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18 Mo old Ava has metastasized neuroblastoma PLEASE HELP! What is this ?

 
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holderfam09
New User


Joined: 03 Feb 2009
Posts: 1

PostPosted: Wed Feb 04, 2009 12:04 pm    Post subject: 18 Mo old Ava has metastasized neuroblastoma PLEASE HELP! Reply with quote

Hello,

Last night my niece was diagnosed with Neuroblastoma after over a week of tests and 2 blood transfusions. She has a lemon-sized tumor on her adrenal gland near, possibly attached to the liver. The cancer has spread to her bones and bone marrow.

The doctors have given Ava a 30-40% chance of survival at this point. They are proceeding with 12-14 months of chemo to try and shrink the tumor to an operable size. They will also perform a stem cell/bone marrow transplant.

I can't even imagine what my brother Mike and his wife Chrisie have been through these last two weeks. They are any a mission to do anything and everything to help little Ava survive this aweful disease.

Here is what I need from you:

Any words of encouragement, survival stories, treatments, doctors, hospitals, advice, and especially prayers. Anything I can pass along to my brothers family to help give them strength and hope in this painful upcoming year.

Below is the link to her Caring Bridge website and pictures.

http://www.caringbridge.org/visit/avaholder


Thanks Everyone!

-Jack Holder
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brainman
Site Admin


Joined: 13 Oct 2005
Posts: 5986
Location: Tennessee

PostPosted: Wed Feb 04, 2009 3:50 pm    Post subject: Re: 18 Mo old Ava has metastasized neuroblastoma PLEASE HELP! Reply with quote

Hi Jack. I am so sorry to hear about Ava's advanced cancer Sad. I cannot imagine what this is doing to her parents. My heart goes out to little Ava, your brother and his wife. They are in my thoughts and prayers.
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Jim
Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
http://cancerforums.net/viewtopic.php?t=2405
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My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
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famkidd
Regular


Joined: 04 Apr 2009
Posts: 30
Location: Kansas City

PostPosted: Tue May 05, 2009 8:08 am    Post subject: Re: 18 Mo old Ava has metastasized neuroblastoma PLEASE HELP! Reply with quote

Hey Jack, wow just reading your post me and my wife were really touched. I know your niece is getting great care, tell your family we said to hang in there. We did think of a scriputre from the bible that brings comfort to many....Psalms 55:22 "throw all your burden.....because He cares for you" hope this helps. Take care and keep us updated!

Famkidd
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Dave & Kizz
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