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Forum: Brain Tumors Forum

This forum is for primary brain tumors, not metastatic disease. Moderators: GBMsibling, Lboy, NikosF

  1. Sticky Thread Sticky: Introduction to Brain Cancers

    Introduction to primary brain cancers and their treatment This introduction concerns primary brain tumors, which originate in the brain. It does...

    Started by Lboy, 02-20-2014 11:10 PM
    • Replies: 11
    • Views: 3,681
    02-20-2014 11:44 PM Go to last post
  1. Recurrence

    Hello, My sisters surgical pathology confirmed it was recurrent gbm. She is on 6mg steroids a day. Since the surgery she is very confused. She sees...

    Started by DebbieS, Yesterday 10:18 PM
    • Replies: 7
    • Views: 122
    Today 04:07 PM Go to last post
  2. post win for your GBM day

    Mine(women should understan) was getting a pair of tights on by myself. sound small, men? try udergood circumstances yanking a pair of nylon...

    Started by RoseDaniel, 11-19-2014 10:33 PM
    • Replies: 12
    • Views: 216
    Today 12:34 PM Go to last post
  3. Boring

    I feel a bit bad about posting this, given the run of bad news we've had recently in the group, but thought I would share I had another stable MRI...

    Started by NikosF, 09-18-2014 08:45 PM
    2 Pages
    1 2
    • Replies: 23
    • Views: 749
    Today 12:32 PM Go to last post
  4. Fatigue

    Just wondering how much fatigue you or your loved one's faced with GBM during the 5/23 Temador. My husband had surgery 6/14, finished RT and chemo...

    Started by SandyDee, Yesterday 09:44 AM
    • Replies: 4
    • Views: 114
    Today 12:25 PM Go to last post
  5. Caregiviers

    This is my first post, my husband was DX with GBM 5/2014, surgery 6/14 finished RT/Chemo on 5/23 Temador, though has only taken 2 cycles because of...

    Started by SandyDee, 11-19-2014 12:30 PM
    • Replies: 5
    • Views: 185
    Today 10:35 AM Go to last post
  6. Caregiving/Caregivers Coping with Stress During Disease and Aftermath

    Based on another discussion on the "PTSD" thread, another poster had an idea for a separate thread about caregivers coping with stress during the...

    Started by DixieDoodle78, 10-31-2014 04:05 PM
    2 Pages
    1 2
    • Replies: 30
    • Views: 1,517
    Today 01:34 AM Go to last post
  7. Novocure data

    Not sure this has been posted here yet - but GREAT news for the newly diagnosed. Not often a GBM trial gets stopped early. ...

    Started by NikosF, 11-19-2014 01:23 AM
    • Replies: 6
    • Views: 225
    Yesterday 03:03 PM Go to last post
  8. Hi Im new hubby just been diagnosed with a inner right temporal glioma

    Hi as the above says we have received devastating news or is it devastating? Can anyone give me an insight into this? Our neuroligist was very vague...

    Started by love my hubby, 10-25-2014 08:21 AM
    2 Pages
    1 2
    • Replies: 36
    • Views: 2,049
    Yesterday 03:01 PM Go to last post
  9. This is Hell

    Hi my very healthy 64yr old Dad was diagnosed with a GBM In August 3.5 months ago. He had The only person in Australia who will touch these...

    Started by alicem, 11-19-2014 07:49 AM
    • Replies: 4
    • Views: 196
    Yesterday 06:47 AM Go to last post
  10. cannabis

    Not sure if everyone saw this on musella's email blast: http://www.ibtimes.co.uk/cannabis-extracts-drastically-reduce-brain-tumour-size-1475399 ...

    Started by NikosF, Yesterday 01:41 AM
    • Replies: 2
    • Views: 111
    Yesterday 05:39 AM Go to last post
  11. NY Times article - Electrical Scalp Device

    Has anyone else seen this? It looked interesting and I liked seeing the data of slightly longer survival. ...

    Started by DixieDoodle78, 11-17-2014 06:17 PM
    • Replies: 3
    • Views: 221
    11-19-2014 06:56 PM Go to last post
  12. Parietal Lobe Astrocystoma

    Good Evening, I have been reading posts here for awhile, and would like to ask a few questions. My father had a large seizure in mid December...

    Started by PandaBear, 11-17-2014 02:00 AM
    • Replies: 4
    • Views: 252
    11-18-2014 06:27 PM Go to last post
  13. Quick updte: word I have been longing for

    My very careful oncologist used a word yesterday that I didn't think I'd ever hear: he said that he considers me "in remisssion." :) I promised him,...

    Started by RoseDaniel, 10-09-2014 07:10 AM
    • Replies: 10
    • Views: 703
    11-18-2014 02:37 AM Go to last post
  14. Dexamethasone

    My wife has started to reduce her Dex down to 2mg per day, what signs and symptoms should I be looking for so I know that this is the correct dosage...

    Started by deawn, 11-16-2014 12:35 PM
    • Replies: 6
    • Views: 280
    11-17-2014 08:37 PM Go to last post
  15. Difficulty with Temodar, help

    I am having a difficult time with taking temodar. I have to take several capsules and instead of paying 1 copay, I have to pay 3 copays. DOes...

    Started by gapayton, 11-15-2014 02:25 AM
    • Replies: 10
    • Views: 377
    11-17-2014 05:33 PM Go to last post
  16. Dad with GBM4

    Hi My dad was diagnosed on the 1st November with Glioblastoma grade 4 of the frontal lobe. He was admitted to hospital on 9th October with a...

    Started by BATsgirl, 11-10-2013 08:52 PM
    2 Pages
    1 2
    • Replies: 32
    • Views: 3,387
    11-17-2014 03:57 PM Go to last post
  17. You probably don't remember me by now!

    Hey everyone. I've had the craziest of summers and falls. First of all, my scans are still clear, which is good news. No signs of any regrowth....

    Started by mccindy, 10-24-2014 10:30 PM
    • Replies: 17
    • Views: 855
    11-16-2014 06:08 PM Go to last post
  18. Surgery

    My sister decided to do the surgery. She is in surgery as I write this post. The doctors expect it to take about 7 hours. Will the recovery be the...

    Started by DebbieS, 11-12-2014 06:02 PM
    • Replies: 5
    • Views: 333
    11-13-2014 06:22 PM Go to last post
  19. Post Traumatic Stress Syndrome after Diagnosis

    My mother's therapist had an interesting theory that Mom may have PTSD. While Mom is doing better in many ways, her longstanding issues of...

    Started by DixieDoodle78, 10-20-2014 07:26 PM
    2 Pages
    1 2
    • Replies: 35
    • Views: 1,625
    11-12-2014 08:19 PM Go to last post
  20. Looking for feedback on MRI report

    My husband had his MRI today and I went back this evening and got the radiology report. I've not spoken to his oncologist yet. A bit of background:...

    Started by Houstonwife123, 11-07-2014 01:35 AM
    • Replies: 7
    • Views: 524
    11-08-2014 01:26 PM Go to last post
  21. Husband newly diagnosed w/ low grade astrocytoma

    Hi all! I guess it would help to tell our story. In April of this year my husband hadn't been feeling well. He has Diverticulosis and thought he was...

    Started by Sweetness, 07-25-2014 02:45 PM
    • Replies: 19
    • Views: 1,299
    11-07-2014 09:54 PM Go to last post
  22. BG, KY. 55 year old wife 1 year into "Living" with GBM

    My wife was diagnosed a little over a year ago at age 55. We have had fantastic care at the Med Center in BG, KY (Dr. Nathoo Surgeon, Dr. Smith,...

    Started by 4thregionref, 10-14-2014 10:19 PM
    • Replies: 7
    • Views: 789
    11-07-2014 02:35 PM Go to last post
  23. I was glad to see this article

    It's on NBC's site, so it should get a wide audience. It begins with the two widely published stories of Brittany Maynard and Lauren Hill, but goes...

    Started by stageleft, 11-06-2014 05:17 AM
    • Replies: 4
    • Views: 330
    11-07-2014 02:01 PM Go to last post
  24. My sis passed yesterday

    Her fight with GBM is over. Almost 10 months to the day. It was so unexpected because she had really turned the corner recently and I thought she...

    Started by JBro90, 11-02-2014 02:05 PM
    • Replies: 15
    • Views: 775
    11-07-2014 12:31 AM Go to last post
  25. Justin 28 years old GBM IV

    Hi all I have been looking on this forum for some time now and I wanted to share/tell you my story about my Son Justin, he might have been a member...

    Started by Gary Wood, 11-04-2014 10:34 PM
    • Replies: 9
    • Views: 492
    11-05-2014 04:16 PM Go to last post
  26. Brittany Maynard - 29 yrd old with GBM - dying November 1st

    I am sure many of have read this young woman's essay about her GBM diagnosis and decision to die on her own terms ...

    Started by DixieDoodle78, 10-09-2014 08:44 PM
    4 Pages
    1 2 3 ... 4
    • Replies: 66
    • Views: 4,295
    11-04-2014 12:35 PM Go to last post
  27. Hoped I would never be back here, but...

    thanks so much to all of you for your support a few years ago while my Father was going through his colon cancer. Had really hoped not to have to...

    Started by johannabubela, 10-14-2014 03:42 AM
    • Replies: 13
    • Views: 939
    11-04-2014 03:08 AM Go to last post
  28. Introducing myself/venting/questions about clinical trials...

    Hello there...I'm a 33 YO mother of 2 very young kids, and my husband was diagnosed a little over two years ago with a glioma the size of an egg on...

    Started by MrsBT17, 10-26-2014 12:15 AM
    • Replies: 5
    • Views: 519
    11-03-2014 01:12 PM Go to last post
  29. Red face Venting

    So my sister went to the neurosurgeon and he recommended surgery. They believe its regrowth. My sister couldn't make up her mind whether to do the...

    Started by DebbieS, 11-01-2014 11:32 PM
    • Replies: 4
    • Views: 343
    11-03-2014 12:38 PM Go to last post
  30. Are there alternatives for the decadron? DCVax

    My dad will be finishing his 6th round of monthly Temodar at the end of Sept. We are going for compassionate use of the DCvacine after that. The only...

    Started by maustin, 09-07-2011 11:37 PM
    • Replies: 4
    • Views: 3,140
    11-02-2014 11:41 PM Go to last post
  31. Sex/Fertility Issues and Chemo (Temozolomide (TMZ))

    My (male) partner is currently undergoing chemotherapy (Temozolomide (TMZ)) for a brain tumour. We have been vaguely told that we must use...

    Started by SMcNa, 10-20-2014 02:23 PM
    • Replies: 8
    • Views: 459
    11-01-2014 10:22 PM Go to last post
  32. So many threads started that I might have contributions to!

    But I'm behind, folks, and hope to work today to make some relevant contributions. But later. In a nutshell (the elevator pitch): 1. It'sproven ...

    Started by RoseDaniel, 10-28-2014 05:12 PM
    • Replies: 3
    • Views: 323
    10-31-2014 01:01 PM Go to last post
  33. applying for social security disabiltiy

    Hello, how is your experience with applying for Social Security disability? My wife if 55 has been on STD through work since May, goes on LTD next...

    Started by Hus2014, 10-28-2014 01:48 PM
    • Replies: 9
    • Views: 410
    10-30-2014 10:30 PM Go to last post
  34. Update on mother second MRI - lots of hope

    Just to update all of you on my mothers MRI late last week - she was able to get a full MRI with contrast. Her tumor appears to be gone and there is...

    Started by DixieDoodle78, 10-27-2014 03:23 PM
    • Replies: 6
    • Views: 369
    10-28-2014 06:46 PM Go to last post
  35. How creative radiation treatment saved her life and her baby's life

    http://www.nydailynews.com/life-style/health/radiation-saves-pregnant-woman-article-1.1860389 Excuse if this was posted already. Very...

    Started by Hus2014, 10-28-2014 02:02 PM
    • Replies: 4
    • Views: 237
    10-28-2014 05:53 PM Go to last post
  36. Any women out there who started a family after brain surgery?

    Hi, I'm 32, and was diagnosed with brain tumors in Nov 2011. As of Dec this year, my partial seizure occurances started to go up, so at the advice...

    Started by Taramac, 10-16-2014 02:46 AM
    • Replies: 12
    • Views: 819
    10-28-2014 01:57 PM Go to last post
  37. Not a good appointment

    My sister went to her no appt. It is regrowth and her NO wants her to see the neurosurgeon to have the tumor removed. It has doubled in size in 2...

    Started by DebbieS, 10-26-2014 04:36 AM
    • Replies: 7
    • Views: 610
    10-28-2014 12:55 AM Go to last post
  38. Can I just say

    2014 FREAKING SUCKS. If the year just didn't start off with a freaking bang, it's ending with one too. Sorry I know a cat is not the same as a...

    Started by catwoman, 10-25-2014 04:52 AM
    • Replies: 3
    • Views: 324
    10-27-2014 12:52 PM Go to last post
  39. Arrow Lost a relative and another friend due to brain tumors this year, and now...

    Hello all. This year I have been to two funerals, both due to brain tumors. One of them was a relative and another one a business partner. Never...

    Started by brightnight, 10-23-2014 01:59 PM
    • Replies: 4
    • Views: 477
    10-24-2014 11:02 AM Go to last post
  40. Genetic Testing for Primary Brain Cancer?

    When I was reading on another topic in our forum, a thought crossed my mind - Is there any genetic testing for primary brain cancer? I know...

    Started by DixieDoodle78, 10-22-2014 08:01 PM
    • Replies: 5
    • Views: 344
    10-23-2014 07:02 PM Go to last post
  41. Questions for neuro oncologist

    My sister had her latest MRI done. The MRI done in August said the 1 cm mass was seen. The latest one done this week says the tumor is 1.8 cmX2.6 cm....

    Started by DebbieS, 10-23-2014 03:30 AM
    • Replies: 4
    • Views: 367
    10-23-2014 05:28 PM Go to last post
  42. Hubby has had surgery

    Hi all, Hope you are well. It's 12.20am friday here & I can't sleep. Hubby had his surgery on Wednesday and it took a grueling 7hrs, they...

    Started by Oligowife, 10-16-2014 03:09 PM
    • Replies: 10
    • Views: 773
    10-22-2014 01:31 AM Go to last post
  43. Husband-Astrocytoma Grade III-More Treatment

    Hi All, I have posted in a few different threads, but have some questions. We are scared and confused and things are not making sense. My...

    Started by SuperWife, 03-18-2014 09:30 PM
    • Replies: 5
    • Views: 1,105
    10-21-2014 04:03 PM Go to last post
  44. Second Month of Chemo Pill - Update

    Just wanted to share a hopeful update - my mother is on the second month of the chemo pill (five days a month) and she is doing great. No major side...

    Started by DixieDoodle78, 10-06-2014 01:38 PM
    • Replies: 6
    • Views: 509
    10-20-2014 07:19 PM Go to last post
  45. GBMO -BrainTumor

    Dear Admin & Group Members, I request all group members and admin to share their valuable views,thought and suggestions about fibrinoid necrosis...

    Started by Aditya, 10-16-2014 12:38 PM
    • Replies: 2
    • Views: 439
    10-18-2014 01:26 AM Go to last post
  46. My sis developed a hematoma from falling

    My sis has been doing a little better the past 6 weeks, with the biggest improvement in mobility, so I had moved her to my house. Because of her...

    Started by JBro90, 10-14-2014 07:54 PM
    • Replies: 3
    • Views: 353
    10-15-2014 12:33 PM Go to last post
  47. i just want to talk

    hi guys, i havent been feeling very optimistic the last few days. My sister had her trip to France everything is good with her, she had fun and...

    Started by stardome, 10-10-2014 05:55 PM
    • Replies: 10
    • Views: 778
    10-14-2014 12:29 PM Go to last post
  48. First time post, hoping to learn a lot about the tumor I carry in my head

    It all began several years ago when I began to have migraine headaches. The only relief has been to take Excedrin Migraine pills, 2 at first for...

    Started by andydg, 09-13-2014 05:08 PM
    • Replies: 18
    • Views: 1,649
    10-14-2014 12:23 AM Go to last post
  49. Hubby has a 6.5cm oligo just recently diagnosed

    Well, I've been sitting here wondering where to begin my first post, I apologise in advance if I ramble on. So here goes.... 12 weeks ago I gave...

    Started by Oligowife, 09-10-2014 03:49 PM
    • Replies: 15
    • Views: 1,084
    10-13-2014 12:29 PM Go to last post
  50. Set backs

    My wife had brain cancer (primary)it was removed in March this year all MRI's have been great no signs of tumor coming back. We have been doing...

    Started by DocJohn, 10-12-2014 08:22 PM
    • Replies: 3
    • Views: 486
    10-12-2014 11:39 PM Go to last post

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