silent

Aimster · Regular Joined: 03 Jan 2008 Posts: 38 Location: Nebraska

Tammy, I am so happy hear about your MRI results! What great news. I hope you will find some relief from your symptoms and have lots of good days - filled with dancing in the rain Very Happy

Will be keeping you (and your gram) in my prayers.
_________________
Amy (39)
*low-grade oligoastrocytoma in right frontal lobe, with 1p/19q codeletion and early anaplastic features (first observed Aug. 2007; diagnosed Jan. 2008)
*gross total resection July 2008 at Mayo Clinic
http://cancerforums.net/viewtopic.php?p=28526

ksplat · Posted: Fri Feb 08, 2008 4:14 pm Post subject: Re: silent

Hi Tammy
It was exciting to hear about your latest MRI! I am so happy for you. This news will be a great SPIRIT lifter.
Although you have been suffering terribly with this horrible diagnosis & I could never know how deeply this diagnosis has affected you & your live. It is an inspiration to me to read you're positive comments about your illness & to know you can focus on these positives through it all.
I pray your SPIRIT continues to "shine" through these difficult times re your illness.
My Prayers & thoughts are with you always.
Cheers, Aussie Angie.
_________________
Brother diagnosed with GBMIV Feb 07
Treatment: Radiotherapy, Temodal, Gliadel Wafers, Dexamethasone, Keppra, Dilantin, Clexane
Went to our Heavenly Father after a 19mth battle,, 47 years young.
23 Sep 2008
http://cancerforums.net/viewtopic.php?p=19227

"Without Faith We Have Nothing"

brainman · Posted: Fri Feb 08, 2008 6:45 pm Post subject: Re: silent

Tam, thanks for the update. Keep a close watch on your symptoms and do not hesitate to go through with surgery when that time comes. By the way, thank you for your kind words to me on my story thread Smile

.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/

Tammy · Posted: Fri Feb 15, 2008 7:34 am Post subject: Silent

Good morning everyone Smile

. I don't know if you are all getting the snow we here in Canada are receiving... Most snow in years!! I use to crab about it now I try to enjoy it, learning to look upon things differently. I was also wondering if anyone experience a feeling of drunkenness, very weak and have a hard time to think and speak even walk. I had this before but yesterday was the worse for me. I had to lay down, fell asleep and only awoke when my son came in from school, I was sleeping for almost 4 hours>>?. Maybe over tired but feeling different. I will discuss this with my doctor, but was just wondering if anyone here have ever experienced something about the same? Take care and have a wonderful day.

~Thinking always of you~ *hugz*

Tam~

Mama 2 2 · Posted: Fri Feb 15, 2008 5:46 pm Post subject: Re: silent

Hi Tam,

I know about your snow problems out east, but here in western Canada we have the usual 'liquid sunshine' =). Actually, we have certainly had more snow out here than we are used to this year as well, but it in no way competes with what you guys get! We're supposed to get some real sunshine for the next few days though, so we're keeping our fingers crossed!

Sorry to hear about your symptoms . . . my husband has certainly been exhausted lately - he can hardly stay awake once he gets home from work, yet he still insists on making dinner almost every night (he's a trained chef and my cooking is seriously lacking!). I have to help him type up stuff for the program he's teaching each night because he can't stay awake for it. I have to keep nudging him to keep him awake so he can tell me what else to type!

He had some dizzyness the other night too, and some headaches, but nothing like a drunk feeling I don't think. Probably a good idea to check with your doc as there can be so many effects of this nasty thing.

BTW, I read a note from another woman from NB on the Brain Tumour foundation of Canada forum that was having a hard time getting decent care - where do you seek your treatment (If you don't mind me asking)? She was looking for others in the area.

We're heading off from our beautiful sunshine coast to the lower mainland tomorrow for my Grandma's 80th birthday party (it's a surprise), and to visit my husbands parents who just got back from Hawaii. I think my husband (or all of us) should stay home to rest, but of course he insists on coming. I really wish he would rest more but I think he may not want to because he doesn't want to seem 'weak' - but he really needs it. I don't want to push him too much, but I worry he's burning out and not letting his body take care of itself. He refuses to go to bed before me, even though he's asleep on the couch anyway (and usually in less than comfortable positions that end up giving him an ache in his neck). Ah well, I guess when you're 32 you don't want people telling you when to go to bed! But, when your three year old has to keep nudging you to wake up so you can finish reading her a bedtime story - that should be telling you something . .

Take care, and I hope your symptoms clear up!

~C~
_________________
~Life's too sweet to be bitter~

Our Story: http://www.cancerforums.net/about7982.html
www.caringbridge.org/visit/eliasminatsis

Tammy · Posted: Mon Feb 18, 2008 2:30 pm Post subject: Silent

Good day everyone, hope you are all having a nice day!. It's raining here like mad, was suppose to be snow but it changed to rain, *is this from you Mama 2 2?? Ha ha jokin. Needed the rain to take some snow away!~~ Cool

Mama 2 2, First of all I am really sorry for everything you are dealing in your life at this time. My thoughts are with you and your family. Even with reading your story I cant say I know what or how you are feeling inside. Dealing with a loved one who is fighting this nasty thing, finding the strength. I myself am on the other side of the fight. One thing does stand out and I can say and feel is that I adore the way you stick beside your husband, helping him do the things he once did on his own, listening and talking with him, if you only knew how much it helps knowing the one you love is there beside you hand in hand walking through the storm, yes its hard at times but I know I rather have my loved one holding my hand walking along beside me, not leading, not following, just walking hand in hand beside me, listening, helping us in what we want to do and are trying to do. It has to be very hard for you it has to be... I guess God only knows. I know myself I can get very angry inside at times, specially when trying to do things I once did so well and without a flip of a hesitation. Take for instance the snow blower, I have a really hard time now takes a lot out of me, its a big chore for me now. I know I don't do the best of job with things now, but my hubby likes it just the same, I can just YELL but what does that do *sigh*. I sit up at night or fall asleep on the couch leaving my hubby and son go to bed alone, at times its lack of energy to get up and go, but yet at times its because I have to think, just need the time to review certain thoughts in my head and well I fall asleep anyhow I think you get the picture. Mama 2 2 please keep doing what you are for your hubby, he my not show his THANKS all the time but one thing I can bet on is it sure mean a lot, you may feel like you are the only one in the world at this time, lonely, sad, wondering why, but trust me you are the world to him right now. I APPLAUD you, not many stick it through. Keep it all up the love the strength it does wonders for both your souls....*hugz* amazing. I have started telling my husband that he is my shield from the storm.... And it is so true.

Dang almost a novel there ha ha. Now you also mentioned where do I seek my treatment. Well I have been referred to Moncton from Bathust as here we have no-one dealing in this feild, to me I feel I do have a great medical team, yes at times I question the wait, the treatment, is it the right way to go?. But I am learning to just allow myself to trust in them, and whatever they offer, if I am feeling good about it I will undergo with it. To me they have the most knowledge about it and surely have delt with it hundreds of times. But one thing is we don't have enough doctors in this field and large enough place. Not only they deal with N.B, also Nova Scotia and along with P.E.I. Its crazy with this illness, there are more and more cases and sadly there is not enough doctors and resources here. I guess them are the breaks!! Take care now, Off to the shower, yes I know its the afternoon but I just woke not long ago *blushes*...... Embarassed

It's not what you gather,but what you scatter that tells what kind of life you have lived.
Tam~

Mama 2 2 · Posted: Tue Feb 19, 2008 2:13 am Post subject: Re: silent

Hi Tammy - you sure do have a way with words! (I also loved the message you wrote today on Jim's thread . . . ). You can write all the novels you like Very Happy

Also, I guess we did send you our rain because the last few days here have been beautiful!

Thank you so much for your encouragement. My husband mainly insists he's so tired because he doesn't go to bed early enough - which is true in part I'm sure - but he doesn't try to change it and go earlier. He doesn't believe the chemo or anything has had any effect on him. He has also started a new position at work which I think is taking more out of him - though he insists physically its easier, it's a different kind of stress and entails more hours. He's always been a hard worker and takes his job very seriously - it's really admirable, he has an incredibly strong work ethic - and he takes a lot of pride in what he does. He actually can still function very well though - I just try to help him with the typing mainly because he can't stay awake enough to do it. I'm just trying to help make things easier for him so he can go to bed faster as I'm quite fast at typing and he can try to get other stuff done while I type.

We did have a nice time in town this weekend, but now of course he is sick with a cold and nasty cough - which it looks like may be spreading to our little ones. Our 3 yr old has a stuffy nose and is now sleeping on his lap in the rocking chair as I type this, and the baby (4 1/2mos) was coughing some today.

It's great that you have such a great husband as well - someone to give you the support you need. And I thinik that when you feel like yelling, you should do so! Just let out a great big scream! It can be very theraputic - they even have scream therapy these days! Laughing

No matter what we go through though, having that person at your side, as you said, is invaluable. It is also nice to have these places where we can find others in similar situations - and while we are on opposite sides of the fence we can sit on it together! From one side of Canada to the other. And thanks for the info on you med team there - apparently there are only I think 9 neuro-oncologists in Canada (3 in Ont of course!). Even though he has 0 bedside manner, I guess we are lucky to have the one in BC that my husband sees.

Ahh, showers . . . I remember those - before I had a newborn Wink

Cheers, and be well.
~C~
_________________
~Life's too sweet to be bitter~

Our Story: http://www.cancerforums.net/about7982.html
www.caringbridge.org/visit/eliasminatsis

Tammy · Posted: Tue Mar 04, 2008 12:06 am Post subject: Silent

Hey everyone, How you all doing?..... haven't been here in a few. Thought I would check in. I hope you are all doing well. There is so much snow here, have not had this much in ages. I use to complain, but not anymore! I say bring it on!
Well another MRI has shown that there is a presence of a discrete enhancement in the center of my tumor. Doctor says not to worry about it, so I guess its not to much. The little growth was not much, it has went from 5.6 x 4.9 to 6.4 x 4.4 x 4.9 cm, so its not much of a growth. That's comparing it to my MRI on May 14th 2007. Also there are no other abnormal signals in the white or gray matter. No other abnormal enhancement. He says that the report is pretty good. I believe him. I am extra tired lately and sleep a lot, but that comes with the depression I was told, hoping the pills I am on will help me get back on my feet soon. I hate this ride and hope my stop comes soon!! My husband has been very kind and understanding with each day passing, he has finally come to terms with this charade and is beside me 100% now. It means the world, and helps me also. My son is doing amazing in school and that's a grand help, one less worry, actually he was student of the month, WOW..What a grand improvement, the teachers are amazed, as well as I and my family.
Changing the subject a bit, my gram is not well, she is thinking about stopping her chemo pills as they are making her more ill, she has asked my opinion, I cant give that to her, this is her decision, I realize its a large one and truly I will not be able to carry a burden on my shoulders if something was to happen either way. I hope which ever way she chooses, that it will be right way for her. It's late here and I can't sleep with my headache, but sure the pills will kick in soon *cross fingers*, so I should be signing off for now. Take care my friends, Till next time. *hugz*

Tam~ xox

brainman · Posted: Tue Mar 04, 2008 12:36 am Post subject: Re: silent

Tam, it is great to hear from you! "Discrete enhancement in the center"? That is not very common. I mean that it is the center that is enhancing and not the margins. Usually, the center is either becoming cystic or necrotic due to lack of a good blood supply.

I continue to think about and pray for you.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/

Tammy · Posted: Tue Mar 04, 2008 1:14 am Post subject: Silent

Hey Jim =)
How are you? I hope you have been doing ok. I know, doesn't it it sound odd...? But then again I am odd as my friend would say, ha ha, I have to joke about it at times. I keep reading it over and over. Reads as follows;
After injection of gadolinium, it appeared a thin linear enhancement rather that seems to surround the trip the biopsy. Could it be an enhancement inflammatory / scar? I also asked about the presence of a discrete enhancement reticulated intralesionnel emerged from the review anterior. Effect of right frontal mass whose histological diagnosis revealed it is a Grade II oligodendroglioma. The scope of the lesion was left unchanged its signal was slightly remains hand, what I suspected of being largely a biopsy with hemorrhagic sequelae. I have some questions about contrast to the presence of a discreetly raising has increased the central portion of the lesion, reticulated. To be continued. <<<< meaning??
I don't understand most of the medical terms, but that is how it is written on my report. Maybe you can shed some light on it? Thank you A friend

Tam~

It's not what you gather,but what you scatter that tells what kind of life you have lived.

brainman · Posted: Tue Mar 04, 2008 2:25 am Post subject: Re: silent

Tam, I understand everything up to the first comma Laughing

. The radiologist may have dictated his notes and the medical transcriptionist wrote them incorrectly but it seems like a lot of incomplete sentences to me. I actually understand a little more of it.

"a thin linear enhancement rather that seems to surround the trip the biopsy. Could it be an enhancement inflammatory / scar?" After the die was injected, a thin layer appeared and the radiologist is saying in for of a question that this could be an area of inflammation or scar tissue.

"Effect of right frontal mass whose histological diagnosis revealed it is a Grade II oligodendroglioma." He is making a tentative diagnosis based on what he is seeing as a Oligo Grade II.

"what I suspected of being largely a biopsy with hemorrhagic sequelae". Here he is suggesting that the biopsy may have left an area of hemorrhage or pron to hemorrhage.

"I have some questions about contrast to the presence of a discreetly raising has increased the central portion of the lesion, reticulated." This is the part that you mentioned in your previous message... It seems to be slightly "raised" in the center... not necessarily the middle of the tumor as I previously assumed. He might be noticing that it seems to be a little wider than before.

"To be continued." Here is were I get my biggest clue that he is dictating his notes. The is a way for him to the the trascriptionist that his report is not complete yet.

I need to add a disclaimer to this. I might be totally wrong. Laughing

_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/

Tammy · Posted: Tue Mar 04, 2008 12:10 pm Post subject: Silent

Jim, Good Morning *smiles*
First of all thank you for your prompt reply Very Happy

, I knew you would shed some light on this. It does seem to have a lot do incomplete sentences. I did think that myself but figured that was the way it went, each doctor knowing what each other meant and forgetting about the small person like me in between. As you say it could be that he noticed it looks to be a little wider. Now getting the *to be continued*, he may not be done with the report, so nervous reading, not noticing the obvious parts of the report. Do you feel it is a good report so far? I know I shouldn't ask this from you, It's just..... I would like to know from you because you are so knowledgeable/familiar with all of this. As for me its pretty much trying to figure out where the needle fell into the hay stack Confused

. Jim THANK YOU for being here last night. I hope all is well on your end, please take care and talk soon!!

Your Friend Tam~
"Life isn't about waiting for the storm to pass....It's about learning to dance in the rain."

brainman · Posted: Tue Mar 04, 2008 2:06 pm Post subject: Re: silent

Oh, yes, Tam, it does sound like a good report. Any time a report is not flagged, it is a good report Wink

(You would know if it was flagged because the doctor would be concerned and have contacted you).

I am OK. Lack of money is my biggest struggle. Still looking for a job that I can actually do with my health issues and skill set. Anyone interested in hiring an older man with difficulty speaking and a weak right hand/arm and lack of balance who knows a little about a lot of things? Wink

hehehe
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/

Aimster · Regular Joined: 03 Jan 2008 Posts: 38 Location: Nebraska

Tam, I'm glad you got a good report Smile

I'm so sorry to hear that your gram is not doing well. Any updates? Has she made a decision about whether to continue her chemo?

Boy can I relate to the not sleeping thing. I'm having a lot of trouble too. My mind can be like a hamster running on a wheel at night, and I've had problems with this for years. My husband and I used to say that my brain was too full, that it was running wild, that sort of thing ... but now we find ourselves steering clear of those sorts of jokes Rolling Eyes

Jim, hope you can find the right job. I'll be thinking of you. Hope everyone has a nice weekend.
_________________
Amy (39)
*low-grade oligoastrocytoma in right frontal lobe, with 1p/19q codeletion and early anaplastic features (first observed Aug. 2007; diagnosed Jan. 2008)
*gross total resection July 2008 at Mayo Clinic
http://cancerforums.net/viewtopic.php?p=28526

Tammy · Posted: Sat Mar 08, 2008 10:33 pm Post subject: Silent

Hi Amy, and everyone *smile*
How is everyone? As for me,,,,I am surrounded by snow snow and well more snow ha ha. But that's OK it will be gone just as fast as it came!! * crosses fingers*. I am really happy with my report! although, I still worry, and get scared that they might miss something. One of the hardest things for me is to learn and live with this, difficult Sad

, BUT will be better at it as the days go by.
My gram is still taking her chemo so far, still hard on her. The rash she had is much better now. She sleeps ALOT and has the *va vits* as in the runs, LOL. She is so determined. I really hope she can hang on and fight this. I love her so, life will be much different if she was to go. My husband says I am lucky to have known all my grandparents, and yes I know I am, just so darn hard when its their time to go.
What about you Amy how is everything with you? Your family? Are you still working? As for me the doctor hasn't gave me the OK to drive or go back to work yet. They say you have to be seizure free for a year. Jim how you doing? I am sure something will come up sooner than you expect. Myself, I feel you would do well in hospital, help center actually any place where you could help people and family dael and cope with this sickness. I know you would be a great medicine for many people. You are so well at it here online Cool

! Can you imagine in the real what you could do>? Surprised

Look into it, you never know *smiles*
I hope you are all well and wish you the best.
So it's over and out for now and I hope you all have a wonderful weekend!
A friend Tam~ *hugz* xox

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