Does anyone know of any other lymphoma forum?

lizinva · New User Joined: 16 May 2007 Posts: 4

It seems that people lurk but don't have answers. Would anyone know of another site that I could post my question? Over 40 people have looked but no one has answered so I am very frustrated.

brainman

Hi Lizinva,
I do not know if they have a more helpful forum, but will searching for this forum I came across another forum with almost the identical name: Thecancerforums.com. This is not a referal since I did not queck it out... other than to observe that it was not this forum. You might have the same experience there that you have had here. Unfortunately, these forum are run by volunteers and depend on other volunteers to offer eachother advice and support. However, most people join searching for information and support. Often, any forum you find will fail in providing you with those two key things. For example, I have no personal experience and have done very little learning about lymphomas. Although the forum is administered by two doctors, they cannot possibly answer every post. I am truly sorry that you did not get the answers to your questions here. I will be think about and praying for you.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/

lizinva · New User Joined: 16 May 2007 Posts: 4

Jim, thank you for your response. I will certainly check out the other site. I read your story and your blog. The latest entry you made in your blog touched me because my youngest son attends Va. Tech. He is ok and home for the summer. My oldest son went to school in Nashville. What a small world we live in.

How are you doing?

anjou · Experienced user Joined: 01 Jul 2005 Posts: 65

Forums at www.lymphoma.com are very active

there also are several yahoo groups

nhl-info
nhl-follic
nhl

with the yahoo groups- best to select the web view only option as you will be inundated with emails

www.lymphomation.org has much helpful information
_________________
Follicular lymphoma grade 3, stage 2 dx 9/99 CHOP x 3 3600 rads rituxan x4

CrescentMoon · Regular Joined: 07 Apr 2007 Posts: 22

www.healthboards.com Very Happy

_________________
x_x 0_x x_0 ^_^ -_+

brainman

Hi, lizinva,

I am doing better. Still have some right sided weakness... especially in my hand. But I can still type Very Happy

. How are you doing? Did you find other sites to be more helpful or more informative? Let us know how you are doing.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/

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