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amycat
New User
Joined: 19 May 2008
Posts: 1
Location: Del Mar CA
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 Posted: Tue May 20, 2008 7:46 pm Post subject: Survived Vaginal Cancer, tortured by abdominal lymphedema |
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I was diagnosed with vaginal cancer in Oct. 2007, stage III, had surgery to remove lymph nodes (3) and ovaries (non cancerous). Had chemo and two types of radiation treatments to reduce (successfully) the tumor. I'm glad to be alive and thank my wonderful doctors, but no one can help with with the lymphedema in the abdomen. Anyone out there with a similar problem? I'm going to a lymphedema specialist and another PT for the post surgical pain and scarring. No gal (or guy) needs to be bigger around the middle. I can barely sit in a chair without pain and swelling. How will I work? How will I play with my kids? Will it end? Get better? If it will get worse, don't tell me. I like denial.
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Amy Cat
Vaginal Cancer 2007 |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 5613
Location: Tennessee
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| Posted: Wed May 21, 2008 2:17 pm Post subject: Re: Survived Vaginal Cancer, tortured by abdominal lymphedema |
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Oh Amy, I am so very sorry about your cancer. I can only imagine how difficult this must be for you and your family. I do not have any answers to your questions but feel sure that you will find your own way to continue to live and play with your children.
I am moving your topic to the Cervical and Endometrial Cancer Forum since I think the women there will be better able to relate to your story.
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Jim
Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
http://cancerforums.net/viewtopic.php?t=2405
My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029
Twitter: @JimHawkins54 |
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In
Moderator
Joined: 18 Jul 2007
Posts: 1577
Location: AUSTRALIA
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| Posted: Fri May 23, 2008 6:58 pm Post subject: Re: Survived Vaginal Cancer, tortured by abdominal lymphedema |
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Amy,
Like Jim says you'll find a way to work and play- beacuse you'll have to. It's amazing what we can do and live through- You've already lived through- what most couldn't.
Seeing a specialist is the right way to go- hopefuly they will give you some idea of whats to come, and maybe some ideas and tips on how to do some things. Worst come to worst- you find things you can do with your kids.
Me, Hunter and I build things- that way i can lie or sit on floor. We colour and play with playdoe, so i can stand or sit at table. we even cook- well try. So even though I can't run or spend heaps of time on n even ground etc, we have "our" things. 
_________________
Thinking of you Inica
~Nose Cancer~
~Car Accident- Broken Back, Ribs, Spleen
Sternum~
~Continous Cervical Cancer~
My Story-
http://cancerforums.net/viewtopic.php?t=6731
 9 Lives and still kicking |
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sunnybnny
Regular
Joined: 11 Aug 2006
Posts: 12
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| Posted: Tue Jun 24, 2008 4:04 pm Post subject: Re: Lymphedema |
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| I am so sorry to hear about your struggle with lymphedema! My mother has suffered terribly with it since her breast cancer surgery a few years ago. The first problems began in the arm where she lost the nodes but it affects her legs now most of all with pain, swelling and immobility. It is very easy to disrupt the entire lymphatic system once nodes are removed or damaged. My mother found a measure of relief recently after receiving therapeutic massage at a lymphedema clinic that treats ONLY lymphedema patients. They have also equipped her with massaging wraps that she wears for 1-2 hours per day. By following the treatments regularly she has reduced the swelling a great deal and is able to move around so much better. Perhaps you can find a clinic or therapeutic masseuse somewhere close to you for help or guidance in self-massage that will help move the lymphatic fluid out of your body. It really should not be left untreated. Good luck to you and I hope you find relief soon! |
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Ruth23
New User
Joined: 08 Oct 2009
Posts: 1
Location: Philippines
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| Posted: Thu Oct 08, 2009 12:15 pm Post subject: Keep reading for relevant information |
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Hello Ms. Amy Cat,
You were brave enough to surpass your vaginal cancer. So, I believe that you can also be brave enough not to choose denial in this case.
Keep meeting with your doctors, they are knowledgeable and skilled to help treat Lymphedema. But I believe it will help you a lot as well if you will personally gather for more information about this ailment. I am currently facing an illness too but I just keep on reading and reading relevant sources. Eventually, I am also learning how to manage it in the right way.
***LINK DELETED. PLEASE SEE FORUM POLICIES***
Keep fighting the good fight of faith! =)
God bless you with healing.
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With prayers,
Ruth |
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