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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 3931
Location: Tennessee
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 Posted: Sat Nov 24, 2007 11:48 pm Post subject: Re: Newbie here.. |
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Yes, the chemo could cause his stomach problems. I am sorry that they cannot use a lower dosage. However, it he has ruled out chemotherapy all together...
I continue to keep you and your father in my thoughts and prayers.
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Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/ |
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jenugl
Moderator
Joined: 24 Sep 2006
Posts: 193
Location: Cairns, Queensland, Australia
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| Posted: Sun Nov 25, 2007 7:31 am Post subject: Re: Newbie here.. |
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Hi Tam, sorry to hear that all is not going well - is he going to get his stomach checked out? Hopefully they can make him feel better. It must be so hard for you to accept that he is not going to have any chemo. All I can say is - just love him. You know my love and support are with you.
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Love to all. Jen.
_____________________________
Partner of GBMIV survivor - so far.
http://cancerforums.net/viewtopic.php?t=9502 |
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ksplat
Super Moderator
Joined: 26 Apr 2007
Posts: 527
Location: Brisbane, Australia
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| Posted: Tue Dec 04, 2007 10:14 am Post subject: Re: Newbie here.. |
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Dear Tam
Well it's been a week since your last post & I have been reading your posts & following your Dad's story closely.
Has there been any positive progress since your post last week? Just wanted to touch base & let you know we are here to support you in any way we can.
Thinking of you & yours.
Cheers, Angie.
_________________
Brother diagnosed with GBMIV Feb 07
Treatment: Radiotherapy, Temodal, Gliadel Wafers, Dexamethasone, Keppra, Dilantin, Clexane
Went to our Heavenly Father after a 19mth battle,, 47 years young.
23 Sep 2008
http://cancerforums.net/viewtopic.php?p=19227
"Without Faith We Have Nothing" |
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tamayles
Regular
Joined: 07 Aug 2007
Posts: 20
Location: South Australia
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| Posted: Tue Dec 04, 2007 11:34 pm Post subject: Re: Newbie here.. |
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Hi Angie
Thankyou for thinking of us.
Not alot to report really. Dad has stopped all chemo and will not take it again.
He's starting to look a bit better and able to do a bit more now he's feeling better. How long this will last, who knows.
My Dad's sister suggested that he take Apricot Kernels. I've been researching it and they have high levels of vitamin B17 which many believe can help treat if not cure cancer.
As we have our apricots ready now, I'm saving the stones for him. We are certainly not pinning all our hopes on these apricot kernels, but since he's not taking any chemo surely it's not going to hurt, they are natural we have them in our own back yard, really at this stage we got nothing to lose.
Other than that, I guess time will tell with how Dad gets on without chemo. You never know, the radiation could have been enough. Then again, it could come back really quickly.
One thing I have learnt through all of this is no one can predict what will happen. Everyone is different, everyone has different outcomes, and cancer has a mind of it's own.
Tam |
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ksplat
Super Moderator
Joined: 26 Apr 2007
Posts: 527
Location: Brisbane, Australia
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| Posted: Fri Mar 07, 2008 7:27 am Post subject: Re: Newbie here.. |
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Hello Tam
I haven't noticed any updates from you since before Christmas! I do hope your Dad's health is steady at the moment. How has he been since you introduced the "apricot kernels"? I would be very interested to hear any news from you.
I'm certain there are many on this forum who will be wondering how your Dad is doing.
I look forward to hearing from you soon.
Thinking of you.
Regards, Angie.
_________________
Brother diagnosed with GBMIV Feb 07
Treatment: Radiotherapy, Temodal, Gliadel Wafers, Dexamethasone, Keppra, Dilantin, Clexane
Went to our Heavenly Father after a 19mth battle,, 47 years young.
23 Sep 2008
http://cancerforums.net/viewtopic.php?p=19227
"Without Faith We Have Nothing" |
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Tammy
Regular
Joined: 27 Nov 2007
Posts: 39
Location: New Brunswick, Canada
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| Posted: Sat Mar 08, 2008 10:56 pm Post subject: Re: Newbie here.. |
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Hi Tam,
I was reading through the forums and came across yours. I am so sorry to hear about your dad. My prayers and thoughts are with you, your dad and family. This is something thats so very hard to deal with. I hope you find the same comfort in this site as I have. Everyone here is grand and it takes away that alone feeling. I noticed you saying something about apricot kernels. How do you use that, I love eating apricots, but the kernels? I also noticed you never wrote anything for sometime. I do hope all is well on your end. Looking forward to hearing from you.
Tam~ *hugz* |
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tamayles
Regular
Joined: 07 Aug 2007
Posts: 20
Location: South Australia
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| Posted: Mon Mar 10, 2008 1:41 am Post subject: Re: Newbie here.. |
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Hi all
It has been a while since I updated, I guess cause there wasn't much to update on.
We have had some good news in the last couple of weeks. Dad had a PET Scan which showed NO active cancer cells, which is fantastic considering that he stopped taking his chemo.
Dad hasn't been taking the apricot kernels, thinks it's a load of bull dust. His choice.
Anyway, he's still not able to do as much as he used to, but he has been fishing out in his boat the last couple of days, which is the first time since he's been sick nearly 9 months now. So he's pretty tired from doing that, but he enjoyed himself, and got a decent catch of whiting and crabs, which is the main thing.
He was a bit down and depressed I think leading up to the PET Scan, worried about the results, but since getting the good news he's got a new bounce in his step.
They are doing another MRI next month, they are keeping a close eye on it, as we all know, things can change very quickly.
I'll be sure to update when we get the results.
Tam |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 3931
Location: Tennessee
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| Posted: Mon Mar 10, 2008 2:01 am Post subject: Re: Newbie here.. |
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Hi Tamayles, glad to hear from you. And glad that you father is doing as well as he is.
Two comments:
1. Although I have heard of apricot kernels being used to treat cancers, I have not heard the them being used for brain cancers. But with a GBM IV, anything is worth a try. If he is tolerating this form of alternative treatment, good for him.
2. I have also never heard of a PET scan for a glioma. Was it a whole body scan? The reason it is not normally used is the gliomas do not metastasize to other parts of the body. Usually they use MRI scan to follow gliomas.
I am still thinking about and praying from your father.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/ |
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tamayles
Regular
Joined: 07 Aug 2007
Posts: 20
Location: South Australia
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| Posted: Mon Mar 10, 2008 4:29 am Post subject: Re: Newbie here.. |
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Hi brainman
They did an MRI first, but said that they couldn't tell exactly by looking at that because they thought that the radiation had caused a shadow on the results. So Dad had to go back to following week for the PET Scan which was apparently able to show exactly what parts of the tumor were left and said there were no active cancer cells there.
His next scan in April will be an MRI, I guess they will be able to tell if there is any difference from the first one then, and will know if there are any changes.
Beyond that explanation, I have no idea
Tam |
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jenugl
Moderator
Joined: 24 Sep 2006
Posts: 193
Location: Cairns, Queensland, Australia
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| Posted: Mon Mar 10, 2008 6:12 am Post subject: Re: Newbie here.. |
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Hi Tam, good to hear from you. I'm glad your dad has picked up and it's great to read that he got to go out fishing (and actually catch fish - he's doing better then me in that dept  ). How are you holding up. Thinking of you all. Love Jen.
_________________
Love to all. Jen.
_____________________________
Partner of GBMIV survivor - so far.
http://cancerforums.net/viewtopic.php?t=9502 |
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tamayles
Regular
Joined: 07 Aug 2007
Posts: 20
Location: South Australia
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| Posted: Mon Apr 14, 2008 4:55 pm Post subject: Re: Newbie here.. |
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Hi everyone
Just a quick update
Dad went and had an MRI yesterday, and again was given the all clear, no changes YAY!!!!!
They will do another one in about 2 months, they are keeping a very close eye on it, as we all know things can change very quickly.
But for now, he's enjoying getting back on the water in his boat fishing. He's been going out quite regularly, and my freezer is stocked with lovely fish again.
Tam |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 3931
Location: Tennessee
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Aimster
Regular
Joined: 03 Jan 2008
Posts: 38
Location: Nebraska
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| Posted: Tue Apr 15, 2008 9:11 am Post subject: Re: Newbie here.. |
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That is wonderful news!!
_________________
Amy (39)
*low-grade oligoastrocytoma in right frontal lobe, with 1p/19q codeletion and early anaplastic features (first observed Aug. 2007; diagnosed Jan. 2008)
*gross total resection July 2008 at Mayo Clinic
http://cancerforums.net/viewtopic.php?p=28526 |
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tamayles
Regular
Joined: 07 Aug 2007
Posts: 20
Location: South Australia
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| Posted: Mon Jun 16, 2008 5:11 pm Post subject: Re: Newbie here.. |
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Hi all
Another update on my Dad.
Yesterday he had another MRI and all was clear. NO CHANGES.....YAY
He's starting to feel better. As I've said before he's able to go fishing again and he's even starting working again part time. He's a painter, and has a mate he works for on a casual basis, and he's great giving Dad as little or as much as he can handle on a week to week basis.
Dad was very nervous leading up to yesterday's MRI he was expecting bad news, I guess we all hold our breathe each time it comes up. Now he doesn't have to have another one for 3 months.
All is good here, hope things are OK with everyone else
Tam |
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ksplat
Super Moderator
Joined: 26 Apr 2007
Posts: 527
Location: Brisbane, Australia
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| Posted: Mon Jun 16, 2008 5:23 pm Post subject: Re: Update |
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Dear Tam
This is wonderful news from your end of Oz! Fantastic for your Dad to be doing some "normal" things again, especially returning to part-time work.
Now the tough question. What do you believe has contributed to your Dad's improvement. What does your Dad believe has helped him? I would be very interested to know your thoughts?
Thinking of you,
Cheers, Angie.
_________________
Brother diagnosed with GBMIV Feb 07
Treatment: Radiotherapy, Temodal, Gliadel Wafers, Dexamethasone, Keppra, Dilantin, Clexane
Went to our Heavenly Father after a 19mth battle,, 47 years young.
23 Sep 2008
http://cancerforums.net/viewtopic.php?p=19227
"Without Faith We Have Nothing" |
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