GBM _

brainman · Posted: Mon Nov 27, 2006 1:56 pm Post subject: Re: GBM _

Hi Kris,

I am so sorry to hear that your mother has died. You are in my prayers and thoughts.

I am doing fine… still trying to sort through my father’s things and to make some hard decisions about my own future. Keep in touch.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/

Kris · Posted: Tue Nov 28, 2006 4:39 pm Post subject: Re: GBM _

Dear Jim,

It made me so happy to hear you replying...great that you're doing fine!

Thanks for your warm words of sympathy. I know you know exactly how I feel, as you had to go through this with your own Mum. Our Mums' cases were probably the most similar on the forum, both inoperable, both opted for no surgery, no chemo or radio.

I admire my Mum's strength, the way she faced this disease and the way she went bravely through those 4 months since diagnosis with palliative care only.
Out of the 4, we had 2 very nice months in good quality of life. None of us regrets the choice of palliative care.

I wish you all the best for your upcoming decisions, and know that you and your Dad are in my prayers.

Keep us posted.

Kris

Kris · Posted: Sat Dec 23, 2006 7:32 am Post subject: Christmas wishes

Dear Jen, Vintage, Sammict, cgForrest, Jim, bc, Michele, Brunette, and everyone here on the Forum,

We are approaching Christmas, the most special of all the holidays for me. Christmas, time for making a break and think of others, giving gifts and love.

It is very hard for all of us who're on this Forum, some of us lost our beloved ones recently, some of us are fighting and facing the battle now... whatever your situation is, I'm thinking of you all with the deepest love in my heart and with the most special gratefulness for your help throughout the 4 months of my Mum's suffering.

We said final Good-bye to her on 9th December as termination of her earthly life, but I know, I feel, that she's around all the time and she's living in my heart, in my constant thoughts and in my everyday life.

I'm crying a lot as I miss her physical warmth terribly, but I know she sees me and our beloved ones who passed away will make us a sign: December is a dull and grey, cold month in Hungary where we accompanied Mum to her last journey on 9th; imagine, on that day we had a surprisingly sparkling sun! I was sure that she was the one who "ordered" sun for that day! And, the next day of the funeral, it started to rain heavily, but in the afternoon hours, we saw the most beautiful rainbow in the sky we've ever seen - we felt it was Mum sending us her smile through that magnificent rainbow!

I wish you all peace and love throughout the Christmas period.

Take care,

Kris

michelesmith · Experienced user Joined: 28 Oct 2005 Posts: 72

Kris and all,
Thanks for the kind words. I feel I know you all through our posts and through the one thing we share in common. Kris, being so close still, I know this Christmas will be one filled with tears. I was there last year. This year, still a lot of tears and moments of sadness, but I am able to laugh a little too, and think about dad and not always cry. I say this so that you know there is hope and the days will get brighter.

I am thinking of you all at this time and wish you the best holiday season and New Year.

I found out today of another person in our community who was just diagnosed with GBM. It brought back alot of the sadness and pain. They have a 16 year old girl and an 18 year old son and I know the struggle they are about to face. I will be letting them know about this forum and also the brainhospice.com page. Sam I think it was you--but if not, thanks to whomever it was that gave out that page. I wish I had found it sooner. It was after my dad's death but it was still a wonderful resource for understanding that what dad went through is "normal" for this disease and that we did everything we could.
_________________
Michele

Dorteeclan · New User Joined: 19 Dec 2006 Posts: 2

God bless you, Kris, and everyone else on this board. My father was recently diagnosed with GBM and your stories are very cathartic and hopeful. I look forward to talking to all of you.

Merry Christmas, Happy Hannakuh, Joyous Kwanzaa, Delightful Festivus or whatever you may celebrate this time of year. Smile

Kris · Posted: Sun Dec 24, 2006 10:58 am Post subject: Re: GBM _

Michele,

Thanks for your fast reply, I'm so happy when I receive messages from you - and from any of you Friends whom I've met through this forum.

The thing that ties us together is a very painful but very strong "liaison". Let this strengthen us, and let's strengthen those who may need us for the battle of their beloved ones!

Let us all have a hopeful Christmas and let's pray all for Dorteeclan and people in the same situation.

Dorteeclan,

We are there for you, so let us know if we can help with words, with sharing stories, or with only listening... you're not alone!

Have a peaceful Christmas Eve!

Kris

brunette · Posted: Mon Dec 25, 2006 2:56 am Post subject: Re: GBM _

To all who read this. It seems odd to wish you all a happy christmas but I shall do it none the less. For those who have lost loved ones, and for those still in the battle, this must be one of the hardest times of the year.

I for one am finding it terribly hard as my mother, who now has 3 GBMs wanted to spend christmas on her own with my stepdad. It will be a day with very mixed feelings, but I shall keep my chin up and make the most of it, for my childrens sake.

So I will be thinking of you all today and everyday. I wish you peace, love, comfort and joy. xxxx Brunette (Jenny)

Sammict · Posted: Mon Dec 25, 2006 8:32 am Post subject: Re: GBM _

Dear All,

Thanks for your kind messages. Have been thinking of you all today.

Well, as I'm in Australia it is now the end of the first Xmas without my Dad. It was weird and didn't feel like Xmas at all as we celebrated in October with my Dad when we found out he had less than a month, so I was really just going through the motions today.

I think the build up to Xmas has been worse than the actual day for me, seeing families out shopping and excited was really hard and it kept hitting me that I was never going to experience that again with my family, things have changed forever and that is hard to accept.

Anyway, I decided this morning that I need to focus on the amazing things in my life, like the new friends I have made since all of this happened with Dad rather than focus on what I don't have...it did the trick! I don't know about anyone else who has lost someone recently, but I have really started to appreciate life a lot more and I just have this urge to get out there and laugh and enjoy and be happy. I'm still really sad of course, but it's like an inner strength has just appeared...does that make sense?

Sorry if I'm rambling.

Wishing you lots of love and happiness for the holidays.
Sam xxx

michelesmith · Experienced user Joined: 28 Oct 2005 Posts: 72

Sam,
It is good to hear from you. I appreciate your post so much. I feel the same way--the time up to Christmas was much worse than the day itself. I saw people buying gifts and saw all of the things that dad really loved about Christmas--people out caroling, drinking cocoa and cider, chocolate covered cherries, people putting up their lights, etc. And thought that I would never get to do these things with dad anymore. I would see a really neat gift that he would have loved and remember that I didn't need to get that gift this year. Today is hard as we open presents without him and carve the ham, but we are seeing the happy things too. My 4 year old son saw some chocolate covered cherries at the store yesterday and said, "Mom we have to buy those and eat them for grandfather. He would want us to eat them and be happy." So we did and I cried but it was happy too.

I wish you all a wonderful holiday. Sam--thanks for helping to remind us that we all need to keep living and see the good things of life.

Michele
_________________
Michele

michelesmith · Experienced user Joined: 28 Oct 2005 Posts: 72

Brunette (Jenny),
Just want you to know that I am thinking of you especially. I am sure not getting to spend this Christmas with your mom is really hard. Hang in there.
Michele
_________________
Michele

vintage · Regular Joined: 12 Jun 2006 Posts: 35 Location: Minnesota

Merry Christmas. I know what a hard time of year this is. Especially those that this is the first Christmas without their loved ones.

Time will help heal the hurt you have right now. My Dad has been gone 10 years this New Years Eve. I still have some moments when I'm out and about during the holidays and see other families together, where I sooooo miss my Dad. Especially because Christmas was my Dad's favorite time of the year. Our youngest daughter was 11 when my Dad died. She is now 21 and for some reason, this year has been very hard for her. She is really missing Grandpa this year. She has had lots of tears.

I pray for all of you daily and wish you all love and comfort!!!

Keep in touch and let me know how things are.
Kevan

Kris · Posted: Mon Dec 25, 2006 3:45 pm Post subject: Re: GBM _

Hi everyone,

I'm so glad to have had your thoughts - this was a very nice Christmas gift for me to have you all around!
The loss of my Mother was too close to this Christmas, so this year was my most painful one for me ...but your words gave me hope and thanks to people like Michele, Kevan and Sam, I know that things will get a bit better with time, and I also decided today to see the positive side of the world from now on.

Michele, your son said exactly the same as my 8-yr daughter on Christmas eve: "Mummy, try to smile a little bit, Grandma is certainly too sad to see you crying from above!" Kids are so wise!

Our beloved ones are seeing us from above, so let's not make them saddened: let's give them a smile.

All my best thoughts to those in the battle, and may the New Year bring them all lots of strength and hope and good treatment options!

Kris

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