Just cause I don't have an advanced cancer...

Kisara · New User Joined: 27 Sep 2007 Posts: 9

Doesn't mean I don't hurt. :{

I'm taking Megace for my endometrial cancer. Thats it, no chemo, no nothing. Surgery is really nothing more then a D and C usually.
From what I have read as side effects, I have several. I have been taking Megace for several months now. The side effects should have subsided?

But I don't understand why I have very severe muscle cramps EVERYWHERE. (I have not seen this listed as a side effect)
They are like having Charlie horse type pain, everywhere. I can't even turn around to do simple things without a slight twinge of pain in certain spots. (ribcage area for example)

Even yawning sometimes gives me stiffness in my mouth. My doctor doesn't do anything. Sad

My primary doctor basically told me to do the whole common sense thing with muscle cramps. (Hot water, slight massage, etc. Stuff I already tried.) How can I explain to my oncologist that I hurt?

I work 10 hours a day, and I come home in such pain. I know part of its working that long shift, and my feet tell me so. But its just a little much? I don't understand how standing for long periods of time can make your arms, hips, ribcage, neck have such pain. Sad

I'm just a cashier now, I don't do a lot of physical things in my job. Unlike my old job where I'd be having to lift a lot of heavy things.. that would undoubtedly be part of the cause of pain. (That's one of the reasons I quit.) Then even when I am not working, doing just stuff at home can cause these muscle pains. (I have 3 days off, since the 10 hours a day..) I have tried stretching.
Stretching causes the muscle pain to start. I know how to properly stretch as when I was younger I did martial arts, and other activities that you needed to stretch properly.

I know that in advanced cancers that pain is a common factor. But I am in IA , the very very first stage. I cannot find any information onto what causes these muscle pain.

Sad

Anyone have an idea??

Or maybe I should just wait. I'm going to be going to MD Anderson in Houston soon.
I don't know.

ksplat

Hello Kisara

I'm sorry to hear about the joint & muscle pain you have been enduring. I experienced similar problems a few years ago (2005) when I was cronically ill. My joint & muscle pain was so draining. I could barely lift my arms some days, because of the pain & as I live in a 2 storey house I rarely ventured down stairs whilst I was still ill. My Thoracic specialist believed the joint pain was from the large doses of steroids I was taking at the time. I was also taking chemo & immune supression drugs, for 12 or more months.

Is there a drug/medication you have been taking since yr diagnosis that could be causing this pain (side effect)? I'm not familiar with Megace?Perhaps you should discuss this further with your GP or Specialist. You shouldn't ignore this symptom because it can be so debillitating!

Have you checked out any members' stories on the Endometrial Cancer thread? Perhaps you could post yr question on this thread too & someone just may have a similar story to share with you?

Thinking of you.

Cheers, Angie.
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Brother diagnosed with GBMIV Feb 07
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Went to our Heavenly Father after a 19mth battle,, 47 years young.
23 Sep 2008
http://cancerforums.net/viewtopic.php?p=19227

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