaniel, 10-09-2014 06:10 AM
    • Replies: 8
    • Views: 417
    10-18-2014 10:21 AM Go to last post
  13. GBMO -BrainTumor

    Dear Admin & Group Members, I request all group members and admin to share their valuable views,thought and suggestions about fibrinoid necrosis...

    Started by Aditya, 10-16-2014 11:38 AM
    • Replies: 2
    • Views: 307
    10-18-2014 12:26 AM Go to last post
  14. BG, KY. 55 year old wife 1 year into "Living" with GBM

    My wife was diagnosed a little over a year ago at age 55. We have had fantastic care at the Med Center in BG, KY (Dr. Nathoo Surgeon, Dr. Smith,...

    Started by 4thregionref, 10-14-2014 09:19 PM
    • Replies: 3
    • Views: 320
    10-15-2014 01:20 PM Go to last post
  15. My sis developed a hematoma from falling

    My sis has been doing a little better the past 6 weeks, with the biggest improvement in mobility, so I had moved her to my house. Because of her...

    Started by JBro90, 10-14-2014 06:54 PM
    • Replies: 3
    • Views: 237
    10-15-2014 11:33 AM Go to last post
  16. i just want to talk

    hi guys, i havent been feeling very optimistic the last few days. My sister had her trip to France everything is good with her, she had fun and...

    Started by stardome, 10-10-2014 04:55 PM
    • Replies: 10
    • Views: 575
    10-14-2014 11:29 AM Go to last post
  17. First time post, hoping to learn a lot about the tumor I carry in my head

    It all began several years ago when I began to have migraine headaches. The only relief has been to take Excedrin Migraine pills, 2 at first for...

    Started by andydg, 09-13-2014 04:08 PM
    • Replies: 18
    • Views: 1,365
    10-13-2014 11:23 PM Go to last post
  18. Hubby has a 6.5cm oligo just recently diagnosed

    Well, I've been sitting here wondering where to begin my first post, I apologise in advance if I ramble on. So here goes.... 12 weeks ago I gave...

    Started by Oligowife, 09-10-2014 02:49 PM
    • Replies: 15
    • Views: 903
    10-13-2014 11:29 AM Go to last post
  19. Set backs

    My wife had brain cancer (primary)it was removed in March this year all MRI's have been great no signs of tumor coming back. We have been doing...

    Started by DocJohn, 10-12-2014 07:22 PM
    • Replies: 3
    • Views: 319
    10-12-2014 10:39 PM Go to last post
  20. Newbie

    Hey all. My name is Chad. I'm 29 years old. I was diagnosed with an Oligodendroglioma back in 2007. Underwent 2 months of radiation therapy in...

    Started by Chadders, 10-09-2014 06:24 PM
    • Replies: 5
    • Views: 338
    10-10-2014 07:03 PM Go to last post
  21. My dad has passed...

    ...leaving us one last "new normal" to get used to. It is a little less than six months since his diagnosis. My father would not have wanted me...

    Started by luvmyfather, 10-05-2014 08:40 PM
    2 Pages
    1 2
    • Replies: 27
    • Views: 925
    10-09-2014 10:50 PM Go to last post
  22. It really IS rice pudding!PEt scan was to confirm! :)

    I'm still here and will be for a long time. :) The surprise PET scan was to confirm the pathology report and the word from my nurse practioner was...

    Started by RoseDaniel, 10-02-2014 11:16 PM
    • Replies: 10
    • Views: 555
    10-09-2014 02:07 PM Go to last post
  23. AVASTIN with nothing else

    Since Lori had a sore throat and a cold this past month, her hubby didn't give her the Temador or Etopaside.....just the Avastin. She seems so much...

    Started by DebinFL, 10-06-2014 11:35 AM
    • Replies: 14
    • Views: 528
    10-09-2014 01:51 PM Go to last post
  24. Brother w/GBM nearing final stage

    After reading so many posts on this forum, I have decided to jump in and encourage anyone who needs it. My 49 y/o brother was diagnosed with stage IV...

    Started by OctoberValentine, 06-25-2014 12:20 PM
    2 Pages
    1 2
    • Replies: 20
    • Views: 2,193
    10-08-2014 12:28 PM Go to last post
  25. Continue to work...or not?

    If you were single, 35 years old, diagnosed with GBM4 & could not continue your career, due to poor motor skills...would you look for other work &...

    Started by Kelly!!, 10-07-2014 01:56 AM
    • Replies: 6
    • Views: 373
    10-07-2014 08:47 PM Go to last post
  26. GBM blog, 5 years later

    My mom died five years ago after a GBM diagnosis in 2007. I kept a blog of our experience, which I shared on another forum that has since been shut...

    Started by blakbyrd, 10-02-2014 08:48 PM
    • Replies: 1
    • Views: 373
    10-07-2014 03:25 PM Go to last post
  27. Boring!

    Never thought I would ever be happy to say I am boring.....we spent the entire day at Duke today and scan was clear! Now we can breathe until...

    Started by peggy823, 10-07-2014 12:26 AM
    • Replies: 7
    • Views: 284
    10-07-2014 01:31 PM Go to last post
  28. Brain Cancer Organization and Awareness?

    Does primary brain cancer have a national organization or publicity similar to what the Susan Komen Foundation has for breast cancer? Or do we need...

    Started by DixieDoodle78, 10-06-2014 12:49 PM
    • Replies: 7
    • Views: 262
    10-06-2014 08:35 PM Go to last post
  29. Moved: What were the signs?

    Started by Thom1046, 10-06-2014 05:07 PM
    • Replies: -
    • Views: -
    10-06-2014 05:29 PM Go to last post
  30. Has anyone experienced this?

    Was spending the day with my mother yesterday. She'd had her last MRI about a week ago and was stable. Her speech, some days are better than...

    Started by catwoman, 09-28-2014 10:28 PM
    • Replies: 15
    • Views: 877
    10-06-2014 12:59 AM Go to last post
  31. My mom went to ER with fluid in lungs, gets released in 4 hrs with only an inhaler

    In the past 5 days my mom developed serious edema in her legs, and the home nurse classified it as stage 3+, which means if you poke her legs with...

    Started by Cigur11, 10-05-2014 03:19 AM
    • Replies: 2
    • Views: 252
    10-05-2014 12:52 PM Go to last post
  32. Hearing Problems and some speech changes

    My husband got up a few days ago and couldn't hear. We cleaned out his ears and said it did help some but he can't hear welll at all. We are going...

    Started by peggy823, 10-03-2014 11:16 AM
    • Replies: 6
    • Views: 338
    10-04-2014 01:55 PM Go to last post
  33. oligodendroglioma II in three year old

    Hi, sorry that I am not on here very often. I was found to have a low grade (II) oligodendroglioma in my right temporal lobe when I was 3 years old...

    Started by sixdegrees, 10-01-2014 07:43 PM
    • Replies: 8
    • Views: 368
    10-03-2014 04:55 PM Go to last post
  34. Brother in law diagnosed with 5 Brain tumors

    Hello, My brother in law has been diagnosed with having 5 brain tumors in his head...in the last two week period is when it all began....weakness on...

    Started by Ellen Louise, 03-12-2014 07:39 PM
    3 Pages
    1 2 3
    • Replies: 57
    • Views: 4,540
    10-02-2014 08:59 PM Go to last post
  35. Unhappy Need Help Understanding Report

    Hello, I have been reading/researching endlessly, & maybe I just need better resources, but trying to understand the Pathologic Report has me...

    Started by Kelly!!, 09-20-2014 04:47 AM
    • Replies: 14
    • Views: 643
    10-02-2014 05:02 PM Go to last post
  36. Recovery timeline for brain surgery

    In Feb 2013 I had an astrocytoma removed from by cerebellum, as well as a large cyst. I was wondering if anyone else has experienced vestibular...

    Started by saccadiceye, 09-26-2013 05:58 AM
    • Replies: 7
    • Views: 1,445
    10-02-2014 04:34 PM Go to last post
  37. Tocagen Trial update.

    My DH started the Tocagen trial in May. He had a virus injected into his tumor and is now getting a med. that the virus converts into a cytotoxic...

    Started by Josephine66, 09-30-2014 05:07 AM
    • Replies: 2
    • Views: 308
    10-02-2014 03:43 PM Go to last post
  38. New here - Low Grade Glioma - Front Temporal lobe

    Hi everyone. I am a newbie. I am 40 and have 2 teenage boys and a wonderful hubby of almost 20 years. I have had migraines since my teens and...

    Started by madamechaya, 09-15-2013 11:03 PM
    • Replies: 18
    • Views: 3,035
    10-02-2014 02:57 AM Go to last post
  39. ologodendroglioma left temporal lobe

    my husband had a surgery on july 28, 2014 for oligodendroglioma grade II.he is scheduled for radiation theraphy this september. he is still having...

    Started by gomercloma, 08-31-2014 01:10 PM
    • Replies: 12
    • Views: 1,072
    10-02-2014 02:48 AM Go to last post
  40. update on my sister

    hi all, my sister had an mri, 9 months after her surgery and im happy to say that everything is clear. Thats something to expect with a low grade...

    Started by stardome, 04-05-2014 07:49 PM
    2 Pages
    1 2
    • Replies: 20
    • Views: 1,200
    10-01-2014 06:48 PM Go to last post
  41. Today is wear grey for brain tumor awareness

    https://www.facebook.com/events/1386193314977036/1388472651415769/?notif_t=plan_mall_activity i'm wearing grey in support of my son, Brandon and in...

    Started by lefty9284, 10-01-2014 01:40 PM
    • Replies: 1
    • Views: 189
    10-01-2014 05:13 PM Go to last post
  42. Update on my brother

    Im a little disjointed here.sorry : My brother has started to decline. The last two days he was angry and having delusional thinking. though...

    Started by soulsong4ever, 09-19-2014 10:59 AM
    • Replies: 14
    • Views: 680
    10-01-2014 11:42 AM Go to last post
  43. brain cancer status

    my wife has a brain tumor discovered in oct 2013. it increased in april. we started a very aggressive program. Mri in may showed slight decrease in...

    Started by royboy, 09-22-2014 05:09 PM
    • Replies: 9
    • Views: 567
    10-01-2014 09:23 AM Go to last post
  44. Why a PET Scan? Help me sleep tonigh :)

    I try not to post questions that require vague speculation, but here I go: I was called today to have a PET scan tomorrow. If the pathologists said...

    Started by RoseDaniel, 09-29-2014 11:58 PM
    • Replies: 6
    • Views: 291
    10-01-2014 01:55 AM Go to last post
  45. The story ends

    Hi, I have been away from the forum for a while now, and I am sorry I have to come back. My 34 years old wife past away on Feb 7 following 2...

    Started by Sleepow, 03-03-2014 12:26 PM
    • Replies: 16
    • Views: 1,489
    09-30-2014 11:40 AM Go to last post
  46. Where to draw the line with behavioral problems?

    About a month ago I was debating whether to place my sis with GBM in a home because I was too physically drained from lifting her when she was mostly...

    Started by JBro90, 09-27-2014 11:51 PM
    • Replies: 19
    • Views: 814
    09-30-2014 08:40 AM Go to last post
  47. Dex question

    Hi everyone, Hopping on here from the lung cancer forum. I actually was looking for info on dex and i read in the cancer pain forum you guys are...

    Started by jorola, 09-20-2014 06:37 AM
    • Replies: 10
    • Views: 492
    09-28-2014 10:22 PM Go to last post
  48. Help needed! Recurrance of brain tumor.

    History 13 years ago I had a brain tumor (Oliodendroglioma grade 2) removed. Due to a slight recurrence 3 years later i was treatment for 9 months...

    Started by davidsinger, 07-11-2012 10:53 AM
    • Replies: 7
    • Views: 2,256
    09-28-2014 04:17 AM Go to last post
  49. Aura-like symptoms returning recently

    I wrote several weeks ago about having my Keppra dose lowered. I was on 2,000 mg twice a day. I stayed on that dose for over a year without any real...

    Started by quartknee, 09-15-2014 08:15 PM
    • Replies: 3
    • Views: 548
    09-27-2014 11:41 PM Go to last post
  50. WElcome to the city of BoringocityLthe yello brick road to the emerald city.

    I"m boring, too. But I refuse to hang my head I't more rice pudding up there: i.e., pusuedoprogression. Yes, I bawled. I was readmitted...

    Started by RoseDaniel, 09-23-2014 02:01 PM
    • Replies: 16
    • Views: 535
    09-27-2014 11:33 PM Go to last post

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