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Metastatic Melanoma and need a miracle! What is this ?
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sodapop
Senior User


Joined: 03 Sep 2007
Posts: 178
Location: Orange County
PostPosted: Mon Nov 12, 2007 1:10 pm    Post subject: Re: Metastatic Melanoma and need a miracle! Reply with quote
OK, so now I'm an experienced user, Very Happy

I better start making all my posts count as I move closer to Inica in total posts, lmao, Razz Wink

Appointment Tuesday with the Radiation Oncologists to plan my WBRT!

I'm nervous, which doesn't usually happen to me, but this seems to worry me more then anything else, Crying or Very sad

Wish me luck!
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Can miracles happen?

http://cancerforums.net/viewtopic.php?t=7254

Sodapop--aka "the survivor"!
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brainman
Site Admin


Joined: 13 Oct 2005
Posts: 3319
Location: Tennessee
PostPosted: Mon Nov 12, 2007 4:17 pm    Post subject: Re: Metastatic Melanoma and need a miracle! Reply with quote
sodapop, good luck at your appointment and with WBRT. You might feel tired after each treatment but you will still be able to post and catch up to Inica Wink
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Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/
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In
Moderator


Joined: 18 Jul 2007
Posts: 1278
Location: AUSTRALIA
PostPosted: Mon Nov 12, 2007 8:37 pm    Post subject: Re: Metastatic Melanoma and need a miracle! Reply with quote
Ha-ha sodapop- you wish. All it means is I have a slightly less boring life as you. Laughing

Too much time on your hands?? Razz

Hehe- anyway good luck- hope al goes well. And even though it might mean more post..lets us know. Smile
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Thinking of you Inica


*Administrator*

~Nose Cancer~
~Car Accident- Broken Back, Ribs, Spleen
Sternum~
~Continous Cervical Cancer~

My Story-
http://cancerforums.net/viewtopic.php?t=6731


Smile 9 Lives and still kicking Smile
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sodapop
Senior User


Joined: 03 Sep 2007
Posts: 178
Location: Orange County
PostPosted: Sat Nov 17, 2007 11:31 pm    Post subject: Re: Metastatic Melanoma and need a miracle! Reply with quote
Thanks Inica and everybody else!

Update:

I'm currently staying in a hotel, down by the hospital going through my WBRT. I've had 2 treatments and will continue until Wednesday, then back again on Monday thru thursday to finish up the 10 total treatments.

So far, not so bad. Just some really minor stuff. I got a headached the first night and the second night my jaw line, from my ear down was soar on touch, I have no idea what that's all about but it went away.

I am taking steroids, 2 a day, dexamethasone??spelling, and it makes me really hungry, lol, Laughing! I guess it works out because the chemo makes you not so hungry. Kind of a balance.

I will keep the updates coming as I fight these aliens out of my body.
Cool
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inkworks
Regular


Joined: 23 Oct 2007
Posts: 20
PostPosted: Mon Nov 19, 2007 10:38 am    Post subject: Re: Metastatic Melanoma and need a miracle! Reply with quote
Hi sodapop. I haven't posted in here before but I have been checking in regularly to keep up with your progress. I just wanted to let you know that i'm thinking of you. I hope your treatments are going well and I will look forward to your next post.

kind regards

Kim
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sodapop
Senior User


Joined: 03 Sep 2007
Posts: 178
Location: Orange County
PostPosted: Wed Nov 21, 2007 11:48 pm    Post subject: Re: Metastatic Melanoma and need a miracle! Reply with quote
Thank you, Kim, I appreciate it!

Very Happy
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Can miracles happen?

http://cancerforums.net/viewtopic.php?t=7254

Sodapop--aka "the survivor"!
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sodapop
Senior User


Joined: 03 Sep 2007
Posts: 178
Location: Orange County
PostPosted: Sat Nov 24, 2007 8:51 pm    Post subject: Re: Metastatic Melanoma and need a miracle! Reply with quote
Sodapop, in the house!

I just would like to say that I can feel some miracles floating in the air! I'm going to grab one while they're still floating around. Wink

Thanks for witnessing this, Laughing
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kirst
New User


Joined: 24 Nov 2007
Posts: 6
Location: australia
PostPosted: Sat Nov 24, 2007 9:34 pm    Post subject: Re: Metastatic Melanoma and need a miracle! Reply with quote
hi sodapop
i was just wondering if you could tell me what WBRT is as i also have metastatic melanoma i have mets in my lung kidney and breast my oncologist has said that i can only really try trials and at last resort they may try chemo but i am a 31yo mother of 2 beautiful girls aged 1 and 2 and have a great partner but i am looking for something that will hopefully have a good outcome
cheers
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sodapop
Senior User


Joined: 03 Sep 2007
Posts: 178
Location: Orange County
PostPosted: Sat Nov 24, 2007 9:53 pm    Post subject: Re: Metastatic Melanoma and need a miracle! Reply with quote
I'm so sorry to hear that!

I wonder why they wouldn't try Interleukin-2 first, or Chemo if that doesn't work? Have they mentioned that at all? If those don't have any results, then clinical trials. Did they mention any particular trial?

WBRT is whole brain radiation treatment.

You're in my thoughts and prayers now, this is a horrific disease, and we need to fight it all the way.

Ask your Dr. why he/she doesn't want to try Interleukin-2 or Chemo. The Chemo is doing well for me.

I hope this helps.
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Can miracles happen?

http://cancerforums.net/viewtopic.php?t=7254

Sodapop--aka "the survivor"!
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In
Moderator


Joined: 18 Jul 2007
Posts: 1278
Location: AUSTRALIA
PostPosted: Sat Nov 24, 2007 10:21 pm    Post subject: Re: Metastatic Melanoma and need a miracle! Reply with quote
Sure it was a miricle and not that skunk you were talking about??? Laughing

seriously I hope so- as you are truely the one who deserves it. Good Luck and were catching mits- (bigger hands the better Wink )

Razz
_________________
Thinking of you Inica


*Administrator*

~Nose Cancer~
~Car Accident- Broken Back, Ribs, Spleen
Sternum~
~Continous Cervical Cancer~

My Story-
http://cancerforums.net/viewtopic.php?t=6731


Smile 9 Lives and still kicking Smile
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sodapop
Senior User


Joined: 03 Sep 2007
Posts: 178
Location: Orange County
PostPosted: Sat Nov 24, 2007 10:25 pm    Post subject: Re: Metastatic Melanoma and need a miracle! Reply with quote
No, they were miracles, I saw them floating above my head, Wink

What is mits--miracles in the sky?
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Can miracles happen?

http://cancerforums.net/viewtopic.php?t=7254

Sodapop--aka "the survivor"!

Last edited by sodapop on Sat Nov 24, 2007 10:33 pm; edited 1 time in total
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In
Moderator


Joined: 18 Jul 2007
Posts: 1278
Location: AUSTRALIA
PostPosted: Sat Nov 24, 2007 10:28 pm    Post subject: Re: Metastatic Melanoma and need a miracle! Reply with quote
thought you were American- Catches mitt- Basball. Razz

Big hands for big catching- it helps you guys catch Wink
_________________
Thinking of you Inica


*Administrator*

~Nose Cancer~
~Car Accident- Broken Back, Ribs, Spleen
Sternum~
~Continous Cervical Cancer~

My Story-
http://cancerforums.net/viewtopic.php?t=6731


Smile 9 Lives and still kicking Smile
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kirst
New User


Joined: 24 Nov 2007
Posts: 6
Location: australia
PostPosted: Sun Nov 25, 2007 4:39 pm    Post subject: Re: Metastatic Melanoma and need a miracle! Reply with quote
No they said they want to use chemo as a last resort didnt mention Interleukin.. The trial they want to put me on has 2 drugs one
which is a manufactured antibody and the other which has been shown to boost the immune system.....
I did try radio wave therapy but have to wait till mid dec for my results which is a bit of a bummer but its not to far away now
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sodapop
Senior User


Joined: 03 Sep 2007
Posts: 178
Location: Orange County
PostPosted: Sun Nov 25, 2007 5:13 pm    Post subject: Re: Metastatic Melanoma and need a miracle! Reply with quote
The drug that supposed to boost immune system is probably Interleakin-2, sometimes called Aldesleukin and/or Proleukin. It's used in a lot of trials combined with an antibody like you said or treated White Blood Cells in the lab that they put back into you to help fight the tumors.

What was the radio wave therapy all about, I haven't heard that on yet.

Let us know how it goes.
_________________
Can miracles happen?

http://cancerforums.net/viewtopic.php?t=7254

Sodapop--aka "the survivor"!
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brainman
Site Admin


Joined: 13 Oct 2005
Posts: 3319
Location: Tennessee
PostPosted: Sun Nov 25, 2007 5:39 pm    Post subject: Re: Metastatic Melanoma and need a miracle! Reply with quote
sodapop, it is also called Radiofrequency Ablation. An electrical current at high frequency (around the frequency of a radio) is passed through the tumor. It supposedly cooks the tumor. I have only heard of its successful use with liver cancers although I do know that research is currently underway to see if it helps with breast cancers and other cancers as well.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/
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