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amylee27
New User
Joined: 09 Oct 2007
Posts: 7
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 Posted: Sun Nov 11, 2007 8:22 am Post subject: Bad news.... |
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| Another update on my mums situation...as you know she was given great news 2 weeks ago..that she doesn't need kemo only some radiation. Well it turns out that the doctor is an idiot and she DOES need kemo...in fact she is at very high risk of it coming back and she has 5 different types of cancer and she will be starting kemo and radiation next friday..we are very upset and angry about this. My mothers hopes were high and she was feeling very blessed and lucky about her first lot of news. I mean she was already prepared for it before they told her she didnt need it but it's just very disappointing and upsetting to be told you were misinformed..I don't really know how to get past it..I am so angry for my mum & I'm not happy about what that doctor has done. He has completely turned my mums world around in a matter of 2 weeks and he will see nothing of it and just continue on with his daily life. Please comment if you want..I am having trouble coming to terms with this. |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 3930
Location: Tennessee
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| Posted: Sun Nov 11, 2007 8:58 am Post subject: Re: Bad news.... |
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Oh Amylee, I very sorry about this "change" in your mother's original diagnosis. You say she has 5 different "types" of cancer? Are they just breast cancer in five different areas of her body? That is what I think you mean because 5 primary cancers are very, very rare if not unique. I do not know what all "changed" to make the doctor come to a new diagnosis. His she had additional tests run? Did the doctor she take a second look (or, God help him, a first look) at scans? I can hear your frustration and anger. It is one thing to adjust to the fact that you have cancer but do not need chemo. But then to have to adjust to the fact that you (or in this case, your mother) need to have chemo must feel like the rug has been pulled out from under your feet; you are still trying to regain your balance.
My thoughts and prayers are with you and your mother.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/ |
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Muttsmom
Senior User
Joined: 30 Sep 2004
Posts: 631
Location: Northern AL
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| Posted: Sun Nov 11, 2007 3:30 pm Post subject: Re: Bad news.... |
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I'm thinking the same thing Jim. It must be 5 different tumors vs 5 different primary's.
As far as your mom having to have chemo, it's doable. It's not fun, but not the horror stories that you heard way back when. I'd much rather have chemo (which I did) and give myself every chance possible to kill any cells floating around then not take chemo and it come back in different areas. Even though many Stage IV ladies are stable many years after it came back, that's not what any of us want to see happen.
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Nancy
2/14/02 ILC 43 - 5.5 cm 9+/16 nodes
Stage IIIA er/pr+ Her2-
2/02 MRM
FECx6 radsx33
Tamoxifen - Arimidex (chemo induced menopause)
4/03 SM w/bilat. recon.
9/03 expanders removed
5/04 repair reconst. disaster
10/04 Actonel for bone/joint pain from Arimidex
NED - 5 years
3/07 Diabetes
In memory of Kim 12/1/04 |
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amylee27
New User
Joined: 09 Oct 2007
Posts: 7
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| Posted: Mon Nov 12, 2007 4:04 am Post subject: Re: Bad news.... |
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| Thanks for your comments..I don't really know too much about breast cancer just yet but i do know that the doctor who gave my mum her original "you don't need chemo" speech isn't the doctor who did her surgery and he will no longer be telling my mum anything about her needs etc. The surgeon said he will be taking care of all my mums needs and he will be her doctor for the next ten years. I know there is human error...it happens all the time but that's a pretty huge thing to get wrong and i just don't think that doctor should be practising when he does things like this. I think the 5 types of cancer is probably 5 differnt lumps but the way my mum said it is...she has 5 different cancers under her arm & breast. Well anything else you guys can tell me I'd really appreciate it. It's good to talk to people who have gone through or is going through similar situations. Amylee. |
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Muttsmom
Senior User
Joined: 30 Sep 2004
Posts: 631
Location: Northern AL
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| Posted: Mon Nov 12, 2007 7:38 pm Post subject: Re: Bad news.... |
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Why is a surgeon calling the shots for your mom's cancer care? An oncologist is the kind of doctor who's speciality is cancer. I love my surgeon, he's a great surgeon, BUT he's not an oncologist. I wouldn't want anyone who doesn't specialize in the specific disease treating me.
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Nancy
2/14/02 ILC 43 - 5.5 cm 9+/16 nodes
Stage IIIA er/pr+ Her2-
2/02 MRM
FECx6 radsx33
Tamoxifen - Arimidex (chemo induced menopause)
4/03 SM w/bilat. recon.
9/03 expanders removed
5/04 repair reconst. disaster
10/04 Actonel for bone/joint pain from Arimidex
NED - 5 years
3/07 Diabetes
In memory of Kim 12/1/04 |
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In
Site Admin
Joined: 18 Jul 2007
Posts: 1350
Location: AUSTRALIA
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| Posted: Mon Nov 12, 2007 8:25 pm Post subject: Re: Bad news.... |
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Ditto. I would really check that out.
Hard when you don't have any information about everything...Maybe you could ask to be noted as a soul carer. etc. so you can ask dr information, results etc. on you and your mum's behalf- then if she doesn't want to know- you do.\
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Thinking of you Inica
*Administrator*
~Nose Cancer~
~Car Accident- Broken Back, Ribs, Spleen
Sternum~
~Continous Cervical Cancer~
My Story-
http://cancerforums.net/viewtopic.php?t=6731
 9 Lives and still kicking |
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Cindy
Senior User
Joined: 01 Dec 2004
Posts: 156
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| Posted: Sun Nov 18, 2007 2:55 pm Post subject: Re: Bad news.... |
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The thought of chemo is definitely a scary thing. I know I was scared to death. However, it wasn't as bad as I was expecting. Not a walk in the park...but not horrible, either. Here is a link for tips to help your mom get through it: www.truefacesofbreastcancer.org/tips.htm
Chemo is not as bad, today, as it was in the olden days your mom may be remembering. They have really good anti-nausea meds, now. Your mom may also be really afraid of losing her hair. I know most women are. For me, losing my hair was not traumatic. I bought about five wigs, though I didn't like having to wear them. I wore them in public and went "au natural" around the house and also wore a scarf in front of my kids and grandkids, when I visted them or they visited me. For some reason, I couldn't go natural around anybody...but me.
Keep us updated on how your mom is progressing through chemo. I wish her the best.
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Where is the cure???
www.truefacesofbreastcancer.org
www.diepbreastreconstruction.org
www.bcsisters.org/forum
www.mybreastcancerstore.com |
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