dlh
New User
Joined: 06 Feb 2008
Posts: 2
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 Posted: Wed Feb 06, 2008 8:34 pm Post subject: lost, need direct answers |
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hi
well where do i start, am male 36
november last year i was having abdomen pain middle right, went to doctors on 7th, muscle pain she said due to job carpet fitter, so i carried on was really busy, pain coming and going, dec 12 in agony scared me, went back doctors next day, still muscle pain she said, then she wieght me i had lost 11kg since my last visit, she asked about my appetite ect, told her i eat when meal times, never felt hungry, hungry, so she did some blood tests come back on 31st dec. (did blood test on 19th dec)
after my visit i got worse couldnt work, the following evening i felt cold then hot, went to bed and sweat, i was drenched had to keep drying myself with towel all night. didnt have another night sweat as such, just a couple of mild ones at tea time as i was always going to bed as i felt so tired all the time, also started to notice lymph nodes in groin 2 on right 1 on left, 1 under my armpit all enlarged, the ones on right of groin i have felt for over 3 years but not as big.
then came the 31st sat down and doc told me the blood test came back ok
i told her about the nodes and she felt and said i also had some in my neck, sent me straight for xray, and that she would speak to other doc after surgery to see if to refer me straight away or wait for xray, she felt it might be lymphoma but was not sure, was no shock to me as i had already looked up my symptons, she phoned back same day see oncoligist on 9 jan
went he asked of health history, family ect felt nodes in all areas, told me to have blood tests before i left hospital and he was sending me to see ent surgeon to take one out, come back to see him on 6 feb.
saw ent surgeon 16th sent me for scan neck,
went back to see him on 29th put 3kg back on in the time between 9th to 23rd, he said nodes in neck had gone down, bigger than should be but not big enough to take out, blood test did on 9th jan shows virus due to white blood cell count, so i asked why the blood test in dec, when i felt my worst and nodes were swelling did my blood test show clear, but test on 9th when i was feeling better, and neck nodes had gone down, virus he said threw out body.
so came the 6th feb oncoligist again, lost 2.5kg since 29th and i had noticed days before another node under arm before going, shuck my hand sat me down so what we going to do then, send me home i said, i got a sort of smile, he looked at the bloods he had asked for on 9th, and i told him what the ent surgeon had said, he said my lymphocetes was high i think, and went on about scan, hard man to get anything out of, then is words, sooner or later we have to take one out, we will have to wait till one gets bigger, come back in 8 weeks, at this point my dear lady jumped in, hes found another one under is arm, he took a look, or more a feel, and said we could go for that one, or do you want to wait, cya in 8 weeks i said, but now back at home i just wished id said yes, its just at times they make me feel like theres nothing wrong.
but i feel there is and think he does also, first time i met him he said indolent lynphoma, but could be something else, my partner who i love dearly thinks its all nothing, and i should not be reading about it on internet, which i have done since middle of dec, i thought lymphoma before gp said anything, the internet as made me feel stronger and wiser for what i might be in for.
thank you for reading, and sorry its longgggg
your views would be greatly recieved
darren
Last edited by dlh on Fri Feb 08, 2008 6:44 pm; edited 1 time in total |
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umbleweed
Regular
Joined: 22 Nov 2007
Posts: 24
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| Posted: Thu Feb 07, 2008 1:25 pm Post subject: Re: lost, need direct answers |
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Similar circumstances with me, Although the nodes in my neck have being swollen for about 5 years, I didn't start getting symptoms until a year ago. And there is still question in what is going on.
Could you answer me a few questions?
How big are you're lymph node swellings? Do you know the particular kinds of lymph nodes in the neck are swollen? What is the texture and feel of them?
I too have lost allot of weight, Almost a stone. I dont seem to be dropping at the rate i belived anymore. I have had nightsweats, But these were durigng the summer months, which i had started getting the previous year (before i fell ill). I generally feel lethargic and hungover every day. My appitite comes and goes, But i certainly still have it and i eat as much as i can, But unfortuently don't gain any back.
You're doctors seem to be working hard to get to the bottom of you're problems. I have been told i have a anxiety problem for the past year and most of my concerns have being overlooked because of this.
I too had blood tests near the beggining of getting ill which all came back normal, More recentley i had blood tests which showed a drop in my platelets, And a drop of my neutrophils making me now mildy netruopenic.
I wish doctors would take me as seriously as they are taking you. I find it very insulting to be told these problems are in my head, Of course i am anxious/depressed. Of course i am acting like a lunatic when i visit the doctors, Only because i don't get answers, arrogance, and malpractice from the medical field. It isnt unreasonable to assume someone would secondly develop these problems because of feeling so terrible everyday.
I have seen a ENT doctor who sent me for Ultrasound of the neck, his report shows more lymph nodes inside my neck, But very small. And according to the scan they appear to be re-active, They refuse to remove a lymph node. But they are planning a FNA biopsy. I had a chest x-ray but i dont have the results of this yet. I also have an appointment with a neurologist because allot of the most diliberating symptoms i have are in that area. I have had to be the advocate for my health in this situation, I have had to push hard for these out-patient appointments.
Its the weight loss that scares me the most, I have being losing weight for a few years, Thinking back when my friends starting adressing it, Thought nothing of it until i became ill. I dont look healthy anymore, I have bags under my eyes. I look like a prisoner of war. My legs and arms are so boney and viens are popping out like rivers everywhere. It feels like im just watching myself deteroiate.
Playing the waiting game is the hardest part about all this,
I sincerely hope you get to the bottom of you're problems. Please keep us updated.
Anthony. |
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