Diffuse Large B Cell NHL

karalee05 · Posted: Wed Nov 14, 2007 5:26 pm Post subject: Diffuse Large B Cell NHL

I'm stage 4E getting ready to do my 4th treatment on Thursday.. anybody else stage 4? Id love to know of some people who actually got into remission with this..

Im also on every 2 week chemo instead of every 3, and also have started a new regimen called DR-COP.. (Doxil, Rituxan, Cytoxan, Oncovin, Prednisone) due to my left ventricular function taking a dump from 69% to 55%.. (Adriamycin caused).. is anyone else on Doxil instead of Adriamycin? Theres a few clinical trials out there right now comparing the 2, thinking Doxil might actually be taken up by tumors better.

What is everyone else doing? Im nervous that Im not doing the standard CHOP-R anymore.. although I did get 2 rounds of it.

Kara
_________________
Stage 4E Non-Hodgkins Lymphoma diffuse large b cell, multiple areas

brainman · Posted: Thu Nov 15, 2007 3:21 pm Post subject: Re: Diffuse Large B Cell NHL

Kara, I am so sorry about your cancer. Although I do not have any answers for your question, I did want to reply and let you know that you are in my thoughts and my prayers.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/

Cubie · New User Joined: 27 Nov 2007 Posts: 8 Location: Hong Kong

Hi Kara,

I'm also in stage 4, and have a sub-type of Diffuse Large B-Cell called Mediastinal Large B-Cell Lymphoma.

I was given 6 courses of R-ProMace Cytabom (Rituxan, Adriamycin, Etoposide, Prednisolone, Cytarabine, Bleomycin, Vincristine, Methotrexate) then 2 courses of a salvage regimen, R-DHAP (Rituxan, Dexamethasone, Cisplatin, Cytarabine)

All involved sites except the main tumor in my chest cleared up after 3 chemos, but after a total of 8 the main tumor was still there. (It had shrunk to 1.4cm x 1.0cm from an initial size of 10cm x 7cm x 12cm). My doc said i've had enough chemos so I underwent radiotherapy to get rid of the residual tumor. My doc is confident that I will achieve a remission after this (I will have another PET scan soon to find out!)

Take care,
Cubie

Corvette · Regular Joined: 13 Nov 2007 Posts: 29 Location: North GA

For some reason chemo doctors don't want to mention radiation until that is all that is left. After my transplant I still had a small amount of tumor left. I was told to see a radiation oncologist as soon as possible. I found out after talking to him that secondary cancers are less likely with radiation than that of some chemo drugs. My tumor that refused to respond to chemo and didn't go away completely disappeared completely with 30 days of radiation. I recommend anybody with a tumor to talk to a radiation oncologist.
_________________
Wayne
Male 56 years old
NHL Folicular Large Cell
Two years of Chemo followed by a SCT
Cancer free for almost two and a half years!

nikijmac4 · Posted: Wed Dec 26, 2007 3:09 pm Post subject: Re: Diffuse Large B Cell NHL

hello
i am 26 and have nhl large diffuse b call, i am only stage 2 and have had 4 courses of chemo, i have 2 left to go, i too am having tretament every 14 days but am on r chop , hope we can chat
niki

narrowSKPE · New User Joined: 04 May 2007 Posts: 3 Location: Chennai

@Kara:
You will always be in my prayers Kara..
I too was diagnosed with diffuse Large B cell mediastinal Lymphoma on Jan1st 2007 Smile

with tumor dimensions measuring 14cm X 12cm X 9cm).
Kinda life got back to normal now. Received aggressive chemo and radio and wat not. Now back to sports and gymming..
CHOP-R is the standard adopted by onco s worldwide although i ve heard
Doxil is working for a few cases. Please consult an experienced onco who can clearly take smart decisions on the course of your treatment based on your response to the drugs.

Yes, CHOP-R is dreaded... feels like making a trip to the execution chamber each time ... but are we left with another option dear?!

@ niki, Cubie...
Nice knowing you. Please connect with more ppl and lets get more involved with educating the crowd.

karlrogne · New User Joined: 10 Jan 2008 Posts: 1

I leave today, headed to Stanford to start REPOCH. I understand it was recently published for NHL large B cell. I am told it has a much better cure rate than RCHOP.
Wish me luck and good luck to you

mrekounas · New User Joined: 14 Jan 2008 Posts: 1

NHL large cell diffuse after 11 years still in remission. I still have joint pain from the treatments, still seem to be a bit forgetful from the chemo, and I get tired easily, but other than that, I lead a normal life and have had a child. I hope this gives you all a bit of hope realizing that this can be beat.

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