Myeloma in the brain

payton49 · New User Joined: 09 Feb 2009 Posts: 1

Hello, Im new to this forum.

18 months ago my best fried was treated using chemo for multiple myeloma, she is 50. In October 2008 she complained of pains in spine below her neck and was told the myeloma would not be back that quick, after weeks of going back and forth they found out she had a tumor on her spine, they zapped it with radiation in December. They then decided to try and treat her using Velcade. In January she was admitted to hospital with pnumonia (apoligies for spelling) they found it very hard to bring it under control, she then went on to get cdif and was extremely weak, her body held onto the liquid and she rapidly went down hill. She could not eat was on oxygen and nebulisers to help her breath and we thought we would lose her, so did the doctors. They were treating her with a massive cocktail of antibiotics, antifungals and steroids. She then just slept, couldnt open her eyes and stopped talking, her right leg would niot move and she could hardly move, she was black and blue with bruises. and they had to put a line in her neck as her veins in her arms had collapsed. (she is also steroid induced diabetic) Having done a CT scan they found fluid on the brain and a blocked pocket blocked by swelling - again they upped the antibiotics and antifungals exhausting most drugs on the market. Last Friday they did a Lumber Puncture, today we have found the Myeloma has gone to her brain. She is on Dexamethasone to try and keep the Myeloma at bay but has been told this stuff dose not get to the brain They will be doing for the next 5 weeks a Lumber Puncture and injecting Chemos directly into the spinal colume to go to her brain. Please can anyone tell me if they have heard of this and what the outlook may be. Sorry this is so long.

brainman · Posted: Mon Feb 09, 2009 11:04 am Post subject: Re: Myeloma in the brain

Hi payton49. I am very sorry about your friends MM. I do not have much experience with Multiple Myeloma. My ex father-in-law died of it in the mid 90's after a 6 year fight. Since we did not live close to him, I do not even know what chemotherapy he received. I do know that from time to time he had radiation to specific hot spots for local control for the cancer.

You are a great friend for taking such interest and doing research for your friend. I know we have members who have personal experience with MM and I hope they can answer some of your questions.

You and your friend are in my thoughts and prayers.
_________________
Jim
Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
http://cancerforums.net/viewtopic.php?t=2405
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