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CLL What is this ?

 
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misskitty
New User


Joined: 05 Apr 2005
Posts: 2
PostPosted: Tue Apr 05, 2005 10:23 pm    Post subject: CLL Reply with quote
Hi. My husband, 58, was recently diagnosed with CLL. The lymph nodes in his neck are large and painfull so he is having his first chemo tomorrow. We are very apprehensive and scared. There is SO much information. We would love to talk to other people who have experience with this disease. We also learned that we are going to be grandparents in Sept. I guess this is the agony and the ecstacy.
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leo
Contributor


Joined: 23 Sep 2004
Posts: 1575
PostPosted: Tue Apr 05, 2005 11:12 pm    Post subject: Re: CLL Reply with quote
Hello

Thanks for posting. Being diagnosed with cancer can be overwhelming. CLL is not the most aggressive forms of leukemia, however advances stages can be difficult to treat. It is usually a slowly progressive disease, very difficult to cure, but people generally live for several years with this condition.

best regards,
Leo
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Disclaimer: this information is for informational purposes only. It is not medical advice.
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SteveM
New User


Joined: 29 May 2006
Posts: 3
PostPosted: Tue May 30, 2006 1:13 am    Post subject: Re: CLL Reply with quote
Misskitty

Sorry for jumping in on your thread but I must take Leo to task on his comments.

Leo.

CLL is incurable, 30% of people with CLL will live a normal life compared to age and sex matched controls (remember the avearage age of diagnosis is nearing 70), 30% will need treatment which is only palliative at best, 30% will need treatment at diagnosis.

The only stages of CLL that are treated are "advanced stages" and no treatment has been shown to prolong survival.

CLL is cancer of the immune system (B-Lymphocytes) and the largest factor in morbidity is opportunistic infection. The body cannot mount an immune response and we die of pnuemonia not CLL Sad

CLL can also lead to heamatological auto-immune disease most commonly Idiopathic Thrombocytopenia Pupura ITP and Autoimmune hemolytic anemia AIHA

ITP is fatal you eventually bleed to death, this is after they have removed your spleen and platelet stimulating growth factors no longer work.

10% of CLL patients will go through Richters transformation and develop an aggressive leukemia.

Sorry to vent but I am sick of CLL being the "Good Cancer"

Steve Madden
www.cllforum.com
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