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DulcimerGal
Senior User
Joined: 01 Apr 2008
Posts: 108
Location: Virginia
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 Posted: Wed May 21, 2008 12:11 am Post subject: MilliesMom and Star.... |
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How are you both doing?
Haven't seen a post from you in a while......
Hope all is going alright
DulcimerGal
_________________
Rectal Cancer diagnosed Valentines Day 2008
Finished 6 weeks of radiation and chemo 4/23/08
Surgery to remove tumor - June 18th
6 months Chemo to follow |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 3930
Location: Tennessee
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DulcimerGal
Senior User
Joined: 01 Apr 2008
Posts: 108
Location: Virginia
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| Posted: Sun Jun 01, 2008 10:23 pm Post subject: Re: MilliesMom and Star.... |
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Hey Jim
I posted this to MilliesMom and Star - I hadn't seen either one of them post in a while and I'm wondering how they both are doing. Milliesmom ws very active for a while and then stopped posting.
I arrange my view of the forum by topic - so I look at the topic lines - I thought everyone did the same. The post had their names in the subject line - so I thought it was obvious I posted it for them.
Guess I am confused!!! How do others read the forum posts?
DulcimerGal
(and hey - I'm still waiting to hear how you guys are doing.......)
_________________
Rectal Cancer diagnosed Valentines Day 2008
Finished 6 weeks of radiation and chemo 4/23/08
Surgery to remove tumor - June 18th
6 months Chemo to follow |
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milliesmom
Regular
Joined: 18 Mar 2008
Posts: 34
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| Posted: Thu Jul 24, 2008 12:07 am Post subject: This is Milliesmom |
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Hi all,
I haven't been back for awhile as I've been busy with chemo and radiation. Today was radiation day number 17.
I have been trying to live one day at a time and by doing that, I don't know if I've been keeping my head in the sand or just not borrowing trouble. I know I've been very happy living this way.
I saw a pastor speak of living today and not worrying about tomorrow as tomorrow will take care of itself, and I knew this from my Bible teachings, but didn't put it in practice. It works folks. I feel great.
I'm having some problems with radiation proctitis, which is a side effect of radiation. It is the feeling of spasms in the rectum. It can be very uncomfortable, but I just try to do deep breathing to calm the spasms.
My mood is great. I have no worries that I will do anything other than survive this horrible disease. Reading Bernie Siegel's books have been very helpful too.
I've lost most of my hair, which I understood wasn't supposed to happen. My last CEA was 1.3. It went up to 35 and now has been staying at 1.3. I've noticed that my stools are a little larger, making the doctor and I think that the tumor is starting to shrink.
The radiation oncologist also said that if I see mucus in my stool, it means that the tumor is shrinking and is being expelled in the stool. I am seeing lots of mucus.
I should be having my surgery in October. I've had three consults and each one says that the colostomy will be permanent.
I have an email friend who had his reversal yesterday and is doing very well and will be going home tomorrow. I still don't know why he is able to get the reversal and I am not, but a I did see a different radiation oncologist last week and he told me that when they do another colonoscopy and re-state the tumor, they might make the decision to try to do a reversal. It is just at this time my tumor is probably too large, 5.3 cm, to have the reversal surgery.
I don't know if this is the reason or not. One surgeon told me that he hasn't had good results with reversals, only fifty percent and that he doesn't think it is worth the trouble, unless you are very, very young. I'm 52.
I'm back on Folfox and this is the first time since the first week that I'm having some trouble with the cold touch problem. I was eating popcicles the other weeks with Folfox but I'm starting to have some neuropathies so I'm asking them to discontinue it next week and try again the following week. They use another drug, Irinotecan, during the weeks I don't use the Oxaliplatin.
I hope everyone else is doing as well.
Milliesmom |
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