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Anyone Dealing With Salivary Gland Issues What is this ?

 
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Richard Day Gore
Experienced user


Joined: 09 Nov 2006
Posts: 69
Location: NYC
PostPosted: Sat Oct 06, 2007 1:33 pm    Post subject: Anyone Dealing With Salivary Gland Issues Reply with quote
Hi all,

My salivary glands were wrecked by radiaiton treatment for thyroid cancer. I take pilocarpine (Salagen is the brand name) to stimulate what is left of the glands, and it gives some relief from the constant dry mouth and subsequent problems that xerostomia engenders. I have heard that there is such a thing as an "Isotope Survey" that can determine if the glands can be restored, but the nearest place that does it, the Salivary Center in NYC, does not take my insurance and it is an expensive procedure.

Does anyone know of a place that does this, or works with salivary issues? It would be cheaper for me to fly to another city if I can find a place that takes my Oxford. Screwed up, huh?

Also, I'd be glad to talk with anyone who has had issues with their salivary glands. I'm a true veteran at this point.

Regards to all,
Richard Day Gore
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Richard Day Gore
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DocSeiwert
Site Admin


Joined: 14 Oct 2007
Posts: 20
PostPosted: Tue Oct 16, 2007 9:50 pm    Post subject: Re: Anyone Dealing With Salivary Gland Issues Reply with quote
I work with head and neck cancer patients, including all the people who have a dry mouth (xerostomia) afterwards, but I have never heard of the procedure you mention. It seems somewhat strange, but I am very curious to hear what you find out.
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Tanguy Seiwert, MD
Medical Oncologist, University of Chicago

Disclaimer: This information is for informational purposes only and is not medical advice. Please always consult with your physician.
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brainman
Site Admin


Joined: 13 Oct 2005
Posts: 3967
Location: Tennessee
PostPosted: Wed Oct 17, 2007 1:16 am    Post subject: Re: Anyone Dealing With Salivary Gland Issues Reply with quote
Richard, I am very sorry to hear about your dry mouth. That certainly must make life, well, not to comfortable for you. Keep working with your medical team. Maybe they can help you locate another source for the treatment you are looking for. Keep us informed.
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Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
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