Hi my name is Linda

wings · Posted: Sun Jun 22, 2008 11:56 am Post subject: Hi my name is Linda

In December I was told that I had breast cancer and I decided to have surgery. When I came home from the hospital empty-handy with no info on what would have made me more comfortable. Like a camisole (shirt)with pockets for train tubes and a heating pad for muscle cramps. These items would have made my first night home more comfortable. Please share anything that made your recovery easier for you. I am creating a list for a recovery Care Package.

In · Posted: Mon Jun 23, 2008 1:38 am Post subject: Re: Hi my name is Linda

Hi, Linda- welcome to the Forum,

I'm so sorry about your Breast Cancer and you not having the information and advice/support you needed back then.

Thats why I value here so much more now. It is great for help and advice and even asking questions.

Feel free to post your information help and advice to others in the Breast Cancer Thread.
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Thinking of you Inica

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Rotorhead · Regular Joined: 04 Jun 2008 Posts: 34 Location: Hawaii

Linda-
Welcome! I've gone on a crusade for stuff like this. I'm in the military and I got basically zero information beyond "you have cancer and need to get started on treatment next week" when I was diagnosed. There was no coordination between chemo, radiation and surgical; I had no idea that there were all these other entities available and waiting (like a nutritionist, genetic counseling, psychologist, psychiatrist, etc). I got no literature on cancer, no lab reports or medical journal articles about clinical trials...you get the picture. I felt that I deserved a lot more, so I'm gathering all this info and hope to turn it into something that helps others like me out - whether it be an info package posted at the hospital, a book or an online resource I don't know just yet. Also, an online blog helps me keep my family (which is large and spread across the country) up to date with my experiences.

Basically I'm trying to turn it into something positive, and it's worked for me so far.

Welcome to the forum!
ALoha,
RH
_________________
Diagnosed Stage 3 rectal cancer Nov 07
6 weeks chemo/rad Dec 07/Jan 08
Surgery (TME) 11 Feb 08
6 months FOLFOX started March 08
My blog: http://rotorheadsblog.blogspot.com/

brainman · Posted: Sat Jun 28, 2008 11:50 pm Post subject: Re: Hi my name is Linda

Hi Linda, I am very sorry about your cancer. I moved your post to the Breast Cancer Forum so more people will see it and be able to reply. I did leave a "shadow" in the original forum so anyone seeing your post there can also reply.

You are in my thoughts and prayers. Keep us updated.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/

Vee Smith · Moderator Joined: 12 Feb 2006 Posts: 789 Location: UK

Hi - it horrifies me that this kind of information is not automatically given to newly diagnosed patients when they start treatment. Despite any faults it may have, the NHS does provide it and all the clinics have leaflets about equipment and clothing.

However, I have found the breast cancer sites helpful as well, and in case you haven't tracked them down yet, to start you off here is an Australian one:

http://www.bcna.org.au/content/view/763/1337/

and an American one:

http://www.breastcancer.org/

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