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TREATMENT USED IN UK FOR GBM What is this ?

 
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ALOCIN
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Joined: 16 Oct 2006
Posts: 26
PostPosted: Fri Oct 20, 2006 10:01 am    Post subject: TREATMENT USED IN UK FOR GBM Reply with quote
I'm in the uk and my husband is on pcv chemo after having radiotherpy and before that debulking surgery for gbm grade 4. Does anyone know if Temodar is used anywhere in the uk or of any other treatments used ?. Has anyone know if pcv chemo is as affective as other treatment used in the world
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brainman
Site Admin


Joined: 13 Oct 2005
Posts: 5983
Location: Tennessee
PostPosted: Sat Oct 21, 2006 9:50 pm    Post subject: Re: TREATMENT USED IN UK FOR GBM Reply with quote
Hi ALOCIN,

As far as I know, Temodar is the gold standard for chemo treatment of GBM. However, I do not know how available it is in the UK.

I have read many of your posts so I want to express how sorry I am that you and your husband are dealing with this monster. My mother died because of GBM over eight years ago. I have also had two occurrences of gliomas… one in ’92 and a recurrence in ’05. I wish I could tell you that the rode ahead of you is an easy one. Be assured of my thoughts and prayers for both of you.
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Jim
Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
http://cancerforums.net/viewtopic.php?t=2405
My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
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ALOCIN
Regular


Joined: 16 Oct 2006
Posts: 26
PostPosted: Sun Oct 22, 2006 8:15 am    Post subject: Re: TREATMENT USED IN UK FOR GBM Reply with quote
Thankyou for your kind words. After reading about the use of temodar in this forum I feel upset that my husband was not given this treatment in the uk. We did try to get it but were unable to. It really upsets be to think that the best treatment is not used and is it down to money and not the patient's best interests. We were told that it can be used as a second line treatment in the uk. It is not licensed in the uk as for as I'm aware or does anyone know different? Was pcv chemo used in america before temodar?. Thankfully my husband is doing ok on pcv chemo but we will never know if he would have done better on temodar.
Have you read the online blog by Ivan Noble who worked for the bbc and sadly died of GBM last year aged 34yr .I know alot of emotions he wrote about, alot of people will relate to that log on to this site?
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brainman
Site Admin


Joined: 13 Oct 2005
Posts: 5983
Location: Tennessee
PostPosted: Mon Oct 23, 2006 9:36 pm    Post subject: Re: TREATMENT USED IN UK FOR GBM Reply with quote
I don't know what pcv is. When I took chemo in '92, the chemo of choice was CCNU. It might be the same thing. As you probably know, it is very difficult to treat brain cancers with chemotherapy. I wish you the best.
_________________
Jim
Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
http://cancerforums.net/viewtopic.php?t=2405
My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029
Twitter: @JimHawkins54
FaceBook: http://www.facebook.com/James.Hawking54?ref=profile
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ALOCIN
Regular


Joined: 16 Oct 2006
Posts: 26
PostPosted: Sun Oct 29, 2006 4:57 am    Post subject: Re: TREATMENT USED IN UK FOR GBM Reply with quote
My husbands tumor is growing again from the last scan . we only got the results on friday . They said there was no point in giving him any more pcv chemo . He has to wait 2 weeks for them to decide what to do next. They did say they might try another type of chemo or ?? more surgery.So he might get temodar as it is used for 2nd line treatment in the uk.
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brainman
Site Admin


Joined: 13 Oct 2005
Posts: 5983
Location: Tennessee
PostPosted: Sun Oct 29, 2006 5:09 am    Post subject: Re: TREATMENT USED IN UK FOR GBM Reply with quote
ALOCIN, how are you doing through all of this? I know that for me it was not easy seeing my mother grow weaker and weaker. But by the time her GBM was diagnosed there was nothing they could do for her. I will keep you and your father in my prayers and thoughts.
_________________
Jim
Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
http://cancerforums.net/viewtopic.php?t=2405
My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029
Twitter: @JimHawkins54
FaceBook: http://www.facebook.com/James.Hawking54?ref=profile
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