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Pylomyxoid astrocytoma 4 year old What is this ?

 
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Thel
New User


Joined: 24 Sep 2008
Posts: 5
PostPosted: Mon Mar 09, 2009 2:13 am    Post subject: Pylomyxoid astrocytoma 4 year old Reply with quote
My grandson has had two surgeries and the diagnosis is pylomyxoid astrocytoma. It is apparently very aggresive and if not contained by radiation and oral chemo he may according to doctors not live long. We are devastated with this news as he looks and acts perfectly normal. Do you know of any other cases especially success stories.
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brainman
Site Admin


Joined: 13 Oct 2005
Posts: 5617
Location: Tennessee
PostPosted: Wed Mar 11, 2009 1:26 am    Post subject: Re: Pylomyxoid astrocytoma 4 year old Reply with quote
Thel, I am very sorry to hear about your grandson. I do not know anything about pylomyxoid astrocytoma... although I do have a glioma. How old is your grandson? I hope he does well with the radiation and chemo.

You and your grandson are in my thoughts and prayers.
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Jim
Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
http://cancerforums.net/viewtopic.php?t=2405
My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029
Twitter: @JimHawkins54
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Thel
New User


Joined: 24 Sep 2008
Posts: 5
PostPosted: Wed Mar 11, 2009 12:41 pm    Post subject: Re: Pylomyxoid astrocytoma 4 year old Reply with quote
Thanks so much for your response. My grandson in only 4 years old and it is terrible to watch him having to go through all this treatment.
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brainman
Site Admin


Joined: 13 Oct 2005
Posts: 5617
Location: Tennessee
PostPosted: Thu Mar 12, 2009 8:59 am    Post subject: Re: Pylomyxoid astrocytoma 4 year old Reply with quote
Oh, it is never easy to see a child who is sick... especially with cancer. Is he at a major children's cancer center?
_________________
Jim
Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
http://cancerforums.net/viewtopic.php?t=2405
My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029
Twitter: @JimHawkins54
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