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itsjai
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Joined: 07 Feb 2009
Posts: 6
Location: london
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 Posted: Mon Feb 09, 2009 7:51 am Post subject: Diff Diagnoses-bengin tumor/cavernoma/progressive glimo |
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Hi All
I am Jai Thadani
My age is 30 years
I am in staying in UK..
Sorry but I belive to be very descriptive and hence my below topic will be vast.. Sorry for that but plz be patient
On 24th Jan, I got up in the morning with severe headache on my left side..Thought thats funny to have a headache in sleep..
That continue but not as sharp till next day
On 26th Jan, I was on my fruit diet and after returning from Gym at night, suddenly I realized I wasnt able to speak properly. I somehow conveyed to my wife to call 999.
After few mins I was okay but luckily for me ambulance arrived and they took me to A and E... As i reached A and E, I had a fit... I realized very few things after that till next day.. but doctors said the fit lasted for 1-2 mins and i had one more again... But they had given me heavy sedatives..
My CT and MRI prove that there is a 12mm legion of cell in my left temporportiel region..
CT scan of either body proved that there are no more tumors in my body..
They did some TB test and LP (Spinal Tap) test which almost prove it is not TB..
I was in hospital for next 10 days but after that I am almost normal but I do feel some anxiety and feel light headed sometimes...
But there are no tumorish headaches or vomiting or any other signs that should bother people around me...
After consulting with Neuro team, Doctors initially felt there needs to be biopsy on my tumor but then after few days they thought that since there are no further probs and also CT scans on my body/ UltraSound Test on my Testi/ Lumber puncture on my spinal are negtive.. So this seems to be a bengin tumor, in case if it is a tumor ... or it is a cavernoma or may be AV malfunction...Also Docs feel that legion of cells is very small to do biopsy on.. In case if it is a progressive gliomo it wont change prognosis if its not treated for next 2-3 months
So they will wait for another 2-3 months do another MRI and then decide what to do next
Now today is 15th day, I dont have pain but I do sometimes get anxious and also this feel something in my head is gonna knock me off someday, is not helping me...
Now i am just on phenotyne and no further fit ...
Also for last three days, there is a point close to my ear-lob on left side which when i press, gives me a lot of pain... Also there is a very cold sensation every 15-20 mins there...
Last night I was very anxious and was not able to sleep as I felt i will get a paralyses attack on my left side.. seems like excessive internet reading has caught my mind...
I dont know what to do.. wait for another 3 months and keeps fingers crossed or what...
People around me are saying that doctors wont be fool to let you go if it was not safe
Need your opnion.
_________________
thanks and REgards
Jai Thadani |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 5983
Location: Tennessee
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| Posted: Mon Feb 09, 2009 10:49 am Post subject: Re: Diff Diagnoses-bengin tumor/cavernoma/progressive glimo |
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Hi Jai. I am very sorry about your health concerns. If this area of abnormality where in any other organ, I would encourage you to insist on a biopsy. However, gliomas are unique in that they do not grow very fast and do not spread... even to other spots in the brain. It is very common for doctors to wait and see if it grows any before doing a biopsy.
In 1992, mine was about the size of a quarter when it started to cause me problems (mild seizures). Are you on any anti-seizure medication now? I have been on them since the first day.
Keep us informed. I will be thinking about and praying for you.
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Jim
Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
http://cancerforums.net/viewtopic.php?t=2405
My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029
Twitter: @JimHawkins54
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itsjai
New User
Joined: 07 Feb 2009
Posts: 6
Location: london
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| Posted: Thu Feb 12, 2009 6:28 pm Post subject: Diff Diagnoses-bengin tumor/cavernoma/progressive glimo |
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Thanks Brain Man for reply
Yeah i am on phenotyne...
There are few things i need to know ...
First of all is there any symptons that can make me know if that thing in my head is growing...
Also All the above diagnoses seem to be slow growing that need not to be treated unless they become dangerous... M I correct??
Now this thing is in my left temporoparietal region and is 12 mm .. dont know how dangerous it is to do a surgery on it.. Bcoz if that was not that dangerous doctor would have atleast done bioposy on it... but then differnt docs have different approach ... may be this one believes in wait and watch approach...
In your case how long did they wait before treated or doing biopsy on it...
Regards
Jai Thadani
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thanks and REgards
Jai Thadani |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 5983
Location: Tennessee
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| Posted: Thu Feb 12, 2009 7:16 pm Post subject: Re: Diff Diagnoses-bengin tumor/cavernoma/progressive glimo |
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Yes, there are things you can look for to tell whether or not it is growing. However, since the brain basically controls every function in the body, these changes differ from one person to the next based on what part(s) of the brain is(are) affected. I am not an expert on what part of the brain controls what function so I cannot be specific. You might have an increase in seizures since that is how it has affected you so far.
Although you should be alert to changes, my advice is not to become a hypochondriac over every little "change". If you notice a change in seizure, coordination, balance, vision... those you should tell your doctor about.
In my case, they did the biopsy within days of my first seizure. In 1992, they started treatment as soon as I recovered from the biopsy. However, in 2005, I waited from June until November before they made a decision about what to do next.
_________________
Jim
Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
http://cancerforums.net/viewtopic.php?t=2405
My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029
Twitter: @JimHawkins54
FaceBook: http://www.facebook.com/James.Hawking54?ref=profile |
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itsjai
New User
Joined: 07 Feb 2009
Posts: 6
Location: london
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| Posted: Fri Feb 13, 2009 3:47 pm Post subject: Re: Diff Diagnoses-bengin tumor/cavernoma/progressive glimo |
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Thanks BrainMan
One more thing...
Since i have always distance myself from taking medicines. even a small anti biotic used to make me drowsy and sleepy..
This anti-Fit tablets (3 in a day) i dont know if they cause any drowsiness or wat... coz during some times of day my head is bit heavy.. during some other times of day i feel a weird pulse knocking on my left side of head .. the same side where i have my legion of cell ...
I was talking to my GP and she said phenotyne normally tries to sheild ur brain from that unwanted cells in ur brain..
I dont know that heavy-headedness and some weired sensation on my head is due to that tablets..
I have had word with two GPs both have calmed my nervs.. but I feel pity about this NHS system in UK where i cant meet the neurologist.. even if the thing in my head is not that naughty but to calm my nervs i thought he should have met me once ...
Thanks and Regards
Jai Thadani
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thanks and REgards
Jai Thadani |
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brainman
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itsjai
New User
Joined: 07 Feb 2009
Posts: 6
Location: london
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| Posted: Wed Feb 18, 2009 1:43 pm Post subject: Re: Diff Diagnoses-bengin tumor/cavernoma/progressive glimo |
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Thanks BrainMan for those replies..
You know I am posting these queries coz I am quite curious to know that the thing in my head is not a malignant or aggressve legion....
I know the only concrete way to know is to wait for 2 months and have MRI and that will confirm my optimism...
Anyways I will just pose one more query which is like in my head for last few days...
I had my fit on 26th night.. Since then I never had a fit but then i am on anti-fit tablets... I dont know how positive is that sign..
The other thing is that for past 21 days i just had a headache during my sleep that was 3 days back.. I have stopped taking any pain killers and that headache hasnt occured again... Also day by day I am gaining my normalcy back in terms of body strenght etc with no other problems..
On 28th Jan when MRI was done there was a 12 mm legion in my head..
Do you know off how quickly malignant tumor grows and effects the body in anyways...
Sorry for posing to many queries..
Regards
Jai
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thanks and REgards
Jai Thadani |
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brainman
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itsjai
New User
Joined: 07 Feb 2009
Posts: 6
Location: london
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| Posted: Wed Feb 18, 2009 6:01 pm Post subject: Re: Diff Diagnoses-bengin tumor/cavernoma/progressive glimo |
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Thanks Brainman.. I think ur tumor is a good one.. Its made u super-fast...Cant judge from ur speed of replies...
U know I am bit silly in presenting the things..
I will always present all the facts and then ask the question. ..
So by the time reader comes to question it doesnt remain question anymore....
Anyways What I meant to ask, [color=green][b]how fast does a malignant tumor grows and start reflecting in ur behaviour???? ...[/b][/color]
Its been 25 days since I had a fit and I just had a headache ( one-sided in sleep) once...
(Have highlighted the question this time)
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thanks and REgards
Jai Thadani |
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itsjai
New User
Joined: 07 Feb 2009
Posts: 6
Location: london
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| Posted: Wed Feb 18, 2009 6:02 pm Post subject: Re: Diff Diagnoses-bengin tumor/cavernoma/progressive glimo |
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Hey the highlight didnt work... sorryyyyy
_________________
thanks and REgards
Jai Thadani |
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brainman
Site Admin
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