Linda Gale

LINDA GALE · Regular Joined: 11 Oct 2007 Posts: 13

Hi everyone!

I'm new to this so please bear with me. Is there anyone out there whose family member has metastasized pancreatic cancer in stage iv. My husband of age 49 has been diagnosed and i would like to chat with someone who is also going through this. We have a 13 year old son and this is very hard on him. Please reply if there is someone out there who has some kind of information.

Thanks Sad

brainman · Posted: Thu Oct 11, 2007 4:24 pm Post subject: Re: Linda Gale

Linda, I am very sorry to hear about your husband's cancer. Pancreatic cancer is not an easy cancer to have but we do have some long term PC survivors as members of this community. So feel free to ask your questions or express your feelings or both.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/

In · Posted: Thu Oct 11, 2007 4:47 pm Post subject: Re: Linda Gale

Linda- I'm sorry for your sad news on your Husband. Also for you Son- it's so hard on the Loved ones then on us- i think.

I just wanted you to know, i'm thinking of you all...And someone will respond soon, who has more of an idea. Wink

_________________
Thinking of you Inica

*Administrator*

~Nose Cancer~
~Car Accident- Broken Back, Ribs, Spleen
Sternum~
~Continous Cervical Cancer~

My Story-
http://cancerforums.net/viewtopic.php?t=6731

Smile

9 Lives and still kicking Smile

freeio · Posted: Thu Oct 11, 2007 5:23 pm Post subject: I'm there alrady

Hi Linda,

I have been in stage IV pancreatic cancer for a about two years now. It has spread to my liver, lungs, lymph nodes and ducts, peritoneum, and bones. For all of that I am still alive three years after initial diagnosis.

What questions can I answer for you?

My story is in my blog entry listed below.

Marty
_________________
-------------------------------------------------
whipple procedure, Oct. 21, 2004
28 days of radiation
56 days of Chemo using Xeloda
diagnosed as progressive recurrent pancreatic adenocarcinoma (Stage IV) Jun. 20, 2006
was treated with gemcitabine, oxaliplatin, and tarceva, which all failed.
Cancer blog: http://diehlmartin.com/cancer.html

LINDA GALE · Regular Joined: 11 Oct 2007 Posts: 13

Marty,
You are so in my prayers. My husband is also a Christian and is ready to go when God sees fit to call him home. He says he's a winner either way whether he goes or stays. I try hard to make his life as comfortable as possible. They only gave him 3 months without chemo and 6 to 8 with chemo. He's had 9 treatments with 19 more to go. His marker count is like a yo-yo up and down. As of now it is 1675. Please tell me the most important thing I can do for him besides be there. I try so hard to keep his spirit up but he said he's ready to go but it's so hard to leave his family. I would appreciate all the advice you can give me because I know you're where he is. You will be in my prayers daily so just hold on and let Jesus pilot your ship.

Linda

freeio · Posted: Fri Oct 12, 2007 5:52 pm Post subject: Ready to go, but still working

Hi Linda,

Pancreatic cancer is unrelenting, and the outcome varies primarily by the timing and the route to the end. After three years of fighting this, I do not know how much longer this will go on, but I am confident that the end is in sight now. The body is failing progressively, and there is nothing to do about it.

I can do nothing without help now, and am entirely reliant upon the help of my beloved Monica, and a whole wonderful set of friends who get me to where I need to go, and to do what I need to do.

The Lord has been very good to me, and is carrying me at this point. When He calls me Home, I am ready to go. We are not told that much about heaven, but I am confident that since Jesus runs the place, then I know it will be just fine.

Marty
_________________
-------------------------------------------------
whipple procedure, Oct. 21, 2004
28 days of radiation
56 days of Chemo using Xeloda
diagnosed as progressive recurrent pancreatic adenocarcinoma (Stage IV) Jun. 20, 2006
was treated with gemcitabine, oxaliplatin, and tarceva, which all failed.
Cancer blog: http://diehlmartin.com/cancer.html

SPENCER1958 · Regular Joined: 11 Oct 2007 Posts: 12

Marty thank you so much for you blog as hard as it was to read it I will be thinking about you and your family. I am so mad that my Moms doctor did not call me back as I only asked 5 min. of his time so he could give me a name of an Oncologist & other questions. Tell you some Doctors do not have any bedside manners at all!!!! God Bless You - How is your wife holding up through all of this, it must be so hard? I posted recently under subject "I know but Mom doesn't" Mom is 65 and also lives with my brother (#1) who is mentally challenged so I really have a lot on my plate and I am not looking forward to my mom/best friend going - It will be very hard. I lost my father 10 years ago to prostate cancer which he died at home (Hospice was great). My other brother (#2) who is in total denial is telling me what the doctors have to do next and so on.... I just say yeah because maybe it's his way of dealing with it not sure. I just don't want to see my mom in pain! I wish they find a cure for this.....

freeio · Posted: Sat Oct 13, 2007 8:20 am Post subject: Doctors vary a whole lot

My doctors have been mostly pretty good, but there are a couple who were very odd. Perhaps you remember the scene in the throne room from the Wizard of Oz. "Ignore that man behind the curtain!" There was recently an "attending physician" for a hospital stay, who never even came by once. She must exist, because I have been her bill. The resident was nice. The intern was nice. The medical student who came by was efficient. The nurses were great. But the doc, on the other hand, could not be bothered to check once in person on a acutely ill patient in her direct care. Bear in mind that this was in ICU. So, yes, some docs really ought to be doing something else. You will get no argument from me on this one.

Family issues are no easier. Each person takes the matter so differently. In my case I have my beloved wife, Monica, plus one sister who lives 2000 miles away, and one daughter who lives 800 miles away. All the decisions are made locally - everyone far away really has no say, because they are not here. We phone frequently, and that is it. There is no real disagreement to deal with. We get along well, but only Monica gets to make the decisions. We went to the lawyer and got the papers drawn up and signed to make sure it stays that way as well. After 36-1/2 years of marriage, Monica and I are totally confident in each other.

Yes, losing not only your mom but your best friend in this is hard. I lost my mom in 1981 to complications of lung cancer, and this many years later there is still a major hole in my life from her loss. I have no doubt of seeing her again, but we surely do miss her amazing smile and ability to just light up the room by her mere presence.

More later, if I feel up to it.

Marty
_________________
-------------------------------------------------
whipple procedure, Oct. 21, 2004
28 days of radiation
56 days of Chemo using Xeloda
diagnosed as progressive recurrent pancreatic adenocarcinoma (Stage IV) Jun. 20, 2006
was treated with gemcitabine, oxaliplatin, and tarceva, which all failed.
Cancer blog: http://diehlmartin.com/cancer.html

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