November 7, 2007... it has now been 15 years... my story

Vee Smith · Moderator Joined: 12 Feb 2006 Posts: 700 Location: UK

So glad the MRI was clear. My last scan [which I fully expected to show massive change] was unchanged from the previous one and the relief was inexpressible. My congratulations - both on the scan and on reaching your 1000.

Pray4Mom · Regular Joined: 29 Aug 2007 Posts: 48

Jim, thank you for sharing what you are going through. I am so sorry to hear of your journey and loss. What a painful year. Life can be so raw at times.. so unpredictable.... I am reminded to "keep seeking the things above".... I pray you get the support you need and that doors of provision open up for you.

You always have an encouraging word for others. I hope you feel encouraged through this forum. Through your affliction, you have brought comfort to others. Thank you for giving.

This forum is a mighty blessing for so many of us... and I am a newbie here! Thank you again and may you experience full healing and may your heart be enlarged even in the losses.
_________________
Katherine
California

brainman

It is Saturday afternoon and I am doing what my father and I did for years and I continue to do since his death... listening to the Opera on NPR (National Public Radio). Today it is Aida by Verdi performed by the Nashville Opera. Very good for such an unheard of Opera house.

But it does fill me with memories of my father. He loved Verdi and would love to hear this Opera.

Anyhow, thanks to all who have replied. I continue about the same. I hope it remains like this. I still do not know what I will do if or when it recurs. I am still inclined not to do anything next time around. I till have memories of how terrible chemo was on my body. And that area of my brain has had all the radiation it can safely take. I do not have any family around here. My options are few and not very good. My first ex-wife is my health care surrogate. I totally trust her. However, I cannot expect her to move to take care of me. I would have to move back in with her and that is really not very appealing since she lives in a small house. Of course, moving back would help me maintain better contact with my best friends and my children and grandchildren.

I do not know if I have mentioned that I have a grandson Very Happy

. James Paul Mason was born on 1 July 2007. My second daughter is pregnant as well.

Forgive me for using this thread as my personal blog Wink

. I do encourage every member to write their own life stories on this forum. It will help each of us to get to know you better.

Well, the Opera is over.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/

brainman · Last edited by brainman on Tue Oct 16, 2007 6:49 pm; edited 1 time in total

Not any big news this time... just a celebration of another year. I joined this forum just a few days over 2 years ago... October 13, 2005. I have had many ups and downs since then but am still here.

I try to do as much good as I can possibly do for a man my age on disability. I still have some significant issues with memory but the doctors cannot figure out why. It is not long term memory loss or short term memory loss. It is inbetween memory loss Laughing

. Anyhow, that was the topic of another of my threads.

Well, enough fun for one day... back to "work."

1300 posts and counting Laughing

_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/

ksplat · Posted: Tue Oct 16, 2007 6:45 pm Post subject: Congratulations!!

Dear Jim

I am celebrating this anniversary with you....it is well worth celebrating!

So happy to have made a friend of you through this forum!

All the very best & God's blessings.

Angie.
_________________
Brother has GBMIV
Diagnosed Feb 07
46 Yrs young!
http://cancerforums.net/viewtopic.php?p=19227

"Without Faith We Have Nothing"

jenugl

Hi Jim, what a great date to celebrate (my partners birthday as well Very Happy

) congratulations on 2 years of helping people. As I have said before, you are one very special person and I for one, am glad you have stayed on this forum and that I have the privilege of calling you a friend. Love to all. Jen.

Noid · Experienced user Joined: 16 Oct 2007 Posts: 57

Finallly get to reply to your story Jim.
It gives me hope. I hope your future brings you continued good news. When I heard that i more than likely have a glioma I was crushed. Believe it or not, I was hoping I had MS or Lymes disease, because I was afraid of the glioma diagnosis. Hope I can get mine fixed too. From what I've read, gliomas have a high chance of coming back after surgery. That scared me alot. The people on this forum, especially yourself, have shown me that there is life with a brain tumor. I was so naive about the whole situation, that I was automatically afraid that it meant I would die. My doctors and this forum have shown me otherwise. Such brave people. Thank you so much for sharing your story. I have one as well, but it's so long, that I don't even know where to start. Thanks again, and good luck with the future.

Noid

Knit4Brains · Regular Joined: 16 Oct 2007 Posts: 14

Hi Jim. I finally realized I could click "next page" down there and see that indeed your MRI was good news this time. Huzzah! (insert Kodak moment here)

I gotta tell you. Your tumor and mine are twins or something. Every time you mention something on a personal note the hair on the back of my neck stands up. Your help to me has been (to quote the commercial) Priceless. You [i]better[/i] stick around here so I can pester you with more questions.

You rock!

xzena129 · New User Joined: 20 Oct 2007 Posts: 1

first i would like to say that is is a blessing that you have made it this far and i want to tell you that you are going to make it through this, GOD is not going to leave you now, he has been with you through this whole journey and he never forsakes us . i have been diagnosed with gastric cancer, which i have been told, no surgery, no radiation, chemo only in hopes that it will shrink. it hasnt spread and i am not taking any pain medicine now after five weeks, i was highly medicated with pain medicine which i keep my medicine near need i have to take it. But i have really grown closer to God through this all and pray and believe, i know that when we ask we will receive, and i am claiming a miracle be placed on your body from head to toe and that all glory will be to you. and i believe that. Keep your head up and know that we all regardless of what type of cancer have to pray and hope for the best for one another, we have our good days and we have our bad days. but i quickly get over the bad days, i try to stay as positive about his as i can because the last thing we can do is worry. feel free to email me anytime if you need support, . GOD BLESS YOU.............

brainman

Thank you all for your love and support. This community means a lot to me. I do appreciate all that each of you do for my and for other members.

xzena, I usually to not email people directly other than for administrative purposes. I prefer to keep our posts "out in the open" so to speak where others can also get the benefit from our dialogue. I also discourage others from engaging in off site dialogues with other members because so much bad information is out there. The beauty of the forum setting is that if wrong information is given, other members can step in and post corrections.

xzena, you quoted my whole original story. I deleted your quote of my words since it just is an unnecessary duplication. I usually only quote someone if I want to make clear the question and my reply to that particular question. Might I suggest that you start a dopic of your one to tell us more about yourself? I am not the only one that does this. Other members do the same and, like me, put a link into their signature block Wink

That way, we can respond more directly to your story Smile

Thank you for your kind words and prayers.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/

In

Congrats Jim- Good to see you are still here for another 50yrs, to help and give/recieve suport. Razz

_________________
Thinking of you Inica

*Administrator*

~Nose Cancer~
~Car Accident- Broken Back, Ribs, Spleen
Sternum~
~Continous Cervical Cancer~

My Story-
http://cancerforums.net/viewtopic.php?t=6731

Smile

9 Lives and still kicking Smile

kellygreece · Regular Joined: 24 Aug 2007 Posts: 14

Dear Jim ,

Facing so much and being there for others, speaks a great deal about the kind of man you are. I admire your courage, your strenght and your ability to help and support so many people.
May each day of your life bring you happiness and fullfilment. Your family, friends and forum friends are very lucky to have you.

God bless !!

Trigggl · Regular Joined: 20 Dec 2004 Posts: 25 Location: LR, Ar

I just did a search for my username "trigggl" and was brought back here. I've changed email addresses many times, and I guess I just got busy with other things.

I'm glad to see you're alive and still kickin'. I'm doing about as well as anyone has a right to be after my own ordeal 3 years ago. I still have my job as an engineer and just got a nice raise. I've paid off all of my credit card debt and am up to date on all of my medical expenses. I also sold the old house and after a 6 month stay at an apartment, bought a better one.

I hope you continue to do well and have no more of those pesky recurrences.

See you around.
_________________
Greg --> 3 years and counting
http://www.geocities.com/trigggl/
http://cancerforums.net/viewtopic.php?t=365&start=0&postdays=0&postorder=asc&highlight=

brainman

As on just a few hours from now, I will officially be a 15 year survivor Smile

. Am I proud? You bet I am Very Happy

. There are days when I just wish I would die... but not today. Today I party Laughing

If I can do it, so can you. I do not do anything right. I eat high cholesterol food, drink too much caffeine, exercise only a little, do not get enough good sleep... In other words, I am better at giving advice than I am at following my own advice to others Razz

I do take my medicine's on time and take some vitamin supplements, but not enough to counter act the "bad" things I do to my body.

I often have expresses the wish that someone younger who has just been diagnosed with cancer could have the rest of my days. I guess it is a form of survivors guilt. Why should I live and others die young? I guess there is still something I need to learn in this life.

Thank you all for your love and support during this last two years.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/

In

Congratulations Jim. Laughing

Yaaaaay! Party at Jim's.

Quote- "I guess there is still something I need to learn in this life. "
Just goes to show doesn't matter how, ummm, "wise" you get. There is still something to learn. Laughing

Fantastic news for you Jim- Keep eating the Junk and drink and everything- It's obviously working for you. Wink

Your a real treasure for us here. Keep up the hard work.
_________________
Thinking of you Inica

*Administrator*

~Nose Cancer~
~Car Accident- Broken Back, Ribs, Spleen
Sternum~
~Continous Cervical Cancer~

My Story-
http://cancerforums.net/viewtopic.php?t=6731

Smile

9 Lives and still kicking Smile

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