kid with swollen lymph nodes

Boldelly

That is something else I have been meaning to let you know that there are a lot of web sites for teens only who have different types of cancer and special ones that are for hodgkins only. Try them and talk with teens your own age. That is one thing I regret is that Randi was not able to connect with other teens at the hospital her own age. At M.D. Anderson Cancer Center there would have been more adolecents there for her to connect with, someone who would understand where she is at and coming from. Please try them at least. I have a hard time getting her to open up to things like that.

Good luck and keep on fighting, never stop!!!

megd93 · Regular Joined: 30 Jan 2007 Posts: 46

Thanks!
I actually found one good website wihich is teens living with cancer. They have a good message board.
I am not going to St. Judes because I have gotton worse. I have needed 4 platlet transfusions over the past 2 days.
Last night we had a little excitment because I couldn't breath. It turns out I have broncitis which has given me virus-induced asthma. Now I have a bunch of inhalers that really help though.
I start chemo on Monday. It is called ICE and it has a bunch of drugs in it. I will spend about 2 or 3 days in the hospital each time and then have to go back in a couple days. I have read some pretty bad stuff online about it and it doesn't sound fun.
I hope your daughters tests come out good.
I will post about the first chemo on Wednesday if I am home and can.
Thanks for the support.

Boldelly · Posted: Fri Feb 09, 2007 11:09 am Post subject: So sorry

Iam so sorry sweety that you have gotten worse. I have heard of ICE through other people on other web sites and like you say I hear it is really hard stuff. I wish there was something I could do for you or say that would make it better. All I know to say is try and stay strong. Sounds like you and my dauther are both going to have a busy week. She does not look forward to the tests again. Post if you can if not just do it when you feel a little better. Sometimes they would give my daughter a lap top when she was in the hospital. I am not sure you will feel like that but just some info for you.

It will be a hard road to travel but you can make the trip with faith and your family and good doctors. Well I will be praying for you and you will definately be in my thoughts.

Hang in the sweets!!!! Very Happy

megd93 · Regular Joined: 30 Jan 2007 Posts: 46

Hey! I'm Sebastion, Meg's boyfriend. She asked me to update you if she couldn't by Tuesday night.

She started chemo Monday morning and insisted I go to school. When I went there in the afternoon she was unconsious, but not in a coma. The doctors say this type of chemo is very hard on people with as low blood counts as she has. She is able to breath on her own with just some oxygen and steriods because her airways are still swollen, which the oncologist says is great. Meg lost her long blond hair last night. It is rare usually for this to happen so soon but with this type of chemo it happens. A bunch of the girls from school went out a bought a good selection of hats, wigs and scarves for her when she wakes up.

Meg didn't even seem that sick before the chemo. I mean sure she was exhusted but we go to one of the hardest prep schools in the country, we always have work. She got nosebleeds except its winter in NY. The bump, I only felt the one on her neck and didn't think anything of it, it was not that big. And the cough, well everyone gets colds sometimes.

Thought I should tell you what kind of kid Meg is since you have been talking to her for a while. She is tough and independant. She has to be because she travels all over the world by herself. Her parents are both well known in their fields of work but she is not at all snobby and rarely talks about. She sees her parents on weekends when she flies to see them. She is the kid who manages a really busy acting scheduale but still volunteers at the homeless shelter reading to kids on the weekend. She is the most popular girl in school except she is nice to everyone. We were in the city the other day and she went to get ice cream, when she crossed the street she saw a homeless lady crying. She walked over and talked to her and slipped her a $50 bill. When I asked why she got ice cream for everyone but herself she said she didn't feel like it even though I knew she hadn't had enough money. She helps people but doesn't brag about how good a person she is.

She said you have a daughter and I hope your daughters tests go well. Thank you for supporting Meg through all this. I think it has really helped her to know she is not the only one going through all this.

My dad bought us all Verizon wireless cards for our laptops so we can get internet in the hospital. I brought her, her laptop so she may be able to update as soon as she wakes up.

Boldelly · Posted: Tue Feb 13, 2007 10:31 pm Post subject: Re: kid with swollen lymph nodes

Hi Sebastion, I am glad to meet you. I am glad meg has someone like you. It is going to be hard for her and you as well. My daughter had a friend and after the first week in the hospital he did not call again. Well it was better it was at the beginning rather than during the hard part.

I have heard that ICE is very very hard on the body and sometimes it is better for her to be sleeping through the chemo since she wont be sick as much. I am glad to hear she is doing well as can be expected. I have been checking everyday to see if she has posted. I knew she would be sick and probably not feel much like posting but I am glad you are giving me an update. I wish I could do more for her but I am in Texas and she is there so support is I guess the only thing for now anyway. I could tell she was a strong girl with lots of personality by just talking with her through this site. That is a big part of her recovery and getting through this they say is the attitude and age plays a big role in how she is going to react to the therapy. She is young and strong. I am glad to hear that all her friends bought her hats, wigs, scarfs and those things. That is one thing I did not get to really talk to her about and see how she felt about loosing her hair. My daughter (Randi ) lost her hair or it began to fall out about 2 weeks after her first chemo. It was really hard for her to loose her long red hair (it was almost to her butt). She would cry so much and the doctors said that it is very common for girls and even women to have a hard time with loosing their hair. My daughter wears wigs and a lot at first, but now she mostly wears her hat even in public and that is something she said she would not do at first. So, there comes an acceptance with it at some point. My daughter finally shaved her head after her hair was in just patches and she did pretty good with it, but the girl who shaved it for her (our normal hair dresser cried).

My daughter received one of the drugs meg is getting etoposide and it was always the one that made her feel pretty bad. My daughter is doing okay she is getting better with each day. Some of the tests are hard for her this time but we get through them. Just waiting to finish so we can get started with radiation.

Randi also just had a cough and her nor I ever noticed the lymph nodes in her neck and subclavical area until the doctor pointed them out to us. She said that when she would laugh or run she would cough really bad but did not think much of it. When she started her chemo she told me "mom I was not even feeling sick and now they are making me sick" which just about tore my heart out. It has been a hard road to watch someone you love and care so much about suffer through this at such a young age. We lost my niece 2 years ago to cancer and she was 28 when she died and her grandfather died in 94 of lung cancer but her was in his 50's which is still young to us old folks (lol). So when Randi (my daughter) got cancer a lot of the family automatically assumed she would die, but if there is a cancer to have they tell us hodgkins is the one for young people to have because it has such a high cure rate. She nor I have ever felt like she will die, I know my baby girl (she is 16 but still and always will be my baby girl) will make it through this disease. Just as I know that Meg will make it. Now the road to that cure is not an easy one and she may get tired and just not want to do it anymore and that is really when she needs all the support and love you and everyone around her can give to her. I only know Meg from this forum but yet my heart breaks for her knowing what she is going to have to go through and it is harder than the chemo my daughter got, but from what you tell me she will be okay. I want her to know that I genually (sp?) care and all my prayers are with her.

Meg sounds like she is a very giving and unselfish person and God will bless her for her kindness to others. She will probably be a strong advocate for this disease when she gets better. My daughter has lots of due rags (bandana's) and some hats, as well as her wigs that we will go to the hospital when she is feeling better and give to the kids that are there. Her wigs we will hang on to for a little longer cuz relapse is always a possiblity, although her oncologist believes he can cure this and it will never come back, we pray.

I may be bold in asking this and if it is offensive I appologize, but are either of her parents there with her? I am and was always constantly by her side at the hospital, clinic visits, tests, etc. Her dad is not really in the picture to where he can be there for her and that has been hard for Randi but I am glad that Meg has both parents to be by her side. She will need them and you!!!

If you ever want to write to me or ask my daughter questions do not hesitate to post. Randi is not quite as outgoing as Meg but she has been following Meg with me through this and she sends her best to Meg and says to tell her if she needs to talk or ask questions just post and she will. Any support that we can give just let us know.

Randi got a laptop at the hospital too and it helped her check her e-mail and my space and keep up some with her friends. She was not much for them coming when she was in the hospital getting her treatment cuz she did not feel very much like visiting. But just be there for meg and that will mean the world to her.

Well tell her we are happy you are keeping us posted on her and tell her to be strong and we are praying for her. If there is anything we can do, please just let us know.

Laurie[/img]

Boldelly · Posted: Wed Feb 14, 2007 1:27 am Post subject: Helpful Site

Here is a site that we learned about through the oncologist we have called Teenslivingwithcancer.org. This was started by a girl named Melissa who lost her fight with hodgkins and her mother started this site to help other teens going through this cancer. It gives a lot of good information about hodgkins, chemo, radiation, tests, just all kinds of stuff. Please go to it and check it out may help to understand some of what is going on. It even talkes about changes that your body goes through. Cancer is definately a learning experience and this can help maybe ease some anxiety about what is happening to you.

Hope you feel better soon sweety. How long are they going to give you between chemo treatments? Write when you can.

Our thoughts and prayers are with you and your family.

Laurie

megd93 · Regular Joined: 30 Jan 2007 Posts: 46

Its Sebastion again.
I talked to Meg's best friend(Anna) who was at the hospital late last night she says Meg is hanging in there.
I have one question about morphine. She was in a lot of pain when chemo started and was refusing all narcotics because she thought she could get addicted. I wanted to know if Randi has a successful story about using morphine.
About the parents thing. I should probably answer this so she doesn't have to. It is not an offensive question at all though. Meg's parents both came from privileged backrounds. They inherited a ski place in Wyoming so her parents would not have to work if they didn't want to. They do work however and are extremely involved in it. Her dad lives in London and her mom works mainly in Afganistan right now. She is a doctor establishing health clinics and her dad is a reporter. Since she was 6 weeks old Meg has lived with a nanny and housekeeper. Other then adding a driver to the list of full time staff this has not changed. Her family has its own plane and she can see her parents whenever she wants. Her mom is staying here until tommarrow then the nurse they hired takes over. Her dad flew back yesterday. I think she is ok with the whole not seeing the parents thing. She loves to go see her dad and on weekends sometimes we will fly out and spend the night in London. Her family usually spends August at their Hilton Head house together but this year they couldn't come so almost everyone from school flew down for a week. Anna did divide up the day into blocks so she will always have at least 2 friends with her at all times. And we have permission to keep our phones on during the school day so people not with her can see how she is doing.
This is a personal question that has nothing to do with Meg but do you work? (You don't have to answer this if it is too personal). I was just wondering because where we live parents work in another country or travel and the kids have their own staff. I moved here a few years ago and I'm still getting used to it.
The doctor did mention radiation with Meg but said they don't like to use radiation if the patient has not finished growing. Meg is about 5'2" and the doctor said she will end up at 5'9 about.
The hair thing. I don't think she is happy about it but the doctor told me that hair can grow back thicker. She has always complained about how thin her hair is so this could cheer her up.
I hope your daughters tests aren't to bad and will see if Meg is up and wants to post. We have a snow day Laughing

so I am going to the hospital now'

Boldelly · Posted: Wed Feb 14, 2007 1:12 pm Post subject: Hi Sebation

Hey baby, I know about the pain medication thing all too well. Randi was prescribed moriphine and something called Norco which is part hydrocodine and part tylenol. Even after her biopsy which they did not put her to sleep for because (and I am sure it is the same with meg) they did not want to put a tube down her throat because of all the swelling and lymph node enlargement and they were afraid they would puncture her esophogas or trachea which would not leave them an air way so they want her to keep breathing on her own as much as possible without any help from a ventalator (machine with tube in to help breath). Now our family on her dad's side including her dad and her aunt have drug addiction problems and Randi is so afraid of becoming addicted to the meds they give her so she just absolutely refuses the morphine. Her oncologist has explained to her time and time again that as long as she uses the medication correctly there is not a chance of becoming addicted. He says that he has never had a child become addicted to any medication given to his cancer patients. The moriphine dose for Randi was 5 mg and what it does is provide longer lasting relief of pain where as the Norco Randi takes has to be taken every 4 to 6 hours, so sometimes it is a lot of medication. Last month or so she has gone through 100 tablets taking 2 per day of 5 mg Norco in approx a month or a little longer. So, try to get her oncologist to explain these things to her and if she does not want the moriphine there are other drugs they can give her. Randi's oncologist said that he could give her a couple of drugs to take that would act like moriphine (as far as making it last longer) but it would not be moriphine. We have never gotten that done yet.

Well as far as working goes I was working but when we found out she had cancer, I decided and so did my boss that it would be best for me not to work during this and Randi's dad is not in the picture too much and he is in jail so he cannot be there so it is just me and her grandmother. She wants me all the time. I just do not know how people juggle work and taking care of a kid with cancer, although I know people do. I myself and this is nothing against her parents or anyone else, but I could not imagine not being there for her through this. She is on what we have in Texas called Medicaid and they pay for all hospital bills and perscriptions. Only hard part is not a lot of money for other things. We have good support from friends and family and our community who have held bake sales and a valentine raffel for a basket full of stuff. Then her best friends dad works for a company and she knows those people and you would not believe the support financially and emotionally they have given to her. They bought her first wig for her when her hair fell out and then later she got one from one of the hospital programs called "Locks of Love". She is also getting a make a wish from that foundation. Check into it for Meg she may not want it but it will help to know there is so much support out there for her. Does she have a social worker? We did and she has been great just to talk to if nothing else. She has given us geat advice and lots of information.

I am not sure why yall's oncologist is saying radiation may make her not grow, unless her is going to be much higher than Randi's because Randi is 5'3" and they told us that they find that chemo and radiation works better in curing the cancer than just receiving one or the other. Also though Randi is 16 and Meg is only 13, so that may play a role in the radiation part of it. But again Meg is receiving a lot harder chemo drugs than Randi did. How long are they going to give chemo to her? Our oncologist told us at the beginning to look for this to go on for at least a year and then follow up's monthly for first couple of years, then every three months until 5 years and then once a month till she hits 10 years cancer free.

As far as the hair thing they told us the same thing and that it could come back straight or curly - Randi wants it to be straight. Before it fell out it was kind of wavy so she used hot iron on it or she could put some product in it to make it curly too. She will come to terms a little better as time goes on about the hair thing. Tell her not to fret too much over that and to concentrate on taking one day at a time and getting better.

I wish I could be there for her more than just on the itnernet. My brother just started a job that he is going to travel a lot and he will get frequent flyer miles and he told me that when he gets them built up he will give them to Randi and I to go somewhere so maybe then we can plan a trip to NY, we have never been out of Texas (lol).

Randi will be fine through her tests it is just because when they first did them she did not know what to expect so it was not such a big deal and now she does and she has a lot of anxiety and gets a bit clostrophobic (sp?) (not the greatest speller), we only have two more, bone scan on Friday which will be a breeze and then on Monday Gallium which may be a little harder on her because they give her meds to make her get cleaned out (intestinal wise) and that is not so much fun. She will make it. I told her last night to start getting her mind set for the next couple of tests so she is not so anxious.

Thanks for asking about her and Randi read the post last night and her heart goes out to Meg and let her know please that we are here and care about her and what is going on with her. Anything we can do just let us know.

Our prayers are with you and meg and her family. Tell her friends thanks from me for being such good friends and supporting her cuz you could not realize how important that is to Meg.

Write soon and let me know how she is doing. Glad yall got a snow day, we do not get snow here hardly ever it is cold to us now and it is like 45 degrees lol. Have fun and keep Megs spirits up if you can.

Laurie

megd93 · Regular Joined: 30 Jan 2007 Posts: 46

Hey! I woke up. Everything hurts like even my fingers hurt. If I had hair it would probably hurt to. I don't have hair it was half way down by back but it fell out.

Now that I complained I have good news. [b]Iget to go home tomarrow.[/b] Rolling Eyes

I am happy but a little nervous. I got the nurse to take away the oxygen but I still need to use my inhalers. Sometimes my chest gets tight and I have a little trouble breathing. That means I need my rescue inhaler it works real quick but doesn't last long. It is scary before the inhaler starts to work.

I will meet with radiation oncologist today, again. It is something about being too thin and small. I don't really care if I don't grow anymore I just want to get better.

If my counts are good on Friday. I can go skiing. Well not skiing but to my friends ski place. Its at Okemo. That is in Vermont. I was going to go to Hong Kong with my mom since it is winter break next week and she has to go there for work. I don't like Hong Kong it is in China so it is a long flight just to get to a crowded place that smells weird. Now I am stuck in the hospital and she is leaving tonight.

As for my parents not being with me. I would like to have them here to support me because it can get hard always trying to act brave in front of my friends when I just want to cry. They love their jobs though. I asked my mom to stay for another couple of days but she said she couldn't. You may not understand this and it is ok if you don't but we live in Westchester where if you aren't perfect you have plastic surgery to fix it. There is no easy way to fix cancer. I think my parents love me but they have always found it easier to have someone else take care of me. Up until now that worked.

My mom came home because I had a couple interviews at different high schools. I only went to one of them. I still haven't sent in any applications. I have been to tired to write essays. If by some miracle I can start high school on time I will have to go to a public one. I have never gone to public school in my life. I don't think people would like me.

One more interesting note. I have peripheral neuropathy(sp) when I got up to walk this morning my left foot was numb. I almost screamed. Now I have to use stupid crutches because I might fall and it is really bad to fall when you have low platlets like me. I saw this on last nights House episode. They thought the girl had it. Thats my favorite tv show other then Greys anatomy. Whats your and Randis favorite show.

I gave into the morphine. I have a pump where I control the amount.

I have a lot of wigs. One looks exactly like my current hair style. I have lost hair all over. I don't even have eyelashes. For the moment I am wearing a knit snow hat. It is warm.

We have medicaid in NY. I have Oxford. Its an HMO. They wouldn't pay for my treatment at memorial sloane because they want me to stay in network.
My parents have to pay cash upfront for my treatment. I think it is over $100,000 now with all the tests. I feel kind of guilty since this is a lot of money that we could have given to charity.

As for not leaving Texas. Sometimes I feel like I live on a plane or in three countries. To me you seem lucky not to have to travel.

I will have chemo every other week for up to two years. Even once I am in remission I will still need chemo but it wont be as bad.

I went on the teenslivingwithcancer.com website. I found it through google. They have a message board to talk to other teens.

Good luck with the tests. I will post when I get home. Very Happy

PS- sorry that parts of this might sound bitter or whiny

Boldelly · Posted: Wed Feb 14, 2007 7:04 pm Post subject: Re: kid with swollen lymph nodes

Well sweety I am glad you feel a good enough to write to me. You did not sound bitter or whinney at all. I did not mean to sound condesending or judgmental towards your parents at all. That was just my own view on the subject and if your parents can't do that and many cannot do it. My brother's ex-girlfriend Tanya went through leukemia (AML) when she was 10 and went into remission and then relapsed again at 16. Her mother worked while she was going through all this because she had no other choice. I have been blessed to be able to stay at home with her, not easy financially but it will not be forever. Tanya went through large amounts of total body radiation and bone marrow transplant. She is now 30 years old and about 20 years no cancer. Her cancer was worse than Randi's and she had to go through a lot more than Randi has. She also had like 2-3 years of chemo and radiation. She came down last weekend and I think it really helped Randi to talk to her. But anyway about your parents, if you are okay with it then that is all that matters. I did not mean to be offesive I was more curious because just have not heard you say much about them.

Oh and the hair I was going to ask you about it before but it kind of happened before we got that far. You will get used to it, I know this does not help cuz Randi would always say so what, but it is temporary. It will come back. I was happy to hear that your friends did such a nice thing for you about staying with you and buying you the hats, wigs, and scarfs.
Sabastion sound like he is a really good catch. Hang on to him LOL Smile

. He sounds like he really cares about you.

You will find before it is all over with you will have lots of home meds or at least Randi did, one for nausea, one for sore in her throat and mouth, pain, antibiotics, shots, etc... I am sure it is scary before the inhaler starts to work, but try to keep calm and maybe it will help.

Like I was saying to Sabastion, Randi is 16 and she has pretty much stoped growing I think and she is 5'3". You still have a few more years of growing so that is new to me. See we can learn from each other.

I hope your counts are up so you can go with your friends skiing. It helps for you to get out as much as possible and have fun. And hey girly from what I hear you are a sweet, giving, compasionate, kind and outgoing person so don't say that people would not like you if you had to go to another school. You will be just fine. Hopefully you will be able to apply to more high schools on your breaks in chemo.

Randi has numbness in her fingers and hand are very, very weak. She cannot open much or even write or type much. She hates it so much. It occurs in her knees sometimes and they just give out for a second. But they say it will get better or it can be perminent, which I don't think it will be.

We like Gilmore Girls and I like House, but have not really watched Greys anatomy, although my mom and one of my good friends love the show. I will have to watch and see what it is like.

I am glad you went with the morphine because I think it will provide you more comfort for a longer period of time. I wish Randi would have taken it, but she was so afraid of addiction because of her dad and aunt.

I am sure your parent's do not hesitiate to put up the money for your treatment. You should feel NO guilt about that, they love you and want you better and if that means putting up large amount of money and they have it then that is what they are going to do. They love you!!!!!!!

Yes and our oncologist and social worker says it is a really good site. I am glad you went to it.

Well this is a small celebration for you to get to go home, it will always be good to go home!! I am happy for you and please keep me informed and I will let ya know what Randi's scans show when we know. Tell Sabastion I say hello.

Hang in there and be strong.

Laurie

megd93 · Regular Joined: 30 Jan 2007 Posts: 46

Hi. I will keep this short since I should get some school work done before I go to sleep.
1- You did not sound at all condesending. I have teachers who when scedualing conferences with parents have even come out and said my parents were crazy to live in different countries then me. There are some advantages to this I thought I could point out:
-I can have parties whenever and there is no one to tell us to be quiet. And a whole staff of people to clean up after.
- Loud music, I don't really like it but no one cares about it.
- Independence, I have been flying on my own since I was 4 years old (on our plane). Me and my friends can go anywhere we want by ourselves. We will fly to Jackson Hole, our ski place for the weekend with no parents to tell us what to do.

2- Tv shows I like and would recommand- House, Grey's Anatomy, The OC(its being cannceled though), Bones, and Standoff. I also like NCIS. Until I got cancer I never watched much TV, I would hang out with my friends till late at night. Go to bed then wake up and go to school. Now I have a ton of free time.

3- The foot thing is driving me out of my mind. This isn't even that common a side effect of ICE.

4- Spoke with radiation oncologist I learned that they don't like radiation in kids under age 9. Suppositly I have the body of a nine year old. The bones anyway. I will have more scans after another week.

5- Total cost so far: $166,453. According to a bill.
Decided that my parents owe me this after ingnoring me for all these years.

That was long. Hope you stay well.

Boldelly · Posted: Wed Feb 14, 2007 10:34 pm Post subject: Re: kid with swollen lymph nodes

Okay kido I get your drift on the parent thing and I am sure any kid would agree with you on the perks. I am sure your treatment is going to be some what different than Randi's but the basics are still the same. I will not keep you long cuz I know you have school work to do to keep up. Wish Randi was as motivated as you when it comes to school. She hates it, but at the same time misses it. Well sweets be good and take it easy and you also be well. Talk to ya soon.

Laurie

megd93 · Regular Joined: 30 Jan 2007 Posts: 46

I'M SO HAPPY!!!!!!!!!!!!!!!!!!!
I am at home. Yay.
I even went to school for 2 hours in the afternoon. I took an English quiz and got a 57%. That is pretty good I think for not reading the book but decided to do the extra credit poem. I got a 100% on the English midterm I took with the tuter in the hospital and a 100% on the math test I took in the hospital. Also, took a math test but I don't know how I did. I don't think so good. I wrote 2 aplication essays this morning while waiting for the doctor to come let me go home.
I will have radiation, the standard dose after chemo or even combined depending on my response to chemo. Do you know any side effects of radiation I didn't have time to discuss them with oncologist because I wanted to GO HOME.
I love being at home no one lets you sleep or do anything without interupting you at the hospital. I'm off morphine I have advil to take if I need plus a ton of other meds as needed. Nausea stuff every 4 hours even if I feel fine.
Sedabstion and friends have been amazing through all this.
I hope you are all well and I will post about my blood counts tomarrow. Time to go see Sebastions swim team pratice at school

Boldelly · Posted: Thu Feb 15, 2007 4:04 pm Post subject: Hooray

I am glad you are at home. I hear that ALL the time from Randi I just want to go HOME she says. It is good that you can continue to go to school and sounds like you are doing well, keep up the good work. Randi is having some trouble keeping up because the chemo side effect has made her hands so weak she cannot open thing, write or even it is hard for her to type. Dont know what we are going to do about it. I have a call in to the oncologist to ask questions about this.

As far as the side effects of raditation, on our first consult a week or so ago they were supposed to discuss those with us but all they told us is that because she will be having it close to her espophogus (sp?) she will have a really sore throat, they explained it like when you get a sunburn on your skin well it will be that way on the inside. They said that she may have some nausea (mostly if it is give to the stomach but not necessarily) and she will be tired probably not at first but towards the end.

I am glad he is being so good to you cuz you need that support!!! Tell him to keep up the good work and tell him good luck on his swim practice.

Let is know about your counts because I am learning about the platelett counts from you cuz we have not had that problem so far but they say that will be more of a problem when she starts radiation instead of her white counts.

I wish I could send you some pictures of Randi and we could get some of you so we could put name with face but if you want let me know and we will figure it out.

Sounds like you are doing well, keep it up and you will be fine. Take CARE OF YOURSELF and write soon.

Oh yea and you were saying you have not eye lashes well Randi's bottom ones have almost all fell out but at least she still has her eye brows. But it all grows back, no sweat, right?
Laurie

megd93 · Regular Joined: 30 Jan 2007 Posts: 46

Hey. Just realized something while changing and looking at computer. You said your daughter couldn't type so she couldn't do school work. When I broke my arm last year and couldn't type or write I got this software where you just say what you want to type into a microphone and it types it for you. It worked really well and was even quicker then typing. You could even go back and edit stuff. I don't know if this would help you but it helped me. It was kind of expensive($200+) but I don't know what your financial situtation is. I will email you a picture of me as soon as I get a chance. I have to change into a swim suit now because everyone is at my pool. I can't swim but we do have a hot tub I can go in as long as I don't get my stitches from the port wet. Have to decide if I should wear a bikini with my scar showing because I can't find a one piece swim suit. I will post a link to software or name of it soon. Bye

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