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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 3753
Location: Tennessee
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 Posted: Tue Dec 04, 2007 10:45 am Post subject: My Story - Part 2 |
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I figure I should start Part 2 although there as been no major change since August when I had my last MRI.
Something I do not think I have told you is that after a life-long dependence on my voice being clear and strong, my voice is failing me. It started in 2005 after my surgery and has not gotten worse or better since then. I now stutter. Some days my voice is very normal... like it used to be. But some days it is very bad. Sunday was a bad day in terms of my speaking clearly. I went to church but was so embarrassed that I left as soon as the minister said "Amen". Before service so many people approached me asking how I was doing and it was almost impossible to tell them. Going to church should be an uplifting experience but I felt worn down by all the care I was receiving  . I know they meant well. However, I still felt embarrassment about not speaking clearly.
Today, I am back to normal. Go figure.
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Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/ |
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In
Site Admin
Joined: 18 Jul 2007
Posts: 1345
Location: AUSTRALIA
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| Posted: Wed Dec 05, 2007 4:04 am Post subject: Re: My Story - Part 2 |
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Maybe Anxiety plays a big part in it...The more you go to church- cofession.  The less you'll have people wondering how you are.... 
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Thinking of you Inica
*Administrator*
~Nose Cancer~
~Car Accident- Broken Back, Ribs, Spleen
Sternum~
~Continous Cervical Cancer~
My Story-
http://cancerforums.net/viewtopic.php?t=6731
 9 Lives and still kicking |
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Noid
Experienced user
Joined: 16 Oct 2007
Posts: 57
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| Posted: Wed Dec 05, 2007 10:00 pm Post subject: Re: My Story - Part 2 |
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| There may be something that could help. Does the stuttering get worse when you are around people? If so, maybe an anti-anxiety pill may help you with some of your symptoms. |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 3753
Location: Tennessee
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| Posted: Wed Dec 05, 2007 11:53 pm Post subject: Re: My Story - Part 2 |
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I notice it more when I am around people because I try to avoid talking to myself .
It might have to do with stress but I have had this stuttering problem at times of low stress as well. And I have had "good days" when I was really stressed out about something.
It might have something to do with feeling tired. But, again, I have had times when I was really very tired and could talk normally.
My seizures do affect my ability to speak. In fact, that is their major presentation. So I think it is just post surgical scarring... at least that is what my neurologist told me.
Just one of those "little" things cancer has thrown my way that I have to adjust to.
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Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/ |
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dragonmom4
Experienced user
Joined: 01 Oct 2007
Posts: 82
Location: North Dakota
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| Posted: Thu Dec 06, 2007 12:21 pm Post subject: Re: My Story - Part 2 |
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hey Jim, how you doin? I ran into one of my counselors from last yr for sexual abuse survivors group; she told me on Thanksgiving day her brother announced to the family he has brain cancer. the docs found two seperate growths ( tumors duh ) on the left side of his brain. I gave her the web info for chooshope.com but couldn't remember the link for here. she's suppose to call me tonight to get it from me. will it be alright if i told her about you and maybe her family and brother could talk to you? the family is very discouraged and they really need to talk to someone who has beaten brain cancer and could give them some hope. well gotta go pick up my son from preschool. talk to you later, in my heart always, Kat
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My Story : http://cancerforums.net/viewtopic.php?t=7371
~~ survivor fighter; been shot, stabbed, 3rd degree burns, head rammed into window, molestation, rape, and Cervical Cancer twice, been in remission over 9 mnths through level 3 malignance...~~~
AND I'M STILL KICKING!!!! |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 3753
Location: Tennessee
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| Posted: Thu Dec 06, 2007 11:57 pm Post subject: Re: My Story - Part 2 |
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Kat, I will be glad to talk with him and help him in any way that I can. I am very sorry about his cancer and tell him about my experience too. It is highly unusual for a person to have two gliomas. Maybe they are connected... It will be interesting to talk with him. Sad, but interesting.
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Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/ |
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dragonmom4
Experienced user
Joined: 01 Oct 2007
Posts: 82
Location: North Dakota
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| Posted: Fri Dec 07, 2007 1:33 pm Post subject: Re: My Story - Part 2 |
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Thanks Jim
_________________
My Story : http://cancerforums.net/viewtopic.php?t=7371
~~ survivor fighter; been shot, stabbed, 3rd degree burns, head rammed into window, molestation, rape, and Cervical Cancer twice, been in remission over 9 mnths through level 3 malignance...~~~
AND I'M STILL KICKING!!!! |
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pablitosan
New User
Joined: 09 Dec 2007
Posts: 9
Location: Ann Arbor, MI
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| Posted: Mon Dec 17, 2007 11:16 am Post subject: Hang in there |
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Jim, I just read your whole story here, and all the comments.
You're amazing. And you're doing us all a huge service. I don't think anybody except another cancer patient can understand exactly what this is like. Hang in there.
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Paul
Hairy cell leukemia, diagnosed end October 2007
Blog: http://hcljournal.blogspot.com/ |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 3753
Location: Tennessee
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 3753
Location: Tennessee
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| Posted: Wed Feb 06, 2008 9:13 am Post subject: Re: My Story - Part 2 |
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Just thought I would update you on my story.
I am almost totally asymptomatic at this time. I still have noticeable right hand and arm weakness and I stutter some days. I also continue to have balance problems so I do not dare climb on a ladder even to change a light bulb . But now of this is a significantly different from when I had my last MRI in August 07. My next MRI is Feb 19th. That will be my next update for all of you. Thanks to all of you for your support and encouragement over these years. I wish I had started a forum like this back in 1992-3 when I really needed one .
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/ |
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justBoB
New User
Joined: 01 Feb 2008
Posts: 7
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| Posted: Wed Feb 06, 2008 10:16 am Post subject: Re: My Story - Part 2 |
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| Hey, Good luck with your next MRI, I hope everything goes well!! |
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Tammy
Regular
Joined: 27 Nov 2007
Posts: 39
Location: New Brunswick, Canada
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| Posted: Fri Feb 08, 2008 1:46 pm Post subject: my Story - part 2 |
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Hi Jim, how are you feeling today. It get rough at times uh. I really feel for you, as you are dealing with your own cancer, yet you are here to help us. I think of you as an inspiring and selfless person. You are one of a kind,there are very few of you left here on this earth. I am sorry to hear about your complications and really feel for you. I wish that you will have better days ahead, take care my friend! We are always here for you as you are for us. Hang in there, as always you are in my thoughts and prayers.
A friend Tam~ *hugz* |
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Aimster
Regular
Joined: 03 Jan 2008
Posts: 38
Location: Nebraska
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| Posted: Fri Feb 08, 2008 3:11 pm Post subject: Re: My Story - Part 2 |
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I'll be thinking of you and your upcoming MRI. Praying for great news!
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Amy (39)
*low-grade oligoastrocytoma in right frontal lobe, with 1p/19q codeletion and early anaplastic features (first observed Aug. 2007; diagnosed Jan. 2008)
*gross total resection July 2008 at Mayo Clinic
http://cancerforums.net/viewtopic.php?p=28526 |
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pbj11
Site Admin
Joined: 12 May 2007
Posts: 1006
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| Posted: Fri Feb 08, 2008 11:41 pm Post subject: Re: My Story - Part 2 |
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Jim,
You simply rock!
Good luck on the upcoming tests. Keeping you in my thoughts and prayers.
PBJ
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Husband diagnosed with NSCLC Stage IV. (Non-Small Cell Lung Cancer) Fought & lived 2 1/2 years with multiple lines of treatment.
Post describing our battle: http://cancerforums.net/viewtopic.php?t=7026&postdays=0&postorder=asc&start=0 |
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Mama 2 2
Regular
Joined: 29 Nov 2007
Posts: 46
Location: Sunshine Coast, BC
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| Posted: Sun Feb 10, 2008 9:52 pm Post subject: Re: My Story - Part 2 |
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Hey Jim,
We'll be thinking of you on the 19th and hope all goes well. I know how worked up we get around MRI days (we don't go again until Mar 26th and I'm already dreading it . . . ).
I really appreciate how much you put into this site - and hope you know how much you are valued.
~C~
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~Life's too sweet to be bitter~
Our Story: http://www.cancerforums.net/about7982.html |
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