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intheboat
New User
Joined: 25 Nov 2008
Posts: 8
Location: Australia
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 Posted: Wed Dec 10, 2008 7:17 am Post subject: Hi too all. |
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I've had (to my knowlege ) a grade 4 gbm since 07/07 . no symptoms before 1st seizure.
I just passed out going home from work and woke 2days later in hopsital to the news !
Treatment as for many was 6 weeks of radio (it's to deep to operate) with temazolomide . then the 6 months of temazolomide for 5 days each month at a higher dose .
My body coped well i think as other than fits and reduced function on my left all bloods etc were ok , but i'm only in my 30's so prob able to take the chemo etc ..
the Scan in jan 08 showed slight shinkage .
all others have been stable with no new growth , till today.
Amazingly its shrunk an other 37% from 3 months ago !!!!
Its been tough on us all , friends and family , but this has been an early Xmas gift .
I was close to needing a wheel chair to get about in jan ,but now just have a poor left side ,co-ordintion ,feeling and slow nurofunctions.
Hope it will give others hope . I was given 6 weeks worst case last year .
my sympathies are with those not as fortunate with this as me. |
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ennis
Regular
Joined: 19 Nov 2008
Posts: 32
Location: warrington england
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| Posted: Wed Dec 10, 2008 3:07 pm Post subject: hi to all |
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I am so pleased to read about your experience.It has truly given me hope for my grandson. he has started exactly the same treatment this week.I hope you continue to enjoy life as fully as possible.
_________________
live in hope
my story http://cancerforums.net/viewtopic.php?t=11140 |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 5613
Location: Tennessee
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intheboat
New User
Joined: 25 Nov 2008
Posts: 8
Location: Australia
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| Posted: Sun Dec 14, 2008 2:57 am Post subject: Re: Hi too all. |
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| Cheers , I intend to tread this earth for long time to come lol . |
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intheboat
New User
Joined: 25 Nov 2008
Posts: 8
Location: Australia
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| Posted: Thu Apr 02, 2009 8:32 am Post subject: Re: Hi too all. |
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An update , my tumor mass on the last scan was very hard to see the dr had to show us !
Being swapped slowly from dialantin to keppra in case of future chemo probs with dialantin.
But feel pretty good still . Just keep on keepin on thats all i can do .
Good luck to you all x |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 5613
Location: Tennessee
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intheboat
New User
Joined: 25 Nov 2008
Posts: 8
Location: Australia
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| Posted: Thu Apr 02, 2009 7:46 pm Post subject: Re: Hi too all. |
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Thanks BM its a 4 month wean off the dialantin ,so only 3 to go .Less mood sings must be great if yr Bipolar to !
Cheers |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 5613
Location: Tennessee
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intheboat
New User
Joined: 25 Nov 2008
Posts: 8
Location: Australia
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| Posted: Mon May 25, 2009 8:37 pm Post subject: Re: Hi too all. |
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| Update on my condition. I have been told i'm now in remisssion ! However 2yrs on steroids has given me diabetes , so got to see how bad it has affected me so far . Not the end of the world just another hurdle. |
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