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pauline47
New User
Joined: 02 Jul 2008
Posts: 3
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 Posted: Mon Jul 07, 2008 5:37 pm Post subject: Brain cancer oliodendroglioma |
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| hi, its been a while since i wrote my husband was diognosed 5 years ago with oliodendroglioma grade 2. He had surgery, with near removal and radiotreatment. he had 5 very good years only his left leg was weak. last August he was in just 3 days deteriorating and after an mri was made it confirmed the tumor was back. he was operated for a second time in early September, and after 7 weeks in hospital due to some complications released and put on temodal 5 days every 28 days. in January the cancer was back 2 cm, but the doctor continued the chemo. In April the cancer had not grown further, ansd we got some hope again he would live a while longer. Than 4 weeks ago he deteriorated in a few days, and lost control of his left leg and arm and his speech. he now is being nursed at home in a hospital bed as he is still strong and tried to get out of a normal bed, this resulting in him faling down several times. he was put on steroids. They made him a bit stronger but only for a week now he is very weak and sleeps 20 hours a day, i fear he will die soon. I have still 2 montly dosis of temodol 440 mg a day in my house, that are useless. i read al those terrible posts from people who have no money to buy the chemo i would like to give them away. pl cntact me if anybody needs this type of chemo. My husband is dearly loved by all of his family and we all will miss him greatly, now we try to make him as comfortable as possible. he hasalmost stopped all communicating. Its such a shame how this disease reduces a powerfull being to a plant. But we are very lucky he had 5 good years after the first diognoses. |
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brainman
Chief Admin
Joined: 13 Oct 2005
Posts: 4434
Location: Tennessee
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| Posted: Tue Jul 08, 2008 12:44 am Post subject: Re: Brain cancer oliodendroglioma |
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pauline47, I am so very sorry about your husband's oligodendroglioma. I was diagnosed with a glioma grade II in 1992 with a recurrence as a grade III in 2005 so your husband's story really hits close to home with me. Was your husband's glioma a higher grade well it recurred? You can read all of my story by going to the links in my signature block.
I will be away for a few days so you might not hear back from me until the end of the week but there are many other very loving and caring people in this community that will be here for you.
As much as I understand your wish to give away the left over temodol, it is illegal to do so in the US.
You and your husband are in my thoughts and prayers.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
http://cancerforums.net/viewtopic.php?t=2405My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/ |
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ksplat
Super Moderator
Joined: 26 Apr 2007
Posts: 575
Location: Brisbane, Australia
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| Posted: Wed Jul 09, 2008 7:12 am Post subject: Re: Brain cancer oliodendroglioma |
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Dear Pauline
I too am sorry to hear about your Husband's decline with his brain tumour. Even though you may have had 5 more years the whole brain tumour things SUX!
It is unfortunate the steroids only helped for a few days. I do hope he is comfortable & I'm sure having him at home is a much better situation for you all. Do you have palliative care assisting you as well?
The challenges you are facing at the moment must be difficult & I will hold you & your Husband up in my prayers.
My Bro too had a similar situation last year with L side deficits from his brain tumour. Fortunately, he is still battling on with the challenges this devastating illness brings.
Thinking of you.
Cheers, Angie.
_________________
Brother diagnosed with GBMIV Feb 07
Treatment: Radiotherapy, Temodal, Gliadel Wafers, Dexamethasone, Keppra, Dilantin, Clexane
Went to our Heavenly Father after a 19mth battle,, 47 years young.
23 Sep 2008
http://cancerforums.net/viewtopic.php?p=19227
"Without Faith We Have Nothing" |
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pauline47
New User
Joined: 02 Jul 2008
Posts: 3
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| Posted: Wed Jul 09, 2008 7:20 am Post subject: Re: Brain cancer oliodendroglioma |
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hi Angie
thx for the sweet reply, i am having a nrse for an hour to give injections and stuf, but it realy isnt enough as my husband is a heavy man, and depends on diapers now, its hard to change diapers on a 250 pound man. he keeps himself very stiff and i have to pry his hands lose of the bed to turn him. Anyway i am stil coping, hardest i find to see his deteriation of a strong powerful man to a baby. Although his mind stil functions as an adult, and he can still speak although with difficulties. keep you al posted.
Hope your brother keeps fighting i thinkthat what kept my husband in a good condition for so long
warm regards pauline |
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Derek
Regular
Joined: 14 Apr 2007
Posts: 26
Location: Newcastle, New South Wales, Australia
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| Posted: Thu Jul 10, 2008 3:43 am Post subject: Re: Brain cancer oliodendroglioma |
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Pauline,
I am very sorry to hear about your husband.
My wife had surgery (which was almost fatal) for the same brain cancer in late 2006, so this hits home very hard to see such problems for yourself and husband in 5 years time.
Keep fighting,
Derek |
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ksplat
Super Moderator
Joined: 26 Apr 2007
Posts: 575
Location: Brisbane, Australia
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| Posted: Thu Jul 24, 2008 1:24 am Post subject: Re: Brain cancer oliodendroglioma |
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Dear Pauline
Just wanted to post a quick note to let you know I'm thinking of you. I hope & pray your Husband condition is as good as it can be?
God Bless,
Angie.
_________________
Brother diagnosed with GBMIV Feb 07
Treatment: Radiotherapy, Temodal, Gliadel Wafers, Dexamethasone, Keppra, Dilantin, Clexane
Went to our Heavenly Father after a 19mth battle,, 47 years young.
23 Sep 2008
http://cancerforums.net/viewtopic.php?p=19227
"Without Faith We Have Nothing" |
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Tammy
Experienced user
Joined: 27 Nov 2007
Posts: 79
Location: New Brunswick, Canada
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| Posted: Tue Oct 21, 2008 9:37 pm Post subject: Re: Brain cancer oliodendroglioma |
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Hi Pauline, First of all I am very sorry to hear about your husbands cancer, and I am thinking of you and your family.
I myself was diagnosed last year of a grade 2 oligodendroglioma. Mine is slowly growing. I am not on any treatment besides my anti convulsive meds and a few others for headaches and whatnot. If I may ask where about is the tumor and what size? mine is 7cm and on the right frontal lobe. Lately I been having burning sensations in my head where the tumor is located.
Once again you are in my prayers and thoughts...
Tam~
Never regret something that once made you smile. |
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