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Forum: Brain Tumors Forum

This forum is for primary brain tumors, not metastatic disease. Moderators: GBMsibling, Lboy

  1. Sticky Thread Sticky: Introduction to Brain Cancers

    Introduction to primary brain cancers and their treatment This introduction concerns primary brain tumors, which originate in the brain. It does...

    Started by Lboy, 02-20-2014 10:10 PM
    • Replies: 11
    • Views: 2,807
    02-20-2014 10:44 PM Go to last post
  1. Debating whether to continue Avastin

    My mom's MRI last week showed that the measurable part of her tumor (AA3) remains stable in size, with "extensive T2 signal intensity" throughout the...

    Started by Cigur11, Yesterday 11:38 PM
    • Replies: 3
    • Views: 75
    Today 05:04 AM Go to last post
  2. First time post, hoping to learn a lot about the tumor I carry in my head

    It all began several years ago when I began to have migraine headaches. The only relief has been to take Excedrin Migraine pills, 2 at first for...

    Started by andydg, 09-13-2014 04:08 PM
    • Replies: 5
    • Views: 232
    Today 04:26 AM Go to last post
  3. Dex question

    Hi everyone, Hopping on here from the lung cancer forum. I actually was looking for info on dex and i read in the cancer pain forum you guys are...

    Started by jorola, Yesterday 06:37 AM
    • Replies: 6
    • Views: 117
    Today 02:20 AM Go to last post
  4. Unhappy Need Help Understanding Report

    Hello, I have been reading/researching endlessly, & maybe I just need better resources, but trying to understand the Pathologic Report has me...

    Started by Kelly!!, Yesterday 04:47 AM
    • Replies: 11
    • Views: 199
    Today 12:31 AM Go to last post
  5. 45 yr old GBM

    I am hoping to have some insight from the folks here who sadly have more experience than I with this horrible disease. My ex wife whom I share a 7 yr...

    Started by miteybucs, Yesterday 09:40 PM
    • Replies: 1
    • Views: 44
    Yesterday 10:45 PM Go to last post
  6. I'm not sure how much more caregiving I can handle

    I am doing the caregiving and medical decision-making for my mom who has AA3 almost on my own. Because of my mom's severe cognitive symptoms she's...

    Started by Cigur11, 09-14-2014 09:47 PM
    • Replies: 6
    • Views: 436
    Yesterday 08:46 PM Go to last post
  7. A liitle confused and scared

    Hi all I have been reading this forum for a few weeks now.So here goes. My younger sister(45) was diagosned with a grade 4 brain tumour in may this...

    Started by deawn, 09-16-2014 09:49 PM
    • Replies: 19
    • Views: 521
    Yesterday 05:54 PM Go to last post
  8. Boring

    I feel a bit bad about posting this, given the run of bad news we've had recently in the group, but thought I would share I had another stable MRI...

    Started by NikosF, 09-18-2014 07:45 PM
    • Replies: 13
    • Views: 232
    09-19-2014 04:15 PM Go to last post
  9. Update on my brother

    Im a little disjointed here.sorry : My brother has started to decline. The last two days he was angry and having delusional thinking. though...

    Started by soulsong4ever, 09-19-2014 10:59 AM
    • Replies: 5
    • Views: 137
    09-19-2014 02:46 PM Go to last post
  10. Itching

    Lori has started itching like crazy.....no change in meds, so we are not sure what it is. She says her right eye and right side of her nose keep...

    Started by DebinFL, 09-18-2014 11:54 AM
    • Replies: 6
    • Views: 187
    09-19-2014 12:47 PM Go to last post
  11. Hallucinations

    Hi all, Have any of you experienced or had reported to you weird hallucinations during recovery? I guess I have a weird cast of charterters in my...

    Started by RoseDaniel, 09-15-2014 09:25 PM
    • Replies: 13
    • Views: 390
    09-18-2014 11:31 PM Go to last post
  12. My husband has lost his fight.

    I had hoped that this day would never come. Johnny, the love of my life, passed away on September 10th after only 5 months since diagnosis. I...

    Started by Patiwalton, 09-12-2014 04:38 PM
    • Replies: 12
    • Views: 492
    09-18-2014 05:05 PM Go to last post
  13. X-Ray to diagnose brain cancer??

    Hi folks. I have a friend in N. Africa that was having intense headaches for the last three days and he finally went to the hospital yesterday. He...

    Started by Sarah C., 09-17-2014 03:29 PM
    • Replies: 4
    • Views: 215
    09-18-2014 01:18 AM Go to last post
  14. Glioblastoma IV Timeline?

    When I read the symptom timeline on brainhospice.com, I wonder if Dad may only have six weeks left or if its possible he'll improve yet again. ...

    Started by RayDeeCup, 02-21-2013 12:48 AM
    • Replies: 11
    • Views: 4,548
    09-17-2014 07:06 PM Go to last post
  15. Has anyone with GBM reoccurrences been treated with

    Novocure/ Tumor Treating Fields? Novocure is dedicated to the development of tumor treating fields (TTF) therapy, a new weapon for patients and...

    Started by catwoman, 09-17-2014 01:19 AM
    • Replies: 2
    • Views: 132
    09-17-2014 02:22 AM Go to last post
  16. The time approaches

    It has been about five months since my dad's diagnosis. He spent six weeks in the hospital receiving chemo, and another six weeks in rehab...

    Started by luvmyfather, 09-10-2014 10:18 PM
    • Replies: 18
    • Views: 669
    09-16-2014 04:06 PM Go to last post
  17. Aura-like symptoms returning recently

    I wrote several weeks ago about having my Keppra dose lowered. I was on 2,000 mg twice a day. I stayed on that dose for over a year without any real...

    Started by quartknee, 09-15-2014 08:15 PM
    • Replies: 2
    • Views: 154
    09-16-2014 02:00 PM Go to last post
  18. New study with tumors in mice brains explains why Avastin may be a dead end

    http://www.uofmhealth.org/news/archive/201408/hijacking-brains-blood-supply-tumor-discovery-could-aid Basically the study refutes the theory that...

    Started by JBro90, 09-15-2014 03:28 AM
    • Replies: 14
    • Views: 330
    09-16-2014 01:55 PM Go to last post
  19. Red Lipstick? How about great looking hair for brain surgery?

    First, Thank you so much for all the good thoughts, hopes, and prayers that this forum has been winging my way. My form of spirituality is about...

    Started by RoseDaniel, 09-10-2014 01:09 PM
    • Replies: 12
    • Views: 438
    09-16-2014 01:50 PM Go to last post
  20. Hubby has a 6.5cm oligo just recently diagnosed

    Well, I've been sitting here wondering where to begin my first post, I apologise in advance if I ramble on. So here goes.... 12 weeks ago I gave...

    Started by Oligowife, 09-10-2014 02:49 PM
    • Replies: 11
    • Views: 357
    09-16-2014 01:21 PM Go to last post
  21. still here: look like a ptize fighter got th brst o mee

    SStill around...have no ansers yet, but oy do I look like I went a few founds! Wish there wa a prize package attached! Dixie......my sons have...

    Started by RoseDaniel, 09-13-2014 08:38 AM
    • Replies: 15
    • Views: 346
    09-16-2014 11:58 AM Go to last post
  22. Hyperthirmie treatment in Germany showing good results, to some.

    Has anybody been to this treatment in Germany? On the right hand side you can change the language to English if its in German. We have...

    Started by STL, 07-17-2012 06:07 AM
    2 Pages
    1 2
    • Replies: 24
    • Views: 4,989
    09-16-2014 02:44 AM Go to last post
  23. History of Depression Combined with Brain Cancer Diagnosis

    I wanted to throw this out there and hopefully generate a discussion of stories and suggestions. All of her life, my mother has had a history of...

    Started by DixieDoodle78, 09-13-2014 05:05 PM
    • Replies: 2
    • Views: 166
    09-15-2014 09:41 PM Go to last post
  24. Questions about chemo pill and nausea

    My mother started the first month/cycle of taking the chemo pill. This is the routine of taking the pill for five days in a row, then having...

    Started by DixieDoodle78, 09-02-2014 02:30 PM
    • Replies: 4
    • Views: 416
    09-15-2014 09:11 PM Go to last post
  25. Two questions

    Hi. My brother not doing too well. only 8 months since diagnosis . :( question : what is wetting oneself ? is it a sign of getting worse ? is...

    Started by soulsong4ever, 08-13-2014 04:16 AM
    2 Pages
    1 2
    • Replies: 36
    • Views: 1,425
    09-14-2014 02:53 AM Go to last post
  26. Latest Update sn some Clinical Trial information

    So my feeling is that a large part of the purpose of this forum is to share information and support regarding our situation in dealing with Brain ...

    Started by plugh, 08-18-2014 09:28 PM
    • Replies: 6
    • Views: 506
    09-13-2014 01:26 PM Go to last post
  27. IDH1 gene mutation and survival - potential good (or bad) news

    I've wrote in other posts how I'm extremely puzzled about my mom's poor condition with anaplastic astrocytoma, which I was always led to believe was...

    Started by Cigur11, 09-08-2014 02:13 AM
    • Replies: 6
    • Views: 352
    09-13-2014 08:34 AM Go to last post
  28. I gave my mom the "clock drawing test" for dementia

    I attached the picture of her attempt earlier today at 10 past 11. I am stunned how poor it has gotten since the psychologist at the hospital had her...

    Started by Cigur11, 09-13-2014 12:19 AM
    • Replies: 0
    • Views: 145
    09-13-2014 12:19 AM Go to last post
  29. 47 Years Old Glioblastoma grade 4

    Hi everyone! My father was diagnosed on 07.11.13 with brain tumor. He got his surgery on 19.11.13 and the results showed gbm grade 4. 3 weeks after...

    Started by smaragdin, 01-16-2014 11:48 AM
    4 Pages
    1 2 3 ... 4
    • Replies: 63
    • Views: 6,624
    09-12-2014 09:18 PM Go to last post
  30. MRI Inconsistency?

    Anyone with stable MRI ever have subsequent MRI's from a different machine/s in a large teaching hospital which has some discrepancies when compared...

    Started by Tipkid, 09-11-2014 01:19 AM
    • Replies: 7
    • Views: 272
    09-12-2014 04:32 PM Go to last post
  31. ologodendroglioma left temporal lobe

    my husband had a surgery on july 28, 2014 for oligodendroglioma grade II.he is scheduled for radiation theraphy this september. he is still having...

    Started by gomercloma, 08-31-2014 01:10 PM
    • Replies: 11
    • Views: 706
    09-11-2014 02:02 PM Go to last post
  32. Health Care Proxy and Wishes - Thinking ahead if unable to speak

    When my mother was diagnosed with GBM a few months ago, she immediately had a health care proxy set up and a Power of Attorney paperwork done. As her...

    Started by DixieDoodle78, 08-14-2014 07:26 PM
    • Replies: 2
    • Views: 294
    09-10-2014 08:26 PM Go to last post
  33. Autopsies for BT patients?

    Hi all. I am a little hesitant to ask this question, especially since there are those of you on here who are living with brain cancer and for whom I...

    Started by luvmyfather, 09-08-2014 01:14 PM
    • Replies: 8
    • Views: 379
    09-10-2014 03:51 PM Go to last post
  34. Cognitive deficits from Avastin?

    As of last week, my mom has had five Avastin infusions for her anaplastic astrocytoma (she began July 7). During the past two months, I have...

    Started by Cigur11, 09-07-2014 04:44 AM
    • Replies: 11
    • Views: 431
    09-10-2014 01:47 PM Go to last post
  35. Shift Happens

    I thought I was well on my way to being one of the miracle kids, but Tuesday reality intruded. While watching a colleague's professional development...

    Started by RoseDaniel, 09-06-2014 02:00 PM
    2 Pages
    1 2
    • Replies: 24
    • Views: 798
    09-09-2014 08:55 PM Go to last post
  36. Moved: Grieving in advance?

    Started by DixieDoodle78, 09-09-2014 02:35 PM
    • Replies: -
    • Views: -
    09-09-2014 02:35 PM Go to last post
  37. Right frontal lobe tumor

    my son was 29 when he was told he had a tumor on the right frontal lobe. he has the same problem with trying to organize his thoughts. he will sit...

    Started by lefty9284, 09-08-2014 02:29 PM
    • Replies: 1
    • Views: 215
    09-08-2014 03:30 PM Go to last post
  38. Has anyone had to turn to a nursing home for their BT patient? My family is debating

    I've posted before about the difficulties my family is facing taking care of my sis with GBM; basically, she needs help with almost everything and...

    Started by JBro90, 09-01-2014 06:49 PM
    • Replies: 12
    • Views: 433
    09-06-2014 06:28 PM Go to last post
  39. Philocystic astrocytoma - life after surgery. Headaches?

    Hi everyone, my husband had a seizure last July and was found to have a grade 1 philocystic astrocytoma in his right frontal lobe. He was 33 at that...

    Started by Pilocysticastro_husband, 09-05-2014 12:53 AM
    • Replies: 5
    • Views: 205
    09-05-2014 03:13 PM Go to last post
  40. Pilocytic astrocytoma grade 1 in cerebellum

    Hi all, My 7 year old son hadnt been well for a while, sickness every half hour, the most disabling headaches. I always thought he wasn't a hungry...

    Started by Nicolam, 01-12-2014 06:13 AM
    • Replies: 9
    • Views: 1,126
    09-05-2014 07:51 AM Go to last post
  41. Food for thought: Any inherent bias in Karnofsky scoring?

    I began to muse this morning, wondering if there is an inherent bias in the Karnofsky scoring that works against people with disabilities and in some...

    Started by RoseDaniel, 08-28-2014 09:14 PM
    • Replies: 7
    • Views: 357
    09-05-2014 03:19 AM Go to last post
  42. Possible low grade glioma....need advice

    I'm so confused as to what I should do. For the last six months or so I have been getting headaches frequently. I also have had a decline in my...

    Started by Mom2jokano, 09-03-2014 01:34 AM
    • Replies: 3
    • Views: 217
    09-03-2014 04:52 PM Go to last post
  43. My dear dad and GBM IV

    I am sorry that by mistake I posted this in general cancer so I repost here. Hello Everyone, First of thank you for creating this...

    Started by nella, 04-07-2014 02:47 AM
    • Replies: 19
    • Views: 1,236
    09-03-2014 11:43 AM Go to last post
  44. Memory Concerns

    I understand that some people never have memory problems, I understand about the location, surgery issues and all that but my husband was doing so...

    Started by peggy823, 09-01-2014 08:49 PM
    • Replies: 14
    • Views: 672
    09-03-2014 11:39 AM Go to last post
  45. Moved: Could this be a possible Brain Tumor?

    Started by overoid, 09-02-2014 08:30 PM
    • Replies: -
    • Views: -
    09-02-2014 08:30 PM Go to last post
  46. GBM 4 survivor of 3 years, but Tumor is on the move again

    Approximately 3yrs ago our mum, who at the time was 60, was diagnosed with GBM4... the tumor was/is inoperable so we had to hit it hard with...

    Started by NCTK, 09-02-2014 10:18 AM
    • Replies: 0
    • Views: 202
    09-02-2014 10:18 AM Go to last post
  47. brain tumor cancer..?

    Well heres the story. My mom was diagnosed aS having a brain tumor in her head around 8 months ago. They determined it was benign, performed surgery...

    Started by anti_cancer, 09-01-2014 04:54 AM
    • Replies: 5
    • Views: 315
    09-02-2014 12:42 AM Go to last post
  48. Empathy vs. Sympathy

    If I"m allowed to link to it, I think this is a great little RSA video for our board members! ...

    Started by RoseDaniel, 09-01-2014 07:55 PM
    • Replies: 5
    • Views: 211
    09-01-2014 09:46 PM Go to last post
  49. Help me stay sane while waiting!?

    Okay, so my child (5 years old) had a rare and agressive high grade polyphenotypic brain tumor - posterior fossa. She had a gross total resection,...

    Started by ButterflyWings, 08-29-2014 04:42 AM
    • Replies: 7
    • Views: 429
    09-01-2014 05:39 PM Go to last post
  50. After Surgery for Low Grade Glioma

    My husband (29 yrs old) had a subtotal resection with the pre-diagnosis (it will be certain tomorrow once we get the pathology results) of low grade...

    Started by mabelank, 04-13-2009 10:17 AM
    • Replies: 11
    • Views: 7,345
    09-01-2014 08:41 AM Go to last post

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