New here, have questions..

dragonmom4 · Posted: Mon Oct 01, 2007 4:50 pm Post subject: New here, have questions..

Hi my name is Karen , I go by Kat for short. I'm a 26 yr old mother of 4. I was diagnosed with cervical cancer for the second time in December of 2006, on my birthday in January of this yr I had a radical hysterectomy.The first time i was diagnosed with cervical dysplacia the same time i found out i was pregnant with my second daughter 7 yrs ago.After I gave birth to her and had healed from a 4 degree episiotomy my gyno froze my cervix after removing the affected cells.2 yrs later i had a son. i could not have him vaginally so i gave birth via c-section.a couple months later i went in for a recheck pap. because of the dysplacia prior i had to have 2 paps a yr.but when i went in for my recheck my gyno couldn't access my cervix in order to find any abnormalities. from then on for 4 yrs i went through this by the incompitent doctors where i lived. my husband moved us back to his home town for me to have better health care and also other reasons i wish not to disclose at this time.anyway my husband diligently searched for a gyno who could help.last december the gyno we found in a town close by took blood tests , urinalysis tests, etc. when she recieved the results she called me in to her office and informed me that she was going to perform an explorative laporascopic procedure not from my vagina up but from my belly button down. during the procedure her and another doctor assisting her finally got sight of what was happening in my cervix. they found that my cervix was riddled with malignant cells and had spread to my uteris and even found a questionable spot on my bladder.well while i was under sedation the doctors performed a radical hysterectomy and even a biopsy on my bladder where the " spot" was found.in recovery after i awoke my gyno and husband were waiting and informed me of what had just been found and done.my gyno said that if she had not found it when she did this christmas may have been my last.if not sooner. i had been really sick for 3 yrs and this past yr i had gotten to the point where i couldn't get out of bed muchless care for my children.as of right now i'm in remission and have been since the surgery in january.my question is since i have been through this twice and survived the worst i hope, is it possible it could come back even though my female organs are gone? am i completely out of the woods or can the nightmare resurface?i'm so scared and stressed and every little thing causes me to lash out at my kids..why twice? why did it come back? why me? should i be happy or am i just walking on egg shells waiting to get sick again?please help, Kat
_________________
My Story : http://cancerforums.net/viewtopic.php?t=7371
~~ survivor fighter; been shot, stabbed, 3rd degree burns, head rammed into window, molestation, rape, and Cervical Cancer twice, been in remission over 9 mnths through level 3 malignance...~~~
AND I'M STILL KICKING!!!!

Muttsmom · Posted: Mon Oct 01, 2007 4:58 pm Post subject: Re: New here, have questions..

Hi Kat,

I'm sure Jim will move this to the Endo/Uterine Board where you can get more help. I was dx with Breast Cancer, so my knowledge on the kind of cancer you were dx with is just what I've learned from friends that were dx.

Even women who have complete hysterectomies, including removing their ovaries, can still get Ovarian cancer....... go figure. I had a double mastectomy, but I can still get cancer anywhere, including in the tissue that couldn't be gotten with the mastectomy. I was Stage III and high risk because of my age and all the nodes I had positive. It's been over 5 1/2 years and I'm doing great. Most cancers are a crap shot. Some dx early stage can have it come back and others late stage never have it come back. Keep going to your onco for check ups and take care of yourself. That's what you have control of, the rest we don't. I can honestly say I've never asked, why me, and I had no family hx and was going through a nasty divorce at the same time. I think in a lot of ways, it makes us stronger.

Again, keep all your follow up appts. and I'm praying you stay in remission and live to be a little old lady........ I plan on it Smile

_________________
Nancy
2/14/02 ILC 43 - 5.5 cm 9+/16 nodes
Stage IIIA er/pr+ Her2-
2/02 MRM
FECx6 radsx33
Tamoxifen - Arimidex (chemo induced menopause)
4/03 SM w/bilat. recon.
9/03 expanders removed
5/04 repair reconst. disaster
10/04 Actonel for bone/joint pain from Arimidex
NED - 5 years
3/07 Diabetes
In memory of Kim 12/1/04

dragonmom4 · Posted: Mon Oct 01, 2007 5:20 pm Post subject: Re: New here, have questions..

thanks muttsmom, i really appreciate your quick response.I had written a poem about it and stated in that I too have other plans than to give up and to live a longer life with my family.but i've been through so much more than just my cancer and that's why i asked " why me?". but that's another issue on a different forum, on a different website. because of everything i've had to suffer, fight, and survive through in my short life I began wondering maybe i shouldn't have been born in the first place, that i'm cursed to have everything bad that could possibly happen, happen to me! i know there is a reason for it all and most of the time i find peace in helping others who have or are still going through everything i've survived. but i have not found any peace with the issue of cancer. my family ( parents and sibling ) and my inlaws still diregard the cancer and everything i've gone through affiliated with it as a dramatic theatrical event that i made up for attention or whatever the hell else they need to think or believe for whatever their reasons are; so i've had to get through this alone. my husband closed himself off to the whole world, me included and works 2 jobs to pay for all my medical expenses and he's all i got who even gives a crap but he's emotionally unavailabe to me and when and if i need to talk he doesn't want to talk about it which i understand that. but i need someone too.i'm always helping others but no one cares enough about me to help me! i'm so sorry if i'm whining too much or on my pity pot but i'm so lost and so scared and so alone! and i'm so sorry what you had to go through with your own dx. did you have support and loved ones by your side throughout your ordeal? i hope and pray you did. and again thank you so much for responding, it means so much to me! Kat
_________________
My Story : http://cancerforums.net/viewtopic.php?t=7371
~~ survivor fighter; been shot, stabbed, 3rd degree burns, head rammed into window, molestation, rape, and Cervical Cancer twice, been in remission over 9 mnths through level 3 malignance...~~~
AND I'M STILL KICKING!!!!

Muttsmom · Posted: Mon Oct 01, 2007 6:47 pm Post subject: Re: New here, have questions..

Hi Kat,
Finding out you have cancer is an emotional roller coaster ride from hell to say the least. I think all thoughts and feelings are completely normal.

Unfortunately for me, I moved away from my family when I got married, so my dx was when I didn't live near family and needless to say, my now ex's family turned out to be a lot like him, heartless. Even though we buried his mom in 2000 from breast cancer, I never even got a phone call from any of them. I guess it was my fault that he beat the **** out of me because I caught him cheating....... go figure. As you said, that's another story and a nother board...... lol

I really think all we go through makes us stronger. I often wondered why I was going through all the surgeries, chemo and radiation, when it seemed like my whole world had fallen on top of me, but all I had to do is look at my furbabies ( I had 4 dogs and 1 cat and have since rescued another cat Smile

and their eyes told me that they needed me as much as I needed them. There's no doubt we are much stronger then we give ourselves credit for. We've come a long ways and we're healthy....... it doesn't get any better then that Smile

Feel free to e-mail me anytime.
_________________
Nancy
2/14/02 ILC 43 - 5.5 cm 9+/16 nodes
Stage IIIA er/pr+ Her2-
2/02 MRM
FECx6 radsx33
Tamoxifen - Arimidex (chemo induced menopause)
4/03 SM w/bilat. recon.
9/03 expanders removed
5/04 repair reconst. disaster
10/04 Actonel for bone/joint pain from Arimidex
NED - 5 years
3/07 Diabetes
In memory of Kim 12/1/04

dragonmom4 · Posted: Mon Oct 01, 2007 8:48 pm Post subject: Re: New here, have questions..

unfortunately I completely understand what you said. My ex too was a heartless abusive good for nothing cheating ass. But then I met Mark, we've been married close to 6 yrs now and he's my savior through everything.I'm so sorry along with the cancer you had to deal with the other as well. Thank you so much for talking with me. Kat
_________________
My Story : http://cancerforums.net/viewtopic.php?t=7371
~~ survivor fighter; been shot, stabbed, 3rd degree burns, head rammed into window, molestation, rape, and Cervical Cancer twice, been in remission over 9 mnths through level 3 malignance...~~~
AND I'M STILL KICKING!!!!

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