A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.
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Forum: Brain Tumors Forum

This forum is for primary brain tumors, not metastatic disease. Moderators: GBMsibling, Lboy, NikosF

  1. Sticky Thread Sticky: Introduction to Brain Cancers

    Introduction to primary brain cancers and their treatment This introduction concerns primary brain tumors, which originate in the brain. It does...

    Started by Lboy, 02-20-2014 11:10 PM
    • Replies: 11
    • Views: 4,559
    02-20-2014 11:44 PM Go to last post
  1. Everolimus Clinical Trial

    My UCSF doctor called me this evening. I have enough visible tumor for the clinical trial for everolimus. She said the remaining piece was so small...

    Started by Oregongirl87, Today 03:24 AM
    • Replies: 3
    • Views: 53
    Today 06:05 PM Go to last post
  2. Divide or Conquer?

    This morning I read a NYT article arguing against precision medicine : ...

    Started by NikosF, Today 04:58 PM
    • Replies: 0
    • Views: 14
    Today 04:58 PM Go to last post
  3. Pituitary brain tumor removal - success story

    This is written for those researching doctors for pituitary tumor removal. I feel Dr. Sandeep Kunwar not only removed my tumor, but potentially...

    Started by Jon7, Today 12:09 AM
    • Replies: 2
    • Views: 66
    Today 03:38 PM Go to last post
  4. Long-term use of birth control pills linked to higher risk of brain tumors

    http://www.foxnews.com/health/2015/01/22/taking-contraceptive-for-five-years-doubles-risk-developing-brain-tumor-study/ i dont know if you read it...

    Started by stardome, 01-22-2015 07:37 PM
    • Replies: 7
    • Views: 333
    Today 02:28 PM Go to last post
  5. Great News

    Another boring and stable MRI for mom. We are now 1 year post diagnosis too. :grin:

    Started by catwoman, 01-27-2015 02:03 AM
    • Replies: 8
    • Views: 262
    Today 02:20 PM Go to last post
  6. Great News

    After spending the day at Duke, we had another clear and stable scan and blood work looks great. Our 1 year will be next month! Peggy

    Started by peggy823, 01-27-2015 04:20 PM
    • Replies: 5
    • Views: 165
    Today 02:19 PM Go to last post
  7. Post surgery MRI scan

    I have my first MRI scan scan since the day after my surgery today. I'm kind of nervous, but interested to see what it shows. It was kind of a...

    Started by Oregongirl87, 01-23-2015 06:17 PM
    • Replies: 10
    • Views: 432
    01-25-2015 05:16 PM Go to last post
  8. Radiation Without Chemo for Mother with GBM IV ?

    I posted a few weeks ago about making treatment decisions for my mother, who is 80 yrs old and diagnosed with GBM IV about a month ago....She had 3...

    Started by scarlett71, 01-24-2015 03:13 PM
    • Replies: 5
    • Views: 194
    01-24-2015 08:26 PM Go to last post
  9. Right frontal lobe tumor removal

    I have had a grade II right frontal lobe (with extensions to what seems like everywhere) mixed oligoastrocytoma tumor for 12 years now. I have done...

    Started by LBbrain, 12-20-2014 05:53 PM
    • Replies: 6
    • Views: 677
    01-23-2015 10:06 PM Go to last post
  10. 47 Years Old Glioblastoma grade 4

    Hi everyone! My father was diagnosed on 07.11.13 with brain tumor. He got his surgery on 19.11.13 and the results showed gbm grade 4. 3 weeks after...

    Started by smaragdin, 01-16-2014 12:48 PM
    5 Pages
    1 2 3 ... 5
    • Replies: 87
    • Views: 10,862
    01-23-2015 02:26 PM Go to last post
  11. Possible new variant of temozolomide to overcome drug resistance in GBM

    Great news if it pans out: http://medicalxpress.com/news/2015-01-revamped-drug-resistance-brain-tumours.html ...

    Started by NikosF, 01-22-2015 05:09 PM
    • Replies: 4
    • Views: 204
    01-23-2015 05:12 AM Go to last post
  12. Questions for the onologist can you think of anymore?

    I have decided to write an email to the oncologist with the following questions tell me what you think Re the treatment of Valganciclovir: Is...

    Started by love my hubby, 01-12-2015 08:12 AM
    • Replies: 12
    • Views: 741
    01-22-2015 05:05 PM Go to last post
  13. Telling Hubby

    Hubby knows he has a "negative tumour", as he puts it, and has talked along the lines of "If I die" but this conversation only happened the once soon...

    Started by love my hubby, 01-21-2015 08:31 AM
    • Replies: 11
    • Views: 457
    01-22-2015 02:44 PM Go to last post
  14. New to this forum

    Hello everyone, I am starting this thread following the advise of one of the moderators . I was diagnosed with AO 3 on January 2013 after a grand...

    Started by Olisgone, 01-21-2015 10:44 PM
    • Replies: 3
    • Views: 220
    01-22-2015 02:41 PM Go to last post
  15. Muscle wasting on the limbs

    Hi hubby had op 3rd Jan he was on 16mg of dexamethasone then had been for 2 weeks prior. A week later hospital got him down to 4mg a day. In the last...

    Started by love my hubby, 01-11-2015 09:58 PM
    • Replies: 9
    • Views: 523
    01-22-2015 01:43 AM Go to last post
  16. Going off the steroid - side effects?

    Since her diagnosis in May, my mother has been on Dex (steroid) and just stopped taking it nine days ago. It has been many months of gradually...

    Started by DixieDoodle78, 01-14-2015 08:32 PM
    • Replies: 3
    • Views: 260
    01-21-2015 03:08 PM Go to last post
  17. Phase 1 but would be phase 2 if approved by ROS

    Saw the oncologist today and the treatment he wants to put my husband on is a drug that has been available for years for anti viral infections caused...

    Started by love my hubby, 01-19-2015 08:42 PM
    • Replies: 5
    • Views: 283
    01-21-2015 03:07 PM Go to last post
  18. Yep, it's back!

    Hi. My name is Melissa and I reside in Tennessee. I am new to this site, but wanted to kinda tell my story. I was diagnosed with Grade II OLI in 2010...

    Started by lis050277, 01-09-2015 02:31 AM
    • Replies: 10
    • Views: 701
    01-21-2015 11:08 AM Go to last post
  19. Had my appt at UCSF

    I had my appointment at UCSF today for a second opinion regarding further treatment for my grade II astrocytoma. I will be getting an MRI this...

    Started by Oregongirl87, 01-17-2015 06:19 AM
    • Replies: 4
    • Views: 348
    01-20-2015 05:27 PM Go to last post
  20. Lamictal and OCD

    Hi, everyone. It's been a while since I've been here. A few months ago, I started the process of supplementing part of my Keppra dose with Lamictal...

    Started by quartknee, 01-19-2015 07:15 PM
    • Replies: 0
    • Views: 150
    01-19-2015 07:15 PM Go to last post
  21. Blood drawn at home

    Just wanted to post what I learned today. I just found out our insurance will cover to have a person come to the house to have blood drawn. My...

    Started by Hus2014, 01-15-2015 12:07 AM
    • Replies: 2
    • Views: 273
    01-16-2015 11:12 PM Go to last post
  22. Gbm4

    My lovely mam - 66 years old has been diagnosed with GBM4. We are awaiting our first appointment with a near oncologist at Freeman Hospital,...

    Started by hugandkiss, 01-11-2015 10:47 PM
    • Replies: 9
    • Views: 587
    01-14-2015 09:00 PM Go to last post
  23. Hubby just had op and it went well

    Hi everyone hubby had his op today it was very scary sitting and waiting but the surgeon told us it went well and when we saw him he was talking be...

    Started by love my hubby, 01-03-2015 08:13 PM
    2 Pages
    1 2
    • Replies: 25
    • Views: 1,051
    01-14-2015 12:30 PM Go to last post
  24. Astrocytoma Grade II diffuse-looking to connect with others

    I was diagnosed this month with a grade II astrocytoma the surgeon estimates I have had for 10-15 years. I had surgery and 95+% resected. Now I am...

    Started by Oregongirl87, 12-01-2014 07:03 AM
    2 Pages
    1 2
    • Replies: 24
    • Views: 1,820
    01-14-2015 06:07 AM Go to last post
  25. NYT Article - Why Everyone Seems To Have Cancer - Discussion Post

    I wanted to post this NYT article and maybe generate an interesting discussion ...

    Started by DixieDoodle78, 01-13-2015 02:33 PM
    • Replies: 3
    • Views: 256
    01-13-2015 09:11 PM Go to last post
  26. Happy 2015

    Happy 2015 to all and wishing us all the most boring news! Continued support, love and hugs. Peggy

    Started by peggy823, 12-31-2014 12:40 PM
    • Replies: 7
    • Views: 454
    01-11-2015 01:58 PM Go to last post
  27. Went to ER myself last night - head pain

    Last night I woke up with a jolt and felt a horrible wrap around head pain with a pounding in the back of my head itself. I was lethargic, trouble...

    Started by DixieDoodle78, 01-09-2015 08:48 PM
    • Replies: 5
    • Views: 510
    01-11-2015 08:46 AM Go to last post
  28. Is there something serious going on with my brain? Please help I'm desperate.

    Hey everyone. Even if you don't experience anything similar will you comment and tell me what you would do if you were me. I'm starting to think I'm...

    Started by MorganSummers, 01-09-2015 03:11 AM
    • Replies: 12
    • Views: 681
    01-11-2015 08:43 AM Go to last post
  29. It's me again....

    Hi everyone, this is Melissa...I just recently posted about my 2nd run in with Grade 3 oligoastrocytoma. Thank you for the replies! I have another ?....

    Started by lis050277, 01-11-2015 01:00 AM
    • Replies: 1
    • Views: 179
    01-11-2015 02:59 AM Go to last post
  30. Social Security Disability for Grade III Oligoastrocytoma

    Does anyone have any recent information on qualifying for SS Disability if you have a Grade III brain tumor? I have a friend who just quit her job...

    Started by patty500, 09-12-2011 01:18 PM
    • Replies: 9
    • Views: 4,047
    01-10-2015 03:11 PM Go to last post
  31. My Sister Peggy

    My sister passed away this morning after an 11 month battle with this horrid beast. There is no more pain and suffering. Thank you to this board for...

    Started by DebbieS, 01-08-2015 01:57 AM
    • Replies: 13
    • Views: 569
    01-10-2015 10:12 AM Go to last post
  32. Artemisimin and other herbal supplements

    Any views on doing this either prior or during chemo and radiotherapy?

    Started by love my hubby, 01-09-2015 10:38 PM
    • Replies: 1
    • Views: 137
    01-09-2015 10:45 PM Go to last post
  33. Itsjustbenign.org??

    Does anyone on here belong to itsjustbenign.org? I came across it and it looks like it may be a good resource. It was founded by someone...

    Started by Oregongirl87, 01-09-2015 01:58 AM
    • Replies: 4
    • Views: 288
    01-09-2015 05:55 PM Go to last post
  34. Post sorry everyone

    Imvery sorry I have not been around to helo. Iwas not able to make the race. I was in the hos with major brain swelling. still not back to normal...

    Started by jpearson, 07-19-2013 06:06 AM
    3 Pages
    1 2 3
    • Replies: 56
    • Views: 7,818
    01-08-2015 10:48 PM Go to last post
  35. Help from Physicians

    Calling ALL Physicians! I come to you for advice or help. Nothing that costs anything but something unusual. Here is my dilemma. My husband of 26...

    Started by KrisHtibbs, 01-08-2015 09:08 PM
    • Replies: 3
    • Views: 221
    01-08-2015 10:40 PM Go to last post
  36. The story ends

    Hi, I have been away from the forum for a while now, and I am sorry I have to come back. My 34 years old wife past away on Feb 7 following 2...

    Started by Sleepow, 03-03-2014 01:26 PM
    • Replies: 17
    • Views: 1,999
    01-08-2015 10:10 PM Go to last post
  37. Has anyone experienced this?

    Was spending the day with my mother yesterday. She'd had her last MRI about a week ago and was stable. Her speech, some days are better than...

    Started by catwoman, 09-28-2014 11:28 PM
    • Replies: 16
    • Views: 1,309
    01-08-2015 10:05 PM Go to last post
  38. Justin 28 years old GBM IV

    Hi all I have been looking on this forum for some time now and I wanted to share/tell you my story about my Son Justin, he might have been a member...

    Started by Gary Wood, 11-04-2014 10:34 PM
    • Replies: 11
    • Views: 1,055
    01-08-2015 03:34 PM Go to last post
  39. Dad with brain cancer

    Hello, I just registered on this site in order to share my experience and hopefully get some questions answered from anyone who has been in this...

    Started by gitx, 01-06-2015 11:20 PM
    • Replies: 4
    • Views: 448
    01-08-2015 12:32 AM Go to last post
  40. Products that caring for GBM patient easier

    8 months into caring for wife, I thought I would list the items I found very useful in caring for her. (wife dx May 2014 GBM IV surgery but was not...

    Started by Hus2014, 01-03-2015 11:55 PM
    • Replies: 4
    • Views: 381
    01-06-2015 04:24 PM Go to last post
  41. Husband newly diagnosed w/ low grade astrocytoma

    Hi all! I guess it would help to tell our story. In April of this year my husband hadn't been feeling well. He has Diverticulosis and thought he was...

    Started by Sweetness, 07-25-2014 02:45 PM
    2 Pages
    1 2
    • Replies: 25
    • Views: 2,074
    01-06-2015 11:14 AM Go to last post
  42. Dizzy?

    My husband tried to get up this morning and said he was dizzy? I checked blood pressure and ask about other problems. He says he is just dizzy. We...

    Started by peggy823, 12-12-2014 02:31 PM
    • Replies: 14
    • Views: 760
    01-06-2015 03:13 AM Go to last post
  43. Six month follow up with radiation oncologist

    Last week, my mother attended her six month follow up with her radiation oncologist (we all love him so much for his precise and calm and...

    Started by DixieDoodle78, 01-05-2015 06:27 PM
    • Replies: 0
    • Views: 118
    01-05-2015 06:27 PM Go to last post
  44. Need to Know whats Next

    My sister was taken to the ER for a seizure. She has csf fluid on the brain. They drained it but it all came back within 24 hours. The doctors have...

    Started by DebbieS, 01-01-2015 06:51 PM
    • Replies: 9
    • Views: 577
    01-05-2015 06:19 PM Go to last post
  45. Making Treatment Decisions for Mother with Brain Cancer

    Hello everyone, This is my first post here, so I hope I have posted in the correct place. Perhaps I should have posted in the Brain Tumor...

    Started by scarlett71, 01-01-2015 04:19 PM
    • Replies: 13
    • Views: 638
    01-05-2015 12:30 AM Go to last post
  46. Just looking for some support

    Hi everyone, I have been visiting this forum for years but Iíve never actually posted before and I thought now would be a good time as I am in need...

    Started by AllieKR, 12-27-2014 04:01 AM
    • Replies: 9
    • Views: 583
    01-04-2015 04:40 PM Go to last post
  47. GBM with new cyst(s) on scan

    Hi everyone, I'm new to this forum. I have had brain cancer for many years - 12 years this February the 3rd. My tumour began as a low-grade...

    Started by Mudget, 01-02-2015 04:38 AM
    • Replies: 4
    • Views: 341
    01-02-2015 11:39 PM Go to last post
  48. Family Link/Genetics Being Studied for Brain Cancer

    Has anyone seen this article and wish to discuss? ...

    Started by DixieDoodle78, 12-09-2014 04:11 AM
    2 Pages
    1 2
    • Replies: 23
    • Views: 1,283
    01-02-2015 09:49 PM Go to last post
  49. BG, KY. 55 year old wife 1 year into "Living" with GBM

    My wife was diagnosed a little over a year ago at age 55. We have had fantastic care at the Med Center in BG, KY (Dr. Nathoo Surgeon, Dr. Smith,...

    Started by 4thregionref, 10-14-2014 10:19 PM
    • Replies: 16
    • Views: 1,427
    01-02-2015 08:11 PM Go to last post
  50. Private care and changing to NHS in the UK

    Does anybody have any thoughts on private care and having a team working for you or does this not happen in the uk under private insurance? I am...

    Started by love my hubby, 12-31-2014 10:32 PM
    • Replies: 3
    • Views: 253
    01-02-2015 12:29 AM Go to last post

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